My 35 y/o husband, Nicholas, passed away in April from GBM. He was diagnosed in March of last year. I started watching your videos shortly after as I was searching for something to relate to. I am SO overjoyed that you are still fighting. Our sons are 2, 7, & 12 and there are no words for how tough this journey is but know that you all are not alone. Even strangers like myself are thinking of you guys & cheering you on!!!!
My brother Phil just died last weak from a Glioblastoma. He was given two months to live but he fought hard and made 2 years. My prayers go out to anyone who has a loved one with this terrible disease, but please stay hopeful.
@@janety.1323 Are you the TH-cam ethics Police, because the last time I checked there was no such thing! Who are you to say what this family "needs" or doesn't "need" to hear! This family is on the same journey but with different endings! If he passes away, his suffering ends but his wife's does not! This family knows exactly what they're dealing with, they understand the reality of their current situation, and the woman you responded to has gone through the same thing! All she wanted was to let them know they are in her thoughts in prayers, that she had just lost her husband so she understands their situation, and that his wife has support if needed! Just because it wasn't something You'd want hear or something you wouldn't have said, doesn't make You right and her wrong!
My heart goes out to you April, My Husband also passed away to GBM in July 2018 after a 15 month battle. We both understand what Carrie is dealing with.
My daughter was diagnosed in august 2019, operated on in sept and given 12 to 15 months with treatment She refused tx and is now close to passing. It’s an awful disease
Hi Brandon and Carrie. My husband was diagnosed with Glioblastoma December 7th 2020. We have 4 kids 10, 8, 6 and 4. We would love to connect with you guys ❤ Your faith is very inspirational 🙏 May God continue giving you that strength.
God sent me here to listen to your story, I’m prepping my heart and mind for my DIL with Glioblastoma, trying to help my son and his children. I do daycare for her. The story is so very similar. I am not sure what I can learn but I will listen in small bites. I’m also listening to nurse Julie and I’m a retired nurse with more to learn.
We haven't heard from you in a while. My prayers are remaining with you and your family. Please let us know something. Girl believer in power of prayer and the more the better.
I have been watching your journey since I found out my best friend is battling a Glioblastoma. I wanted to learn more. She will not talk about it and I had nowhere to go. Thank you so much for sharing this painful, and blessed journey with all of us. I am praying for you all. Unfortunately, my brother was diagnosed 2 years ago but decided not to tell us (His siblings). I am so sad to say my brother Phil died on Thanksgiving eve of a Glioblastoma. His tumor was inoperable. We are all in shock and miss him dearly. Please, if you can, donate to research in finding better ways to help those with this terrible disease. May God continue to keep you here, pain-free, functional, and grateful. Your children need you
God bless and I hope all is well. I lost my world...my father just 5 1/2 months after his diagnosis. This is a brutal disease. I pray you continue on that path you are on which is a heck of a lot better than my dad. Day 1 of diagnosis I had lost my father as I knew him forever. He was never the same. But. That’s what god wanted. He called his angel home sooner than anticipated. My mom passed just 5 days before him. He took care of her for 20 yrs before he got sick. They were meant to stay together.
Darn, I removed a sentence from my comment having realized I misunderstood something and I LOST the “acknowledging heart” I received from you guys. 😔 Brandon and Carrie, thank you for posting this update. Of course I don’t know you but I think about you all the time. I find myself getting worried if I don’t see any updates. I really admire each of you for your courage, honesty, kindness and selfless sharing of this nightmare you are living.Brandon I hope and pray you are with your family for a long time to come.Carrie, I very much admire you. Ten children to raise AND by your husbands side helping him think through each decision logically and while no doubt you have your moments of weakness, you should be proud of yourself for thinking clearly, ensuring clarity from the doctors and making informed decisions. May God bless you both.and Carrie.....chew all the damn gum you want! 🙏🏼💛🤞 I lost my mom to Glioblastoma last year. She was diagnosed on April 4th and we lost her on April 13th. It’s amazing how very different each situation is. I smile every time I see an update and see the two of you sitting there TOGETHER. Love from Connecticut.
Have missed hearing updates from you. Hope that you're doing okay and that you you were able enjoy your holiday with your family and friends. Continue to pray for you.
Do go for it. I know a good deal about GBM and this is aggressive. The sooner the better. I have been through this journey as Carrie is facing. I am praying for you both. You are in His care!!!!
The two of you are so brave. I know how devastating a Glioblastoma is as my husband was diagnosed in September 2019. underwent a 6 hr craniotomy to remove the tumour, followed by radiotherapy, chemotherapy and was on trials for an immunotherapy therapy run by Oxford University in England. Despite all this, the tumour grew back more aggressively, he passed away 30th June 2020. Very little money is put into brain tumour research in England, I am now a Fund Raiser for a brain tumour charity in the hope that the much needed money which will go into research. A cure must be found, the diagnosis at the moment is a death knell. You have youth on your side, a better chance of living 5 to 10 yrs, my husband was 68. I sincerely hope you get through the surgery, my thoughts are with you, and your beautiful family.
May God bless you both as you walk this path together. My husband is going through treatments for GBM, too. Prayers to you. We look forward to your updates.
In our weakness God's strength is made manifest, be strong in the lord and in the power of His might 🙏 we will have all eternity with Him. God is hurting with us and wants us to know that we will all be with Him soon
My Husband had the same issues with GBM, I am so sorry for you and your entire family. I know first hand how hard this is on the caregiver to a husband with this disease. My husband lost his battle after 15 months in July 2018. My heart goes out to you and your family.❤
We will keep praying for you and your family since our God is above all tumors and cancers. I know what you are going thru, since wife has your same condition since April 2020, 3 post MRI's including one yesterday have no progresión so far. Every day is a blessing and we thank the Lord for each moment. In the end we must all leave and will be there no more pain and suffering. All things are possible, if we believe. Blessings to everyone.
Brandon, you, your wife and children are consistently on my heart. I uphold you all in prayer through Jesus that the drs are guided and the Spirit be upon you providing you strength and comfort in Him. You are a very good man. I offer my assistance if needed. May the Lord guide you through. Kory
I’ve just read an article that researchers at The Royal Marsden In England may have a breakthrough, an experimental new therapy, a new combination treatment, that could be a game changing treatment for some brain tumour patients. It might be worth doing some research into this, it’s in its infancy, but offers hope.
Sending prayers for you and Carrie! I’ve been watching for a update how the surgery went for you ! Always in my thoughts and prayers god bless you and your family
As a devout Christian, I will be praying for you and your family. Thank you for the Christian testimony. You are helping to save souls. That is awesome!
He came ok from the surgery on december 17, I heard he had problem with the vision on left side but maybe I'll be ok after couple days, I hope he is ok, maybe after 3 surgery the miracle happens, we never know the God's purpose. all we have to do is pray with faith, with deep heart believing.
@@raulindiaz3715Thank you for letting me know. I pray he will be ok!! So precious that they are sharing his story with us! I love this couple and their heart for God!! Hoping we hear from them soon
Hello. I just found you today and have been following your videos all night. My husband was diagnosed in early November with an anaplastic astrocytoma stage 3 acting like more like stage 4 he does not have the mutation to respond to treatment and his is said to be non removable. We are lost and and devastated as no treatments seem to work. My husband has lost vision on his left side and all down his left side is numb. My husband has the same problem with his left side vision along with left side numbness down his body. Your story is remarkable and praying for you. I would love to connect with you somehow as we are beginning this journey and I pray for your surgery and recovery. Thinking of you all. As you know this hits us so fast. My husband is 48 and we have a 14 year old daughter. 3 months ago he was coaching her softball team and completely fine. Praying for you and watched all your videos. We are lost and confused with treatments and where to go. Insurance is a nightmare. This is such an awful diagnosis. I will keep praying for you and hope we can connect sometime as we are learning things and not quite yet understanding that this can’t be removed and doesn’t have the Idh1 mutation I’m researching all the time but with his vision impairment it’s hard. Love and prayers to you all. Please reach out if you can. Jennifer Pell. You have been though so much and we are 2 months in doing chemo pill and radiation with only a 10% of it working. There has to be something out there for him. You are all so strong and I’m falling apart looking for options for him. Thank you again Jennifer Pell
I’ve watched your videos and they have helped me tremendously. My dad has a grade lV unmethylated wild-type glioblastoma. Is that what you have as well. Please keep me posted as to what happens. Your family is in my prayers ❤️
As said before my mum was diagnosed last Christmas Eve been doing ok 3weeks ago her heart rate was really high so they took her in to hospital to give her something to slow it down which unfortunately has related to getting liver failure I’m not sitting by her bed for her last few hours all family has been to say gdbye including my kids so just now a waiting came she is in no pain on a morphine drip but heavily sedated which is all we can ask for is no pain
Hello, how is Brandon doing ? I hope well and appreciate the gumption to tell the world about your journey. Can someone let me know how things are goin? God Bless!
Hi guys hope you are pushing through current times with your continued grace that you have shown us. If I may, I just wanted to share that a clinical trial of 23 patients run by GW PHarma from the UK had put together a good survival benefit from cbd/thc/low dose chemo compared to just low dose chemo in recurrent gbm. I dont just like referencing individual success stories, I also share that data from this trial had 662 day median survival vs 369 day median survival out of 23 patients (12 treatment/9 low dose chemo only). But I do love individual successes...Joanna Stephens on here had success with clear scans with gbm using cbd/thc.
I have the equivalent to brain tumors and I have been suffering for most of my life. Sometimes I naturally want to go for a gun because I am in so much pain and then I have to remind myself not to do that.
@@joeyboi83 Wow. Who said it was for someone’s “pleasure?” People start posting their illness journeys, and viewers naturally get concerned. I think they DO owe it to viewers to keep them updated in a reasonable amount of time. They create concern, then leave people hanging. That is not kind.
@@majcherj1 they surely don't owe viewers anything if things are not going well and are way too hard to look outwards to the world of the internet. Not being kind to us is the last thing on their minds i am sure! i have a tetraplegic husband who can't move or speak- when things are terrible i sure don't have the energy to talk to anyone letalone go social media.
Hello, I’m sorry I am just seeing this now. I was chewing the side of my cheek. It’s a nervous habit of mine and he was just going in to have surgery. I hope you have a blessed day.
![Warhammer 40k: Space Marine 2 | เพื่อจักรพรรดิ ! [ตอนเดียวจบ]](http://i.ytimg.com/vi/4M0ckYMA4-U/mqdefault.jpg)
My 35 y/o husband, Nicholas, passed away in April from GBM. He was diagnosed in March of last year. I started watching your videos shortly after as I was searching for something to relate to.
I am SO overjoyed that you are still fighting.
Our sons are 2, 7, & 12 and there are no words for how tough this journey is but know that you all are not alone. Even strangers like myself are thinking of you guys & cheering you on!!!!
You really think they need to hear that???
My brother Phil just died last weak from a Glioblastoma. He was given two months to live but he fought hard and made 2 years. My prayers go out to anyone who has a loved one with this terrible disease, but please stay hopeful.
@@janety.1323 Are you the TH-cam ethics Police, because the last time I checked there was no such thing! Who are you to say what this family "needs" or doesn't "need" to hear! This family is on the same journey but with different endings! If he passes away, his suffering ends but his wife's does not! This family knows exactly what they're dealing with, they understand the reality of their current situation, and the woman you responded to has gone through the same thing! All she wanted was to let them know they are in her thoughts in prayers, that she had just lost her husband so she understands their situation, and that his wife has support if needed! Just because it wasn't something You'd want hear or something you wouldn't have said, doesn't make You right and her wrong!
My heart goes out to you April, My Husband also passed away to GBM in July 2018 after a 15 month battle. We both understand what Carrie is dealing with.
My daughter was diagnosed in august 2019, operated on in sept and given 12 to 15 months with treatment She refused tx and is now close to passing. It’s an awful disease
Hi Brandon and Carrie. My husband was diagnosed with Glioblastoma December 7th 2020. We have 4 kids 10, 8, 6 and 4. We would love to connect with you guys ❤ Your faith is very inspirational 🙏 May God continue giving you that strength.
I’m so glad I read this, I know it was written two years ago, but I’m keeping your family in my prayers. God bless you!
It’s been a few months and I too get worried when I have not heard from them! I even wish I could visit them. I hope all is ok.
God sent me here to listen to your story, I’m prepping my heart and mind for my DIL with Glioblastoma, trying to help my son and his children. I do daycare for her. The story is so very similar. I am not sure what I can learn but I will listen in small bites. I’m also listening to nurse Julie and I’m a retired nurse with more to learn.
We haven't heard from you in a while. My prayers are remaining with you and your family. Please let us know something. Girl believer in power of prayer and the more the better.
I have been watching your journey since I found out my best friend is battling a Glioblastoma. I wanted to learn more. She will not talk about it and I had nowhere to go. Thank you so much for sharing this painful, and blessed journey with all of us. I am praying for you all.
Unfortunately, my brother was diagnosed 2 years ago but decided not to tell us (His siblings). I am so sad to say my brother Phil died on Thanksgiving eve of a Glioblastoma. His tumor was inoperable. We are all in shock and miss him dearly.
Please, if you can, donate to research in finding better ways to help those with this terrible disease. May God continue to keep you here, pain-free, functional, and grateful. Your children need you
Hey Brandon & Carrie... I hope that no updates means you've been too busy living your lives 🙏🏼 xx
God bless and I hope all is well. I lost my world...my father just 5 1/2 months after his diagnosis. This is a brutal disease. I pray you continue on that path you are on which is a heck of a lot better than my dad. Day 1 of diagnosis I had lost my father as I knew him forever. He was never the same. But. That’s what god wanted. He called his angel home sooner than anticipated. My mom passed just 5 days before him. He took care of her for 20 yrs before he got sick. They were meant to stay together.
Darn, I removed a sentence from my comment having realized I misunderstood something and I LOST the “acknowledging heart” I received from you guys. 😔 Brandon and Carrie, thank you for posting this update. Of course I don’t know you but I think about you all the time. I find myself getting worried if I don’t see any updates. I really admire each of you for your courage, honesty, kindness and selfless sharing of this nightmare you are living.Brandon I hope and pray you are with your family for a long time to come.Carrie, I very much admire you. Ten children to raise AND by your husbands side helping him think through each decision logically and while no doubt you have your moments of weakness, you should be proud of yourself for thinking clearly, ensuring clarity from the doctors and making informed decisions. May God bless you both.and Carrie.....chew all the damn gum you want! 🙏🏼💛🤞 I lost my mom to Glioblastoma last year. She was diagnosed on April 4th and we lost her on April 13th. It’s amazing how very different each situation is. I smile every time I see an update and see the two of you sitting there TOGETHER. Love from Connecticut.
Have missed hearing updates from you. Hope that you're doing okay and that you you were able enjoy your holiday with your family and friends. Continue to pray for you.
Do go for it. I know a good deal about GBM and this is aggressive. The sooner the better. I have been through this journey as Carrie is facing. I am praying for you both. You are in His care!!!!
I can feel her pain. Sending warmth & love to you both ❤️
The two of you are so brave. I know how devastating a Glioblastoma is as my husband was diagnosed in September 2019. underwent a 6 hr craniotomy to remove the tumour, followed by radiotherapy, chemotherapy and was on trials for an immunotherapy therapy run by Oxford University in England. Despite all this, the tumour grew back more aggressively, he passed away 30th June 2020. Very little money is put into brain tumour research in England, I am now a Fund Raiser for a brain tumour charity in the hope that the much needed money which will go into research. A cure must be found, the diagnosis at the moment is a death knell. You have youth on your side, a better chance of living 5 to 10 yrs, my husband was 68. I sincerely hope you get through the surgery, my thoughts are with you, and your beautiful family.
May God bless you both as you walk this path together. My husband is going through treatments for GBM, too. Prayers to you. We look forward to your updates.
In our weakness God's strength is made manifest, be strong in the lord and in the power of His might 🙏 we will have all eternity with Him. God is hurting with us and wants us to know that we will all be with Him soon
As always, I will be keeping you and your beautiful family in my prayers.🙏Good luck today Brandon! ❤
My Husband had the same issues with GBM, I am so sorry for you and your entire family. I know first hand how hard this is on the caregiver to a husband with this disease. My husband lost his battle after 15 months in July 2018. My heart goes out to you and your family.❤
We will keep praying for you and your family since our God is above all tumors and cancers. I know what you are going thru, since wife has your same condition since April 2020, 3 post MRI's including one yesterday have no progresión so far. Every day is a blessing and we thank the Lord for each moment. In the end we must all leave and will be there no more pain and suffering. All things are possible, if we believe. Blessings to everyone.
Good luck and prayers. I hope you come through this with minimal symptoms. What a horrible disease. It’s not fair.
Brandon, you, your wife and children are consistently on my heart. I uphold you all in prayer through Jesus that the drs are guided and the Spirit be upon you providing you strength and comfort in Him. You are a very good man. I offer my assistance if needed. May the Lord guide you through. Kory
I’ve just read an article that researchers at The Royal Marsden In England may have a breakthrough, an experimental new therapy, a new combination treatment, that could be a game changing treatment for some brain tumour patients. It might be worth doing some research into this, it’s in its infancy, but offers hope.
Sending prayers for you and Carrie! I’ve been watching for a update how the surgery went for you ! Always in my thoughts and prayers god bless you and your family
Thats exactly what happened to my brother. So sorry your experiencing these changes of this disease. Prayers being sent. 😢
As a devout Christian, I will be praying for you and your family. Thank you for the Christian testimony. You are helping to save souls. That is awesome!
@ Lore Strahan
“Ditto”
Thinking of you both and your family. Wishing you a successful surgery. Love from NZ
God bless
Hope Brandon is doing ok. We need an update, best wishes from Australia
So strong you are! Must be your faith. Good to see you both 💚💚
God bless your family , despite your hardship i wish you a very merry Christmas.
I will be praying that everything turns out OK.
Please update how the surgery went and how y’all are doing!!! 🙏🏻❤️
He came ok from the surgery on december 17, I heard he had problem with the vision on left side but maybe I'll be ok after couple days, I hope he is ok, maybe after 3 surgery the miracle happens, we never know the God's purpose. all we have to do is pray with faith, with deep heart believing.
@@raulindiaz3715Thank you for letting me know. I pray he will be ok!! So precious that they are sharing his story with us! I love this couple and their heart for God!! Hoping we hear from them soon
Hello. I just found you today and have been following your videos all night. My husband was diagnosed in early November with an anaplastic astrocytoma stage 3 acting like more like stage 4 he does not have the mutation to respond to treatment and his is said to be non removable. We are lost and and devastated as no treatments seem to work. My husband has lost vision on his left side and all down his left side is numb. My husband has the same problem with his left side vision along with left side numbness down his body. Your story is remarkable and praying for you. I would love to connect with you somehow as we are beginning this journey and I pray for your surgery and recovery. Thinking of you all. As you know this hits us so fast. My husband is 48 and we have a 14 year old daughter. 3 months ago he was coaching her softball team and completely fine. Praying for you and watched all your videos. We are lost and confused with treatments and where to go. Insurance is a nightmare. This is such an awful diagnosis. I will keep praying for you and hope we can connect sometime as we are learning things and not quite yet understanding that this can’t be removed and doesn’t have the Idh1 mutation
I’m researching all the time but with his vision impairment it’s hard. Love and prayers to you all. Please reach out if you can. Jennifer Pell.
You have been though so much and we are 2 months in doing chemo pill and radiation with only a 10% of it working. There has to be something out there for him. You are all so strong and I’m falling apart looking for options for him. Thank you again
Jennifer Pell
Prayers for all undergoing this.
Prays My brother is wareing Oputune for 12 months now
May god bless you and your family 🙏
Prayers for you and your family. You are a wonderful couple! 💙💜
I’ve watched your videos and they have helped me tremendously. My dad has a grade lV unmethylated wild-type glioblastoma. Is that what you have as well. Please keep me posted as to what happens. Your family is in my prayers ❤️
Praying that you are all doing well and that the surgery was a success! Hugs from FL ♥️
No more updates, I hope you are doing ok.
A shower of blessings and a big hug!
Any Updates?
Praying for you!
Prayers for you and your family❤
As said before my mum was diagnosed last Christmas Eve been doing ok 3weeks ago her heart rate was really high so they took her in to hospital to give her something to slow it down which unfortunately has related to getting liver failure I’m not sitting by her bed for her last few hours all family has been to say gdbye including my kids so just now a waiting came she is in no pain on a morphine drip but heavily sedated which is all we can ask for is no pain
You belong to the lord, he will never leave you or forsake you.
WE PRAY FOR YOU FROM ISRAEL----BE STRONG!!!!!!!!!!! MY FATEHR HAVE HARD GBM!!!!!!!
Thank you for the update. So Sorry to hear you need another brain surgery. Wishing you the best recovery.
Hope you’re doing well and staying strong.
Praying always. Hope it went well today.
Hello, how is Brandon doing ?
I hope well and appreciate the gumption to tell the world about your journey.
Can someone let me know how things are goin? God Bless!
Manttica was duanes oncologist,dr hadjapiniyas his surgeon at Presbyterian in Pittsburgh.
Thinking of you guys x
Prayers...x
Best wishes to all of you.
Keeping you All in our prayer!
Hi guys hope you are pushing through current times with your continued grace that you have shown us. If I may, I just wanted to share that a clinical trial of 23 patients run by GW PHarma from the UK had put together a good survival benefit from cbd/thc/low dose chemo compared to just low dose chemo in recurrent gbm. I dont just like referencing individual success stories, I also share that data from this trial had 662 day median survival vs 369 day median survival out of 23 patients (12 treatment/9 low dose chemo only). But I do love individual successes...Joanna Stephens on here had success with clear scans with gbm using cbd/thc.
MoB78
Send prayers
I cant find any recent videos since 3 years how is Brandon?
Rip Aug 2021
❤️❤️❤️🙏🙏🙏
I have the equivalent to brain tumors and I have been suffering for most of my life. Sometimes I naturally want to go for a gun because I am in so much pain and then I have to remind myself not to do that.
How are you now..please post a update..
Whenever I go to the hospital they think that I am suffering from brain tumors. Does these types tumors hurt?
There’s no updates for 2 years? Anyone know how they are doing?
I am pretty sure he did pass away. I saw it somewhere but I don't know where on here.:/
Love this couple, but please post updates sooner.
@@joeyboi83 Wow. Who said it was for someone’s “pleasure?” People start posting their illness journeys, and viewers naturally get concerned. I think they DO owe it to viewers to keep them updated in a reasonable amount of time. They create concern, then leave people hanging. That is not kind.
@@majcherj1 they surely don't owe viewers anything if things are not going well and are way too hard to look outwards to the world of the internet. Not being kind to us is the last thing on their minds i am sure! i have a tetraplegic husband who can't move or speak- when things are terrible i sure don't have the energy to talk to anyone letalone go social media.
@@mmmjayjay5571 Wow. You deleted your comment, then responded to my reply. So my comment is totally out of context. Hmmm . . .
🙏🙏❤️❤️
HI....WHAT WITH HIM???
Optune???/
I'm praying for you guys. Are you on Instagram?
I feel so bad for him but her mouth movements were so odd I had to quit watching, something just not right with her! RIP Brandon
Hello, I’m sorry I am just seeing this now. I was chewing the side of my cheek. It’s a nervous habit of mine and he was just going in to have surgery. I hope you have a blessed day.
Omg same !!
Her mouth twitches…maybe she too needs a scan…she’s not right.
How rude of you to say that.