Megan - Living with acute hepatic porphyria (AHP)

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  • เผยแพร่เมื่อ 9 มี.ค. 2020
  • This video was created for U.S. audiences.
    Megan is living with acute hepatic porphyria (AHP). In this video, she and her family share their experiences living with and caring for someone with this rare disease.
    AHP refers to a family of rare, genetic diseases characterized by potentially life-threatening attacks and, for many patients, chronic debilitating symptoms that negatively impact daily functioning and quality of life. Learn more: www.PinpointAHP.com
    AS1-USA-00897
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