Hi Nell. May I say how inspiring you are. I have bilateral hearing loss due to 35 years of Meniere's disease. I have recently (3 wks) ago received a CI on the right (worst) side and awaiting activation. Thank you for videos as you are someone who has walked the walk. You have already helped me and my family better understand my new normal. Thank you for your selfless contribution.
Hi Nelle💗I usually follow you on your usual you tube channel but it was nice watching this short video of your deaf journey! Being profoundly deaf myself I know what your going through,they say things happen for a reason,we will never know if it was not for COVID whether your hearing could have been saved if treated sooner! But some luck was on your side when you were told you were suitable for a cochlear implant! And I have to give credit where credit is due for the way you have made the most of the implant & even gone to university,if you had not lost your hearing would you have gone to university & studied BSL? The downside is the NHS will only pay for one ear to be implanted as your over 18 which is totally wrong! You have proved that a second implant would help so now your having to do a go fund me to raise money for the other ear to be implanted! So we need to write to either our local MP or the health secretary to get the criteria changed! With all the upheaval in the government lately I have waited to write to my MP,we are lucky that a lot of NHS hospitals issue phonak hearing aids but others do cheaper aids! Or only issue one,Nelle is right she has done well to get phonak equipment as they are the best! But what she did not say was when she first went deaf & needed hearing aids the NHS had a 6mth waiting list so she had to go private for her hearing aids,hence her getting phonak if I am not mistaken before getting NHS hearing aid! I have worn hearing aids for over 30 years & never phonak as my hospital would not supply them! To this day some non deaf people think once you get hearing aids you get back normal hearing! Just like normal sight with glasses! Nelle is one of those people that did not let losing her hearing ruin her life! In a way with the help of modern technology she has done better than if she still had hearing! It gives hope to other newly deaf people 💗💗💗
Aww Nelle you’re so beautiful ❤Thanks for sharing your story!! I too was diagnosed with hearing loss later in life. Getting hearing aids was an adjustment but now I wouldn’t have it any other way because I absolutely love mine! And I agree that this experience opens the door to wonderful things you’d never imagine otherwise. Thanks again for sharing!
Nelle, if you don’t mind me asking, what do you think happened? I’m experiencing hearing loss myself, I’m 45 and think it was noice induced. Great video, really inspiring!!!
Of course, I don't mind you asking. I don't know exactly what caused my hearing loss, but my doctors think it was caused by Meniere's disease. That would make sense to me, but nothing is 100% confirmed. They have ruled out anything more serious, so I'm not pursuing any further investigations since it wouldn't change any of the treatment or anything.
Hi Nell. May I say how inspiring you are. I have bilateral hearing loss due to 35 years of Meniere's disease. I have recently (3 wks) ago received a CI on the right (worst) side and awaiting activation. Thank you for videos as you are someone who has walked the walk. You have already helped me and my family better understand my new normal. Thank you for your selfless contribution.
Hi Nelle💗I usually follow you on your usual you tube channel but it was nice watching this short video of your deaf journey!
Being profoundly deaf myself I know what your going through,they say things happen for a reason,we will never know if it was not for COVID whether your hearing could have been saved if treated sooner! But some luck was on your side when you were told you were suitable for a cochlear implant! And I have to give credit where credit is due for the way you have made the most of the implant & even gone to university,if you had not lost your hearing would you have gone to university & studied BSL?
The downside is the NHS will only pay for one ear to be implanted as your over 18 which is totally wrong! You have proved that a second implant would help so now your having to do a go fund me to raise money for the other ear to be implanted! So we need to write to either our local MP or the health secretary to get the criteria changed! With all the upheaval in the government lately I have waited to write to my MP,we are lucky that a lot of NHS hospitals issue phonak hearing aids but others do cheaper aids! Or only issue one,Nelle is right she has done well to get phonak equipment as they are the best!
But what she did not say was when she first went deaf & needed hearing aids the NHS had a 6mth waiting list so she had to go private for her hearing aids,hence her getting phonak if I am not mistaken before getting NHS hearing aid!
I have worn hearing aids for over 30 years & never phonak as my hospital would not supply them! To this day some non deaf people think once you get hearing aids you get back normal hearing! Just like normal sight with glasses!
Nelle is one of those people that did not let losing her hearing ruin her life! In a way with the help of modern technology she has done better than if she still had hearing! It gives hope to other newly deaf people 💗💗💗
Aww Nelle you’re so beautiful ❤Thanks for sharing your story!! I too was diagnosed with hearing loss later in life. Getting hearing aids was an adjustment but now I wouldn’t have it any other way because I absolutely love mine! And I agree that this experience opens the door to wonderful things you’d never imagine otherwise. Thanks again for sharing!
Thanks Anne for connecting ! We are glad that you are loving your hearing aids and that are part of the hearing loss community :)
Thanks. I'm glad you're doing well :)
Nelle, if you don’t mind me asking, what do you think happened? I’m experiencing hearing loss myself, I’m 45 and think it was noice induced.
Great video, really inspiring!!!
Of course, I don't mind you asking. I don't know exactly what caused my hearing loss, but my doctors think it was caused by Meniere's disease. That would make sense to me, but nothing is 100% confirmed. They have ruled out anything more serious, so I'm not pursuing any further investigations since it wouldn't change any of the treatment or anything.
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