Dave, I have had PD for more than 6 years. I feel paralized like you. I recently watched a video and a Dr. discussed the fact that our diaphragm is part of our autonomic system.. omg I don't know why this never really occurred to me before about my anxiety (which is a lot!!) PD makes us take shallow breathes... (a symptom if a panic attack) sooo now I purposely take deep, long breathes to calm myself. It has helped me greatly!!! 1) it calms my body down 2) I feel a sense of control!!⭐️😍
Hi, Julie, thanks for taking the time to watch and for sharing something I did not know about. I did not realize there was a connection to our diaphragm. I am definitely going to think about my breathing when my anxiety gets bad.
Thanks for your sharing on this symptom….anxiety hits me so often…the simplest tasks that I used to handle, I cannot seem to handle now. Guess I best cut back on my coffee….bummer….
Hi Pamela, I hope you have found some ways to help cope with the anxiety. It is such a difficult symptom to deal with, and to me, it seems that it just overwhelms the meds when it's bad. Any luck with the coffee? I share what I do to help make coffee exciting again in this video th-cam.com/video/-BxAj33WpkU/w-d-xo.html
Hi David, I am awaiting a diagnosis of Parkinson's disease and have found your videos to be so helpful. I have suffered from depression for more than 20 years and use Zoloft and Cymbalta with very good results. I have only recently begun to experience the symptoms of anxiety that you described, where I suddenly feel like I've hit a wall and I can't do another thing except escape to a dark, quiet place in order to recover. I would never have suspected that this is a symptom of Parkinson's! Thank you for sharing your experiences, your kind and gentle manner is very reassuring to those of us who are just starting on this journey.
Hi Jeannine. Thank you for your wonderful comments today. I am so thankful that these videos are helping someone. Yes, the anxiety unfortunately is the worst symptom for me and the most difficult one to measure. Through this channel I hope to reach people and give them a kind word in a relentless illness that never takes a break. I hope I can offer a bit of hope and optimism and let people know that their medical teams can do a lot to help them, they need only ask. I am glad you found this channel and am eager to hear your diagnosis, whether PD or not.
Dittos. Anxiety has been the hardest PD symptom gor me to deal with. Began month after diagnosis and had gotten perpetually worse for the last year. Have tried everything but CBT so that's next. Anyone had good emotional benefits from Azilect? Thank you David
Hi Mark, haven't heard much feedback from people about Azilect. Anxiety continues to be the worst symptom for me as well 6.5yrs in. It can still overcome all my meds and other treatments/exercise. When it does that, all I can do is wait. My doctor lets me keep extra clonazepam around if needed, but I only use an extra one every 1-2 months.
Hi David I was diagnosed with PD in 2019 I have similar symptoms as you. I don't have a severe tremor but I can no longer write and doing small motor skills with my hand is very difficult. I also have depression and anxiety although it's not as severe as yours I can relate to everything you said. I wish you all the best and keep up the good fight. Btw I'm going to start the rock steady boxing program I would encourage you to do that if it's available in your area. Best wishes from AL
Hi Cabmaker. Thanks for your comment and I hope that rock steady boxing works for you. I have joined the gym and enjoy it, I just go when it’s quiet. I hope you are able to get the help you need.
Hi Elaine, your welcome. I’ve never been a big meditator, but I suppose I do use some of the techniques involved. When the anxiety is bad I do concentrate on my breathing and try to think about something else, and lay down somewhere quiet and relax. I think that if you find something that works for you that’s what you should do. Anxiety is a tough thing to deal with and any tool that helps you cope should be utilized. Just today I had brutal anxiety between L-Dopa doses and a friend helped me to deal with it. Anxiety like that hasn’t happened for a couple weeks so I was surprised. We need to be ready when it comes.
I have PD for 4 years and am having the same problems. I wake up with panic attacks when my meds wear off at night. I went through hell researching to figure It out. A trip to the ER and a whole slew of other pathways until I noticed my attacks were timed almost perfectly with my meds wearing off. The thing is I WILL NOT take an SSRI and I WILL NOT increase the dose of my meds. Just like cocaine the only way to come down is to take another bump of coke or start drinking booze to come down. I can see where this is headed though...take more Levodopa to off set the coming off periods and risk going absolutely nuts eventually or take an SSRI which will only trade one problem for another and probably lead to more meds to offset those problems. I want to give up desperately.
Hello, I understand your reluctance to take SSRI's or more L-Dopa, and your feeling of desperation. You could always look at getting a pair of PD gloves made th-cam.com/video/4Fc6AlW8GQ0/w-d-xo.html or look at Red Light Therapy th-cam.com/video/McrzcqwrBt0/w-d-xo.html
Thanks. Oddly enough I have been using red night lights even without knowing about this. Someone brought it to my attention recently. I would also like to supplement my meds with physical therapy. I was into body building@@LifewithParkinsons
![[TH] FS vs BME - VCT Ascension Pacific - Lower Bracket Final](http://i.ytimg.com/vi/wnygqsR2Fig/mqdefault.jpg)
Dave, I have had PD for more than 6 years. I feel paralized like you. I recently watched a video and a Dr. discussed the fact that our diaphragm is part of our autonomic system.. omg I don't know why this never really occurred to me before about my anxiety (which is a lot!!) PD makes us take shallow breathes... (a symptom if a panic attack) sooo now I purposely take deep, long breathes to calm myself. It has helped me greatly!!!
1) it calms my body down
2) I feel a sense of control!!⭐️😍
Hi, Julie, thanks for taking the time to watch and for sharing something I did not know about. I did not realize there was a connection to our diaphragm. I am definitely going to think about my breathing when my anxiety gets bad.
Thanks for your sharing on this symptom….anxiety hits me so often…the simplest tasks that I used to handle, I cannot seem to handle now. Guess I best cut back on my coffee….bummer….
Hi Pamela, I hope you have found some ways to help cope with the anxiety. It is such a difficult symptom to deal with, and to me, it seems that it just overwhelms the meds when it's bad.
Any luck with the coffee? I share what I do to help make coffee exciting again in this video th-cam.com/video/-BxAj33WpkU/w-d-xo.html
Hi David, I am awaiting a diagnosis of Parkinson's disease and have found your videos to be so helpful. I have suffered from depression for more than 20 years and use Zoloft and Cymbalta with very good results. I have only recently begun to experience the symptoms of anxiety that you described, where I suddenly feel like I've hit a wall and I can't do another thing except escape to a dark, quiet place in order to recover. I would never have suspected that this is a symptom of Parkinson's! Thank you for sharing your experiences, your kind and gentle manner is very reassuring to those of us who are just starting on this journey.
Hi Jeannine. Thank you for your wonderful comments today. I am so thankful that these videos are helping someone. Yes, the anxiety unfortunately is the worst symptom for me and the most difficult one to measure. Through this channel I hope to reach people and give them a kind word in a relentless illness that never takes a break. I hope I can offer a bit of hope and optimism and let people know that their medical teams can do a lot to help them, they need only ask.
I am glad you found this channel and am eager to hear your diagnosis, whether PD or not.
My sis has PD and she gets a LOT of panic attacks. Will let her know of this video.
Hi Star5. That sounds great 😊
Dittos. Anxiety has been the hardest PD symptom gor me to deal with. Began month after diagnosis and had gotten perpetually worse for the last year. Have tried everything but CBT so that's next. Anyone had good emotional benefits from Azilect?
Thank you David
Hi Mark, haven't heard much feedback from people about Azilect. Anxiety continues to be the worst symptom for me as well 6.5yrs in. It can still overcome all my meds and other treatments/exercise. When it does that, all I can do is wait. My doctor lets me keep extra clonazepam around if needed, but I only use an extra one every 1-2 months.
Hi David I was diagnosed with PD in 2019 I have similar symptoms as you. I don't have a severe tremor but I can no longer write and doing small motor skills with my hand is very difficult. I also have depression and anxiety although it's not as severe as yours I can relate to everything you said. I wish you all the best and keep up the good fight. Btw I'm going to start the rock steady boxing program I would encourage you to do that if it's available in your area. Best wishes from AL
Hi Cabmaker. Thanks for your comment and I hope that rock steady boxing works for you. I have joined the gym and enjoy it, I just go when it’s quiet. I hope you are able to get the help you need.
Thank you Have you tried meditating and if so does it help?
Hi Elaine, your welcome. I’ve never been a big meditator, but I suppose I do use some of the techniques involved. When the anxiety is bad I do concentrate on my breathing and try to think about something else, and lay down somewhere quiet and relax. I think that if you find something that works for you that’s what you should do. Anxiety is a tough thing to deal with and any tool that helps you cope should be utilized.
Just today I had brutal anxiety between L-Dopa doses and a friend helped me to deal with it. Anxiety like that hasn’t happened for a couple weeks so I was surprised. We need to be ready when it comes.
Don't you think you were so nervous before
Hi Company, yes I agree, I was very nervous before. I think I am becoming more relaxed and am able to communicate a bit better.
I have PD for 4 years and am having the same problems. I wake up with panic attacks when my meds wear off at night. I went through hell researching to figure It out. A trip to the ER and a whole slew of other pathways until I noticed my attacks were timed almost perfectly with my meds wearing off. The thing is I WILL NOT take an SSRI and I WILL NOT increase the dose of my meds. Just like cocaine the only way to come down is to take another bump of coke or start drinking booze to come down. I can see where this is headed though...take more Levodopa to off set the coming off periods and risk going absolutely nuts eventually or take an SSRI which will only trade one problem for another and probably lead to more meds to offset those problems. I want to give up desperately.
Hello, I understand your reluctance to take SSRI's or more L-Dopa, and your feeling of desperation. You could always look at getting a pair of PD gloves made th-cam.com/video/4Fc6AlW8GQ0/w-d-xo.html
or look at Red Light Therapy th-cam.com/video/McrzcqwrBt0/w-d-xo.html
Thanks. Oddly enough I have been using red night lights even without knowing about this. Someone brought it to my attention recently. I would also like to supplement my meds with physical therapy. I was into body building@@LifewithParkinsons