Self-Advocacy: I Had to Fight for Different Cancer Treatment! (Cancer Patient Story) | Nadia K.
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- เผยแพร่เมื่อ 28 พ.ค. 2024
- Nadia continues to fight for her health, even after weeks of medical gaslighting by different doctors. She was eventually diagnosed with a rare and chronic blood cancer. But even after her diagnosis, she had to keep fighting for her care.This time, by doing her own research.
Full story & transcript → www.thepatientstory.com/cance...
Video Series:
1) Doctors Dismissed Me Over & Over Again (Medical Gaslighting): • Cancer Patient Story: ...
2) Self-Advocacy: Pushing for Cancer Treatment: This Video
3) Small Lymphocytic Lymphoma (SLL) treatment & side effects: • How I Got Through Canc...
The interview has only been edited for clarity.
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Contents of this video:
00:00 - Intro
01:02 - Main video
05:21 - Treatment decision making
06:42 - Results of the bone marrow biopsy and scan
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#sll #smalllymphocyticlymphomia #leukemia #bloodcancer #LLS #thepatientstory #patientstories #cancerstories #cancerpatient #cancersurvivor
Have you ever had to push for your own cancer treatment? Or felt unheard by doctors? Leave us a comment below 👇
My story is so long is there a way to send you a video?
Or contact you?
Hello,I'm struggling with primary lymphedema
I would like to tell my story,doctors have no idea what the lymphatic system is..because I'm not obese they refuse to make the connections I've had it my whole life..mines genetic
The lack of compassion or care is outstanding but considering its a birth defect and I'm 50,it's a long story..is there a way I can contact you?thanks and blessings
Not treatment but scans etc . Stage 3 and no mri or pet scan. Lumpectomy, 3 sentinel nodes out, all 3 cancer and straight to chemo.
@@minnesotagal507 hay lady it's Doll from zoso77 Chanel:)
Been praying for you 🙏🙏🙏🙏🙏🙏🙏🙏
I've felt unheard by Dr's most of my life. It shouldn't be like this.
I’ve been a nurse for over 47 years. I am absolutely appalled that your Dr said “He didn’t have time to read studies”!! He didn’t have the time to read???!!! Excuse me but Reading Studies and Continuing Education is a part of his JOB to be qualified to treat patients. This is TOTALLY Unacceptable!
As a nurse I have to do Continuing Education courses so I am up to date so I can care for my patients. This Dr (and many others) give a very bad mark to the credibility of the medical profession. I am ashamed of him.
Nadia, I will pray for your success in your treatments.
You should think about gearing your studies to become a patient advocate. We need more people in the medical field that “have the time to read the studies”.
🙏🏻❤️
So well said. I fear for the other patients of this man who calls himself a doctor. Nadia has so much resiliency and strength to speak publicly her experience and even though we’ve never met, I am so proud of her and the service she provides others by doing so. My best to Nadia…always.
First, thank you for the work you do as a nurse -and for so many years! We are hoping to get more nurse voices on our platform. And thank you for your well wishes for Nadia ❤️ Stephanie
A friend of mine is a GP and she said that she can't be bothered reading up of new studies.
I've had several tell me they didn't have time to do things. Thankfully, I've also had a few that did.
@@nicoleholding Shame on your GP “friend”!
When I have had to diagnosis myself and get doctors to look at my illness in a way I discovered by research, I think, at that point, THEY should pay me for the education I am giving them!! I’m in tears for Nadia. You bet Medical PTSD!!!
Hi 👋 how are you doing?
I'm also suffering from medical ptsd
When the people who are supposed to be helping are causing more damage,the gaslighting is off the charts awful
Being sick you already feel helpless
It's a narcassistic based profession
Sadly :(
So sorry your going through it
Don't stop researching!!
You are probly the best doctor your ever gonna get
Remember most meds are derived from plants
I hope you feel better soon ❤
They can't be many patients these days who DON'T suffer from medical PTSD.
Pardon, that was meant to read: There can't be...
@@beverleypettit3577 it's terrible doctors ARE the new disease :(
This story is terrifying. Most people don’t have Nadia’s skills to self advocate.
The really terrifying thing is this is quite common. I'm crying at this moment because I can relate so much. What's worse is how they treated my mom. I'm 63 years old now and my mom's been gone for 21 years but it's like it was yesterday how mistreated, mis-diagnosed, and dismissed my mom was. We are talking over a period of 20 years. She ended up in a mental institution twice (by the so called doctors). She ended up taking her own life due to constant pain and narcissist doctors.
@@jolenebear7173 Oh I’m so sorry. After the Covid mess people are waking up to the mighty errors in the medical community.
What happened with the two comment?
@@jolenebear7173 that just makes me livid. I'm so sorry for what your mother went through. I had a similar situation although mine was physical. I suffered for 10 years with gallbladder attacks and they were excruciating and they would last three or four days. I finally found the Doctor who said that sounds like your gallbladder and if you will sign this paper that you won't sue me if I'm wrong I'll take it out. The reason he said that is because nothing showed up on diagnostic testing he said you've been suffering for 10 years somebody needs to help you. I will be forever grateful for that man he saved my life because I was thinking of doing the same thing your mother did. I couldn't live like that anymore in pain and never knowing when it would strike. It was ruining my life I was starting to resent healthy people. It was horrible. Anyway if you go into a doctor's office and you ask them to do something and they say they don't think it's necessary this is what you tell them. You say okay would you write that up in your report today that I requested this from you but you refused it because I'd like a copy of that to take with me. They'll do it. They don't want to get sued. I know that's how they work.
@@prettywoman7776 I'm so glad you found a doctor to help you! And thanks for the good advise about having the doctor write that in their report and get a copy. It's horrible that some people have to suffer for years. I'm so glad you are better now. Thank's for your response. Hope you have a blessed day.
Also weve all had Drs complain about patients googling symptoms and trying to diagnose themselves but wtf do they expect when they wont listen to us or take us seriously?! And ppl wonder why we have such a high mortality rate in America whilst also having the most state of the art medical equipment & training... 3rd leading cause of death is medical error.... aka medical staff & mainly Drs making mistakes and or dismissing patients. I would love to become a patient advocate but idk the first thing about how to do it. Im currently in a malpractice lawsuit with w facility that wrongfully killed my quadriplegic mother with MS and i dont want any family member/loved one to ever endure this...
So sorry for this woman. Unfortunately, gaslighting, not being believed and pushed pillar to post is a common story in the Canadian medical system.
American, too.
This woman is incredibly brave! I’m in awe!! Congratulations, Nadia! 💪
Having survived two different types of cancer I cannot stress how important it is to research one’s disease and be your own advocate (if possible) when determining treatment options. Having open discussions with one’s doctors requires one to be well informed and up to date regarding options and potential clinical trials. Nadia’s story is evidence of that. Thank you for sharing.
I am a nurse that this story horrified me at how badly she was treated and how often she fell through the cracks. I am a patient advocate first and foremost and have challenged doctors many times to facilitate proper patient care. I am sorry that you had to go through this.
I admire Nadia. This infuriates me. I had cancer and developed pneumonia. I was admitted to a different hospital than where I had my cancer surgery. I had to fight for appropriate care. It was horrible. As sick as I was, thank God I had the presence of mind to advocate for myself. I shudder to think what would have happened to me had I not been able to fight and question the “care” team. I will say my nurses were good and quietly encouraged me to contact the patient advocate and continue to do my research and fight.
My dad had SLL ! Thankfully his oncologist had just come back from China and knew about it. This was over 20 yrs ago. At that time the treatment was experimental and most patients didn’t survive. He was the longest survivor at the time.
Today marks the date of his burial 12 yrs ago. Isn’t crazy I found your story today?
Sometimes God works in ways we don’t understand. But I’m happy I found you. Be strong and courageous!
This is so scary and as a cancer survivor, it’s terrifying. I’m lucky to have had an oncologist who did not dismiss my enlarged lymph nodes which were my only symptom. However, I developed lymphedema in my arm due to cancer treatment. I was not told it could be prevented at the time of mastectomy/lymph node removal nor was I told it could be treated surgically once it developed. I had to do my own research after it was mentioned to me by a physical therapist; never mentioned by my oncologists. NEVER assume that your doctors know what the should know.
It’s appalling that Nadia had to jump so many hurdles to get a diagnosis and the right treatment. And to have doctors continue to attribute so many symptoms to health anxiety is disgusting - and, of course, life-threatening. My heart goes out to her.
Nadia, I’m so sorry you had to go through this. It is truly shocking that doctors can be so dismissive. You have such strength to not only go through all of this, but to tell us about it too. Shocking! Wish you well. Stay strong.
Her story is not unique. I have witnessed this so many times working in healthcare. It is sickening. If you present as psych or have a psych history most physicians only see psych and believe your symptoms are psychosomatic. I work for the 12 years on a Geri-psych inpatient unit where a medical doctor sent the patient to the ED. But the ER fights with our doctor and dismisses their symptoms and do not want to deal with a psych patient. Knowing these behind the scenes information I would never disclose my psych symptoms or history to a medical provider because of what I have witnessed so many times. Stigma is in health care and it is discrimination!!
@@ericablaschke3497 Their arrogance doesn't help unfortunately.
The reason why the other doctors were dismissive was because of the previous doctors notes. So every did for after that thought you were a hypochondriac because those are things you can’t see patient side.
Exactly. If ONE doctor puts "hypochondriac" in their notes in your file that patient will NEVER be taken seriously and this is what happens with their healthcare journey that will follow them everywhere from then on.
Sloppiness, laziness, arrogance, dismissive, not really listening to a patient all because of the note in the file followed through the chain of doctors along the way definitely would explain why along with their incompetence and compassion.
I'm still here after 13 years, I had lymphoma too. You will be ok
My husband had similar symptoms that went on for almost 10 years. He was hospitalized for some tests and was told he had hemolitic anemia but they couldn't find a cause. After a bone marrow biopsy he was diagnosed with marginal b zone splenic lymphoma. A rare, slow growing lymphoma. Luckily he had access to a doctor that specialized in rare cancers, he prescribed rutixin , 2 doses. My husband had an allergic reaction to the first drug treatment and luckily went into remission with one treatment.
Good luck I hope you have a wonderful life.
One treatment means how long and was it oral medication
Could u pls give us email id of that doctors
These everyday common inept physicians need to be held accountable!!!!! I was sick since 2004 always told I was just anxious and gaining weight. In 2020 I self diagnosed w Cushings Disease. More dismissals came, and 1.5 years later I was finally diagnosed. 17 years no diagnosis or treatment. Shameful!
I'm watching as a current internal medical doctor and hopeful future haematologist. I'm glad you had the strength of your convictions to help you push through. Through patients like you we can all learn a lot.
Stay well!
Andrea
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Nadia, sending you my very best for your treatment. I’ve watched many of these stories and yours is the first one I’ve replied to because I am infuriated, that these men would be dismissive, belittling and disrespectful to you; patient abuse is the only way I can describe it. I am so very sorry they treated you like this. It’s like they could not help themselves and I must say that I suspect they do not treat men the same way. Tears were rolling down my face after each communication you would have with one of these so-called doctors. I kept saying out loud, “oh, hun,” and wished I could hug you the way I do my sister or children ones when they need to be comforted. You are so very resilient for enduring this mistreatment and never losing sight of what needed to be done which was to do your doctor’s job for him. The way you describe how he conducts his practice makes me wonder if he’s had any malpractice judgements against him or for that matter, any of the doctor’s you had the misfortune of seeing during this vulnerable time in your life. I am eager to watch the next video to see how you respond to treatment. Bless you Nadia.
Thank you for such an incredibly kind response to Nadia. It's clear you are so empathetic. ❤️ Stephanie
@@ThePatientStory thank you so much Stephanie, it takes one to know one 🙏🏻❤️
Thank you so much for sharing your story, Nadia. The responses from your GP and hematologists when you voiced your concerns were unbelievable! Not to mention gaping holes in the health system! Thank you for reminding me that even in the worst of times, I need to pause, listen, research and advocate for my patients. I'm a junior doctor at the moment so during a consult it's not uncommon for me to say "I don't know" but I always follow up with "I will find out" and patients are so receptive to that. I don't think we're expected to know everything all the time (I hope!), however we are rightfully expected to find the answers. If we don't have the answers then we should at least have a plan and provide reassurance that the patient won't be lost to follow up.
I lost my husband to soft tissue sarcoma. They began with radiation and held off chemo for so long that from diagnosis to death was 7 months. I am so glad that you had the stamina to continue to fight for yourself. Thank you for sharing your story. I felt frustrated and angry on your behalf as you spoke. It breaks my heart that so many people have to go through things like this. The waiting for appointments, etc. I am glad to see you alive and well.
Nadia is a very bright young woman. She seems great honestly. I hope she's doing okay 🤞
Chad, could not agree more. Thankfully, yes, Nadia is physically doing well! -Stephanie
Unfortunately conventional medicine is 17 years behind the science. EVERYONE should do their own due diligence before receiving treatment.
at least 17 years when i comes to cancer.
I went undiagnosed for 20 years with Lyme disease and I really relate to almost feeling relief to have a diagnosis and not feeling crazy anymore. My providers told me "we know the pain is real to YOU" and sent me to behavioral health counseling which I completed. All of my friends and family didn't believe me even though I was having visible facial paralysis for 10 years, and one of my doctors asked me "why do the prettiest girls think they have the most problems?" I feel that unless you have a real diagnosis, people will not believe you. I'm so sorry you went through this and I know what you mean about getting a second opinion...if it's in the same health system it almost becomes like group think.
How dare that doctor, that is absolutely disgusting!
Just awful. Sending healing vibes your way
I suffered from undiagnosed gall stones for 12 years. When someone finally listened and diagnosed them, I was taken into hospital and had surgery. I was told next day another 18 months it would have been cancer. Fast forward several years and I began to get sore throats. It took 10 for it to be diagnosed as a nasal polyp. The surgeon I was sent to was desperate to get it removed and sent to the lab as it could have been cancer.
During that time I was called a hypochondriac and also accused of looking at Wikipedia. I am absolutely sick of the childishness of a lot of doctors.
This is so crazy ! I have been nursing 30 years and believe it 100%
💕
I was a member of the clinical trial here in the US that got Ibrutinib approved as a first line treatment for Ltmphocytic leukemia. It compared FCR and Inrtinib+R. Lucky I was randomized to the I+R arm and am now in remission! I am also ivig mutated so had a very positive prognosis.
Hi 👋 how are you doing?
I am so happy for you. God bless you. I hope you are able to find happiness.
The doctors should be given a day a month to do research and read up on new procedures and medication. Thank you for sticking up for yourself as consequently others will get correct treatment 💕
THAT WOULD NOT PUT MONEY IN THEIR DOUCHEBAGS.....
They get FREE LUXURY VACATIONS , FREE LUXURY DINNERS , ETC...THAT IS CALLED CONTINUING MEDICAL EDUCATION...
The public NEEDS TO WAKE UP...
♥️♥️♥️
You were your own best advocate! Doctors don’t always keep up with the latest and greatest. Truth!!
A HUGE shame on them.
I am retired nurse and found many times that my young Internal Med Dr doesn’t read to keep up on the latest.
I’ve found that I’ve given my Dr articles to read that don’t support her recommendations to me. I’m sure she doesn’t appreciate it. But reading and keeping up with the latest and greatest in medical literature is extremely important. 🤷🏻♀️
I come from a medical family, with loads of doctors and nurses, and unfortunately I had TOO much respect for my doctors. I had a similar experience being disbelieved by multiple generalists and specialists, and wound up with a uterine cancer diagnosis that should have come much earlier. There's much you can learn, but I would say that the biggest lesson is to realize that these folks are just people. Some are moral, some are not. Some care for the patients, some don't. Some are truthful, some lie very easily. To some degree, no matter how well-trained, whether good or bad, they're all winging it. Same for paid experts in other fields.
I was in the medical field as a tech and have a lot of respect for doctors; however, of late it seems there comes a lackadaisical attitude with many. Does the Hippocratic Oath mean anything?
Wow, I am so sorry to hear this. Thank you for sharing. We are working on a follow up video, more about medical gaslighting. Would you be willing to share your story with us? If so, can you email us at community@thepatientstory.com
@@ThePatientStory Yes, I'll reply via email. Thanks.
My heart goes out to Nadia and the horrors she’s gone through with this very scary situation
Where I grew up, I was sometimes made a fool of if I went to a doctor with something that was not serious. Why are patients expected to be perfect diagnosticians? Doctors aren’t. In the country where I live now, they never do that. Most of my life I have avoided doctors like the plague because of memories of being humiliated.
Hi 👋 how are you doing?
You at least expect them to Research and have Alternative possibilities!
If you don't mind sharing, what countries are those?
I grew up in the UK and have now lived for forty years in Japan.
@@margaretmaeda2548 I've heard the care in Japan is amazing
This comment is for Nadia. I’m rooting for you! My daughter has stage 4 BRCA1+ HGSC Ovarian cancer bring treated through BC Cancer Fraser Health in surrey and Abbotsford. We are having bumps in the road and she will be starting a blind drug trial in hopes to slow the spread. I hope you stay well. Thanks so much for sharing your experiences!
PTSD from cancer and all things that go with it, is very common. I have it.
Nadia, you're an amazing woman, to be admired ! My daughter is struggling with salivary gland cancer, all her pain was ignored, she was sent to dentists...and other doctors,
it took nine months for them to find out she had this rare cancer, already very advanced. Had surgery, chemo, radiation, it spread to her lungs and spinal cord. She's a fighter too ! waiting for a miracle now. You're and incredible woman ! You're in my prayers.❤🙏
This hits my soul. It is so depressing. I died and was saved and lost my legs because a Dr didn't believe me and prescribed too much medicine that was unnecessary. My whole life has stopped. I do not know my purpose. I got two kitties to love and am building am accessible home.
Not cancer but my heart. As well I was treated as if I was overly concerned, and living alone can cause people to be more concentrated on the internet and themselves. As it turns out.. I have leaky heart valve, and now waiting for the next step to take. Thank you for sharing your story and making a difference. My heart and prayers will include you. 💖
I am a nurse, and I am terrified. I went to the hospital with covid…i was between insurances…they refused to treat me for anything respiratory, they just wanted to do more “tests” ….i got saddled with a 2000 bill and a pain pill…i left against medical advice and got ivermectin…felt 99% better in 24 hours. Terrifying.! I will pray for you! You are not crazy!!!
The Dr felt threatened by her intelligence
Nadia, you are smart and beautiful! You’re courageous too! I suffered from anxiety for years! I had to power through, little by little, and do the things I feared. I needed an antidepressant and counseling. You mentioned your counselor and he was awesome to coach you through your self-advocacy. You’re a survivor and amazing! I hope you are healthy and doing great!
Nadia's story sounds normal in Canada. I am fighting for treatments for my father. It's so so hard. Every time they just want to send him to comfort care meaning no treatment just more pain medication.
Stephanie, I’d love to share my story, it’ll blow you away. I’m not diagnosed yet, I pray I don’t have cancer, I pray Miss Nadia is healthy and healed! This should be terrifying to the masses! Lord have mercy…
You are a hero. What a horrific ordeal. Some people have no business becoming Doctors if they cannot keep their oath. Patients first, I am praying for you.
It has been my experience you have to be your own doctor and I have experienced exactly the same dismissive attitude. It is appalling that this happens, but you have to be your own researcher and advocate all the time. Doctors seem to blame the patient when they can't figure out what is going on, push back! I still experience this all the time even with my diagnosis and that is even more appalling! Just because that particular doctor cannot figure it out, just tells me that this is not in their level of expertise, to put it nicely! 🤨 You are a good advocate and wicked good video! 👍😊
This entire story is what it's like to be a woman seeking medical care.
Welcome to my world. Stage IV MBC. Unfortunately, this is more common than not. You have to take your health into your own hands and use the doctors as part of your arsenal. They are not gods. Good for you , Nadia! Self -advocacy is paramount these days.
This is also called "Medical Gaslighting!"
My daughter battled this same type of treatment from several doctors. “You are neurotic “, “get some rest”, you are overreacting” - just a few. Long story short, the diagnosis was stage 4 ovarian cancer. My daughter died 4-1/2 years later.
Wow! So frightening. Nadia is so strong, thank goodness she had the ability to research and speak up for herself. Thank you for sharing. God speed Nadia.
What a horrifying Experience! The way she was treated is deplorable!
Thank you for sharing your story. I have had problems with doctors as far back as I remember, having only seen a few really helpful ones. I rarely see a doctor because I don't have faith in any of them. My issues right now are not cancer related (I think) so this is not the place to contact but if I could get a little direction to a general source I'd be grateful. I'm in the United states.
Hi 👋 how are you doing?
I can relate
You are amazing. It’s so ridiculous what you had to go through but you have made such a difference. You go girl!
Thanks for leaving such kind words for Nadia!!
All healthy wishes for you and my absolute thoughts and holding thumbs for you. If people knew how strong she really is and that she has to have battled fights and situations which are very scary while being sick, a realy strong woman who deserves all love and hope. / A person who share her pain and get very touched by her story.
I cannot believe she went through so much I cried hearing her story. 🤗 Hugs
This is horrible for me, but also really helpful Nadia, because I'm going through the run around myself right now. Even though my father died of lymphoma and my symptoms are cycling through a fever, night sweats, visibly lumps, consistant pain in my back, it's just the brush off, the run around. I'm 65, my dad died at 68. They didn't find his till a late stage, he had lost so much weight by then, there was nothing left to fight with. I swore I'd never let that happen to me. My PC sounds like your Dismissive Doctor. I'm so sorry, so young, you've had to go through this.
I am so glad to have watched this story. I am a retired nurse. When working I always encouraged my patients to advocate for themselves. I too would advocate for them, but always explained they know their bodies and what changes are happening and to seek medical attention always. I am going through this now having to advocate for myself. I have a disease that should have been found so much sooner but lots of doctors don't want to listen. The blood work they do shows normal, but there is so many other blood work that specialists can order (in Canada) and patients should be referred to be able to get these specialized blood work and results. Nadia I am praying you are on the road to recovery and healing. Wow what you had to go through to get a diagnosis. I am so sorry.
I am going through this myself now... Nobody believes me and imply that it is all in my head.
I am so sorry to hear that, Marina. No one should feel so dismissed. I hope you get the answers you deserve. -Stephanie
In the US, it is common to make people with cancer, already diagnosed yo wait a full month before any chemo is done. It’s disgusting.
I am going through similar but nothing compared to you! This story has totally enlightened me on what I need to make happen! Thank you❤
Does Nadia have her own YT channel? I’d like to follow her story. This is the third person I’ve learned where doctors didn’t take them seriously, test results came back normal and all have been diagnosed with cancer. It’s very VERY upsetting how inept the medical field is now!
This makes me so angry, as a Nurse and as a woman! We women are victims of medical gaslighting, which is what happened here!! To tell a Patient that they don't have time to read studies and that she reads too much is so insulting!!! The nerve!!!!
Hi Tami, thanks for responding and watching our video. We are working on a follow up video to this (medical gaslighting). Would you be able to share your perspective as a nurse? If so, can you email us at community@thepatientstory.com
We all need to learn how to talk to doctors. Sick in bed for 2-1/2 yrs, I lost my job and my license. Finally after learning how to speak to Drs and how to get them to makes proper notes in the record, I'm healing, out of bed, walking without a walker, and the pain has substantially reduced all with 4 months of treatment so far.
I've seen flight surgeons (USAF) who were amazing diagnosticians. One diagnosed me with Reactive Hypoglycemia after examining and QUESTIONING me for a few minutes. Next, a Five Hour Glucose Tolerance test supported his diagnosis. Of course this was early 1990's and he was trained in clinical diagnostics. Witnessed many other doctors there diagnose correctly during clinical examinations... Nowadays, I guess the young doctors are trained to order tests and prescribe meds. Then, they rule out what it isn't rather than identify what it is... Remember the paper gowns? So they could examine? Now, they don't listen OR examine!
Please help me to know how to talk to my Doctors. I am being dismissed by Gp and Gastroentronologist. They are so rude and disrespectful and treat me like either it's all in my head or they don't care or want to take the time to find out what is causing my severe pain. I'm at the end of my rope. I can't go on living in this pain. I don't know what to do.
@@cindytraylor1162 dear Cindy, when you're at the end, Jesus is there, pray and ask him, commit the keeping of your soul to his trust and above all else if you're not saved already, take the step. Praying with you 🙏🏻
Please send this to everyone you know. We need more groups that a patient can go to for all the help offerings and recommendations when they are sick and at their lowest. This is no time to have to fight for help. Not enough people stand up to doctors on their own behalf bc we are taught that they will do all they can as part of the nature of their choice of career. All doctors are not actually caring and highly intelligent and ready to research and fight for you. Some are in the wrong profession or just lousy humans. Someone needs to go to appointments with you, and it must be allowed and encouraged and lawful for patients to record visits so they can remember what they were told when they were not feeling well and nervous. This lovely woman is smart and respectful, but needed help to keep switching doctors and doing research and finding out what tests she needed right away without having to beg for someone to diagnose the cancer. Despicable. There needs to be education updates for what is available for all patients. The kind and helpful Dr. didn’t even know about opportunities for her to get treatments! His office and all offices should have lists to go to immediately in this digital age. Big Medical Facilities should be sending every little doctor office and big hospital and everything in between the same medical research journal updates, financial aid programs, free drug programs available like Pfizer RX Pathways, etc. Insurace companies cannot be allowed to dictate what medications a patient can and cannot have. I don’t know how these changes can be made bc I’m not in the medical field, but I pray people will watch these videos and be wonderful and determined enough to get help for every person who faces any kind of illness for themselves or their child. Please send it to everyone you know. To this interviewer and TH-cam channel, please find way to get this video and previous one seen. To this brave and beautiful woman- I am sending you love, prayers and all my support! My family members and friends have been badly treated by way too many doctors. It’s a very real and all too common problem. I’m so sorry that you have something so serious to treat, but you’re amazing and got help, even if you had to respectfully claw you’re way too it, use your research skills and make hundreds of calls while being so I’ll and badly treated by everyone around you. Bless you! 💕💕💕💕🙏🏼🙏🏼🙏🏼🙏🏼👍🏼👍🏼👍🏼👍🏼👍🏼👏🏼👏🏼👏🏼👏🏼
Hi, I am a new subscriber and acidentally stumbled on your channel...i started to cry, the doctors have made me feel like this so many times and it feels awful. So thankful you are finally on the road to recovery🙏🙏🙏
I find many doctors are very quick to get to the next patient. I have also founnd the many doctors can't be bothered with seniors. Sad for us Canadians.
Same in US
Healthcare seems pretty horrible in Canada. I'm in Minnesota so we do have some amazing facilities and physicians between Mayo Clinic and the Twin Cities. I can't imagine seeing an oncologist that isn't up to date on the latest treatments for cancer. 🤔
It’s pretty shit to be honest.
We can be waiting for months to years for surgeries or to see a specialist etc. BUT if you can pay out of pocket, boom! Suddenly you can be taken care of within two weeks.
Since Covid, American healthcare is in the toilet… if you don’t have Covid, you’re pretty well fucked. If you do have Covid, refuse any remdesivir!! Or you will be totally, royally fucked.
This is a big down side of socialized medical care.
SELF-ADVOCACY is vary
DIFFICULT if we can't....be
VOCAL or explain our symptoms/feelings to
DOCTORS😢😢😢😢 !!
These videos are so powerfu;! Thank you for sharing them. I've just been diagnosed with b-cell lymphoma and every single stage is a battle in the UK to get closer to treatment and multiple referrals haven't gone through when they promised it would. It's so sad that this sort of thing happens but hearing stories like this is empowering.
I walked around for 18 months with a broken neck. I was treated like I was a drug addict…had no,pain pills or I was a drunk dropping things that I couldn’t feel my hands holding anything. I really thought I was going to go nuts 😤.
I specifically asked a doctor to not tell me my weight due to my recovery from anorexia, but he did it anyway. He also kept asking me about a tattoo on my back and what it meant. I told him it's personal and I didn't want to talk about it, but he wouldn't accept that as an answer. I think he asked three times. I left that place and never went back.
I'm so glad Nadia advocated so persistently for herself. The doctors dismissed my father's complaints over and over until his cancer was so advanced he died 2 weeks after he was finally diagnosed.
I’m sorry - I would have just “lost it” on those unprofessional, fools. I thought long and hard about using the word fool but that accurately describes almost every “doctor” you encountered.
Canada, what horrible health care . At least in the US with good insurance, from my experience you get tests done more easily. I'm sorry she had to go through this. Patients need to be their own doctors these days.
You're a fuckin warrior I'm with you🙏
I got gaslighted and now i had the same symptoms like yours lump in my neck and armpits,night sweats and low grade fevers and the doctor dismissed me
So much for the joys of socialized medicine. That is SLOW!
I would have hated being sick and getting that diagnosis but i would have LOVED telling those drs "I fckin told you so!!" And how dare you not believe me and then id go in person and tell them they better remember me when they have another patient come in and that they better not dismiss them...
Dang! I can’t believe that crap you had to go through. Good for you for standing up for yourself. Bravo!!!!
God bless stay strong!!! 💜
Nadia your story is applauding this is what I’ve been trying to tell my doctors that I have ovarian cancer and all these doctors say I’m just crazy and have a stomach bug
Always AlwaysAlways go to a doctor who listens and respects you and wants to dig for answers. If not find a new doctor! There is no loyalty to a bad doctor.
🙏🏼💕Senfing you love and prayers!🙏🏼💕Thank you so much for sharing your story to help others. You’re awesome. No one should ever be treated as badly as you were.
Am sorry you had to go through this. God bless you for sharing and teaching us to believe in ourselves despite anxiety which is quite normal
Wishing you all the best. This, for very personal reasons, was very challenging to watch. We have to advocate for ourselves medically, and when dismissed, we must persist.
🌸❤️
Nadia , I am sorry to hear about your experience you had from health care professionals, i wish all success for your treatment journey.. I am sad to hear that a doctor said , he didn’t have time to read, it is part of their professional responsibility….!!! Wish you all healing both internally and externally.
Hi Nadia, you have been in my heart since the last couple of ideas sent 3 months ago. Please know you have encouraged me just to deal with life's journey. Also inspired me to trust myself and my body. Whenever thoughts of you and your situation come to mind, I say a prayer for strength and solutions to relieve pain or fear. Stay Strong 💪 you sound like a fighter so keep up the good work!!!
Thank you. Your info is very much helpful to those of us dealing with simular situations
SIm sorry Nadia,this is such a painful story to listen to I cannot listen to anymore I'm feeling quite stressed by it! But I hear you. I do wish you well & thankyou for sharing.
Nadia I am so sorry for everything that you were put through my medical staff.
I'm relieved that you had a counselor there that was teaching you how to advocate for yourself and that your sister was supporting you as well.
I'm happy that you became your own best advocate by researching this matter yourself. I hope that this proves to any doctors that you've worked with in the past, present, or future, that you're a lot tougher than they realized and that you will not be dismissed, or put up with being dismissed! And as for family, friends, or coworkers that dismissed you or blew you off... I hope they felt like crap/ guilty once you got your real / cancer diagnosis. This is why it is so important "not to judge people so quickly". I wish you all the best! God bless! 🙏❤️❤️❤️❤️❤️
You have probably made a difference in so many lives by being persistent.🙏🌻
I am so proud of you for advocating for your health it seems like people are also going through this
I just came across your post and I thank you
I myself am going through this medical gas lighting from my doctors here in California
I have been having to fight for medical treatment for years and all they do is shuffle me around
I have been in chronic pain for 7 years now and have had very little relief
And like yourself I do research on things that I need to understand about my pain and somehow find a solution since my doctors are not continuing their education
And when we show some medical intelligence they get quit and shuffle me again
I think it's odd to know more than your doctor about your condition shouldn't he know more
And why the resistance to take some time to study things that they don't know such arrogance is killing people every day
you live in British Columbia, Canada? I live the U.S. and keep hearing all about the delays and and age cut offs for various diseases, such as hip replacements and cataracts. Is this correct? Your doctors were so unprofessional and sounded like they were trying to save money by avoiding expensive tests. It's unforgivable! Every patient deserves to be heard and respected. I pray for your recovery and better medical care from now on.
Yes, what you have heard is correct.
You are an amazing person n im so sorry u had to go thru that 💔 😔
Thank you for sharing your story Nadia. I wish you health
Thank you for sharing all of this!
I know what that vindication of finally having a word that validates our experiences to everyone who doubted us or did listen. It would save a lot of medical induced trauma, which I think is a real thing by the way we get treated on our quest for an answer. I don’t have cancer, but I understand. It sucks.
Nadia, thank goodness you are a smart girl. You knew there was something wrong and you persisted, armed yourself with knowledge and fought for the right treatment. I'm sorry the doctors wouldn't listen to you. They were wrong, and they know they were wrong. They get to live with that. I hope and pray you'll be OK. ❤
You posted this a year ago. I hope things have turned around for you. Love and light.
Nadia, there are SO MANY horrid doctors like this. You are a fighter and I commend you. I hope you have found a path to peace. This is all very traumatizing.