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Many blessings to the Surgeon and his team who set me free from this nightmare pain..my thoughts and sympathy to all who are suffering today..may you all find peace.
Thank you very much! My mom was just diagnosed with this condition. Its excruciating. It's even more painful on my part seeing her in pain but can do nothing.
@@Peter-ls8yr I looked it up. Thanks for the tip. Gabapentin is a prescription medication known as a gamma aminobutyric acid (GABA) analogue. GABA reduces the excitability of nerve cells (neurons) in the brain, which play a role in seizures and the transmission of pain signals. Gabapentin mirrors the effects of GABA calming excited neurons.
I have lived with this for 5 years now, and just been diagnosed with this, I have suffered a huge amount of pain, not being able to talk, eat, drink etc, I am looking at surgery soon and just had the detailed MRI on Monday, I will try anything to stop the pain. Also living on edge all the time, wondering when the next attack will come, I can see why some people would take their lives just to end the pain.
I had surgery for trigeminal neuralgia 1 year ago after suffering increasingly severe pain over a 13 year period. What a blessing to be pain free. After the decompression surgery I did have a bit of facial numbness but it gradually disappeared over several months. However if it had not, I would have preferred the facial numbness over the incredible pain of trigeminal neuralgia. My only regret is not having the mvd surgery years ago! You would not wish this pain on your worst enemy.
@@s.h.p.4571 I have it constantly in my lower eye lid. For last 2 years. After multiple broken bones in my face. Feels like someone's putting 5 eye lashes in my eye constantly and shoving a needle in my lower eye lid moving it around. Never stops. I'm heavily medicated. Without the medications no one would be able to take this pain with medication. I did it for 3 months. I went from.180 lbs to 120. Would go full catatonic. Had full fledged plans to kill myself. Stopped at the very last second..checked myself into a place. Was put on meds. That have me so spacey I lost everything I worked for , for 14 years. Have a surgery FINALLY in 2 weeks. Omg if I'm pain free, it will be the most amazing experience of my life.
Want to hear aomething crazy? In 2015 I got a root canal and the endodontist either drilled into my trigeminal nerve and/or chemically burned the nerve. I yelled right there in the dentist chair and, ever since, have hurt 24/7. I was diagnosed with Atypical TG b/c I have a constant, severe headache AND those shooting, horrible "zaps". Guess I won the lottery with that one. 🙄 Just please be careful everyone: do NOT get root canals or any superfluous dental work done. It is NOT worth the risk. This has devastated my life; I had to quit teaching (which I loved), am unable to keep my only grandbaby (I tried & ended uo sobbing from exhaustion & pain), or even keep a clean house. One time I counted all of the "shocks" during the day and stopped counting past 130 times. God help & bless any & everyone who has the misfortune of this condition. I would not wish this even on my enemies. That is how horrid it truly is.
@@coconutvirus2225i looked into what u said, but that isn't what I am suffering from. Instead, it's Atypical Trigeminal Neuralgia b/c the zaps I get are in the upper part of my face (above my left eyebrow). My pain doc explained that, while it does differ from Typical TN, it is still part of the upper tri nerve that is giving me such pain. It doesn't hurt at all where the root canal was located nor along any of the teeth/gum line. Several of my surgeries dealt with the ganglion nerve block. I tolerated procedures fine; yet the relief was minimal. So he did two nerve burns - those were ungodly in my pain levels. They had to strap down all of my extremities AND strap my head to the hospital guerny It was a HORRID surgery.
I had a root canal done as well and since then I am in pain. Went to my MD and told him my symptoms and he told me it is Trigeminal Neuralgia. When I read and see the symptoms I don’t have the shocks and zaps that everybody keeps talking about. Mine feels like a damn toothache. Maybe it is just a toothache but doctor and dentist keep saying it is Trigeminal Neuralgia. I guess I won’t know till I pull the damn tooth out..
I had TN for 17yrs. in all 3 nerves, like having a baby through your nostril every 10 seconds. A ton of clueless docs & 2 Gamma Knife surgeries later - I'm good now! No meds helped... feet in hot water seemed to help temporarily. Crying made it worse. Don't give up hope - believe you will beat this!!!
To ALL of you sufferers. I had your symptoms for many years. I had the microvascular surgery and it was the best thing I ever did. Please go to a notable institution. I went to Cleveland Clinic.. The surgery i isn’t scary, as I thought. I did this 20 years ago. Good luck and God Bless.
@@bonniemillhone6180 Hey, my mom was diagnosed these week with " D neuralgia Trigemini Lateris Dextri Alveolaris posterioris " is this the same diagnose that you had ? She had pains last year for a month amd it stoped until one year later (now). And i am really worried
I have had for twenty two years with no response to surgery. I cope mosly by distraction ~getting my mind on a project usually using my hands or creative outlets and also I don’t fight the pain but accept it as part of who I am. Maybe I’m not the girl I used to be prior that had a career and sports car etc but I’m far more now ~I say to myself ~I’m a fighter and I have endurance. I’m also spiritual. The enemy will always have a fight when it comes to defeating me AND you~anyone enduring this amount of pain is a person made of monumental courage and is a pillar of strength! Don’t you forget it.
After 16 years of being in remission... it's back. The meds do nothing for me. Prayer does. Praying hard. I BELIEVE and I am hopeful. God bless all of you!
Praying for you now. It’s a life altering condition and mine has gotten so bad I’m considering a block turn down the nerve. Your thoughts regarding this trigeminal nerve block I’ll be most appreciated love and God bless you.
Been suffering from it for 6 years. It started when I was 14 years old. Nobody knew what was wrong with me. Finally, at age 20, a neurosurgeon has finally diagnosed me with TN. It's such a crucial pain 😭😭😭
I just had a week of this excruciating pain due to an infected molar tooth. I cannot imagine having this on a chronic basis! It brought this man to tears it was so bad. I’ve never had pain as bad as this.
I pray for each & every one of you suffering with this evil cruel disease ❤️❤️I’ve just been diagnosed with this 6days ago I’m in so much pain I don’t want to be alive anymore 🥺🥺I just want it to go away 🥺🥺I have to be strong & get through this 😭😭😭
The pain is so severe! It’s so difficult to deal with. I finally got a diagnosis today after suffering since last April. The first neurologist said it was jolt and jab headaches with no treatment. I got a 2nd opinion today and got a diagnosis. There’s no way I could continue to suffer like this every day. I start my carbatrol tomorrow. Take care!
I was diagnosed with unilateral trigeminal neuralgia on my left side, as a result of an unnecessary removal of upper wisdom teeth in 2006. It flares up randomly, and I've never found reliable triggers that I can then avoid. Thankfully, it occurs rarely enough that I haven't sought out surgical treatment, but when it happens, it is absolute hell. I've always described it to others as a brain-freeze that lasts for hours.
i suffered with Trigeminal Neuralgia a few years ago and oh my days it was literally the worst. I felt like i was being electrocuted on my right cheek and it would happen at random times especially during school since i would chew gum a lot but i wasn’t aware that this would trigger it. It was so bad and went on for a few months so i finally searched up how to get rid of it and there was several massages that i followed and thank god it set me free! Hopefully i’ll never have to go through such a thing ever again because it was horrible especially for my 12 year old self.
I have suggested from this debilitating disease for years and now I want to use my professional expertise as a doctor and experience as a patient to spread awareness . I have found your video to be straight forward and helpful and would like to share this with others for educational purposes . I will give due credit but need your consent before using this through my channel Many thanks
I’ve had it all. The pain included a hot, dry, burning pain that was escalated by wind, stress, and loss of sleep. It never stopped and the amount of medications and procedures I tried is immeasurable. Finally I met a doctor for cancer pain. I uselessly told him about my face pain. He shrugged casually and told me to try the prescription he had written. A simple anti seizure drug stopped the pain immediately! I was free! The mask of facial pain has not returned.
Heyy ! I'm suffering from trigeminal neuralgia and I have used many med but could not stop the pain and it's very bad pain cannot bear it . Can you pls help me ?
Mannan123 Mannan123 The name of the drug is Trileptol. I will take it everyday for the rest of my life. It’s a miracle! I hope you feel better very soon. I rarely have even a small headache these days.
@@corvettedm1 Thank you! But I already used this medicine but it did not worked on me . It's really hard to bear this pain however I'm taking medicine from one my doctor the main problem is it does not go away . It just drive me crazy lol.
I was pain free for almost 3 years after taking tegetrol for a year and weaning off of it. This week my TN has returned and the tegretol is not helping. I hate this roller coaster disease! Love and hugs to my fellow sufferers!!
I have had for twenty two years with no response to surgery. I cope mosly by distraction ~getting my mind on a project usually using my hands or creative outlets and also I don’t fight the pain but accept it as part of who I am. Maybe I’m not the girl I used to be prior that had a career and sports car etc but I’m far more now ~I say to myself ~I’m a fighter and I have endurance. I’m also spiritual. The enemy will always have a fight when it comes to defeating me AND you~anyone enduring this amount of pain is a person made of monumental courage and is a pillar of strength! Don’t you forget it.
All my best wishes to the sufferers of this terrible affliction, you're not alone and there is help, please be strong and don't be affraid to ask for help, even if it's only for a campanion to sit by your side, my experience with TN was horrific and talking about the pain makes me nervious, I was lucky that medication helped me after many years of going into a dark quiet room to ride the pain out, like another person on here has commented... May you all find peace.
Anyone who has experienced this sort of nerve pain would have no problem comparing it to ANY other pain they have felt. This will have you on the floor if it wants. It is completely unmerciful, you simply cannot function during an attack. Its very high pitched pain, stinging electrifying shooting pain that will have you in tears. I have this but its mild enough, I can take it but sometimes I have to stop working.
My mother had this ,she can handle pain and had high pain tolerance ,but with this pain I remember seeing her SCREAMING on the floor ,it scared me so much ,hers lasted a year ,it was after dental work
I would beg to differ that atypical is a milder form. Im in pain with burning pressure and tingling and tinnitus on the affected side my every waking moment. At least the regular tm you get a break.
I have it too. Cbd oil from the whole plant, not from hemp! Have seen too many people having multiple surgeries in a short time span and not convinced that it even works!
I have both types, but believe me the atypical is not as bad, but yes you get says off but you live with the fear of that on top of it. This is not a competition, we should be helping one another regardless of pain levels, it's the same condition!!
You are neglecting atypical. No stabbing pains or very little. It's a constant throbbing deep pain that with varying degrees of intensity. In all the same areas as typical.
@@jennifertingley285 16 yeae sufferings constant sharp pain in my forehead every day of the year, swollen Left eyes affecting my vision, I can't turn my neck, etc.
I was misdiagnosed for over 10 years, I became so resistant to pain over that time that I could deal with anything now. Was regularly awake for 4 days straight. A simple tablet every day stopped the pain. I still feel it there just not badly. I couldn't imagine any pain close to that
I have had trigeminal neuralgia for 8 years and am in pain unless I am sleeping. The worst level of pain occurs 50 to over 200 times a day for me. I had destructive surgery with balloon compression two years ago but the nerve repaired itself and the pain began to after five months. Drugs are no longer effective, acupuncture didn’t help, there is very little quality of life with no pain control.
I had the microvascular decompression surgery in December of 2017. I've been pain free and drug free ever since my surgery. I have some numbness on the side of my head where the surgery was performed, which is fine with me. It only feels numb when I touch there. Prior to my surgery I had tortuous pain in the mid and lower branches of the nerve, that came and went for just over 3 years. I was ready to exit myself. The MVD surgery saved my life ! I'm always praying for those that still suffer. God bless.
I have had trigeminal neuralgia for 9 years. The pain is horrific. 3 years ago I had the balloon compression surgery but the nerve regenerated after a few months and the pain returned. My neurosurgeon refused to perform another operation. Drugs haven’t helped in many years. I’ve been homebound for years except for doctor visits. It is a struggle every day knowing it will be filled with awful periods of pain that make me cry out.
Have you looked into upper cervical chiropractic? It really helped me a lot they take X rays to see if your C1 atlas is out of position then do gentle adjustments to move it back so it isn't interfering with your spinal cord.
@@amberhill6329 I’m currently taking carbamazepine I cannot function on them I feel like I’m going to pass out 🥺🥺I’m at my wits end now I’m really struggling to cope I’m so depressed 🥺🥺
@@Sweetbutapsycho4 I’ve been dealing with these debilitating symptoms for a year now. Last year I was told there was nothing for treatment and was diagnosed with jolt and jab headaches. I went to a new neurologist today and was diagnosed with this. I’ll be taking carbatrol starting tomorrow. It’s always good to get a second opinion. This has destroyed me over the last year, but hopefully this med will work. Take care!!
i’m pretty sure this is what i have :( had dental work done and ever since i have been in constant pain and it has advanced since. it’s been 3 months and a doctor told me she thinks this is what i may have and i have an appointment with a neurologist in a few weeks to confirm or just get some diagnoses or answer. i’m only 21 and i am so scared of how this is going to affect schooling and graduating. i need to get a job to pay for what loans can’t cover, but i just don’t think i will be able to handle both and dealing with this without any treatment.
I am having a very bad bout with this monster right now. Something new has been added I can no longer touch my nose. It sets me On fire. The pain just cracks like maybe someone put a electric rod in me On my face. 25yrs is way too long to suffer, I don't even get a warning. Pls pray for me that I don't kill myself and go to hell. I will pray for you as well.
I don’t believe you will go to hell if you kill yourself, if you believe that Jesus died for our sins and if we invite Him to be our personal Lord and Saviour, that’s what the bible says. I know Catholics believe differently but I am a devoted Christian and I have not found anywhere in the holy bible that we will go to hell if we commit suicide. I’m not encouraging you to do so, but I am encouraging you to accept Jesus as I said and you will be forgiven of all your sins and you will spend eternity in heaven. I too suffer terribly with other issues so I understand the pain and the feelings that go with it. I will pray for you. ❤️
I've dealt with terrible pain when I eat the first bite of something for my whole life, but since my wisdom tooth extraction it's gotten worse over the years and more frequent :/ And now it occurs when I drink alcohol as well. I'm not sure if it's TN but I think I may bring it up to my doctor.
I was shot in my face which entered the right side of my head....I have terrible pain in my right side of face...which also extends into the right side of my mouth. I have awful migraines. It's nice to put a name to it. I plan to go see a neurologist because the pain is getting worse. Makes it hard to eat and brush teeth. Some days it's just constant.
I have suffered for 3 years. It was after I was nearly beaten to death that I was diagnosed with this by my neurologist. I can't even get upset without an attack. I can't eat, chew gum, or even talk when having an attack. I can't even imagine actually getting mad. It has literally brought me to my knees. I'd like to see a therapists, that might help me psychologically. I don't wish this on anyone. I'm sorry there are others who experience this hell.
I never heard of this affliction, until I felt it for the last two days. And wow I definitely understand why it's called "the suicide disease". Right now I've been experiencing the left side of my teeth being stabbed. While one of my glads is beginning to swollen up. The most painful thing I went through last was. My sciatic nerve in my leg spasming and that just needed to be stretched so no big deal. But this is insane, I can't imagine people living way back without the current medical advancements of today.
It`s very accurate to call it the suicide pain. I am a chronical pain patient, and this trigeminal neuralgia on top of it.... it is teh `cherry on the cake`of pains indeed.... Although I take medication for it, when there is atmosperical inbalance, it pups up again to torture me. Much strenght to all co-sufferers!
Had half my teeth pulled cause of this disease and only slightly lessened the pain in those areas. Surgeons won't do any surgery cause I also have CRPS and are worried about lasting pain after. Best med I've been on for it is tramadol. Cause it also treats anxiety. But it is addictive and go through bad withdrawals if you go off it after only your first prescription. It's that potent. So double edge sword
@@maliataylor6757 all my wisdom teeth are growing so they thought it was mine too kind of and yes I have been on a lot of medication, long term I have been on an antidepressant called nortriptyline which is brilliant and keeps everything at bae, caused a bit of hair loss but that’s the only side effect, I take indomethacin short term if I have a big flare up but it’s quite harsh on the stomach. I don’t have trigeminal neuralgia exactly but I have trigeminal autonomic cephalagia which mimics trigeminal neuralgia but is slightly different but the pain is exactly the same
I have bilateral A typical T.N believe me, the pain is ceaseless and the pain is severe! There is no way I could continue living without anticonvulsants. All surgeries have been unsuccessful and my medications becomes less and less effective over time. It is heart breaking for all this disease effects. A very cruel disease I hope someone discovers something to help us soon
Hello, I have diagnosed atypical T.N, It all started 2 weeks ago, I had night attacks with terrible pain for 4-5 hours. Opiates did not work, ketamine did had weak pain killing effects but it can't be taken so often in such doses. The neurologist prescribed me anticonvulsants but I decided to try something else, which I found that is helpful for cluster headache and have no serious side effects. I tried psilocybin in small amount (not enough for psychodelic effects), the pain went away, I have to redose every few days but I'm good as new.
Honestly I've suffered with this since 2012 and the only thing to help keep it at bay has been cannabis. But it has to be the right strain and I can't stress this enough.
I very much appreciate you trying to bring trigeminal neuralgia to light. But I feel like you are a little misinformed when it comes to ATN. Those of us with ATN do have duller constant pain, but most of us also have TN shocking, Stabbing, ripping pain as well. Sometimes up to 20+ flares a day. Then, some of us ATNers also have Cluster Migraines which is partially due to the Trigeminal Nerve. I got ATN at 18, due to multiple traumas/brain injuries over a course of 2yrs. So I am not a candidate for MVD or Gamma Knife. They also can severe the Trigeminal Nerve, which leads to complete numbness but sadly exacerbates the trigeminal neuralgia so that you not only have permanent numbness and tingling but you also still will experience the shocking stabbing pain. I've heard too many horror stories from people that were desperate enough to allow their trigeminal nerve to be severed. ATN isn't less painful at all. If anything, it's more painful as we have constant pain and the flares of TN-1. I hope I've taught someone something today. I've had this disease all of my adult life. I am now almost 42yrs old and it gets harder everyday to find a reason to keep going, keep surviving, as this isn't really living. It's hell. We NEED a cure!!
There is surgery for TN (they put a tin foil sponge between the nerve and your body. ALSO pain blocks in the form of anti-depressant medicine, like NOrtriptyline, and Amytriptyline, is an alternative. I am on Rx NOrtriptyline. Go to a PAIN SPECIALIST OF THE MOUTH!
I am diagnosed with TN. Ive had MVD surgery. Balloon Compression surgery, still in pain. How the heck can i have Trigeminal pain with the nerve damaged and numb??!! Ugh. My pain last on average for a hour. Not seconds or minutes. And its full on cant stop screaming uncontrollably hellish pain. My nose on right side, the sinus swells during pain. When pain finally stops and swelling goes down on my nose, my nose will pour snot. My right eye waters and swells. Roof of my mouth and gun line on right side thump so hard it feels like it will split open. If i breath and air hitd gum, holy batman robin, it amplifies pain. Same with right side of my nose, it swells and anyair i breath through my nose hits right side, the fire feeling gets ALOT worse. Nothing works. 4 years of this now. Started day i had 2 teeth cut out from gum and sinus. No one listens. I think dentist did something. While my pain is similar to TN, its not exactly the same. I have times i can move my jaw at all or their is pain. I have to try and relax my face. Its a nightmare. 4 years of this. Laying down triggers it. With kn a hour of laying down, it hits. Usually itd a slow leak. I hold hot coffee or hot water in my mouth at pain in gum and roof of my mouth. Does help a bit. Not as much as i would like. Sometimes pain is so bad i cant touch my jaw area. To painful. I am sick of doctors that dont help. Im on no meds right niw as nothing works so far. Carbamazepine worked for about 10 days. But could of been a fluke. Ugh im miserable.
I feel your pain..... I've had Mvd surgery too, now for almost 30 days and I haven't seen any results as of yet. I'm still waiting for the results to kick in.... Anyways Good luck with your journey Keep me posted 🙏❤️✌️✋
I have this . Ear pain,ear pain, eye pain, touching my face , my voice sounds like laryngitis,but it’s difficult to swallow. The nerves in my throat feel like severe nerve pain and absess like as well as the Center of the brain. It’s excruciating pain and personally it’s to much as I can’t receive normal treatment because of allergies. It’s the worst pain I’ve ever had.❤️ God Bless Everyone who suffers from this hell.
Gabapentin 100 MG first thing in the morning. Try it out and increases the dosage as you go and see what best for you. I had the same experience and now i am doing great with Gabapentin
@@Peter-ls8yr I was put on every nerve medicine,it makes me feel sick and high. It got so bad I had to start out at 100 because I have CRPS as well as fibromyalgia and RA. I read Dr Terry Wahls protocol and it really helped me with other,but this ,we thought I has ALS. The throat,the nose, the ears ,it feels like a bad absess in the brain. They did MRI and there was a huge change from a yr ago in blood vessels ,because of inflammation. My dad died really young from heart and stroke on keto,and so I went to a Heart Surgeon,with only a bad family history. He’s dead against eating any kind of meat. I’m trying the gabapentin but if I talk chew swallow it’s hell. I feel extreme pain in forehead and nose that reverberates into the brain. I smashed my face a yr ago on a marble table and it hurt. It took a while but already having a nerve disorder,and it begins in stomach sometimes as well. It’s hell. No narcotic nothing has helped me. I’m at loss. Stay safe everyone. I’m not even vaccinated yet because I have a blood clot r now and I’m following Dr Geert Vanden Bossche. ,with Dr Philip McMillian , Benefits vs Risks . It’s excellent information for everyone out there on viruses. The white tail deer 🦌 have it now max well as hamsters and ferrets.
My mom have had this since 2019, she haven’t worked in two years because of it. I hate she’s going through this & there’s nothing I could do to stop it.
A bottle of vodka and sleeping pills just to get a few hrs of relief has been my last resort. I'M waiting to see a nauroligist at last after suffering with this hell for years. Get your mum to hassle the doctors every day until they send her to a specialist. It's not called the suicide desease for nothing.
I've only just been diagnosed with this lady Friday after another bout of severe unbearable pain and an Emerg visit. It's like someone's pulling all my teeth out on the right side of my face suuuuuuuuper slowly and the pain radiate 's all around that side of my face to my ear. Has anyone ever heard of this occurring as a result of a concussion? (I'm 19 months PCS). Wondering if it's related or just.. My bad luck.
My father suffered from this for approximately three years. It was heartbreaking to see him in so much pain we felt helpless he couldn't eat or sleep. It took a while to diagnose it as trigeminal neuralgia because he thought the pain was coming from one of his eyes so we spent a lot of time at this big eye hospital downtown all for nothing. Spent thousands of dollars on treatments and medicines for his eye and nothing they did helped him to stop the pain that's when I suspected the pain was not in his eye. After nearly two years of sending him to different hospitals different specialists I got furious at the fact that after all that time and money we spent he was still in pain. Our family knew of a surgeon back in our home country in South America who spent his whole career doing surgeries on people with this condition and he became our only hope. We flew him out to meet this surgeon and he performed the surgery and my dad is now pain free words can't describe how grateful we are. Unfortunately here in the U.S it was all a horrible waiting game and countless hospital visits and examinations and different specialists wasting our money while my dad was in pain and no progress being made.
@@earthtravel2941 I don't think that was the case for my dad although they did say he had the same denture for way too long and that he should of changed it cuz it was causing damage and hitting a nerve in his jaw or something if I remember correctly and it was causing some minor inflammation.
I started out with a pain started burning in my right side of my face it was inside of my mouth it just kept getting worse the pain became so bad so deep it would bring me to my knees I would scream & cry I could not eat drink Water it would wake me up in the middle of the night.I lost @ 23 lbs.I heard that I didn't want to eat because I didn't want to get fat which was unreaI I read that it was a suicide disease I am here to tell you that's the truth.. I took oxycarbazepine & gapapentine for a 4 year now I only take oxycarbazepine For 4 months it stopped now trigeminal started again today I am Trying to deal with This again maybe The medicine will decide to kick in again..pray for all who are suffering From this terrible Disease. I will check on all this information thanks to everyone..
Have you looked into upper cervical chiropractic? It really helped me a lot they take X rays to see if your C1 atlas is out of position then do gentle adjustments to move it back so it isn't interfering with your spinal cord.
I have both, too. Same thing, can't kiss my bf, I get woken up by the pain to the point where it makes me vomit. My TMJ started years before the trigeminal neuralgia but I also have chronic migraines and my migraine medication is the only thing that helps TN pain. It's called fioricet if anyone wants to look into it. Very strong medication but a literal miracle for me!! Good luck to you!
I'm experiecing that pain in the exact location except it is my left eyebrow. In my case it is non-stop and constant. Do you recommend any at home remedies or treatment?
I took the antibiotic ciprofloxacin and after 3 pills I got these feelings. The burning sensation in my head and down my face. I stopped taking it. But i think it gave me permanent nerve damage. Im having a matathon of pain. Going on 6 hours non stop. Omg its so horrible. How can we enjoy life like this? I was fine today then it hit me like a ton of bricks. It hasnt hurt this bad or this long in a very long time. Im having a rough go of ot for sure.b
Have you looked into upper cervical chiropractic? It really helped me a lot they take X rays to see if your C1 atlas bone is out of position then do gentle adjustments to move it back so it isn't interfering with your spinal cord.
Well. Seems COVID 19 came and went but I continued w horrible headache pressure still since April 2021. Now this started but my left side! Excruciating like 6 toothaches at once upper and lower jaw on fire. Is this part of my long Covid??????? It’s the virus that keeps on giving? I’m just feeling hopeless
Mine occurs at night. I can be sound asleep and be jolted awake by shock like pain in my jaws. If I continue to lay down and ignore it, it gets extremely worse to where I can't swallow without it triggering a shock. I have to get up and stay awake or I get tremendously worse. It's awful! I'm on medication, but it doesn't get rid of it entirely.
The pressure is nuts, isn't it? I've had it for 30 years plus and I STILL look in the mirror, convinced my cheekbone must be broken. Or is trying to work it's way out...via my ear. There's such a cognitive dissonance with this condition - how can you be in this much pain and look perfectly normal? I don't think I'll ever wrap my head around it...
Another trigger point is cold wind or Airconditioning. I have this dissease for 6 months straight now feeling it every single day. In the beginnening it was more agressive than now! I do NOT take any medicines cause I don’t believe in it and it didn’t help for me. I have been to a chiropractor to relax the muscles in my neck and crack my head. It helped a little bit but by far not something for ever help to get my life back. I pray for everyone that feels the same and will find a cure, InschAllah. Love.
Try having this with chronic Regional pain syndrome. The pain with both is worse then you can think. Chronic Regional pain syndrome is also know as the suicide disease.
4 years ago, I got the shingles on my forehead then my in my eye. In pain ever since including fatigue. I think I have trigeminal neuralgia. The swelling is almost gone in my eyelid but different types of pain on skull, forehead and side of face and eyebrow, bone pain though cheek bone is fine now. Pain is a mix of tingles, skin burning, bee stings or like nettles re hot or cold. I don't take any medication.
Hi. First, I'm sorry you are in pain. It sucks, and this is not meant in any demeaning way. Pain is pain. But if you had Shingles, you may well have a different form of this called Post-herpetic Neuralgia. It's one of the complications of Shingles and as such, is more of a known quantity than TN. The good news is that PHN tends to respond to meds better, it's not quite the recalcitrant beast that TN is (again, please don't take that the wrong way. I'm not minimising your pain in any way) so please tell your doc because the newer drugs used to treat it (Gabapentin, Lamotrigine, Pregabelin) are far more tolerable than the hideously "dirty" older anti-convulsants and you may find it to be controllable at least. But please do tell your doctor, he should be aware of PHN and there's an established treatment route for it. Best of luck.
My doctor is leaning towards this diagnosis for me. For over a month I've been having excruciating pain bouts on the left side of my face that I originally thought was a sinus infection. The pain seems to originate in the middle of my left nasal cavity and in front of my left ear and makes my teeth pulsate with pain. They usually last about 30 minutes but the pain is the worst I've ever felt. Getting a CT scan in a few days along with seeing a neurologist for confirmation. I describe the pain as the left side of my face behind the cheekbone being in a pressure vacuum that feels like it's going to implode and collapse inward. I had migraines a couple of years ago that went away-wondering if that was a precedent to this.
@@impulse279 I'm seeing an ear, nose, throat specialist in a few days after I was told my CT scan shows chronic sinusitis. I haven't had any of the pain flare ups for about a month-not sure why or what caused the extreme pain but I hope it doesn't return. Thanks for caring enough to ask.
Will acupuncture to align all the functionality of nerves will help? My mother has this trigeminal neuralgia, and it pains me to just watch her suffers in this pain without complete understanding what to do to ease the pain
@@moradekethanni1545 or maybe ask for an actual medical professional and use surgery or medication that has been proven to work, instead of needles and massage?
*Can anyone help me* I've had neuralgia now for about 2 weeks every single day. Luckily in the day it's not so bad I'm aware it's there but while I'm at work I can get on with my job without too much problems. It's when I get home, eat my tea, shower and get ready for bed that it flares up really badly. I'd say the pain out of 10 is an 8 but it's a constant 8 and an attack can last for anything up to 8 hours non stop through the night even waking me up and stopping me from sleeping. I've tried everything I can think of painkillers (to the point of nearly overdose) mouthwash, brushing my teeth, cold flannel, hot water bottle etc and nothing will ease the pain. The painkillers seem to work for about 20 minutes then it comes back just as bad. I'm really at my wit's end with it does anyone have any ideas, tips or suggestions to help me ease the pain and get a good night's sleep. Thank you in advance everyone.
You need to see a doctor who can prescribe something .. which definitely will help! Though it does start flaring up again after a few years .. then the doctor in my case prescribed Lyrica which helped for a few years .. then it started again and the Doc increased the dose and that worked for a couple of years. And now its starting again... that's why I'm researching the subject all over again! Good Luck!
Hi sorry. I had mine for few weeks now. The pain is unbearable. I took ibuprofen due to my job but recently took codeine with paracetomal and the headache is not bad. I also went back to the dentist and she grind couple of my teeth down which helps. Go to the doctor pls. My ringing in ear is still there
Was diagnosed 11 years ago. Extreme heat laying on a heating pad on high helps the pain but the minute I get up pain comes back. My neurologist thinks it's possibly connected to my none diabetic neuropathy upping my Lyrica and Cymbalta seem to help stop the attack. But I also have vasculitis, both from my Lupus, which they believe is in my brain was wondering if could be connected to that?
This pain is hill no one knows until they experience this pain please please if your experienceing this make sure if you have clicking jaw that's the main cause after 3 years going to many doctors fainally I found out it caused by tmj now I'm still suffering with a bit jaw pain but thank god no more gum pain or shoting pain and sensitivey to my scalp try to release the nerve by exirsise don't let your muscle get tight in back of your head try open your mouth wide if you experience any tight muscle in your face or some sort of muscle tightnes sound it's jaw problem
I removed all my teeth and had alveoplasty and found out that bone was inflamed. Nerve damagevin mouth throat tongue are making me feel like I'm choking. It's worse. I'm bedridden after never being sick. I'm 95# and can't take this anymore.
Very interesting, what I'm wondering is can being left with post herpetic neuralgia after having shingles cause these pains as husband is getting pains around these areas and over his left eye brow and its been 3 months now, gabapentin not helping much. The shingles rash was just over his head and behind his ear and left eyebrow and eyelid.
I had a PCR test in march 2021 which caused mine. V1 & V2 A Typical version 'fortunately'. It's definitely not fun, & seems to get worse as I get older!
As someone that was newly diagnosed with this and has to deal with it maybe don’t call it the suicide disease. I don’t think anybody needs the most painful disease ever! If you have any tips or ways to help provide those please.
Have you looked into upper cervical chiropractic? It really helped me a lot they take X rays to see if your C1 atlas bone is out of position then do gentle adjustments to move it back so it isn't interfering with your spinal cord.
I have stage 4 cancer advance to the trigeminal nerve to the base of my brain I'm really messed up I had chemo and radiation It even radiation affected it really bad I'm 2 years out but still suffering
I’ve got an onset as a result of Covid-19. I would hate to have surgery if it would eventually go away. There is not enough information of it as linked to Covid. During an episode, my right eye droops down and since its onset, my nose is very tender and swollen.
RSD/CRPS is also known as the suicide disease and it is also the worst pain a person can ever feel. I have RSD and they feel I have this. I can tell you....RSD is a thousand times worse.
Have you looked into upper cervical chiropractic? It really helped me a lot they take X rays to see if your C1 atlas bone is out of position then do gentle adjustments to move it back so it isn't interfering with your spinal cord.
Dude, TN IS sensitive to temperature!! What are you on about??? A cursory Google search will tell you that wind and temp changes are one of the most common triggers. Also, "nur-al-GEE-a"?? No, just no.
Iv just been diagnosed with this , this wk iv treated my self for over a year as I though I had sinus trouble, also I’m not a run to the Docs I research first treat my self and speak to pharmacist first. Since this iv been on pregablin for another ailment. So I can’t see these new tabs working. My Gp is speaking to neurologist today, how long will I have to wait for surgery in uk ?? I’v not been depressed through this years so I’m hoping I don’t get it, but can understand why people do get depressed.
Has anyone got this after a root canal? I was totally fine until I got a root canal for an abscessed tooth 3 weeks ago. Now I’m in constant pain with a possible diagnosis of TN. I wish I never got the root canal now. Could extraction do it though too? Is that the safer option?
You might have gotten a severed nerve. I had that in my jaw, as a result of that the Rx' Nortriptyline or Amytriptyline are anti-depressants and can act as a PAIN BLOCK! You will have to go through dosage trial to see what mg. is right for you. It cannot be fixed, that is why the pain blocks at least give you a 75% relief. I have had it since 1985 and now it is 2021! Go to a PAIN SPECIALIST. I went to Cedars Sinai in Los Angeles, maybe if you live in another state, you can get a referral! I wish you the best !
CAC Makar rasayan is herbo-mineral tablet made up of pure herbs and minerals. It balances all the three doshas of body. It also rejuvenates the body and helps in proper blood circulation. t contains natural ingredients like shudha kuchla, guduchi satva, shudha shilajeet, abhrak bhasma, ras sindoor, moonga bhasma, shankh bhasma, praval pishti etc. These tablets has antioxidant, anti-inflammtory, analgesic and immuno modulator properties.
I’m suffering too from TN. It occurred to me to use a patch that we commonly use for back pain. I cut a strip and placed it towards bottom of face (left side) ..has lodacaine..seems to temporarily soothe my pain. Wish I could figure this out. It’s terrible!
Meanwhile pelvic pain and pudendal neuralgia is not being helped at all I’m a fucking 25 year old man now 27 with pure suffering every single day and every second for fuck sakes help please..
I had a severe infection that had to be drained that went down my neck and checks and was becoming life threatening. I was probably 21 at the time. I asked my mother to take my fathers gun and shoot me. My mom didnt realize how serious it was so she made me wait all weekend until Monday when the oral surgeon was in the office. I was waiting outside his office before it was open... It was so bad. The drainage grossed out tge nurses. That's how bad it was. They asked if I wanted to save the tooth, I vehemently said hell no! Anyway, I cant imagine the pain you all go through and my heart goes out to you.
I experienced this one 2 days ago! First my left half face was so painful the next day my right face. As of right now it's gone. Still not working though
I just got diagnosed with this but I don’t have pain just numbness on my left side of face .. it’s been 3 days so far .. is it also normal to only have the numbness
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Here are some products that may help you:
Trigeminal Neuralgia Management and Trigger Tracking Journal: geni.us/Bpgis
Living With Trigeminal Neuralgia: geni.us/feLBv
Still Fighting, My Sisters Fight With Trigeminal Neuralgia: geni.us/T7Tem
Many blessings to the Surgeon and his team who set me free from this nightmare pain..my thoughts and sympathy to all who are suffering today..may you all find peace.
Such a kind comment hope you’re ok xx
@@TheOriginalThugWife Yes I'm doing well Thank you for asking.
If u had psr than it least for 2 years only
My operation was at 2019. 17 September. Nd now this pain starts again.
Im feeling on my head now nd nd aftr few weaks it will start pain in my upper jawr nd aftr few days the lower one
Thank you very much! My mom was just diagnosed with this condition. Its excruciating. It's even more painful on my part seeing her in pain but can do nothing.
Where is best treatment...trigeminal neuralgia...plzz suzz me.. my father suffering from last 2 year.
@@ijsrock2052 Gabapentina 100 MG first thing in the morning. Try this! it worked for me!
I’ve this been diagnosed with this condition and it is the most pain I’ve ever been in
@@Peter-ls8yr I looked it up. Thanks for the tip. Gabapentin is a prescription medication known as a gamma aminobutyric acid (GABA) analogue. GABA reduces the excitability of nerve cells (neurons) in the brain, which play a role in seizures and the transmission of pain signals. Gabapentin mirrors the effects of GABA calming excited neurons.
How did they find it to diagnose all I get is mri and no nothing
I have lived with this for 5 years now, and just been diagnosed with this, I have suffered a huge amount of pain, not being able to talk, eat, drink etc, I am looking at surgery soon and just had the detailed MRI on Monday, I will try anything to stop the pain. Also living on edge all the time, wondering when the next attack will come, I can see why some people would take their lives just to end the pain.
So sorry to hear this.
Could you please tell me where will do thid surgery and some other details thanks
i want to talk
I had surgery for trigeminal neuralgia 1 year ago after suffering increasingly severe pain over a 13 year period. What a blessing to be pain free. After the decompression surgery I did have a bit of facial numbness but it gradually disappeared over several months. However if it had not, I would have preferred the facial numbness over the incredible pain of trigeminal neuralgia. My only regret is not having the mvd surgery years ago! You would not wish this pain on your worst enemy.
@@s.h.p.4571 I have it constantly in my lower eye lid. For last 2 years. After multiple broken bones in my face. Feels like someone's putting 5 eye lashes in my eye constantly and shoving a needle in my lower eye lid moving it around. Never stops. I'm heavily medicated. Without the medications no one would be able to take this pain with medication. I did it for 3 months. I went from.180 lbs to 120. Would go full catatonic. Had full fledged plans to kill myself. Stopped at the very last second..checked myself into a place. Was put on meds. That have me so spacey I lost everything I worked for , for 14 years. Have a surgery FINALLY in 2 weeks. Omg if I'm pain free, it will be the most amazing experience of my life.
Want to hear aomething crazy? In 2015 I got a root canal and the endodontist either drilled into my trigeminal nerve and/or chemically burned the nerve.
I yelled right there in the dentist chair and, ever since, have hurt 24/7.
I was diagnosed with Atypical TG b/c I have a constant, severe headache AND those shooting, horrible "zaps". Guess I won the lottery with that one. 🙄
Just please be careful everyone: do NOT get root canals or any superfluous dental work done. It is NOT worth the risk. This has devastated my life; I had to quit teaching (which I loved), am unable to keep my only grandbaby (I tried & ended uo sobbing from exhaustion & pain), or even keep a clean house.
One time I counted all of the "shocks" during the day and stopped counting past 130 times.
God help & bless any & everyone who has the misfortune of this condition. I would not wish this even on my enemies. That is how horrid it truly is.
I am sorry for your pain, but your situation seems a lot more like atypical odontalgia
I'm so sorry. I don't always have these attacks. I have constant for 8 days. I am so so sorry that your pain is constant.
@@carlyyork8197 Thank you. So much. All of us need to be sure to keep our conditions out there - people need to know.
Have a blessed day!
@@coconutvirus2225i looked into what u said, but that isn't what I am suffering from. Instead, it's Atypical Trigeminal Neuralgia b/c the zaps I get are in the upper part of my face (above my left eyebrow). My pain doc explained that, while it does differ from Typical TN, it is still part of the upper tri nerve that is giving me such pain. It doesn't hurt at all where the root canal was located nor along any of the teeth/gum line. Several of my surgeries dealt with the ganglion nerve block. I tolerated procedures fine; yet the relief was minimal. So he did two nerve burns - those were ungodly in my pain levels. They had to strap down all of my extremities AND strap my head to the hospital guerny It was a HORRID surgery.
I had a root canal done as well and since then I am in pain. Went to my MD and told him my symptoms and he told me it is Trigeminal Neuralgia. When I read and see the symptoms I don’t have the shocks and zaps that everybody keeps talking about. Mine feels like a damn toothache. Maybe it is just a toothache but doctor and dentist keep saying it is Trigeminal Neuralgia. I guess I won’t know till I pull the damn tooth out..
I had TN for 17yrs. in all 3 nerves, like having a baby through your nostril every 10 seconds. A ton of clueless docs & 2 Gamma Knife surgeries later - I'm good now! No meds helped... feet in hot water seemed to help temporarily. Crying made it worse.
Don't give up hope - believe you will beat this!!!
I’m glad you received the right treatment to ease your pain. Hopefully your comment will give others hope ❤️
@@5MinuteSchool you should pin this so other people can see it
To ALL of you sufferers. I had your symptoms for many years. I had the microvascular surgery and it was the best
thing I ever did. Please go to a notable institution. I went to Cleveland Clinic.. The surgery i isn’t scary, as I thought.
I did this 20 years ago. Good luck and God Bless.
Thanks. Are the results immediate after the surgery or did it take some time for the pain to go away?
@@mophire2715 Immediate. Life was wonderfully normal again. Best to you
@@bonniemillhone6180 did your symptoms include burning/stabbing sensation in the cheek?
@@somebody701 Oh gosh yes. Sorry you are going through that.
@@bonniemillhone6180 Hey, my mom was diagnosed these week with " D neuralgia Trigemini Lateris Dextri Alveolaris posterioris " is this the same diagnose that you had ? She had pains last year for a month amd it stoped until one year later (now). And i am really worried
I have had for twenty two years with no response to surgery. I cope mosly by distraction ~getting my mind on a project usually using my hands or creative outlets and also I don’t fight the pain but accept it as part of who I am. Maybe I’m not the girl I used to be prior that had a career and sports car etc but I’m far more now ~I say to myself ~I’m a fighter and I have endurance. I’m also spiritual. The enemy will always have a fight when it comes to defeating me AND you~anyone enduring this amount of pain is a person made of monumental courage and is a pillar of strength! Don’t you forget it.
After 16 years of being in remission... it's back. The meds do nothing for me. Prayer does. Praying hard. I BELIEVE and I am hopeful. God bless all of you!
Praying for you now. It’s a life altering condition and mine has gotten so bad I’m considering a block turn down the nerve. Your thoughts regarding this trigeminal nerve block I’ll be most appreciated love and God bless you.
@@debraulerson6410 how are you now ?
Been suffering from it for 6 years. It started when I was 14 years old. Nobody knew what was wrong with me. Finally, at age 20, a neurosurgeon has finally diagnosed me with TN. It's such a crucial pain 😭😭😭
I’m sorry for your pain, I hope it gets better for you. What have you done so far to help manage it?
I just had a week of this excruciating pain due to an infected molar tooth. I cannot imagine having this on a chronic basis! It brought this man to tears it was so bad. I’ve never had pain as bad as this.
I pray for each & every one of you suffering with this evil cruel disease ❤️❤️I’ve just been diagnosed with this 6days ago I’m in so much pain I don’t want to be alive anymore 🥺🥺I just want it to go away 🥺🥺I have to be strong & get through this 😭😭😭
The pain is so severe! It’s so difficult to deal with. I finally got a diagnosis today after suffering since last April. The first neurologist said it was jolt and jab headaches with no treatment. I got a 2nd opinion today and got a diagnosis. There’s no way I could continue to suffer like this every day. I start my carbatrol tomorrow. Take care!
U can do this u are so strong
@@dljack4034 u can do this u are so strong
Pkease stay strong and dobt give up
I was diagnosed with unilateral trigeminal neuralgia on my left side, as a result of an unnecessary removal of upper wisdom teeth in 2006. It flares up randomly, and I've never found reliable triggers that I can then avoid. Thankfully, it occurs rarely enough that I haven't sought out surgical treatment, but when it happens, it is absolute hell. I've always described it to others as a brain-freeze that lasts for hours.
Dental Related - I had a root canal
I think I may have this. And your description as a brain freeze is exactly what I feel.
I'm the same
This resonates I was diagnosed with cluster headaches and I knew It was due to tooth pain. I knew 😮it was a cranial issue
i suffered with Trigeminal Neuralgia a few years ago and oh my days it was literally the worst. I felt like i was being electrocuted on my right cheek and it would happen at random times especially during school since i would chew gum a lot but i wasn’t aware that this would trigger it. It was so bad and went on for a few months so i finally searched up how to get rid of it and there was several massages that i followed and thank god it set me free! Hopefully i’ll never have to go through such a thing ever again because it was horrible especially for my 12 year old self.
Any info would be appreciated my mom is suffering severely
Acupressure?? Yes applying pressure can help with pain but not with THIS kind of pain
@@sylwiaratajczyk8534 look up Dr Eric Berg’s video on massaging the opposite cheek in the places that hurt on the triggered cheek.
I have suggested from this debilitating disease for years and now I want to use my professional expertise as a doctor and experience as a patient to spread awareness . I have found your video to be straight forward and helpful and would like to share this with others for educational purposes . I will give due credit but need your consent before using this through my channel
Many thanks
Hi, which channel?
I’ve had it all. The pain included a hot, dry, burning pain that was escalated by wind, stress, and loss of sleep. It never stopped
and the amount of medications and procedures I tried is immeasurable. Finally I met a doctor for cancer pain. I uselessly told him about my face pain. He shrugged casually and told me to try the prescription he had written. A simple anti seizure drug stopped the pain immediately! I was free! The mask of facial pain has not returned.
Heyy ! I'm suffering from trigeminal neuralgia and I have used many med but could not stop the pain and it's very bad pain cannot bear it . Can you pls help me ?
Mannan123 Mannan123 The name of the drug is Trileptol. I will take it everyday for the rest of my life. It’s a miracle! I hope you feel better very soon. I rarely have even a small headache these days.
@@corvettedm1 Thank you! But I already used this medicine but it did not worked on me . It's really hard to bear this pain however I'm taking medicine from one my doctor the main problem is it does not go away . It just drive me crazy lol.
Mannan123 Mannan12
I was pain free for almost 3 years after taking tegetrol for a year and weaning off of it. This week my TN has returned and the tegretol is not helping. I hate this roller coaster disease! Love and hugs to my fellow sufferers!!
Been suffering from TN for 6 years now. I do have MS. I would NOT wish this pain on my worse enemy. Suffering right now
I have had for twenty two years with no response to surgery. I cope mosly by distraction ~getting my mind on a project usually using my hands or creative outlets and also I don’t fight the pain but accept it as part of who I am. Maybe I’m not the girl I used to be prior that had a career and sports car etc but I’m far more now ~I say to myself ~I’m a fighter and I have endurance. I’m also spiritual. The enemy will always have a fight when it comes to defeating me AND you~anyone enduring this amount of pain is a person made of monumental courage and is a pillar of strength! Don’t you forget it.
All my best wishes to the sufferers of this terrible affliction, you're not alone and there is help, please be strong and don't be affraid to ask for help, even if it's only for a campanion to sit by your side, my experience with TN was horrific and talking about the pain makes me nervious, I was lucky that medication helped me after many years of going into a dark quiet room to ride the pain out, like another person on here has commented... May you all find peace.
Anyone who has experienced this sort of nerve pain would have no problem comparing it to ANY other pain they have felt. This will have you on the floor if it wants. It is completely unmerciful, you simply cannot function during an attack. Its very high pitched pain, stinging electrifying shooting pain that will have you in tears. I have this but its mild enough, I can take it but sometimes I have to stop working.
My mother had this ,she can handle pain and had high pain tolerance ,but with this pain I remember seeing her SCREAMING on the floor ,it scared me so much ,hers lasted a year ,it was after dental work
@@Србомбоница86 oh wow. How is she now?
@@Krissy-Amber well she is dead now ,but her lasted like 2 years and it went away
@@Србомбоница86 im sorry to hear that.
I would beg to differ that atypical is a milder form. Im in pain with burning pressure and tingling and tinnitus on the affected side my every waking moment. At least the regular tm you get a break.
@Jacqueline Larsen--YES!! Finally somebody understands!! & how abt I have it on both sides? The burning NEVER stops. God bless you.
I have it too. Cbd oil from the whole plant, not from hemp! Have seen too many people having multiple surgeries in a short time span and not convinced that it even works!
@@walleyj2001 AT ALL!! & it's just a risk I'm not willing to take anymore (surgery).
I have both types, but believe me the atypical is not as bad, but yes you get says off but you live with the fear of that on top of it. This is not a competition, we should be helping one another regardless of pain levels, it's the same condition!!
You deserve it for getting stupid and useless root canals. As all of these symptons only occur after getting dental procedures
You are neglecting atypical. No stabbing pains or very little. It's a constant throbbing deep pain that with varying degrees of intensity. In all the same areas as typical.
Yes!! Thats the type I have!! Had an mvd 3 yrs ago and it cured my pain 100% until 2 months ago and it returned with avengience!!
@@jennifertingley285
16 yeae sufferings constant sharp pain in my forehead every day of the year, swollen Left eyes affecting my vision, I can't turn my neck, etc.
Sara Recinos same.... my TN gave me nystagmus
@@jennifertingley285 i believe i have this. I have been referred to a neurosurgeon to be evaluated. Hoping to get treatment that works.
@@musclvr377 any update?
I was misdiagnosed for over 10 years, I became so resistant to pain over that time that I could deal with anything now. Was regularly awake for 4 days straight. A simple tablet every day stopped the pain. I still feel it there just not badly. I couldn't imagine any pain close to that
I have had trigeminal neuralgia for 8 years and am in pain unless I am sleeping. The worst level of pain occurs 50 to over 200 times a day for me. I had destructive surgery with balloon compression two years ago but the nerve repaired itself and the pain began to after five months. Drugs are no longer effective, acupuncture didn’t help, there is very little quality of life with no pain control.
watch this and take notes. This is saving people's lives from TJ, hope it helps you! soundcloud.com/medicalmedium/trigeminal-neuralgia
Have you ever tried listening to binaural beats ?
I had the microvascular decompression surgery in December of 2017. I've been pain free and drug free ever since my surgery. I have some numbness on the side of my head where the surgery was performed, which is fine with me. It only feels numb when I touch there. Prior to my surgery I had tortuous pain in the mid and lower branches of the nerve, that came and went for just over 3 years. I was ready to exit myself. The MVD surgery saved my life ! I'm always praying for those that still suffer. God bless.
I have had trigeminal neuralgia for 9 years. The pain is horrific. 3 years ago I had the balloon compression surgery but the nerve regenerated after a few months and the pain returned. My neurosurgeon refused to perform another operation. Drugs haven’t helped in many years. I’ve been homebound for years except for doctor visits. It is a struggle every day knowing it will be filled with awful periods of pain that make me cry out.
gee..it..looks..like..u.all.in..peaces
Have you looked into upper cervical chiropractic? It really helped me a lot they take X rays to see if your C1 atlas is out of position then do gentle adjustments to move it back so it isn't interfering with your spinal cord.
Yes. That is what "fixed" it for me. Hoping it will never come back ... I won't make it if it does.
@@susanl8478 So glad to hear that are you holding your corrections well?
7200 HZ is what I Hear 24 hours a day and louder at night.
Lindsay Rio Thank you so much for this, I’ve been in tears all day, suicidal thoughts, but after listening to this for an hour I feel a sense of hope.
Decompression surgery saved my life
That’s great! I’m glad you have found treatment that was successful!
trigeminal neuralgia pain does respond to temperature, mine is incredibly sensitive to cold and heat is very soothing.
Right! mine only feels better with cold. I have had trigeminal for three years. I currently have it right not. I’m on carbamazepine and gabapentin
@@amberhill6329 I’m currently taking carbamazepine I cannot function on them I feel like I’m going to pass out 🥺🥺I’m at my wits end now I’m really struggling to cope I’m so depressed 🥺🥺
@@Sweetbutapsycho4 I can’t function on the gabapentin!! I get soo dizzy from it. I can’t even work!!
@@Sweetbutapsycho4 I’ve been dealing with these debilitating symptoms for a year now. Last year I was told there was nothing for treatment and was diagnosed with jolt and jab headaches. I went to a new neurologist today and was diagnosed with this. I’ll be taking carbatrol starting tomorrow. It’s always good to get a second opinion. This has destroyed me over the last year, but hopefully this med will work. Take care!!
Mines the same. I try to avoid direct wind and when it's extremely cold eg snow i try to stay indoors
i’m pretty sure this is what i have :( had dental work done and ever since i have been in constant pain and it has advanced since. it’s been 3 months and a doctor told me she thinks this is what i may have and i have an appointment with a neurologist in a few weeks to confirm or just get some diagnoses or answer. i’m only 21 and i am so scared of how this is going to affect schooling and graduating. i need to get a job to pay for what loans can’t cover, but i just don’t think i will be able to handle both and dealing with this without any treatment.
Have you done the MRI? My symptoms started after dental work as well!
How are you now? I’m 21 too
Girly how are u?
Hey, are you still alive?
My symptoms started after dental work too😢😢😢
I am having a very bad bout with this monster right now. Something new has been added I can no longer touch my nose. It sets me On fire. The pain just cracks like maybe someone put a electric rod in me On my face. 25yrs is way too long to suffer, I don't even get a warning. Pls pray for me that I don't kill myself and go to hell. I will pray for you as well.
I'm so terribly sorry that you are suffering. May the Lord bless you, and bring you healing in Jesus' holy name.
I don’t believe you will go to hell if you kill yourself, if you believe that Jesus died for our sins and if we invite Him to be our personal Lord and Saviour, that’s what the bible says. I know Catholics believe differently but I am a devoted Christian and I have not found anywhere in the holy bible that we will go to hell if we commit suicide. I’m not encouraging you to do so, but I am encouraging you to accept Jesus as I said and you will be forgiven of all your sins and you will spend eternity in heaven. I too suffer terribly with other issues so I understand the pain and the feelings that go with it. I will pray for you. ❤️
May god help you
You are amazing and strong, please stay with us, there’s always light at the end of the tunnel, maybe there are other alternatives
I've dealt with terrible pain when I eat the first bite of something for my whole life, but since my wisdom tooth extraction it's gotten worse over the years and more frequent :/ And now it occurs when I drink alcohol as well. I'm not sure if it's TN but I think I may bring it up to my doctor.
I was shot in my face which entered the right side of my head....I have terrible pain in my right side of face...which also extends into the right side of my mouth. I have awful migraines. It's nice to put a name to it. I plan to go see a neurologist because the pain is getting worse. Makes it hard to eat and brush teeth. Some days it's just constant.
Gabapentina 100 MG first thing in the morning your first try. Good luck
I have suffered for 3 years. It was after I was nearly beaten to death that I was diagnosed with this by my neurologist. I can't even get upset without an attack. I can't eat, chew gum, or even talk when having an attack. I can't even imagine actually getting mad. It has literally brought me to my knees. I'd like to see a therapists, that might help me psychologically. I don't wish this on anyone. I'm sorry there are others who experience this hell.
Sorry to hear about your experience, I hope it gets better for you soon.
I never heard of this affliction, until I felt it for the last two days. And wow I definitely understand why it's called "the suicide disease". Right now I've been experiencing the left side of my teeth being stabbed. While one of my glads is beginning to swollen up. The most painful thing I went through last was. My sciatic nerve in my leg spasming and that just needed to be stretched so no big deal. But this is insane, I can't imagine people living way back without the current medical advancements of today.
Who calls it suicide disease?
@@danuk2136 look it up for yourself.
I had the same two issues.
@@danuk2136me😭
It`s very accurate to call it the suicide pain. I am a chronical pain patient, and this trigeminal neuralgia on top of it.... it is teh `cherry on the cake`of pains indeed.... Although I take medication for it, when there is atmosperical inbalance, it pups up again to torture me. Much strenght to all co-sufferers!
Had half my teeth pulled cause of this disease and only slightly lessened the pain in those areas. Surgeons won't do any surgery cause I also have CRPS and are worried about lasting pain after. Best med I've been on for it is tramadol. Cause it also treats anxiety. But it is addictive and go through bad withdrawals if you go off it after only your first prescription. It's that potent. So double edge sword
Thank you any insight, validation and information is appreciated .
I’m 18 and have this. Cant wait to suffer 70 years
That's horrible!
Ma im 15 with this
@@maliataylor6757 such lucky people wow, Im trying to find people similar age to speak to but I don’t have anyone 😭
@@jannahmirza834 the doctors thought its my wisdom teeth but its not. i hate this so much. do u take any meds?
@@maliataylor6757 all my wisdom teeth are growing so they thought it was mine too kind of and yes I have been on a lot of medication, long term I have been on an antidepressant called nortriptyline which is brilliant and keeps everything at bae, caused a bit of hair loss but that’s the only side effect, I take indomethacin short term if I have a big flare up but it’s quite harsh on the stomach. I don’t have trigeminal neuralgia exactly but I have trigeminal autonomic cephalagia which mimics trigeminal neuralgia but is slightly different but the pain is exactly the same
I have bilateral A typical T.N believe me, the pain is ceaseless and the pain is severe! There is no way I could continue living without anticonvulsants.
All surgeries have been unsuccessful and my medications becomes less and less effective over time. It is heart breaking for all this disease effects. A very cruel disease
I hope someone discovers something to help us soon
Hello, I have diagnosed atypical T.N, It all started 2 weeks ago, I had night attacks with terrible pain for 4-5 hours. Opiates did not work, ketamine did had weak pain killing effects but it can't be taken so often in such doses. The neurologist prescribed me anticonvulsants but I decided to try something else, which I found that is helpful for cluster headache and have no serious side effects.
I tried psilocybin in small amount (not enough for psychodelic effects), the pain went away, I have to redose every few days but I'm good as new.
Honestly I've suffered with this since 2012 and the only thing to help keep it at bay has been cannabis. But it has to be the right strain and I can't stress this enough.
what strain? i’ve been looking into getting a medical card for my pain
Okay. Which strain do you use to treat it?
I very much appreciate you trying to bring trigeminal neuralgia to light.
But I feel like you are a little misinformed when it comes to ATN.
Those of us with ATN do have duller constant pain, but most of us also have TN shocking, Stabbing, ripping pain as well. Sometimes up to 20+ flares a day. Then, some of us ATNers also have Cluster Migraines which is partially due to the Trigeminal Nerve.
I got ATN at 18, due to multiple traumas/brain injuries over a course of 2yrs. So I am not a candidate for MVD or Gamma Knife. They also can severe the Trigeminal Nerve, which leads to complete numbness but sadly exacerbates the trigeminal neuralgia so that you not only have permanent numbness and tingling but you also still will experience the shocking stabbing pain. I've heard too many horror stories from people that were desperate enough to allow their trigeminal nerve to be severed.
ATN isn't less painful at all. If anything, it's more painful as we have constant pain and the flares of TN-1. I hope I've taught someone something today. I've had this disease all of my adult life. I am now almost 42yrs old and it gets harder everyday to find a reason to keep going, keep surviving, as this isn't really living. It's hell. We NEED a cure!!
There is surgery for TN (they put a tin foil sponge between the nerve and your body. ALSO pain blocks in the form of anti-depressant medicine, like NOrtriptyline, and Amytriptyline, is an alternative. I am on Rx NOrtriptyline. Go to a PAIN SPECIALIST OF THE MOUTH!
Mine seems seasonal and I’m
Having the numbness and pain etc right now. It only started after I had crowns done .
Wow, was feeling so alone with this crazy condition. I still think my family thinks I'm a drama queen when I have an episode.
I am diagnosed with TN. Ive had MVD surgery. Balloon Compression surgery, still in pain. How the heck can i have Trigeminal pain with the nerve damaged and numb??!! Ugh. My pain last on average for a hour. Not seconds or minutes. And its full on cant stop screaming uncontrollably hellish pain. My nose on right side, the sinus swells during pain. When pain finally stops and swelling goes down on my nose, my nose will pour snot. My right eye waters and swells. Roof of my mouth and gun line on right side thump so hard it feels like it will split open. If i breath and air hitd gum, holy batman robin, it amplifies pain. Same with right side of my nose, it swells and anyair i breath through my nose hits right side, the fire feeling gets ALOT worse. Nothing works. 4 years of this now. Started day i had 2 teeth cut out from gum and sinus. No one listens. I think dentist did something. While my pain is similar to TN, its not exactly the same. I have times i can move my jaw at all or their is pain. I have to try and relax my face. Its a nightmare. 4 years of this. Laying down triggers it. With kn a hour of laying down, it hits. Usually itd a slow leak. I hold hot coffee or hot water in my mouth at pain in gum and roof of my mouth. Does help a bit. Not as much as i would like. Sometimes pain is so bad i cant touch my jaw area. To painful. I am sick of doctors that dont help. Im on no meds right niw as nothing works so far. Carbamazepine worked for about 10 days. But could of been a fluke. Ugh im miserable.
I feel your pain.....
I've had Mvd surgery too, now for almost 30 days and I haven't seen any results as of yet.
I'm still waiting for the results to kick in....
Anyways
Good luck with your journey
Keep me posted
🙏❤️✌️✋
I have this . Ear pain,ear pain, eye pain, touching my face , my voice sounds like laryngitis,but it’s difficult to swallow. The nerves in my throat feel like severe nerve pain and absess like as well as the Center of the brain. It’s excruciating pain and personally it’s to much as I can’t receive normal treatment because of allergies.
It’s the worst pain I’ve ever had.❤️ God Bless Everyone who suffers from this hell.
Sounds like you have Eagle's Syndrome... The throat pain gave it away.
Gabapentin 100 MG first thing in the morning. Try it out and increases the dosage as you go and see what best for you. I had the same experience and now i am doing great with Gabapentin
@@Peter-ls8yr I was put on every nerve medicine,it makes me feel sick and high. It got so bad I had to start out at 100 because I have CRPS as well as fibromyalgia and RA. I read Dr Terry Wahls protocol and it really helped me with other,but this ,we thought I has ALS. The throat,the nose, the ears ,it feels like a bad absess in the brain. They did MRI and there was a huge change from a yr ago in blood vessels ,because of inflammation. My dad died really young from heart and stroke on keto,and so I went to a Heart Surgeon,with only a bad family history. He’s dead against eating any kind of meat. I’m trying the gabapentin but if I talk chew swallow it’s hell. I feel extreme pain in forehead and nose that reverberates into the brain. I smashed my face a yr ago on a marble table and it hurt. It took a while but already having a nerve disorder,and it begins in stomach sometimes as well. It’s hell. No narcotic nothing has helped me. I’m at loss. Stay safe everyone. I’m not even vaccinated yet because I have a blood clot r now and I’m following Dr Geert Vanden Bossche. ,with Dr Philip McMillian , Benefits vs Risks . It’s excellent information for everyone out there on viruses. The white tail deer 🦌 have it now max well as hamsters and ferrets.
My mom have had this since 2019, she haven’t worked in two years because of it. I hate she’s going through this & there’s nothing I could do to stop it.
I've suffered over 20years woolly hat helps with plenty of water , water is the best for the pain hope this will help
A bottle of vodka and sleeping pills just to get a few hrs of relief has been my last resort. I'M waiting to see a nauroligist at last after suffering with this hell for years. Get your mum to hassle the doctors every day until they send her to a specialist. It's not called the suicide desease for nothing.
She needs to see a neurologist and try several pain medications or anti seizure meds or antidepressants ,dont give up
I've only just been diagnosed with this lady Friday after another bout of severe unbearable pain and an Emerg visit.
It's like someone's pulling all my teeth out on the right side of my face suuuuuuuuper slowly and the pain radiate 's all around that side of my face to my ear.
Has anyone ever heard of this occurring as a result of a concussion? (I'm 19 months PCS). Wondering if it's related or just.. My bad luck.
Could be
My neuralgia was kick started by Shingles. I'm 26
Im 33 years old male and have Trigeminal neuralgia the pain want you to
Lose all hope in life, as I'm typing this its my 4 day straight of of torture.
I have trigeminal neuralgia affecting all 3 nerves. It sucks. Want surgery. 10 years is too long to be suffering. Medication no longer works.
My father suffered from this for approximately three years. It was heartbreaking to see him in so much pain we felt helpless he couldn't eat or sleep.
It took a while to diagnose it as trigeminal neuralgia because he thought the pain was coming from one of his eyes so we spent a lot of time at this big eye hospital downtown all for nothing. Spent thousands of dollars on treatments and medicines for his eye and nothing they did helped him to stop the pain that's when I suspected the pain was not in his eye.
After nearly two years of sending him to different hospitals different specialists I got furious at the fact that after all that time and money we spent he was still in pain. Our family knew of a surgeon back in our home country in South America who spent his whole career doing surgeries on people with this condition and he became our only hope. We flew him out to meet this surgeon and he performed the surgery and my dad is now pain free words can't describe how grateful we are.
Unfortunately here in the U.S it was all a horrible waiting game and countless hospital visits and examinations and different specialists wasting our money while my dad was in pain and no progress being made.
Hey god bless your father can u tell me is this disease happens from root canal treatment 🤔
@@earthtravel2941 I don't think that was the case for my dad although they did say he had the same denture for way too long and that he should of changed it cuz it was causing damage and hitting a nerve in his jaw or something if I remember correctly and it was causing some minor inflammation.
I started out with a pain started burning in my right side of my face it was inside of my mouth it just kept getting worse the pain became so bad so deep it would bring me to my knees I would scream & cry
I could not eat drink
Water it would wake me up in the middle of the night.I lost @ 23 lbs.I heard that I
didn't want to eat because I didn't want to get fat which was unreaI I read that it was a suicide disease I am here to tell you that's the truth.. I took oxycarbazepine & gapapentine for a 4 year now I only take oxycarbazepine
For 4 months it stopped now trigeminal started again today I am
Trying to deal with
This again maybe
The medicine will decide to kick in again..pray for all who are suffering
From this terrible
Disease.
I will check on all this information thanks to everyone..
Have you looked into upper cervical chiropractic? It really helped me a lot they take X rays to see if your C1 atlas is out of position then do gentle adjustments to move it back so it isn't interfering with your spinal cord.
So sorry for those who have to deal with this
Mine is so painful. I can’t sleep, eat, kiss my partner or anything. I have TMJ disorder and trigeminal neuralgia. The pain is bsdddd
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hi, I also have both, do you know which started first? Did the TMJ disorder cause the neuralgia?
I have both, too. Same thing, can't kiss my bf, I get woken up by the pain to the point where it makes me vomit. My TMJ started years before the trigeminal neuralgia but I also have chronic migraines and my migraine medication is the only thing that helps TN pain. It's called fioricet if anyone wants to look into it. Very strong medication but a literal miracle for me!! Good luck to you!
Mine happens above my right eyebrow. Very sudden and severe and sharp. Last a second or two. It makes me scream.
Oh hope your better
May god hel you
I'm experiecing that pain in the exact location except it is my left eyebrow. In my case it is non-stop and constant. Do you recommend any at home remedies or treatment?
Pretty sure Trigeminal neuralgia affects sinuses, hence maxillary nerve.
Misdiagnosed indeeed was told twice to remove wisdom teeth. I suffered for all of my teens and twenties before a real diagnosis. This is crazy
I took the antibiotic ciprofloxacin and after 3 pills I got these feelings. The burning sensation in my head and down my face. I stopped taking it. But i think it gave me permanent nerve damage. Im having a matathon of pain. Going on 6 hours non stop. Omg its so horrible. How can we enjoy life like this? I was fine today then it hit me like a ton of bricks. It hasnt hurt this bad or this long in a very long time. Im having a rough go of ot for sure.b
I was diagnosed with this a few days ago. It' absolutely miserable and It makes life hard to enjoy and manage.
I’m sorry to hear. I hope things get easier for you
Have you looked into upper cervical chiropractic? It really helped me a lot they take X rays to see if your C1 atlas bone is out of position then do gentle adjustments to move it back so it isn't interfering with your spinal cord.
Well. Seems COVID 19 came and went but I continued w horrible headache pressure still since April 2021. Now this started but my left side! Excruciating like 6 toothaches at once upper and lower jaw on fire. Is this part of my long Covid??????? It’s the virus that keeps on giving? I’m just feeling hopeless
Mine occurs at night. I can be sound asleep and be jolted awake by shock like pain in my jaws. If I continue to lay down and ignore it, it gets extremely worse to where I can't swallow without it triggering a shock. I have to get up and stay awake or I get tremendously worse. It's awful! I'm on medication, but it doesn't get rid of it entirely.
I was just diagnosed with this monster :/ I don’t wish this pain on anyone
I have it in my head the pressure is bad and the buzzing sound there all the time
Sorry to hear, hope it goes away soon.
The pressure is nuts, isn't it? I've had it for 30 years plus and I STILL look in the mirror, convinced my cheekbone must be broken. Or is trying to work it's way out...via my ear.
There's such a cognitive dissonance with this condition - how can you be in this much pain and look perfectly normal? I don't think I'll ever wrap my head around it...
@@randomhumanoidblob4506 did your skin burn too in the areas what the pressure was in?
When all the dream of your parents n u are spoiled by this disease what's the need of living 😭🥺
I'm so sorry to hear you are going through this. I hope your pain eases.
I was diagnosed with this yesterday at the hospital this crap sucks... I’m only 39 yrs old
Another trigger point is cold wind or Airconditioning. I have this dissease for 6 months straight now feeling it every single day. In the beginnening it was more agressive than now! I do NOT take any medicines cause I don’t believe in it and it didn’t help for me. I have been to a chiropractor to relax the muscles in my neck and crack my head. It helped a little bit but by far not something for ever help to get my life back. I pray for everyone that feels the same and will find a cure, InschAllah. Love.
How are you now?
Try having this with chronic Regional pain syndrome. The pain with both is worse then you can think. Chronic Regional pain syndrome is also know as the suicide disease.
Sorry to hear, hope things get better for you.
4 years ago, I got the shingles on my forehead then my in my eye. In pain ever since including fatigue. I think I have trigeminal neuralgia. The swelling is almost gone in my eyelid but different types of pain on skull, forehead and side of face and eyebrow, bone pain though cheek bone is fine now. Pain is a mix of tingles, skin burning, bee stings or like nettles re hot or cold. I don't take any medication.
Hi. First, I'm sorry you are in pain. It sucks, and this is not meant in any demeaning way. Pain is pain.
But if you had Shingles, you may well have a different form of this called Post-herpetic Neuralgia. It's one of the complications of Shingles and as such, is more of a known quantity than TN.
The good news is that PHN tends to respond to meds better, it's not quite the recalcitrant beast that TN is (again, please don't take that the wrong way. I'm not minimising your pain in any way) so please tell your doc because the newer drugs used to treat it (Gabapentin, Lamotrigine, Pregabelin) are far more tolerable than the hideously "dirty" older anti-convulsants and you may find it to be controllable at least. But please do tell your doctor, he should be aware of PHN and there's an established treatment route for it.
Best of luck.
My doctor is leaning towards this diagnosis for me. For over a month I've been having excruciating pain bouts on the left side of my face that I originally thought was a sinus infection. The pain seems to originate in the middle of my left nasal cavity and in front of my left ear and makes my teeth pulsate with pain. They usually last about 30 minutes but the pain is the worst I've ever felt. Getting a CT scan in a few days along with seeing a neurologist for confirmation. I describe the pain as the left side of my face behind the cheekbone being in a pressure vacuum that feels like it's going to implode and collapse inward. I had migraines a couple of years ago that went away-wondering if that was a precedent to this.
Any update? Did the scan show anything ?
@@impulse279 I'm seeing an ear, nose, throat specialist in a few days after I was told my CT scan shows chronic sinusitis. I haven't had any of the pain flare ups for about a month-not sure why or what caused the extreme pain but I hope it doesn't return. Thanks for caring enough to ask.
Will acupuncture to align all the functionality of nerves will help? My mother has this trigeminal neuralgia, and it pains me to just watch her suffers in this pain without complete understanding what to do to ease the pain
Pls let her go for accupucture and use Chinese herbs including anti poison ,Reishi ,cordy active etc she will be free! I am free
@@moradekethanni1545 or maybe ask for an actual medical professional and use surgery or medication that has been proven to work, instead of needles and massage?
@@pomegranate3250 accupuncture does help many things though ,massage too
@@Србомбоница86 approved medicines and surgery are still better than any traditional procedures
@@pomegranate3250 i disagree ,both should be tried, never trust just one thing
Etiomology #2: okay im too paranoid for this video.
I have trigeminal and occipital neuralgia
*Can anyone help me*
I've had neuralgia now for about 2 weeks every single day. Luckily in the day it's not so bad I'm aware it's there but while I'm at work I can get on with my job without too much problems. It's when I get home, eat my tea, shower and get ready for bed that it flares up really badly. I'd say the pain out of 10 is an 8 but it's a constant 8 and an attack can last for anything up to 8 hours non stop through the night even waking me up and stopping me from sleeping. I've tried everything I can think of painkillers (to the point of nearly overdose) mouthwash, brushing my teeth, cold flannel, hot water bottle etc and nothing will ease the pain. The painkillers seem to work for about 20 minutes then it comes back just as bad. I'm really at my wit's end with it does anyone have any ideas, tips or suggestions to help me ease the pain and get a good night's sleep.
Thank you in advance everyone.
You need to see a doctor who can prescribe something .. which definitely will help! Though it does start flaring up again after a few years .. then the doctor in my case prescribed Lyrica which helped for a few years .. then it started again and the Doc increased the dose and that worked for a couple of years. And now its starting again... that's why I'm researching the subject all over again! Good Luck!
Hi sorry. I had mine for few weeks now. The pain is unbearable. I took ibuprofen due to my job but recently took codeine with paracetomal and the headache is not bad. I also went back to the dentist and she grind couple of my teeth down which helps. Go to the doctor pls. My ringing in ear is still there
Nothing over age 35 has been blissful.
Sorry if you are going through this
Was diagnosed 11 years ago. Extreme heat laying on a heating pad on high helps the pain but the minute I get up pain comes back. My neurologist thinks it's possibly connected to my none diabetic neuropathy upping my Lyrica and Cymbalta seem to help stop the attack. But I also have vasculitis, both from my Lupus, which they believe is in my brain was wondering if could be connected to that?
This pain is hill no one knows until they experience this pain please please if your experienceing this make sure if you have clicking jaw that's the main cause after 3 years going to many doctors fainally I found out it caused by tmj now I'm still suffering with a bit jaw pain but thank god no more gum pain or shoting pain and sensitivey to my scalp try to release the nerve by exirsise don't let your muscle get tight in back of your head try open your mouth wide if you experience any tight muscle in your face or some sort of muscle tightnes sound it's jaw problem
I removed all my teeth and had alveoplasty and found out that bone was inflamed. Nerve damagevin mouth throat tongue are making me feel like I'm choking. It's worse. I'm bedridden after never being sick. I'm 95# and can't take this anymore.
TN1 and TN 2 are possible to occur concurrently. I have both! And I have occasional bilateral pain. ATN is horrid and I have Anesthesia Delarosa!!!
U are strong and amazing
Very interesting, what I'm wondering is can being left with post herpetic neuralgia after having shingles cause these pains as husband is getting pains around these areas and over his left eye brow and its been 3 months now, gabapentin not helping much. The shingles rash was just over his head and behind his ear and left eyebrow and eyelid.
I had a PCR test in march 2021 which caused mine. V1 & V2 A Typical version 'fortunately'. It's definitely not fun, & seems to get worse as I get older!
As someone that was newly diagnosed with this and has to deal with it maybe don’t call it the suicide disease. I don’t think anybody needs the most painful disease ever! If you have any tips or ways to help provide those please.
Have you looked into upper cervical chiropractic? It really helped me a lot they take X rays to see if your C1 atlas bone is out of position then do gentle adjustments to move it back so it isn't interfering with your spinal cord.
I have stage 4 cancer advance to the trigeminal nerve to the base of my brain I'm really messed up I had chemo and radiation It even radiation affected it really bad I'm 2 years out but still suffering
I’ve got an onset as a result of Covid-19. I would hate to have surgery if it would eventually go away. There is not enough information of it as linked to Covid.
During an episode, my right eye droops down and since its onset, my nose is very tender and swollen.
Thx bro
I have been feeling this is the left side of my face ah!
Please please help me am disable n now my hubby has this disease n he’s in severe pain I live in Fayetteville North Carolina
RSD/CRPS is also known as the suicide disease and it is also the worst pain a person can ever feel. I have RSD and they feel I have this. I can tell you....RSD is a thousand times worse.
Have you looked into upper cervical chiropractic? It really helped me a lot they take X rays to see if your C1 atlas bone is out of position then do gentle adjustments to move it back so it isn't interfering with your spinal cord.
Dude, TN IS sensitive to temperature!! What are you on about??? A cursory Google search will tell you that wind and temp changes are one of the most common triggers. Also, "nur-al-GEE-a"?? No, just no.
I'm talking about direct application of hot/cold onto teeth as a comparison. Can you tell me how I should be pronouncing it?
Iv just been diagnosed with this , this wk iv treated my self for over a year as I though I had sinus trouble, also I’m not a run to the Docs I research first treat my self and speak to pharmacist first.
Since this iv been on pregablin for another ailment. So I can’t see these new tabs working. My Gp is speaking to neurologist today, how long will I have to wait for surgery in uk ?? I’v not been depressed through this years so I’m hoping I don’t get it, but can understand why people do get depressed.
Has anyone got this after a root canal? I was totally fine until I got a root canal for an abscessed tooth 3 weeks ago. Now I’m in constant pain with a possible diagnosis of TN. I wish I never got the root canal now. Could extraction do it though too? Is that the safer option?
You might have gotten a severed nerve. I had that in my jaw, as a result of that the Rx' Nortriptyline or Amytriptyline are anti-depressants and can act as a PAIN BLOCK! You will have to go through dosage trial to see what mg. is right for you. It cannot be fixed, that is why the pain blocks at least give you a 75% relief. I have had it since 1985 and now it is 2021! Go to a PAIN SPECIALIST. I went to Cedars Sinai in Los Angeles, maybe if you live in another state, you can get a referral! I wish you the best !
I got mine from a wisdom tooth extraction
Think I got it. Wisdom Tooth extraction
very informative video, you can also try trigeminal neuralgia care pack from planet Ayurveda
What is that?
CAC Makar rasayan is herbo-mineral tablet made up of pure herbs and minerals. It balances all the three doshas of body. It also rejuvenates the body and helps in proper blood circulation. t contains natural ingredients like shudha kuchla, guduchi satva, shudha shilajeet, abhrak bhasma, ras sindoor, moonga bhasma, shankh bhasma, praval pishti etc. These tablets has antioxidant, anti-inflammtory, analgesic and immuno modulator properties.
I’m suffering too from TN. It occurred to me to use a patch that we commonly use for back pain. I cut a strip and placed it towards bottom of face (left side) ..has lodacaine..seems to temporarily soothe my pain. Wish I could figure this out. It’s terrible!
Sorry to hear you are in pain. Have you consulted with your doctor?
Someone said that massage got rid of there’s
Thank you very much
Meanwhile pelvic pain and pudendal neuralgia is not being helped at all I’m a fucking 25 year old man now 27 with pure suffering every single day and every second for fuck sakes help please..
I had a severe infection that had to be drained that went down my neck and checks and was becoming life threatening. I was probably 21 at the time. I asked my mother to take my fathers gun and shoot me. My mom didnt realize how serious it was so she made me wait all weekend until Monday when the oral surgeon was in the office. I was waiting outside his office before it was open... It was so bad. The drainage grossed out tge nurses. That's how bad it was. They asked if I wanted to save the tooth, I vehemently said hell no! Anyway, I cant imagine the pain you all go through and my heart goes out to you.
I experienced this one 2 days ago! First my left half face was so painful the next day my right face. As of right now it's gone. Still not working though
I think I have this over 3 years I’ve been having sharp pain in my jaw when i talk or eat some time it feels like I’m being electrocuted
I have that. It’s horrendous.
My left eye and eyebrow hurt for 6 yrs and resently had a injury accident hitting my luft eye it's so painful
Has it been confirmed as Trigeminal Neuralgia?
@@5MinuteSchool not yet 5 yrs ago I went to USC with neuro opthalmologist and he diagnosed me with trocleitis but I don't think thats it
I just got diagnosed with this but I don’t have pain just numbness on my left side of face .. it’s been 3 days so far .. is it also normal to only have the numbness
What test is done to check if it’s trigeminal neuralgia ?