We’re listening! Thanks for sharing your journey and inspiring my son and I. I agree on the diagnosis categories- I’ve gravitated to groups where we see similar patterns of what works/doesn’t for treatments. Wonder if the disease cause/route is going to link to diagnosis classification. Vanco was amazingly and quickly effective for my son and yet puts others into a flare.
I am so happy you are listening along with us! And I also thank you for sharing your insight and son's experience. I too am also fascinated by those same patterns and truly think Crohn's could branch off into different subcategories. I know they are studying this in Pharma where they are documenting hundreds of thousands of IBD patients who did and didn't respond to certain treatments to hopefully create treatments in the future that will be more specific. Like you said about Vance, worked great for your son while others flared. There just seems to be so many levels to this disease that haven't even been discovered yet. And I think even beyond figuring out what treatments will work and for who is figuring out the why. I think that is where the real breakthroughs will come through!
We’re listening! Thanks for sharing your journey and inspiring my son and I. I agree on the diagnosis categories- I’ve gravitated to groups where we see similar patterns of what works/doesn’t for treatments. Wonder if the disease cause/route is going to link to diagnosis classification. Vanco was amazingly and quickly effective for my son and yet puts others into a flare.
I am so happy you are listening along with us! And I also thank you for sharing your insight and son's experience. I too am also fascinated by those same patterns and truly think Crohn's could branch off into different subcategories. I know they are studying this in Pharma where they are documenting hundreds of thousands of IBD patients who did and didn't respond to certain treatments to hopefully create treatments in the future that will be more specific. Like you said about Vance, worked great for your son while others flared. There just seems to be so many levels to this disease that haven't even been discovered yet. And I think even beyond figuring out what treatments will work and for who is figuring out the why. I think that is where the real breakthroughs will come through!