Sooo true, I have had bad experiences with prosthetists. They really do not know what they are doing and we suffer for it. It has already been 3 years and I still do not have a well fitting socket. Very frustrating, expensive and time consuming. Still searching for a well educated prosthetist. 😵💫
Hi Joyce, I actually thought I had replied to this message earlier, but see for some reason it did not post ... strange! What I wanted to say was that in my past amputee years I have had one bad experience with a prosthetist, and one unsatisfactory one. This cost me many years of good mobility, but in recent years I have met the most amazing prosthetists who have really been helpful, and because of them I have such a good prosthetic setup now. I have come to learn that they are truly wonderful people who want the best for us, but as with every profession there will always be a bad experience along the way. After much looking around I have come to have so much respect for prosthetists, so I hope you will find what I have - we all deserve a good experience and hope this for you too :-) Take care, please let us know how things wok out for you!
Hey Chris, I have watched a couple of your VLOGS and I appreciate what you are doing. I will sit down soon and watch the rest. In This particular one, you touched on a very important topic. The Prosthetist. We are thrust into this new world where we really don’t know which way is up. When getting a prosthetic, we have to rely on the expertise of someone who in most cases, has no fucking clue what we are going through. As you said, it is so very important to find the right person. One who asks questions and listens to our answers. Generally, a prosthetist is going to be lifelong relationship if you can find the right one. I probably have no idea how lucky I was to find the right one on my first try. Also, it takes some guts to put yourself out there like you are doing with these videos. Just want to say thanks again.
Hi Paul, thanks for all your support and for commenting. You are 100% on the money - we really are flung blindly into a world where we kinda hand over our quality of live to somebody whom we barely know. I have mostly met awesome prosthetist, but I have also had a really rough experience where I felt my vulnerability and lack of knowledge were taken advantage of. I now have a guy who has really changed my life in the past three months. For the 1st time in 14 years I feel totally confident that I have the right set-up. How FdUp is that? 14 years. Please let me know what sort of video content you think will be good and important to put out there, my goal is to allow fellow amputees to share their thoughts and ideas through this channel. Thanks a ton!
You’re so right the socket is THE most important part of your prosthetic. The pain and complications caused by an ill fitting socket - infections from sores, rashes, blisters, cysts, neuroma’s and bone spurs can lead to further revision surgeries. If your socket isn’t right the prosthetic feels so heavy and takes more energy to use. You can have the most expensive components (Knee, ankle, foot and arm) but if the socket doesn’t fit you won’t be able to use those amazing components to their fullest and it will cause so many other aches and pains by compensating for it, leading to sciatica, other spine, hip, knee and ankle pain on your sound limb. Getting the socket right may take a few appointments to get it right but stick with it, it’s always worth going back to your prosthetist and explaining where it hurts (if you find it difficult to explain put marks on your socket where it doesn’t feel right or write a list of the problems you’re having) I’m so sorry you’ve had such a rough prosthetist that was clearly only in it for the money and didn’t give you the right care, components or explain how to use the functions and how to maintain it. That’s so wrong! hopefully Karma will come around and show him how wrong he was. I hope your new prosthetist now works with you to keep you comfortable and give you the right prosthetics that won’t hold you back from what you want from life.
I recently got my socket sorted for the 1st time in 14 years! My guy Eugene Rossouw nailed it 1st time, and my life just got so much better. Isn't it amazing how one person can change an amputee's life by listening and truly walking a mile with with us? There are some truly amazing pro's out there, we just need to be assertive about it and insist on getting what we invest our resources in. It sounds like you have a ton of experience in these matters. We can all learn from you. I also appreciate your care and concern for our well being. I really appreciate all the feedback you've been giving the amp community, please keep it up. Also please let me know what you think we need to be talking about on this channel, I will make work of it and get your message and ideas out there :-) And yes, Karma can be a real leveller - both ways though. I often wonder what it is that I had done in the past that got me in the situation that I am in now haha... I must say that in the end I feel my life has improved as a result of my accident.
Oh thank you ever so much, like you I learnt how tricky getting used to our new “normal” can be and also how little Information there is readily available. That’s why I love learning from yours and fellow amputees youtube channels. I cant tell how much these videos have helped get me through my rehab - I wish both yours and footloose Jo’s were around when I went through my Amputation. We ampies stick together and the info I’ve learnt to treasure and share. I had a lot of socket problems too but I was so lucky as my prosthetist really did try everything and thankfully she stuck with me until we found the right socket(I use an infinite socket) but I’ve seen so many amputees who haven’t and how much it has limited and held them back from living(Even on the nhs). Some had to have revision surgery caused from it. It’s so scary. Once you’ve found a great prosthetist hold on to them tightly 💎 they have the keys to our freedom 😍 Your post is so important in letting people know how to find a good prosthetist and to not put up with someone who doesn’t give the correct care. Im so glad you’ve found Eugene! How did you stay sane having to put up with that for 14 yrs? I bet meeting Eugene was like winning the lottery. 💪🏻 Your right on the karma too but I’m like you: my life is so much better now. It makes you appreciate things so much more especially the tiny things. I really love your outdoor fun videos as you really don’t hold back which is fantastic to see - i love seeing how you found the equipment or adaptions. I’m definitely going to get some hiking poles 🙌🏻 struggling with crutches is no fun on rough terrain Keep doing what you’re doing trust me you will be helping so many 🤗🙌🏻
The paralympics has done so much to educate putting on display new prosthetics and equipment. I'm forever at pais to point out that yes there's been incredible advances in technology but if the Shoe doesn't fit the benefits are negligible. The socket fit is of primary importance. 45 plus years an active bilateral amputee from 18yrs, bomb explosion NI. Awarded an MBE for Services to Training and Employment Opportunities. We are challenged by standards throughout the Health Service in the UK. Can't seem to fit below knee without Verrucous Hyperplasia and blistering occurring. Losing a lot of walking time.
Hi Brandon, thank you for the message! It's a huge pleasure, it's really good to hear that it is helping you and others. Hope we see you on our live streaming!
Thank you so much Chris. It is very important to look at amputees special needs. Quality of life is very Import. my daughter is also visually impaired. we don't need unnecessary equipment. yes they need to listen what your special needs are..you spent a lot of money. and then you don't have money for what you actually need. What is the best foot and leg for visually impaired as well. now we know not to spent money on unnecessary equipment.
Hi Faith, wow you've sent quite a few messages, thanks so much! I have experienced the best foot as OSSUR ProFlex LP. The best leg Ive used is the OSSUR Rheo Knee XC. The combination of these two are really safe. I have a very dear friend who is visually impaired, she read your message and sends all best wishes for your daughter - thanks for sharing.
I just had the operation to go from BKA to AKA and got my first leg. I got the Ottobock C leg for a knee. The socket is new and needs serious adjustment. The socket goes all the way up to the groin but that's not the worst part. There is a piece that comes up in the behind that cuts into me and im realizing that the liner does not even make it that high and its that hard black rubber digging in with every step. There is some pain close to the bottom of the socket as well but I think it could just be the way that it healed. I'm hoping that at todays visit that the prosthetist really listens when I say that that tab in the rear is painful enough that it keeps me from paying attention to walking correctly and putting pressure on your toe to get a proper release from the knee to swing. Been using a walker around the house to prevent falls for now. I'm really tired of sitting around the house in a wheelchair. I want to get back on my 650cc scooter and eventually on my motorcycle. Ill have to figure out a way to shift now. There are so many things that need doing and that are overdue. I have got to get moving. I know a great deal about the pain meds myself. That's another issue. I want my independence back. My prosthetist is a good guy, an amputee himself who lost everything below the hip (well almost everything, he just had a kid) in a boating accident where a family member accidentally backed the boat up onto him. I trust him because he knows what it's like. It just gets frustrating. When I was BKA it was painful but I put that crappy pin lock on and walked right out of that office and got to work.
Hi (FlyBaby)! Thank you so much for your message, sorry I only responded now a month later, I missed it initially. We have a lot in common: Both TK/AK amputees, I ride bicycle and motorcycles, struggled with pain / meds, socket fit and more. I changed my motorcycle for a semi auto (Im a left leg amp) which solved that issue. The CLeg is a good knee, from what you're using your mobility should be really good and not needing a walker, but we are all different and heal at different speeds. There is no reason why your socket should hurt you, this is the most important piece to get right. I hope you get a good fit soon and the mobility improves to a point where you are content and happy about your setup. I wish you the best, please keep non touch and join us when we go live for real time chats!
I’m not understanding the thumbs down. These videos are very interesting and informative. Thank you Chris for taking time to put these together. My surgery is September 14th..if lockdown dosent postpone it..I’m watching all of your videos.
Hi Karen, thank you for your kind and supportive comment. I'm sorry to hear about your surgery, but hopeful that it will improve your quality of life, and bring new and interesting experiences as result of your courageous decision. For me the journey has been immensely rewarding, challenging, filled with new encounters - which have only added value to my life. I wish you something similar - all the best, please keep in touch and let us know how you're managing. Your shared experience will benefit someone else in a similar situation, no doubt. Take care!
@@theampedlife Hey Chris, thank you for taking time from your busy schedule to reply. I’ll definitely keep everyone updated..NZ level 4 has thrown a spanner in the works. 😒
@@theampedlife just a quick up date. Surgery was a complete success. RPNI was preformed. I’m happy to say,I’ve had only 1 week of phantom pain. Surgery was November 16th. Next week I’ll receive my leg.
I live in the UK so get a prosthetic centre designated to me (usually by proximity of address) and the socket maker too. The good points are it's all free and you have a team of departments working together to decide what's best for you including physiotherapy, prosthetics, and specialist Doctors. The not so good point is that you have limited choice on products, you are only allowed what the NHS approves (to give you a sense, they only started offering microprocessor knees 2 years ago). If you decide to go private you must buy the socket, knee, and foot, you couldn't take an NHS knee to a private clinic for example and ask them to put a foot on it. Despite this, it's reassuring to know that the centre wouldn't sell something with an alterior motive as they're not profiting if they set you up with something more expensive.
Hi Jacob, thanks for commenting and for sharing your experience and suggestions. I absolutely believe that by far the most prosthetists will provide what they think is best for their patient. But as in any profession, there will always be exceptions. Our challenge is to find the real guys. Ask around, get testimonials, and make sure that we feel heard and our needs are taken care of, no exceptions.
Hi Chris, great to see your vlog. I have had many years of poor socket fit. You are right. No amount of money on components such as knees and feet can make up for a socket that does not fit properly. Like you, I have spent countless hours and extravagant amounts of money trying to find solutions which only mask poor socket fit. Thank you for having the courage to speak the truth about challenges facing above knee amputees in particular. Can you recommend a prosthetist?
Hi Angelina, thank you for the message and kind words. Where do you live, I can ask some people I know for a suggestion for a good prosthetist to help you get the right fit. It is so liberating when it all comes together, I hope we can help you to find what you need and deserve :-) Take care
Hi Dan, thanks for the comment, and for watching the videos, it really helps to grow the channel and continue make amputee content. Much appreciated by the community! I have seen adjustable sockets, they are quite flexible and can do the job, up to a point. A fixed permanent socket however is better for a snug fit and more active way of life. Both have their advantages, for different amputee situations and solutions. I much prefer a set socket for my way of life, but have heard and can understand the benefits in being able to adjust depending on the needs and situation. Either way, all the best, I hope you find what you need to be a content, mobile amputee. PS I hope we see you in the live streams, please as any questions real time, and let's hear what the subscribers have to offer from their experiences with this.
Chris you still seam in a total pain about your prostheses, and wut you have gone threw , just my observation by listening to you talking, You have vital information so thank you , I am Delwyn Everson, I am an American man and I am 57 years old, I lost my left leg as I had a left below the knee amputation, one year ago and I have been in a wheelchair since as I was in the Philippines when I had a severe gout attack on my left foot, it got severely infected and inflamed and gangrene set in it was a big story but I am stuck in the Philippines, as I can’t afford a leg and it would be very arduous for me to leave with out a leg as to get on the airplane you have to walk up steep stairs just to get in the plane, and you know the complications of being in a wheelchair or being able to just walk , I have been considering making my own leg just so I can leave here as if I get back to America as I’m a Veteran I can get free legs but I have to be in the USA to get that , I’m worried that I will never have enough money to buy a leg just so I can leave the Philippines, I don’t have any family left that cares enough to help me pay for anything, and I have to actually make it to the USA to actually get the help I need ,and the US embassy won’t do anything for me, I do get a little Disability monies that pays for rent and food and utilities, but that’s it , I should have stayed in the USA and never left and I can’t go back to work until I get home first, I know your not a charity but is there anyway you could help me pay for a leg , the Philippines is not a place to be handicap, I have a place to go in the US in Baltimore Maryland with friends to begin with , there is no other place for me to go, I Sincerely thankyou evan for any consideration Sincerely Delwyn Everson, Dumaguete City Philippines ,
Chris, bravo for the comments about the socket being most important. You address this point I mentioned in another video’s comment. Perhaps a follow-up point for people just coming into this life is that the adjustments and replacements are a life-long process. I know you mentioned that the relationship with the prosthetist is life-long, but maybe it would be good to clarify to people that this is true even if one has few issues. It sounds as if you have been self-funding legs, too. What is the healthcare system like in South Africa? Thanks again for putting yourself into these videos.
Thanks mate, I appreciate your comments. I'm doing a video soon on the biggest issues we encounter initially. I got my socket issues sorted now, all really going well. Hope to see your comments in the next video!
Great info, Chris. It would be worth noting that length of stump (RL "residual limb" in the politically correct vernacular) makes a HUGE difference in what kind of socket an AK will find comfortable. You have a long stump and get along well with a sub-ischial socket. Knee-disarticulation amps can sometimes weight-bear on the distal end if the patella is grafted on. I have a mid-femur stump and need more ischial support and medial-lateral stability than you do. Short stump AKs have the toughest time getting a good socket fit. I won't even mention volume changes during the day and when we gain/lose weight. Every amp faces difference challenges.
I agree completely, you are clearly very well informed on these matters. I will do my best to use the RL vernacular, thanks for pointing that out. As you say, some problems we share but we also all have unique challenges. The RL being the greatest one. I am lucky with my RL, also with the surgery done, they really did a great job which allows for a lot more freedom. Please keep posting, we can all learn a lot from your knowledge. Thanks!
This is very true. So many through the knee amputees don't see or experience the fact that we can not put weight on the distal end of the stump. That means that weight, and hydration of the day can make a socket to loose, or too tight. Almost all the T42 Paralympics people are through the knee. Seldom does an above the knee amputee compete in the Paralympics. Also Chris's leg cost more than my house. All my prosthetics come from E-bay.
@@kgwediwise7092 I wish I had had the luxury of knee-disartic. And in Canada/Ontario, our gov health insurance only pays for the minimal gear to get an amp walking. So, for an AKA like me, they pay maybe 30% of a basic carbon fibre foot, hydraulic knee, and socket. Not fair, but the lobby group is too tiny to have any effect.
@@theampedlife I use an Ossur 2100 knee, and a Collage Park K2 ankle/foot. Both bought off ebay. Both leaked, and I had to repair, and change oil and o'rings before using. I am amputated about 3' above the left knee. Yesterday I did a 10 km walk. 2 hrs 42 min. The knee, and ankle got hot, but the biggest problem was the changing size of the stump during the walk. As my hydration level decreased, and I sweated more, the liner started to slide off the stump.
i was very much the same having a injury in my ankle which kept breaking down getting infected which went on for years which then went into my heal bone which meant over a year on antibiotics or go for a below the knee amputation, i had this done last June but have been up on my prosthesis since Oct and things seem ok and this has been the longest time i have gone for years without any illness
+stewart hayhurst Hi Stewart, I can really relate to your story of repeatedly dealing with infections. It was exhausting and amputation was my best decision. I hope all gets better for you and that you will have a good story to tell a few months from now ☀️
I'm also from South Africa. I emigrated to America and discovered they can't do legs right here. I've had several prosthetists in the USA and it seems as though they are not able to get stability, ability, function and pain management right all at the same time. I have a new prosthetist AGAIN, and AGAIN having to do my own research online to try to help my new prosthetist, who again takes it personally when I give any feedback. It's almost as if American prosthetists are trained to make a leg and send you on your way and if you want them to do any more than that, like pain management, then you are made to feel as if you're being difficult, or even insulting their workmanship, made to feel like you've become a noose around their necks. South African prosthetists seem to have been trained that during and after the leg is made, that's when the real work starts to balance pain management with functionality, with ability, with stability. All this is done within weeks, not months. I've had a leg made in Europe too, made within weeks. I've never had as much trouble with prosthetists as I've had since coming to America and I've been an amputee for 54 years. On my American leg, four prosthetists later for one leg, and two years plus, I can't do all the things I used to be able to do and they just tell me that because they just met me they can't take me on my word for it that I used to be able to sit with my legs crossed or closed before or dance, or whatever. In a round about way they're telling me that they don't believe me that previously I was able to do this or that and with no pain. That's a real insult. The main thing I find very frustrating is that American prosthetists lie a lot to your face. For instance over and over my current prosthetist promised me that the new socket will be soft and flexible around the brim, but it turned out hard and unflexible. He offered to make a second (hard) socket now, but he's making me feel guilty that he has to do it again. Its going to be another hard socket again, which is why I'm busy researching to find ways to alleviate brim pain. There's a gap /vacuum at the hip causing farting sounds with each step. I now have to research to help him know how to fix that also. Never in all my 54 years have I ever had loss of abilities, pain and alignment issues until I came to America. When I asked for leather on the brim (pig skin, I had before), they either say they can't get it, or tell me to source it myself, or do the fake leather for me but align the thick join by my soft tissue groin area instead of the hip and don't smooth or taper the edges. Every step of the way I must guide /teach them. I pay them lots of money to have the knowledge and expertise, I'm no expert, but having to become one online. I've never had to do that in my life before. My first South African prosthetist died decades ago, but he took such personal pride in everything he did and was respectful towards me, never making me feel like I'm a problem, or wasting his time. He made my legs including pain management within 2 weeks. He improvised a lot, using his basic common sense and imagination, was friendly. Over two years later, I'm still not getting what I've been promised and paid for in America. When I ask them in a nice way to please deliver on their promises, they get angry and offer me a refund. WHAT??? Here in the USA two years plus and four prosthetists later, I'm still struggling just to get one leg made right. American prosthetists are easily triggered and take any form of feedback extremely personally, no matter how softly or gently you deliver the bad news to them that the socket is hurting or you've lost certain abilities, or whatever. So friend, I truly FEEL your anxieties and frustrations after watching your videos and other videos uploaded by you. I wish you and I could get together to lean on each other for support, because even though America provides support groups, they are more for new amputees and these groups are not attended by prosthetists, who don't get to participate and hear group feedback. They would probably just offer more bs and excuses if they did attend. I seasoned amputee knows when they are being bs'd and this the American prosthetists don't foresee. My leg made in Europe also was perfectly aligned, functional, didn't make me lose any basic abilities, never broke my skin, did not cost the earth, I was not made to feel like I'm wasting their time. My own time and excess insurance money, many many months just to make one leg, big bucks and a lot of work days off, losing tons of money and time, severe pain and embarrassments, no longer able to do my very physical job to the same standards anymore without pain and still leg not right, is what I'm busy experiencing here in the USA, been lied to like you can't believe, even tried to sell me badly broken demo components in the USA, so much to tell ... If I had to calculate all the money I've spent on wound dressings here in the USA and all work hours lost just to make one leg, I could take that money and get another leg made. Sorry for the rant, but you're someone who will not hold it against me. You'll GET it. It's not an advanced complicated leg I'm asking for it's the most basic leg you can get. I've got other off work day responsibilities that need to be attended to, instead I find myself having to neglect what I should be doing instead, to do research for my prosthetist, who has already in his mind moved onto the next client he is busy helping, my needs are just a hindrance and waste of his focus and time he wants to spend on his next client. I wish you only the best my friend. Boy, do I GET you!
Hi FJ, wow thanks for a well considered and thoughtful message, I really appreciate it. If you like I can ask my friends at Ossur to suggest a prosthetist in your state in US. I really trust them and they've given me really good suggestions for US subscribers in the past. Just let me know. You really have had a bunch of frustrations, disappointments and costs in the process. I totally get what you mean and also hope you find a prosthetist who REALLY gets you, like I did after many tries. When I did in 2018 (after 14 years an amp) my life got soooo much better. I hope same will happen for you, it's so worth keeping on and finding that person. I believe prosthetists try their best, some just better than others, they really have an intuition to get things right. We can still support each other, despite the distance, and figure things out. I might be in the states next year again .... who knows what can happen? Go well man, keep in touch, and please join the live streaming events to chat and share thoughts real time. There are an amazing bunch of subscribers who join and support during the chat. Hope to see you there!! PS I get the rant, no need to apologise, a good rant can feel so good. Chat soon again
I know this is not a recent upload, but your advice is incredibly valuable to us, Chris. There is so little information on the Internet about knees and even less about sockets. And rarely any info on prices. I've been an AK since 1974 and, like you, had many prostheses, some good and bad prosthetists, and made some poor choices. I often wonder if I should spend big money on a microprocessor knee like the Rheo XC (US$50k?) or stay with my Blatchford KX-06 (US$5k, leaks fluid, and needs replacement every few years). I have been thinking about the 3R60 you showed in this video. If you had to go back to a mid-priced hydraulic knee, would you recommend it?
Hi and so sorry I only saw this message today! My advice with a knee is to always go for the best you can afford. The Rheo Knee changed my life, so I'm always going to be biased. Its safe, Im mobile, and I fell once in 3 years, and that was in the mountain! The 3R60 or 3R80 are both good alternatives too. If you can ... the Rheo :-)
Was the Nabtesco knee issue sorted. Is that the Allux knee. I am a bit lateral one below and one through knee end bearing. 45 plus years active bi lateral. The Allux being Polycentic is best suited for a long residual stump. Parts supply though hugely important
Hi, no it's still in storage, I cannot find a battery for it. I use Ossur now, awesome knee and great support from them. Thanks for asking - any suggestions? As a 45 yrs bi-lateral you must have a lot of wisdom to share. Hope to see you on our live streams starting soon!
I just got a new leg and the socket is uncomfortable its tight but when I tell them that they don't take it serious I feel I wont get used to it it depresses me.
Hi Paul, this is such a pity to hear. I makes me quite angry, but it can be sorted out. There are amazing prosthetist out there, I am fortunate to have one now, also with awesome backup from Ossur, the manufacturer of my knee. In your situation I would be assertive about what I need. The person needs to understand that our quality of life is severely compromised by an ill fitting socket. I struggled to become assertive, but when I found my voice and the right person for the job it all changed dramatically. You can see my video where I illustrate my mobility just 10 days after the new socket and leg. It really changed my life enormously and shows what is possible. All the best, I hope you find what you deserve mate!
@@theampedlife Thanks chris yes it can be frustrating I usualy have a ischial containment socket but this time they recommended I try a socket with a liner which isn't working its very tight and I just cant walk in it so il have to get them to cast another ischial containment socket its the only socket that seems to work for me.
Sorry to bother you. What is ones options to get the funds to do amputation. The state hospital in my aria is very bad and I am battling to get the 80,000 to have it done as soon as possible.
Hi Keith, my socket stop at my upper leg, it does not go over the hip - luckily. I'm fortunate to have a long residual limb which allows for this. Thanks for the message, and all the best for '23!
Hi Bo mate, Im so sorry I missed this comment when you posted it. How the heck are you doing? We are doing a lot of live streaming now, please join us on the next one and join in the conversation. Was so good to see you message, and again, Im sorry I never saw it at the time. Take care, hope to see you soon when we are live!
Hi there Chris hope you are doing well? Chris I just wanted 2 say thanks for your guidance and advise last year at the ossur mobility clinic, your my amputee role model. Is there maybe a possibility that we can work together as amputees? Stay blessed
Because I don’t know anything as to why things arent right I don’t know what to do is there any way to know if my leg person has me lined up right? They say I will never feel perfect there’s always going to be discomfort. Yet I can’t stand up straight easily I tend to bring body forward. Plus my hip is forward one hip .. I tend to have back aches. I have struggled to get the right length. I am above knee
Hi Jude, thanks for your message. I would for sure get another opinion, another set of eyes to take a look at your set up and alignment. If you're bringing your body forward it might be that your foot is angled to heavily downwards from the heel to the toes. We will never have it perfect, but we can certainly get as close as is possible. I must tell you I was uncomfortable for years with many issues, but my leg is 95% now, which I am very happy with. All the best and please let us know how it turned out.
Hi Vincent, I'm sorry to hear that you're having problems with the leg, especially since its so avoidable. If your prosthetist is not resolving the issues I strongly suggest you get another opinion, sometimes fresh eyes can see the problem someone else can't. Also trust your intuition and share it with the professionals, make sure your complaints are heard and clearly understood. I hope this is a start to a better experience, please let us know. All the best!
good day sir. sir may i ask if you know some sites that sell 2nd hand parts because its expensive to buy new part here in philippines or if you know some groups who donates some parts. tia God bless
Hi jade, sorry for answering so late, I only saw the message now! There are some organisations that help, but i'm not sure about the Philippines. Please don't give up on looking, the reward when we find the right parts is so worth it! All the best, I pray that you find what you need :-)
Hi James, thanks man, that will be greatly appreciated.The knee is a Nabtesco Hybrid Knee Type NI-C311 serial # 09CF0040. I'm going to have to remove the battery to find the specs as the manual shows nothing. Will do so later today and sent it through. I really appreciate your help with this, stoked!
@@theampedlife Chris - it looks like that is still sold: welfare.nabtesco.com/english/gi/hy_k/hy_k.html What's the problem with getting a new battery? I'm ready to go to Kobe to get it!
hi Chris, great video mate. A very touching and personal journey for you and am sure it has provided comfort and hope to lots of people facing a similar predicament. I've been an amputee now for 35 years and have been walking on crutches all these years. My stump was way too short for a socket type prosthetic. This year after having osseointegration I'm now walking on a prosthesis without a socket... no rubbing, chaffing or blisters. I've been watching 1 of your videos on gait training and have gained a lot from it. Here's how I walk now th-cam.com/video/p9PQvyXp3ew/w-d-xo.html
Hi Jerry, Im so sorry for missing this message when you posted it a year ago. Thank you for your kind comment, and for linking your video. It looks like you're so comfortable, I'm wondering how things are going now a year later?
Hi Chris. Love your video series and admire such valuable content. I am a left above knee amputee like yourself. It is nearly 18 months since amputation, and progress is good by most counts.l now wear a V G K articulation under my socket. You talked about mechanical issues. One such issue I have trouble getting my head around is the problem of volume changes in the residual stump and how best to manage these. It seems that no 2 days are the same. Some days feel great, while on others it doesn’t feel right and needs frequent adjusting. I live in the tropics in Australia and its mid summer right now so this issue is particularly acute. In mornings when the stump is engorged its hard to get moving properly. Once warmed up things seem to go better. Then by mid to late afternoon the stump has shrunk and the cast may be verging on loose, at times causing a degree of internal or external rotation in the cast. Of course I can compensate to a degree with socks (outside the silicon sleeve but inside the cast) of varying thickness, but it’s hard to get it right, and so frustrating when it never is quite right. Would be interested to know if you have similar problems, and if so how you might manage same Thank you in anticipation Cheers Ross
I have been dealing with pain for 17 years . I made the choice to have an above the knee amputation. It is set to happen Feb 21st and I think it is the best thing I can do. I can not walk right now the longer I am up the more I hurt . I am tired of not being able to live life. My biggest worry is sex after amputation . Can anyone help with these questions or be willing to talk with me? Any male that has an above the knee amputation please help me.
Hey mate, thanks for the message, and for raising a very important issue. Intimacy is something many amputees struggle with for a while, but the vast majority overcome this pretty soon. I want to re-assure you, but suggest you build a relationship with a trusted professional / therapist to work through a few things to make it easier, if needed. Mostly this has to do with body image, it's more in the mind and not in the physical side of things. If you stay healthy in mind and body things should be fine with a trusted partner and sexual intimacy. Pain is a passion killer, as is the medication prescribed to deal with it. My suggestion is to stay away from the opioids as much as possible. Just a last thought, I had immense pain and the amputation said my life. I am happily married and have a great relationship with my wife. I wish you all the best, please feel free to ask more questions if you are looking for support. I'll raise this topic in the next live stream as I think it's so important, and rarely talked about. Take care mate.
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Sooo true, I have had bad experiences with prosthetists. They really do not know what they are doing and we suffer for it. It has already been 3 years and I still do not have a well fitting socket. Very frustrating, expensive and time consuming. Still searching for a well educated prosthetist. 😵💫
Hi Joyce, I actually thought I had replied to this message earlier, but see for some reason it did not post ... strange!
What I wanted to say was that in my past amputee years I have had one bad experience with a prosthetist, and one unsatisfactory one. This cost me many years of good mobility, but in recent years I have met the most amazing prosthetists who have really been helpful, and because of them I have such a good prosthetic setup now. I have come to learn that they are truly wonderful people who want the best for us, but as with every profession there will always be a bad experience along the way. After much looking around I have come to have so much respect for prosthetists, so I hope you will find what I have - we all deserve a good experience and hope this for you too :-)
Take care, please let us know how things wok out for you!
Hey Chris, I have watched a couple of your VLOGS and I appreciate what you are doing. I will sit down soon and watch the rest. In This particular one, you touched on a very important topic. The Prosthetist. We are thrust into this new world where we really don’t know which way is up. When getting a prosthetic, we have to rely on the expertise of someone who in most cases, has no fucking clue what we are going through. As you said, it is so very important to find the right person. One who asks questions and listens to our answers. Generally, a prosthetist is going to be lifelong relationship if you can find the right one. I probably have no idea how lucky I was to find the right one on my first try. Also, it takes some guts to put yourself out there like you are doing with these videos. Just want to say thanks again.
Hi Paul, thanks for all your support and for commenting. You are 100% on the money - we really are flung blindly into a world where we kinda hand over our quality of live to somebody whom we barely know. I have mostly met awesome prosthetist, but I have also had a really rough experience where I felt my vulnerability and lack of knowledge were taken advantage of. I now have a guy who has really changed my life in the past three months. For the 1st time in 14 years I feel totally confident that I have the right set-up. How FdUp is that? 14 years.
Please let me know what sort of video content you think will be good and important to put out there, my goal is to allow fellow amputees to share their thoughts and ideas through this channel.
Thanks a ton!
You’re so right the socket is THE most important part of your prosthetic. The pain and complications caused by an ill fitting socket - infections from sores, rashes, blisters, cysts, neuroma’s and bone spurs can lead to further revision surgeries. If your socket isn’t right the prosthetic feels so heavy and takes more energy to use. You can have the most expensive components (Knee, ankle, foot and arm) but if the socket doesn’t fit you won’t be able to use those amazing components to their fullest and it will cause so many other aches and pains by compensating for it, leading to sciatica, other spine, hip, knee and ankle pain on your sound limb. Getting the socket right may take a few appointments to get it right but stick with it, it’s always worth going back to your prosthetist and explaining where it hurts (if you find it difficult to explain put marks on your socket where it doesn’t feel right or write a list of the problems you’re having) I’m so sorry you’ve had such a rough prosthetist that was clearly only in it for the money and didn’t give you the right care, components or explain how to use the functions and how to maintain it. That’s so wrong! hopefully Karma will come around and show him how wrong he was. I hope your new prosthetist now works with you to keep you comfortable and give you the right prosthetics that won’t hold you back from what you want from life.
I recently got my socket sorted for the 1st time in 14 years! My guy Eugene Rossouw nailed it 1st time, and my life just got so much better. Isn't it amazing how one person can change an amputee's life by listening and truly walking a mile with with us? There are some truly amazing pro's out there, we just need to be assertive about it and insist on getting what we invest our resources in.
It sounds like you have a ton of experience in these matters. We can all learn from you. I also appreciate your care and concern for our well being.
I really appreciate all the feedback you've been giving the amp community, please keep it up. Also please let me know what you think we need to be talking about on this channel, I will make work of it and get your message and ideas out there :-)
And yes, Karma can be a real leveller - both ways though. I often wonder what it is that I had done in the past that got me in the situation that I am in now haha... I must say that in the end I feel my life has improved as a result of my accident.
Oh thank you ever so much, like you I learnt how tricky getting used to our new “normal” can be and also how little Information there is readily available. That’s why I love learning from yours and fellow amputees youtube channels. I cant tell how much these videos have helped get me through my rehab - I wish both yours and footloose Jo’s were around when I went through my Amputation.
We ampies stick together and the info I’ve learnt to treasure and share.
I had a lot of socket problems too but I was so lucky as my prosthetist really did try everything and thankfully she stuck with me until we found the right socket(I use an infinite socket) but I’ve seen so many amputees who haven’t and how much it has limited and held them back from living(Even on the nhs). Some had to have revision surgery caused from it. It’s so scary. Once you’ve found a great prosthetist hold on to them tightly 💎 they have the keys to our freedom 😍
Your post is so important in letting people know how to find a good prosthetist and to not put up with someone who doesn’t give the correct care. Im so glad you’ve found Eugene! How did you stay sane having to put up with that for 14 yrs? I bet meeting Eugene was like winning the lottery. 💪🏻
Your right on the karma too but I’m like you: my life is so much better now. It makes you appreciate things so much more especially the tiny things. I really love your outdoor fun videos as you really don’t hold back which is fantastic to see - i love seeing how you found the equipment or adaptions. I’m definitely going to get some hiking poles 🙌🏻 struggling with crutches is no fun on rough terrain Keep doing what you’re doing trust me you will be helping so many 🤗🙌🏻
The paralympics has done so much to educate putting on display new prosthetics and equipment. I'm forever at pais to point out that yes there's been incredible advances in technology but if the Shoe doesn't fit the benefits are negligible. The socket fit is of primary importance. 45 plus years an active bilateral amputee from 18yrs, bomb explosion NI.
Awarded an MBE for Services to Training and Employment Opportunities. We are challenged by standards throughout the Health Service in the UK. Can't seem to fit below knee without Verrucous Hyperplasia and blistering occurring. Losing a lot of walking time.
Thanks for creating this channel - your videos do help
Hi Brandon, thank you for the message! It's a huge pleasure, it's really good to hear that it is helping you and others. Hope we see you on our live streaming!
Thank you so much Chris. It is very important to look at amputees special needs. Quality of life is very Import. my daughter is also visually impaired. we don't need unnecessary equipment. yes they need to listen what your special needs are..you spent a lot of money. and then you don't have money for what you actually need.
What is the best foot and leg for visually impaired as well. now we know not to spent money on unnecessary equipment.
Hi Faith, wow you've sent quite a few messages, thanks so much!
I have experienced the best foot as OSSUR ProFlex LP. The best leg Ive used is the OSSUR Rheo Knee XC. The combination of these two are really safe. I have a very dear friend who is visually impaired, she read your message and sends all best wishes for your daughter - thanks for sharing.
I just had the operation to go from BKA to AKA and got my first leg. I got the Ottobock C leg for a knee. The socket is new and needs serious adjustment. The socket goes all the way up to the groin but that's not the worst part. There is a piece that comes up in the behind that cuts into me and im realizing that the liner does not even make it that high and its that hard black rubber digging in with every step. There is some pain close to the bottom of the socket as well but I think it could just be the way that it healed. I'm hoping that at todays visit that the prosthetist really listens when I say that that tab in the rear is painful enough that it keeps me from paying attention to walking correctly and putting pressure on your toe to get a proper release from the knee to swing. Been using a walker around the house to prevent falls for now. I'm really tired of sitting around the house in a wheelchair. I want to get back on my 650cc scooter and eventually on my motorcycle. Ill have to figure out a way to shift now. There are so many things that need doing and that are overdue. I have got to get moving. I know a great deal about the pain meds myself. That's another issue. I want my independence back. My prosthetist is a good guy, an amputee himself who lost everything below the hip (well almost everything, he just had a kid) in a boating accident where a family member accidentally backed the boat up onto him. I trust him because he knows what it's like. It just gets frustrating. When I was BKA it was painful but I put that crappy pin lock on and walked right out of that office and got to work.
Hi (FlyBaby)! Thank you so much for your message, sorry I only responded now a month later, I missed it initially. We have a lot in common: Both TK/AK amputees, I ride bicycle and motorcycles, struggled with pain / meds, socket fit and more.
I changed my motorcycle for a semi auto (Im a left leg amp) which solved that issue.
The CLeg is a good knee, from what you're using your mobility should be really good and not needing a walker, but we are all different and heal at different speeds.
There is no reason why your socket should hurt you, this is the most important piece to get right. I hope you get a good fit soon and the mobility improves to a point where you are content and happy about your setup.
I wish you the best, please keep non touch and join us when we go live for real time chats!
I’m not understanding the thumbs down. These videos are very interesting and informative. Thank you Chris for taking time to put these together. My surgery is September 14th..if lockdown dosent postpone it..I’m watching all of your videos.
Hi Karen, thank you for your kind and supportive comment. I'm sorry to hear about your surgery, but hopeful that it will improve your quality of life, and bring new and interesting experiences as result of your courageous decision.
For me the journey has been immensely rewarding, challenging, filled with new encounters - which have only added value to my life. I wish you something similar - all the best, please keep in touch and let us know how you're managing. Your shared experience will benefit someone else in a similar situation, no doubt.
Take care!
@@theampedlife Hey Chris, thank you for taking time from your busy schedule to reply. I’ll definitely keep everyone updated..NZ level 4 has thrown a spanner in the works. 😒
@@theampedlife just a quick up date. Surgery was a complete success. RPNI was preformed. I’m happy to say,I’ve had only 1 week of phantom pain. Surgery was November 16th. Next week I’ll receive my leg.
I live in the UK so get a prosthetic centre designated to me (usually by proximity of address) and the socket maker too. The good points are it's all free and you have a team of departments working together to decide what's best for you including physiotherapy, prosthetics, and specialist Doctors. The not so good point is that you have limited choice on products, you are only allowed what the NHS approves (to give you a sense, they only started offering microprocessor knees 2 years ago). If you decide to go private you must buy the socket, knee, and foot, you couldn't take an NHS knee to a private clinic for example and ask them to put a foot on it. Despite this, it's reassuring to know that the centre wouldn't sell something with an alterior motive as they're not profiting if they set you up with something more expensive.
Hi Jacob, thanks for commenting and for sharing your experience and suggestions. I absolutely believe that by far the most prosthetists will provide what they think is best for their patient. But as in any profession, there will always be exceptions. Our challenge is to find the real guys. Ask around, get testimonials, and make sure that we feel heard and our needs are taken care of, no exceptions.
Hi Chris, great to see your vlog. I have had many years of poor socket fit. You are right. No amount of money on components such as knees and feet can make up for a socket that does not fit properly. Like you, I have spent countless hours and extravagant amounts of money trying to find solutions which only mask poor socket fit. Thank you for having the courage to speak the truth about challenges facing above knee amputees in particular. Can you recommend a prosthetist?
Hi Angelina, thank you for the message and kind words. Where do you live, I can ask some people I know for a suggestion for a good prosthetist to help you get the right fit.
It is so liberating when it all comes together, I hope we can help you to find what you need and deserve :-)
Take care
Excellent video Chris. Im an aka and need an adjustable socket.
Thanks
Hi Dan, thanks for the comment, and for watching the videos, it really helps to grow the channel and continue make amputee content. Much appreciated by the community!
I have seen adjustable sockets, they are quite flexible and can do the job, up to a point. A fixed permanent socket however is better for a snug fit and more active way of life. Both have their advantages, for different amputee situations and solutions. I much prefer a set socket for my way of life, but have heard and can understand the benefits in being able to adjust depending on the needs and situation.
Either way, all the best, I hope you find what you need to be a content, mobile amputee.
PS I hope we see you in the live streams, please as any questions real time, and let's hear what the subscribers have to offer from their experiences with this.
Chris you still seam in a total pain about your prostheses, and wut you have gone threw , just my observation by listening to you talking,
You have vital information so thank you ,
I am Delwyn Everson, I am an American man and I am 57 years old,
I lost my left leg as I had a left below the knee amputation, one year ago and I have been in a wheelchair since as I was in the Philippines when I had a severe gout attack on my left foot, it got severely infected and inflamed and gangrene set in it was a big story but I am stuck in the Philippines, as I can’t afford a leg and it would be very arduous for me to leave with out a leg as to get on the airplane you have to walk up steep stairs just to get in the plane, and you know the complications of being in a wheelchair or being able to just walk , I have been considering making my own leg just so I can leave here as if I get back to America as I’m a Veteran I can get free legs but I have to be in the USA to get that , I’m worried that I will never have enough money to buy a leg just so I can leave the Philippines, I don’t have any family left that cares enough to help me pay for anything, and I have to actually make it to the USA to actually get the help I need ,and the US embassy won’t do anything for me, I do get a little Disability monies that pays for rent and food and utilities, but that’s it , I should have stayed in the USA and never left and I can’t go back to work until I get home first, I know your not a charity but is there anyway you could help me pay for a leg , the Philippines is not a place to be handicap, I have a place to go in the US in Baltimore Maryland with friends to begin with , there is no other place for me to go, I Sincerely thankyou evan for any consideration Sincerely Delwyn Everson, Dumaguete City Philippines ,
Chris, bravo for the comments about the socket being most
important. You address this point I mentioned in another video’s comment.
Perhaps a follow-up point for people just coming into this life
is that the adjustments and replacements are a life-long process. I know you
mentioned that the relationship with the prosthetist is life-long, but maybe it
would be good to clarify to people that this is true even if one has few
issues.
It sounds as if you have been self-funding legs, too. What
is the healthcare system like in South Africa?
Thanks again for putting yourself into these videos.
Thanks mate, I appreciate your comments. I'm doing a video soon on the biggest issues we encounter initially. I got my socket issues sorted now, all really going well.
Hope to see your comments in the next video!
Hope I wont need a prosthetic, but great talk, Chris!
Great info, Chris. It would be worth noting that length of stump (RL "residual limb" in the politically correct vernacular) makes a HUGE difference in what kind of socket an AK will find comfortable. You have a long stump and get along well with a sub-ischial socket. Knee-disarticulation amps can sometimes weight-bear on the distal end if the patella is grafted on. I have a mid-femur stump and need more ischial support and medial-lateral stability than you do. Short stump AKs have the toughest time getting a good socket fit. I won't even mention volume changes during the day and when we gain/lose weight. Every amp faces difference challenges.
I agree completely, you are clearly very well informed on these matters.
I will do my best to use the RL vernacular, thanks for pointing that out.
As you say, some problems we share but we also all have unique challenges. The RL being the greatest one. I am lucky with my RL, also with the surgery done, they really did a great job which allows for a lot more freedom.
Please keep posting, we can all learn a lot from your knowledge.
Thanks!
This is very true. So many through the knee amputees don't see or experience the fact that we can not put weight on the distal end of the stump. That means that weight, and hydration of the day can make a socket to loose, or too tight. Almost all the T42 Paralympics people are through the knee. Seldom does an above the knee amputee compete in the Paralympics.
Also Chris's leg cost more than my house. All my prosthetics come from E-bay.
@@kgwediwise7092 I wish I had had the luxury of knee-disartic. And in Canada/Ontario, our gov health insurance only pays for the minimal gear to get an amp walking. So, for an AKA like me, they pay maybe 30% of a basic carbon fibre foot, hydraulic knee, and socket. Not fair, but the lobby group is too tiny to have any effect.
@@kgwediwise7092 Hi Kgwedi, thanks for the interesting info and stats. What prosthetics do you use?
@@theampedlife I use an Ossur 2100 knee, and a Collage Park K2 ankle/foot. Both bought off ebay. Both leaked, and I had to repair, and change oil and o'rings before using. I am amputated about 3' above the left knee.
Yesterday I did a 10 km walk. 2 hrs 42 min. The knee, and ankle got hot, but the biggest problem was the changing size of the stump during the walk. As my hydration level decreased, and I sweated more, the liner started to slide off the stump.
i was very much the same having a injury in my ankle which kept breaking down getting infected which went on for years which then went into my heal bone which meant over a year on antibiotics or go for a below the knee amputation, i had this done last June but have been up on my prosthesis since Oct and things seem ok and this has been the longest time i have gone for years without any illness
+stewart hayhurst Hi Stewart, I can really relate to your story of repeatedly dealing with infections. It was exhausting and amputation was my best decision. I hope all gets better for you and that you will have a good story to tell a few months from now ☀️
I'm also from South Africa. I emigrated to America and discovered they can't do legs right here. I've had several prosthetists in the USA and it seems as though they are not able to get stability, ability, function and pain management right all at the same time.
I have a new prosthetist AGAIN, and AGAIN having to do my own research online to try to help my new prosthetist, who again takes it personally when I give any feedback.
It's almost as if American prosthetists are trained to make a leg and send you on your way and if you want them to do any more than that, like pain management, then you are made to feel as if you're being difficult, or even insulting their workmanship, made to feel like you've become a noose around their necks.
South African prosthetists seem to have been trained that during and after the leg is made, that's when the real work starts to balance pain management with functionality, with ability, with stability. All this is done within weeks, not months.
I've had a leg made in Europe too, made within weeks.
I've never had as much trouble with prosthetists as I've had since coming to America and I've been an amputee for 54 years.
On my American leg, four prosthetists later for one leg, and two years plus, I can't do all the things I used to be able to do and they just tell me that because they just met me they can't take me on my word for it that I used to be able to sit with my legs crossed or closed before or dance, or whatever. In a round about way they're telling me that they don't believe me that previously I was able to do this or that and with no pain. That's a real insult.
The main thing I find very frustrating is that American prosthetists lie a lot to your face. For instance over and over my current prosthetist promised me that the new socket will be soft and flexible around the brim, but it turned out hard and unflexible. He offered to make a second (hard) socket now, but he's making me feel guilty that he has to do it again. Its going to be another hard socket again, which is why I'm busy researching to find ways to alleviate brim pain. There's a gap /vacuum at the hip causing farting sounds with each step. I now have to research to help him know how to fix that also.
Never in all my 54 years have I ever had loss of abilities, pain and alignment issues until I came to America. When I asked for leather on the brim (pig skin, I had before), they either say they can't get it, or tell me to source it myself, or do the fake leather for me but align the thick join by my soft tissue groin area instead of the hip and don't smooth or taper the edges.
Every step of the way I must guide /teach them. I pay them lots of money to have the knowledge and expertise, I'm no expert, but having to become one online. I've never had to do that in my life before.
My first South African prosthetist died decades ago, but he took such personal pride in everything he did and was respectful towards me, never making me feel like I'm a problem, or wasting his time. He made my legs including pain management within 2 weeks. He improvised a lot, using his basic common sense and imagination, was friendly.
Over two years later, I'm still not getting what I've been promised and paid for in America. When I ask them in a nice way to please deliver on their promises, they get angry and offer me a refund. WHAT???
Here in the USA two years plus and four prosthetists later, I'm still struggling just to get one leg made right. American prosthetists are easily triggered and take any form of feedback extremely personally, no matter how softly or gently you deliver the bad news to them that the socket is hurting or you've lost certain abilities, or whatever.
So friend, I truly FEEL your anxieties and frustrations after watching your videos and other videos uploaded by you.
I wish you and I could get together to lean on each other for support, because even though America provides support groups, they are more for new amputees and these groups are not attended by prosthetists, who don't get to participate and hear group feedback. They would probably just offer more bs and excuses if they did attend. I seasoned amputee knows when they are being bs'd and this the American prosthetists don't foresee.
My leg made in Europe also was perfectly aligned, functional, didn't make me lose any basic abilities, never broke my skin, did not cost the earth, I was not made to feel like I'm wasting their time.
My own time and excess insurance money, many many months just to make one leg, big bucks and a lot of work days off, losing tons of money and time, severe pain and embarrassments, no longer able to do my very physical job to the same standards anymore without pain and still leg not right, is what I'm busy experiencing here in the USA, been lied to like you can't believe, even tried to sell me badly broken demo components in the USA, so much to tell ...
If I had to calculate all the money I've spent on wound dressings here in the USA and all work hours lost
just to make one leg, I could take that money and get another leg made.
Sorry for the rant, but you're someone who will not hold it against me. You'll GET it.
It's not an advanced complicated leg I'm asking for it's the most basic leg you can get.
I've got other off work day responsibilities that need to be attended to, instead I find myself having to neglect what I should be doing instead, to do research for my prosthetist, who has already in his mind moved onto the next client he is busy helping, my needs are just a hindrance and waste of his focus and time he wants to spend on his next client.
I wish you only the best my friend. Boy, do I GET you!
Hi FJ, wow thanks for a well considered and thoughtful message, I really appreciate it.
If you like I can ask my friends at Ossur to suggest a prosthetist in your state in US. I really trust them and they've given me really good suggestions for US subscribers in the past. Just let me know.
You really have had a bunch of frustrations, disappointments and costs in the process. I totally get what you mean and also hope you find a prosthetist who REALLY gets you, like I did after many tries.
When I did in 2018 (after 14 years an amp) my life got soooo much better. I hope same will happen for you, it's so worth keeping on and finding that person. I believe prosthetists try their best, some just better than others, they really have an intuition to get things right.
We can still support each other, despite the distance, and figure things out. I might be in the states next year again .... who knows what can happen?
Go well man, keep in touch, and please join the live streaming events to chat and share thoughts real time. There are an amazing bunch of subscribers who join and support during the chat. Hope to see you there!!
PS I get the rant, no need to apologise, a good rant can feel so good. Chat soon again
Hi FJ, I just wrote a long reply to your message but can't find it now, can you please let me know if you got it? Thanks man!!
I know this is not a recent upload, but your advice is incredibly valuable to us, Chris. There is so little information on the Internet about knees and even less about sockets. And rarely any info on prices. I've been an AK since 1974 and, like you, had many prostheses, some good and bad prosthetists, and made some poor choices. I often wonder if I should spend big money on a microprocessor knee like the Rheo XC (US$50k?) or stay with my Blatchford KX-06 (US$5k, leaks fluid, and needs replacement every few years). I have been thinking about the 3R60 you showed in this video. If you had to go back to a mid-priced hydraulic knee, would you recommend it?
Hi and so sorry I only saw this message today!
My advice with a knee is to always go for the best you can afford. The Rheo Knee changed my life, so I'm always going to be biased. Its safe, Im mobile, and I fell once in 3 years, and that was in the mountain!
The 3R60 or 3R80 are both good alternatives too. If you can ... the Rheo :-)
PS I appreciate your message and support, it really motivates me to keep on posting. Tnx!
Was the Nabtesco knee issue sorted. Is that the Allux knee. I am a bit lateral one below and one through knee end bearing. 45 plus years active bi lateral. The Allux being Polycentic is best suited for a long residual stump. Parts supply though hugely important
Hi, no it's still in storage, I cannot find a battery for it. I use Ossur now, awesome knee and great support from them.
Thanks for asking - any suggestions? As a 45 yrs bi-lateral you must have a lot of wisdom to share. Hope to see you on our live streams starting soon!
I just got a new leg and the socket is uncomfortable its tight but when I tell them that they don't take it serious I feel I wont get used to it it depresses me.
Hi Paul, this is such a pity to hear. I makes me quite angry, but it can be sorted out. There are amazing prosthetist out there, I am fortunate to have one now, also with awesome backup from Ossur, the manufacturer of my knee.
In your situation I would be assertive about what I need. The person needs to understand that our quality of life is severely compromised by an ill fitting socket. I struggled to become assertive, but when I found my voice and the right person for the job it all changed dramatically.
You can see my video where I illustrate my mobility just 10 days after the new socket and leg. It really changed my life enormously and shows what is possible.
All the best, I hope you find what you deserve mate!
@@theampedlife Thanks chris yes it can be frustrating I usualy have a ischial containment socket but this time they recommended I try a socket with a liner which isn't working its very tight and I just cant walk in it so il have to get them to cast another ischial containment socket its the only socket that seems to work for me.
Sorry to bother you. What is ones options to get the funds to do amputation. The state hospital in my aria is very bad and I am battling to get the 80,000 to have it done as soon as possible.
Hi Johan, where do you live?
When are you able to have a socket that doesn't go to the top of your hip
Hi Keith, my socket stop at my upper leg, it does not go over the hip - luckily. I'm fortunate to have a long residual limb which allows for this. Thanks for the message, and all the best for '23!
Hey, Chris. I’ve been missing you. Give me a shout, mate! Bo/DAK amp
Hi Bo mate, Im so sorry I missed this comment when you posted it. How the heck are you doing? We are doing a lot of live streaming now, please join us on the next one and join in the conversation.
Was so good to see you message, and again, Im sorry I never saw it at the time.
Take care, hope to see you soon when we are live!
Hi there Chris hope you are doing well?
Chris I just wanted 2 say thanks for your guidance and advise last year at the ossur mobility clinic, your my amputee role model.
Is there maybe a possibility that we can work together as amputees?
Stay blessed
Because I don’t know anything as to why things arent right I don’t know what to do is there any way to know if my leg person has me lined up right? They say I will never feel perfect there’s always going to be discomfort. Yet I can’t stand up straight easily I tend to bring body forward. Plus my hip is forward one hip .. I tend to have back aches. I have struggled to get the right length. I am above knee
Hi Jude, thanks for your message. I would for sure get another opinion, another set of eyes to take a look at your set up and alignment.
If you're bringing your body forward it might be that your foot is angled to heavily downwards from the heel to the toes.
We will never have it perfect, but we can certainly get as close as is possible. I must tell you I was uncomfortable for years with many issues, but my leg is 95% now, which I am very happy with.
All the best and please let us know how it turned out.
I would also like find is there amputees thar have extra legges that help new prostec but can't avored them 🙂
It's a good question, I know many amputees have legs they no longer use. I will ask this question on my next live stream, hope you can join us!
Great day sir can I ask someone hu can help me to have prosthetic leg ,thank you
I'm a veteran that lost my left leg due to an accident and my first leg is giving me some major problems what can I do
Hi Vincent, I'm sorry to hear that you're having problems with the leg, especially since its so avoidable. If your prosthetist is not resolving the issues I strongly suggest you get another opinion, sometimes fresh eyes can see the problem someone else can't. Also trust your intuition and share it with the professionals, make sure your complaints are heard and clearly understood.
I hope this is a start to a better experience, please let us know. All the best!
Just asking... how much is the price?
Hi Ian, that would depend on a lot of things - do you mean the prosthetic leg on the thumbnail?
I. Need this leg please help me
Hi Chris, where did you get your leg made? Could you share the address?
good day sir. sir may i ask if you know some sites that sell 2nd hand parts because its expensive to buy new part here in philippines or if you know some groups who donates some parts. tia God bless
Hi jade, sorry for answering so late, I only saw the message now! There are some organisations that help, but i'm not sure about the Philippines.
Please don't give up on looking, the reward when we find the right parts is so worth it!
All the best, I pray that you find what you need :-)
I need one
How much prices of your Prosthesis??
Hi, the price of my gear is about $10000 - the one I use in this video. I upgraded later to Ossur, the knee you see in my new video's.
send me specs on battery i have look here in Sydney
Hi James, thanks man, that will be greatly appreciated.The knee is a Nabtesco Hybrid Knee Type NI-C311 serial # 09CF0040.
I'm going to have to remove the battery to find the specs as the manual shows nothing. Will do so later today and sent it through. I really appreciate your help with this, stoked!
@@theampedlife my email jdleicher@hotmail.com
@@theampedlife Chris, I live in Japan. Can I pursue your battery with the maker here?
@@theampedlife Chris - it looks like that is still sold: welfare.nabtesco.com/english/gi/hy_k/hy_k.html What's the problem with getting a new battery? I'm ready to go to Kobe to get it!
@@theampedlife Looking at the company site, it looks like a stand-up normal company. Did you try to contact them already but had some issues?
hi Chris, great video mate. A very touching and personal journey for you and am sure it has provided comfort and hope to lots of people facing a similar predicament. I've been an amputee now for 35 years and have been walking on crutches all these years. My stump was way too short for a socket type prosthetic. This year after having osseointegration I'm now walking on a prosthesis without a socket... no rubbing, chaffing or blisters. I've been watching 1 of your videos on gait training and have gained a lot from it. Here's how I walk now th-cam.com/video/p9PQvyXp3ew/w-d-xo.html
Hi Jerry, Im so sorry for missing this message when you posted it a year ago. Thank you for your kind comment, and for linking your video. It looks like you're so comfortable, I'm wondering how things are going now a year later?
PS I must be honest, osseointegration does scare mea little - you have more courage that I have!
I am an amputee and am having big problem in selecting the right company to have a prostatic leg would you please help me
Hi Salman, where are you from?
The Amped Life with Chris I am from Saudi Arabia
Hi Chris. Love your video series and admire such valuable content. I am a left above knee amputee like yourself. It is nearly 18 months since amputation, and progress is good by most counts.l now wear a V G K articulation under my socket. You talked about mechanical issues. One such issue I have trouble getting my head around is the problem of volume changes in the residual stump and how best to manage these.
It seems that no 2 days are the same. Some days feel great, while on others it doesn’t feel right and needs frequent adjusting.
I live in the tropics in Australia and its mid summer right now so this issue is particularly acute. In mornings when the stump is engorged its hard to get moving properly. Once warmed up things seem to go better. Then by mid to late afternoon the stump has shrunk and the cast may be verging on loose, at times causing a degree of internal or external rotation in the cast. Of course I can compensate to a degree with socks (outside the silicon sleeve but inside the cast) of varying thickness, but it’s hard to get it right, and so frustrating when it never is quite right.
Would be interested to know if you have similar problems, and if so how you might manage same
Thank you in anticipation
Cheers Ross
I can I communicate to you
Hi Susan, please go ahead and send a message, O will reply to you :-)
Ohh amputee only do abroad Philippines cannot expenssive
Hi Margie, I'm not sure what you meant with your comment... please tell a little more if you'll be so kind :-)
I have been dealing with pain for 17 years . I made the choice to have an above the knee amputation. It is set to happen Feb 21st and I think it is the best thing I can do. I can not walk right now the longer I am up the more I hurt . I am tired of not being able to live life. My biggest worry is sex after amputation . Can anyone help with these questions or be willing to talk with me? Any male that has an above the knee amputation please help me.
Hey mate, thanks for the message, and for raising a very important issue.
Intimacy is something many amputees struggle with for a while, but the vast majority overcome this pretty soon. I want to re-assure you, but suggest you build a relationship with a trusted professional / therapist to work through a few things to make it easier, if needed. Mostly this has to do with body image, it's more in the mind and not in the physical side of things.
If you stay healthy in mind and body things should be fine with a trusted partner and sexual intimacy.
Pain is a passion killer, as is the medication prescribed to deal with it. My suggestion is to stay away from the opioids as much as possible.
Just a last thought, I had immense pain and the amputation said my life. I am happily married and have a great relationship with my wife.
I wish you all the best, please feel free to ask more questions if you are looking for support.
I'll raise this topic in the next live stream as I think it's so important, and rarely talked about.
Take care mate.