I was diagnosed with vitiliform dystrophy at the age of 14. Back then, I just noticed my vision was getting slightly blurry so I donned glasses. But now, at 16, I noticed that the center of my vision or focus point looked as if there was a bulge. If anyone has used Apples old photo booth app, it kinda looked like one of those filters... This was a blow for me cause that was my dominant eye and I cannot focus on anything with it now. It's sad to know there's no cure and I'm honestly terrified. I've taken my vision for granted this whole time...
I have Best disease (started affecting my vision at 15 or 16 and is noticeably affecting my life now because my vision is so poor). I just keep checking back every few years to see if a cure is available.
@@CherylMarieSame here now i'm 28 my vision is v poor😢lets prays together that there is a cure for this before we lose our vision completely and become blind
Thank you for this video.Im 37 years old,I ve got myopia modica from childhood,my vision with glasses is perfect,whithout defects.Before few months my new eye doctor found changes on macula.I was on OCT,and around fovea are discreet defects pigments and atrofies.Perimetr was whithout defects.I was shocked,because my vision is absolut normal.Specialist told me,that is chance,that it could not be progressive and keep no worse my vision on the future.May I ask you what maximal I can do as prevent?It is too possible that this changes i ve got long time,but my previous doctor did not find it. Thank you for your answer. Tereza
Hello sir, thank you for your information. Could I ask you a question, if I have cone rod dystrophy with macular dystrophy. I lost my both eyes central vision. If any other treatments, woukd possible to help my eyes sight? I would be very appreciated if you know about that.
@@faizkazi2789 totally agree. Having good people around is really awesome. They assist and guide us for a lot of paperwork and transactions. Good thing that there has been so many accessibility technologies that helped us to at least have a grasp on for visually challenging times.
I'm 37 years old in 2022. When I was 14, I started to see some web like formations in the side vision of my left eye. After some time it shifted to the center of my vision. Now wherever I see from my left eye, the center of my vision is diffused. My peripheral vision is alright, it's just the exact center. If I close my right eye and look at a person from 3-4 feet distance, his head will disappear (diffused in the surroundings). I keep checking online of there's a cure available, but sadly, there isn't. The vision of my right eye is perfect. I just want to know if there's a certain age for this to happen or can it happen at any age?
If you wish to make an appointment, call 866.320.4573 (24 hours/day, 7 days/week). Or you can make an appointment online at the link below. Please let us know if you have any questions. cle.clinic/2CzHDxB
very well... but last answer was not good.... just like u the one commented below. i also have this! age 19! :-( but the cruel world, knowing nothing about it as it does not affect them, makes me keep it a secret and struggle in class! being a student, it is hard that too in India where most colleges don't really care, just come n pass out... i just want to ask. why is this mutation? because of todays life style? or invisible radiation! RADIATION IS IT??
@@AsifKhan-yf7qx You should work hard to make money so that you can buy nano-grade eye drops. If you act like begger and /or robber, no wonder, Allah punish you.
I was diagnosed with vitiliform dystrophy at the age of 14. Back then, I just noticed my vision was getting slightly blurry so I donned glasses. But now, at 16, I noticed that the center of my vision or focus point looked as if there was a bulge. If anyone has used Apples old photo booth app, it kinda looked like one of those filters... This was a blow for me cause that was my dominant eye and I cannot focus on anything with it now. It's sad to know there's no cure and I'm honestly terrified. I've taken my vision for granted this whole time...
I have Best disease (started affecting my vision at 15 or 16 and is noticeably affecting my life now because my vision is so poor). I just keep checking back every few years to see if a cure is available.
Same story here also my disease also started from 15 and now it is getting worse day by day
@@satyamagrawal858 I'm sorry :( I know how it is
@@CherylMarieSame here now i'm 28 my vision is v poor😢lets prays together that there is a cure for this before we lose our vision completely and become blind
My 3 months old baby is diagnosed with macular dystrophy, its been tough few days for us after knowing there is no cure :(
I am 17 and was just diagnosed. My dad and my brother and sister have it as well. Its so rough to go through.
Please browse www.godforeye.com
All glory belongs to God
God bless your family
I am also going through the same
Hello have you stell or not ?
My lil brother was diagnosed with it thay said he will go blinde me and my mom started crying 😢 he's only 10 im still crying dat scard me for life
Thank you for this video.Im 37 years old,I ve got myopia modica from childhood,my vision with glasses is perfect,whithout defects.Before few months my new eye doctor found changes on macula.I was on OCT,and around fovea are discreet defects pigments and atrofies.Perimetr was whithout defects.I was shocked,because my vision is absolut normal.Specialist told me,that is chance,that it could not be progressive and keep no worse my vision on the future.May I ask you what maximal I can do as prevent?It is too possible that this changes i ve got long time,but my previous doctor did not find it.
Thank you for your answer.
Tereza
Any hope ,remedy for macular destropy & stugunt disease today or in future?
Please browse www.godforeye.com
All glory belongs to God
God bless your family
Hello 🙂
Hello sir, thank you for your information. Could I ask you a question, if I have cone rod dystrophy with macular dystrophy. I lost my both eyes central vision. If any other treatments, woukd possible to help my eyes sight? I would be very appreciated if you know about that.
I was diagnosed with this on 21. And now, I'm 27, it is really progressing, and it's really sad. I am now tagged as person with disablity.
Very sorry to hear bro
I just got diagnosed. I am 37 with a family with kids. Life is never easy. Thank God I have beautiful people with me to live.
@@faizkazi2789 totally agree. Having good people around is really awesome. They assist and guide us for a lot of paperwork and transactions. Good thing that there has been so many accessibility technologies that helped us to at least have a grasp on for visually challenging times.
My dad have Macular dystrophy and he see nothing ... is there any treatment of this disease?
Hey how is your dad doing..
Our family is going through the same ..
I am suffering from macular dystrophy since 6 years hoe to treat it???
Prakash Jung Shrestha
I also suffer from macular destropy.
Any remedy for macular destropy find or any hope in future?
PLZ CALL 9826760629
Iam from India. I have cone dystrophy. Here also doctors are saying that there is no solution...
Sir
My name is sairam
I am suffering from macular degenaration
Can you say there is a treatment or not sir please
I am 18 years old sir please kindly say sir
Am 29 yeras old am suffering from macular degenaration
Any tretement
Pliz help me 🙏
Bohut presan hu mere life brbaad ho rhe hi
Contect me 8340225994
I'm 37 years old in 2022. When I was 14, I started to see some web like formations in the side vision of my left eye. After some time it shifted to the center of my vision. Now wherever I see from my left eye, the center of my vision is diffused. My peripheral vision is alright, it's just the exact center. If I close my right eye and look at a person from 3-4 feet distance, his head will disappear (diffused in the surroundings). I keep checking online of there's a cure available, but sadly, there isn't. The vision of my right eye is perfect. I just want to know if there's a certain age for this to happen or can it happen at any age?
If you wish to make an appointment, call 866.320.4573 (24 hours/day, 7 days/week). Or you can make an appointment online at the link below. Please let us know if you have any questions.
cle.clinic/2CzHDxB
My macula burn with lazer light Plz reply me what can i do for my Eyes plz
Hindi me video bnaiye please
very well... but last answer was not good.... just like u the one commented below. i also have this! age 19! :-( but the cruel world, knowing nothing about it as it does not affect them, makes me keep it a secret and struggle in class! being a student, it is hard that too in India where most colleges don't really care, just come n pass out... i just want to ask. why is this mutation? because of todays life style? or invisible radiation! RADIATION IS IT??
IPconfigEARTH hey replay me
IPconfigEARTH i want to know what do you have and which type it is so that we can discuss on it. I have the same too.
I also have this disease and currently living in germany , but even here doctors have no cure
Not even able to specify which type of. Macular dystrophy i have
@@a.a3728 evryone have this disease just stay a way from phone at night and sleep early
Hindi please
Hindi language please
@vleon1012 i know right dude, realy don't know, but i'm not bothered it's been and always willb e the same
My child suffer MD if any Treatment so tell me where your hospital
Please browse www.godforeye.com
All glory belongs to God
God bless your family
@@davidlo168888 where we can buy the nano grade eye drops? Thank you..
@@davidlo168888 i hv used nano grade eye drops from thiwan but no change its fake
@@AsifKhan-yf7qx You never pay money for it.
@@AsifKhan-yf7qx You should work hard to make money so that you can buy nano-grade eye drops. If you act like begger and /or robber, no wonder, Allah punish you.
@vleon1012 i have a rarer version which is 1 in 10,000,000 ):