I have Motor Neurone Disease/ALS and this is one of the best videos around. Most talks/videos ignore mentioning spasticity which is a major symptom. Thanks so much🙏🏼
@@michaelbelsky5435 thankyou so much Michael, that means a lot to me 🙏🏼I am really sorry to hear that your first girlfriend had this disease. Take care
My mother have this disease... We tried to get treated for her condition but we are helpless no medicine for this disease...she is still alive ...have difficulty in speeching, sollowing , muscle twitching ...I pray to god no one should not affected by this disease.....I requested all researchers pls find a cure for this deadly slow killing disease ...
My father has the same disease and his condition is rapidly deteriorating.. He has pneumonia and is only breathing through artificial respiration. I contacted an Indian doctor who has a sanatorium in India. He told me that if he is in the early stages before he gets pneumonia, I can treat him, but if he reaches pneumonia, I cannot do anything. Him.. If your mother did not have pneumonia, I will give you his number, email and health card, and contact him, and I hope you treat her quickly because it is a malignant disease.
My mom also suffering from this disease since an year it horrible not understanding what to do and where to take her for better treatment condition is getting worst day by day infront my eyes but not able to do anything...
I've just been diagnosed with this, 40 years old. It started with numbness in my ring and pinky in my left hand due to a nerve compression. Then after being told by doctors that it's nothing to worry about I lost faith in them and left it for 2 years. Muscle wasting started on my left hand and late 2022 I started getting fasciculations so went to the doctors again. Referral to physio, then MRI in 2023. MRI showed C7 nerve compression on the left side, which may explain the numbness when I lay on that side. EMG showed activity on 5 nerve myotomes in my left arm. Another EMG showed the same and another MRI confirmed the compression again. Third EMG showed it was in my right deltoids and after reading my hospital notes and seeing possible MND, the stress made me extremely anxious and depressed. The fasciculations rapidly moved to my legs and back in the space of 2 months. I've gone private for a full spinal MRI and I have various compressions, disc bulges, and dextroscoliosis. Now I'm having weakness in my left foot and leg. The hardest part in this is I have a 7 year old son who lives in another city and I don't know how to tell him. I'm considering at some point to travel for assisted dying but at the same time, I don't want my son to think that death is a way to get out of a bad situation.
@masudahmed6029 Hi, yes I'm in the UK. I believe the C7 compression caused the initial issues, I also get some symptoms of radiculopathy and numbness in my hands
@_ExtraMask_ sorry to hear this. I was also private with nerve issues and atrophy of brain and weakness of arm. They didn't want to know. I am going to pay for private mri as too long to wait through nhs. I think I have ftd with mnd. I am 41 been having issues for 9 months. Your compression of nerve probably caused a cascade effect and caused the mylein sheath of the nerves to demylinate. I have had scoliosis for 15 years and has got really bad now. Be strong for your son.
Many thanks for this. For those higher points in medical exams, remember the other types of motor neurone disease; Madras motor neurone disease, found in south India, with an early onset and asymmetric limb weakness, bulbar/facial involvement and even deafness. It isn't as malignant as the motor neurone disease found in the West. There has also been motor neurone disease found in Guam, where it is associated with parkinsonism/dementia, where it has an earlier and protracted course compared to the disease found in the west.
My uncle just diagnosed this disease, his muscles become weak, both of his hands are affected. The dr told me, no cure for this disease, He can’t even hold utensils. Really sad for him, no one look after my uncle his condition is getting worse. Good thing i have lot of time to accompany him for chek up.
Ami nije ei pesent lala jhore all taim likuid chamoch kore khai haph bar hoi majhe golai atke jai kosto hoi dom nite।kotha joriye jai।phijiyo theraphi kori।valo hobar medisin ache।jodi Janan to gretful hoi।
My wife is suffering the MND,she was suffering speaking and swallowing the food in its first stage itself,but she is frequently demanding food,and eating several time a day itself.All treatment has completed,but no result.Her health is losing everyday even after such hug food.
My mother passed away two days before ...her suffering came to an end ..she was 28 to 30 kg while passed away ..what kind of disease is this ? Beg all researchers pls find at least medicine for this mnd ...deadly disease....may her soul rest and peace ...,😭😭😭😭
ALS is commonly known as Lou Gehrig’s disease, after the baseball player whose diagnosis and eventual death brought wide public attention to the illness.
Good video. However, along with physiotherapy, it is important to consider the root cause of Motor Neuron Diseases. Various studies have revealed that during motor neuron disease due to progressive degeneration of brain cells; a person gradually loses his ability to coordinate, walk, eat and maintain the right posture balance. Along with physiotherapy, it has been suggested that stem cell therapy can be an effective solution to promote brain cells in the body, delay the loss of functional cells, and initiate an anti-inflammatory response to manage functional attributes of the muscles.
My sister is also suffering from this disease her legs are not working We are treating her from patanjali wellness centre they have claimed that they have cured motor neuron disease patients
Unfortunately there is no cure at the moment 😢 its a long painful journey all one can do is mange the disease as far and as long as possible and make the patient comfortable.
MND is a vata disease, we have got very good results from Nadi Chikitsa. This is a cheap and effective therapy, changes have to be made in the diet and routine of the patient, many patients are cured here, please consult a qualified Marm medical expert, if you want, you can also mail me, there is no charge, My aim is that my advice may improve someone's life
MND is a vata disease, we have got very good results from Nadi Chikitsa. This is a cheap and effective therapy, changes have to be made in the diet and routine of the patient, many patients are cured here, please consult a qualified Marm medical expert, if you want, you can also mail me, there is no charge, My aim is that my advice may improve someone's life
My full body muscle twitching. It's MND disease s iam 39 years . .my right side waist pain and back side a pain one type of burn. . Gastric problems also.pls reply me
Why is it when famous people get it then its top of the engender. My dad worked all his life. Then one day he started tripping over his own feet. He eas gone after 18 months 😢
Anyone willing to talk more on this pls reach out. I am open for having my mum screened for research in process of finding a cure or enhancing her lifestyle. #mnd #mndindia
FACTS 💯🎯It has nothing to do with muscle mass loss 💯‼️🎯 It is a neurological Condition in which the neurons lacks supply of neuroelectromagneticwave, and/or the neurons nerves are badly damaged reason for it to disorients, autoimmune debases though also is a major issue in the brain 🧠 for it not to perform it's main duty.. Autoimmune Deseas of brain such as reabsorption of the brain chemicals produced by the stem cell are being rejected by the nerves, reason for patients to lose mobility to perform tasks that normal or healthy people does💯‼️🎯 There are a lot of causes why neurons do not function well in patients also who have been into comma, people who have been into comma are assumed or expected to lose some nerve activity, very common to see that in their facial muscles, the deformity of their faces, either the left side of the right 💯‼️🎯 AMEN 😎🆒♾️🎯 EXODUS ♾️💯🎯🛰️🛰️📡🛰️📡📡🛰️🛰️📡🛰️🛰️📡📡🛰️🛰️🎉❤🇵🇭🌏🦘🇺🇲🎧🇺🇸♂️⚖️♾️🌹🎂🥂🎄🎁
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I have Motor Neurone Disease/ALS and this is one of the best videos around. Most talks/videos ignore mentioning spasticity which is a major symptom. Thanks so much🙏🏼
I've seen your videos. So nice. My first girlfriend had this. I don't know what else to say except I care.
@@michaelbelsky5435 thankyou so much Michael, that means a lot to me 🙏🏼I am really sorry to hear that your first girlfriend had this disease. Take care
9315984906
❤
Wishing you good days ahead.
My mother have this disease... We tried to get treated for her condition but we are helpless no medicine for this disease...she is still alive ...have difficulty in speeching, sollowing , muscle twitching ...I pray to god no one should not affected by this disease.....I requested all researchers pls find a cure for this deadly slow killing disease ...
This is a horrible disease,,, I lost my mom ,
@@shilpashivigupta527 I am so sorry for your loss, may she RIP
My father has the same disease and his condition is rapidly deteriorating.. He has pneumonia and is only breathing through artificial respiration. I contacted an Indian doctor who has a sanatorium in India. He told me that if he is in the early stages before he gets pneumonia, I can treat him, but if he reaches pneumonia, I cannot do anything. Him.. If your mother did not have pneumonia, I will give you his number, email and health card, and contact him, and I hope you treat her quickly because it is a malignant disease.
My mom too. The depression is worse. May God heal them.
My mom also suffering from this disease since an year it horrible not understanding what to do and where to take her for better treatment condition is getting worst day by day infront my eyes but not able to do anything...
I've just been diagnosed with this, 40 years old. It started with numbness in my ring and pinky in my left hand due to a nerve compression. Then after being told by doctors that it's nothing to worry about I lost faith in them and left it for 2 years. Muscle wasting started on my left hand and late 2022 I started getting fasciculations so went to the doctors again.
Referral to physio, then MRI in 2023. MRI showed C7 nerve compression on the left side, which may explain the numbness when I lay on that side. EMG showed activity on 5 nerve myotomes in my left arm.
Another EMG showed the same and another MRI confirmed the compression again.
Third EMG showed it was in my right deltoids and after reading my hospital notes and seeing possible MND, the stress made me extremely anxious and depressed. The fasciculations rapidly moved to my legs and back in the space of 2 months.
I've gone private for a full spinal MRI and I have various compressions, disc bulges, and dextroscoliosis. Now I'm having weakness in my left foot and leg.
The hardest part in this is I have a 7 year old son who lives in another city and I don't know how to tell him.
I'm considering at some point to travel for assisted dying but at the same time, I don't want my son to think that death is a way to get out of a bad situation.
Are you in uk
@masudahmed6029 Hi, yes I'm in the UK. I believe the C7 compression caused the initial issues, I also get some symptoms of radiculopathy and numbness in my hands
@_ExtraMask_ sorry to hear this. I was also private with nerve issues and atrophy of brain and weakness of arm. They didn't want to know. I am going to pay for private mri as too long to wait through nhs. I think I have ftd with mnd. I am 41 been having issues for 9 months. Your compression of nerve probably caused a cascade effect and caused the mylein sheath of the nerves to demylinate. I have had scoliosis for 15 years and has got really bad now. Be strong for your son.
@_ExtraMask_ i think I have mnd and ftd am 41. A brain mri has shown lesions
@_ExtraMask_ how you feeling now. I think I have mnd or als i have weakness in arms and scoliosis
Many thanks for this. For those higher points in medical exams, remember the other types of motor neurone disease; Madras motor neurone disease, found in south India, with an early onset and asymmetric limb weakness, bulbar/facial involvement and even deafness. It isn't as malignant as the motor neurone disease found in the West. There has also been motor neurone disease found in Guam, where it is associated with parkinsonism/dementia, where it has an earlier and protracted course compared to the disease found in the west.
My father had Amyotrophic lateral sclerosis (ALS) . He survived only for 1 year after the diagnosis of disease. 😢
Sorry for that 😮💨🙏
@Facts in Shorts full paralysis,
Im sorry for your loss 😔 hopefully you don't inherit it 🙏
@@JahoSelamaj Aameen.. Hopefully..plzz pray for us.
My uncle just diagnosed this disease, his muscles become weak, both of his hands are affected. The dr told me, no cure for this disease, He can’t even hold utensils. Really sad for him, no one look after my uncle his condition is getting worse. Good thing i have lot of time to accompany him for chek up.
Sorry to hear mate my good friend also just had this said to him 2days ago which country are u inn?
Ami nije ei pesent lala jhore all taim likuid chamoch kore khai haph bar hoi majhe golai atke jai kosto hoi dom nite।kotha joriye jai।phijiyo theraphi kori।valo hobar medisin ache।jodi Janan to gretful hoi।
What happened is your uncle ok now ?????
@@mohtesibhe is dead
Have you looked into the Deanna Protocol? The father (surgeon) came up with the supplements to help his daughter, who has ALS
I have mmn. And my treatment dedicated help me to lead a normal life. I've been diagnosis 12 yrs ago
How did you manage it ,thank God you survived
How did you managed it please reply my husband also suffered MNd problem please reply
@@Parvathi6876I hope your husband heals
May we know ,how to survived the MND my friend diagnosed. Please can u tell us , 🙏🥺🥺
My wife is suffering the MND,she was suffering speaking and swallowing the food in its first stage itself,but she is frequently demanding food,and eating several time a day itself.All treatment has completed,but no result.Her health is losing everyday even after such hug food.
Pls call Jesus Christ this is the only way to survive
Have you tried ayurveda...
Patanjali has claimed they have cured patients with motor neuron disease
How's your wife feeling now?
Hows ur wife
Correction: cortico bulbar and cortico spinal are the umn's and not the lmn's 0:42
Those are names of tracts, which include both upper and lower neurons
My mother passed away two days before ...her suffering came to an end ..she was 28 to 30 kg while passed away ..what kind of disease is this ? Beg all researchers pls find at least medicine for this mnd ...deadly disease....may her soul rest and peace ...,😭😭😭😭
Sorry to hear about your loss brother.
Sorry for your loss brother.
Great video had so much information.. Especially PLS and SMA seems most amazing to me.
Exactly useful information thanks alot
ALS is commonly known as Lou Gehrig’s disease, after the baseball player whose diagnosis and eventual death brought wide public attention to the illness.
Most useful information
My father in law is also suffering from this disease now after three years he is unable to move muscles and speech properly.
Good video. However, along with physiotherapy, it is important to consider the root cause of Motor Neuron Diseases. Various studies have revealed that during motor neuron disease due to progressive degeneration of brain cells; a person gradually loses his ability to coordinate, walk, eat and maintain the right posture balance. Along with physiotherapy, it has been suggested that stem cell therapy can be an effective solution to promote brain cells in the body, delay the loss of functional cells, and initiate an anti-inflammatory response to manage functional attributes of the muscles.
My first dear girl friend died from this. It's so depressing!
Thank you
Pray for my grandfather pls 🙏
My father passed away with this disease its awful may Allah forgive us
Why would Allah forgive?
Allah yr7mo
allah 😂 grow up
Maintain quality of life? You got to be kidding me
Im 47 yr old. I have too. What should ido? Pls help me
My mother is affected in this disease.her left lef should not working
Plz help is there any treatment for this disease
My sister is also suffering from this disease her legs are not working
We are treating her from patanjali wellness centre they have claimed that they have cured motor neuron disease patients
My mom's sick with that.
Is there no cure for this disease? 😭
Apparently a cure hasn’t yet been found
People have reversed ms on an all meat diet. Haven’t found any stories yet about mn but still searching.
@@MG-dr5mf We hope they will reach the drug asap
@@annastyles5783 We hope they will reach the drug asap
Where r u from ,?
My grandpa had this disease and he passed away because of it
Unfortunately there is no cure at the moment 😢 its a long painful journey all one can do is mange the disease as far and as long as possible and make the patient comfortable.
Hello my brother has been suffering this disease for an year he became weak day by day,as doctor said there is no medicine for these disease😢😢😢😢😢😢
MND is a vata disease, we have got very good results from Nadi Chikitsa. This is a cheap and effective therapy, changes have to be made in the diet and routine of the patient, many patients are cured here, please consult a qualified Marm medical expert, if you want, you can also mail me, there is no charge, My aim is that my advice may improve someone's life
@@dhanwantarineurocare9189 how can I contact u bro plz
You can also check for patanjali and some ayurvedic centres of Kerala
For mnd
My sister is suffering from mnd we are treating her at patanjali
@@dhanwantarineurocare9189 please share me the details pls
You are wonderful
Good information
Why there is spasticity of lower limbs muscles while flaccid paralysis of UL muscles in ALS??
Because both lower and upper neurons are damaged in ALS, each set of symptoms is characteristic of either upper or lower neuron disease. See at 1:08
Any reference where we can get supportive treatment for this disease?
MND is a vata disease, we have got very good results from Nadi Chikitsa. This is a cheap and effective therapy, changes have to be made in the diet and routine of the patient, many patients are cured here, please consult a qualified Marm medical expert, if you want, you can also mail me, there is no charge, My aim is that my advice may improve someone's life
@@dhanwantarineurocare9189 hi can you please share with me details
Mail your query with complete symptoms
@@dhanwantarineurocare9189 can I please have your mail id
@@dhanwantarineurocare9189 hi please send me your contact
What the solution please tell me
Make a video on height growing
Stephen Hawking 😔
We lost our dad 18 years this month. Only seems like yesterday 😢 if there is a God then why does he take good people...................
I suggest making a video about polio
My husband cure from this disease thank you God
How mam..can you please tell me
Please tell us what you did for him .... Radhey radhey 🙏🏼
Plz tell my mother is also suffering frm mnd...
How can you please tell me
Pleas help me
Cảm ơn bạn đã chia sẻ thông tin, rất vui được kết nối với bạn😍😍😍💥💥💥💥💥💥🔥🔥🔥
Just want to say I lost my mum 😢 to mnd
🙏🙏🙏🙏🌹💕
😂😊
My father was also suffering from this disease but i lost him in January 😭😭😭
0:25,1:08,1:30,1:36,2:32,2:58,3:28,4:27
My full body muscle twitching. It's MND disease s iam 39 years . .my right side waist pain and back side a pain one type of burn.
. Gastric problems also.pls reply me
I want to medicine of this disies
এই রোগের চিকিৎসা কি?
এই রোগের কোন চিকিৎসা নাই
Why is it when famous people get it then its top of the engender. My dad worked all his life. Then one day he started tripping over his own feet. He eas gone after 18 months 😢
just a question (also its pretty dumb cuz im very bad at this stuff) can we technically donate motor neurons?
Not as of yet, the technology isn't there.
My Father Have also MND an year
Anyone willing to talk more on this pls reach out. I am open for having my mum screened for research in process of finding a cure or enhancing her lifestyle. #mnd #mndindia
So That’s what Stephen Hawking had Diagnosed
My father died bcoz of this disease 😭😭😭😭
Jesus Christ is only way to escape MND disease pls go and prayer to Jesus Christ Amen
I m also playing for my mom
And all mdn patients
I believe Jesus Christ give back my mom
Swift Island
Who else is thinking of Stephen Hawking?
FACTS 💯🎯It has nothing to do with muscle mass loss 💯‼️🎯 It is a neurological Condition in which the neurons lacks supply of neuroelectromagneticwave, and/or the neurons nerves are badly damaged reason for it to disorients, autoimmune debases though also is a major issue in the brain 🧠 for it not to perform it's main duty.. Autoimmune Deseas of brain such as reabsorption of the brain chemicals produced by the stem cell are being rejected by the nerves, reason for patients to lose mobility to perform tasks that normal or healthy people does💯‼️🎯 There are a lot of causes why neurons do not function well in patients also who have been into comma, people who have been into comma are assumed or expected to lose some nerve activity, very common to see that in their facial muscles, the deformity of their faces, either the left side of the right 💯‼️🎯 AMEN 😎🆒♾️🎯 EXODUS ♾️💯🎯🛰️🛰️📡🛰️📡📡🛰️🛰️📡🛰️🛰️📡📡🛰️🛰️🎉❤🇵🇭🌏🦘🇺🇲🎧🇺🇸♂️⚖️♾️🌹🎂🥂🎄🎁
Raj
OMG, this is horrible.
medicine is a joke in most conditions.
V knl