IV STEROID SIDE EFFECTS & TREATMENT FOR MULTIPLE SCLEROSIS RELAPSE | OPTIC NEURITIS
ฝัง
- เผยแพร่เมื่อ 28 ก.ค. 2024
- Hey guys! Welcome to my Vlog Channel! I wanted to share my experience with IV Steroids at home for my recent MS Relapse of Optic Neuritis. IV Steroids are a powerful drug and should not be used without the oversight of your doctor. All this information is my person experience and opinions and not intended to be Medical Advise.
Enjoy!
Wow you guys are so amazing! Thanks for coming over to see what I'm up to over here! ❤️
Your videos are so comforting. I just want to send you all the comfort I can. ❤️
As a mother of a son with MS I truly appreciate your honesty.My son has had the IV steroids for 5 straight days. He never had the home infusions, but he did get them for the 5 days straight. He has never told me what he goes through on the steroids. I know he usually gets tons of energy. Usually his bouts are brought on by heat. We live in MT so our weather is erratic, so he has to stay out of the heat and sit in front of the AC when it is really hot. He has increased his dosage of D3 which has helped him tremendously. He had no episode last year (thank the lord). God bless you, Auntie Coo Coo! Keep up with your fight. My son has been in remission for 13 years.
It was great watching you. Hope you’re feeling better. I’m going through a relapse now. Just got finished with my 3rd day of IV steroids. UGH!! I had a lot of the same experiences you had. Thanks for sharing. It really is an awful experience to go through and wouldn’t wish this feeling on anyone. It’s a very lonely feeling.
Take care and feel well!! 🙏🙏
You are a one strong lady!!
Goodness, I learned so much. I am sure you are encouraging and helping many others by sharing your knowledge and your experience. Sending prayers for a speedy recovery! Blessings 💗🌷💗
I'm happy for your new channel. I'm sorry you feel bad. I have 2 friends with MS and I know your struggle. I have followed you quite a long time, but we live on different sides of the world. so even if your shop with me is good there is nothing I can find here. i like blogs !! I hope you feel better soon! love from Sweden
I recently finished my first solumedrol IV and I can completely relate with her experience.
🙏 Friend it’s no fun! Hang in there this too shall pass!
You are so brave!! God Bless you! Hope you are doing better!!❤❤
Thank you for sharing😊 You have a great attitude towards your situation. I’m looking forward to more videos! 🤗
You have done such a good job explaining those nasty steroids. 10 years between exacerbations is great. I hope you are taking a MS drug. This is so important. The rage is always very bothersome for me. Take care of yourself.
Wow !! I am praying for a speedy recovery. Thank you for all your information, I do not have MS but I have had the infusions. Seeing your video on this, brought back all those feelings again. I know how much help it would have helped me and not being surprized the way I was. So, I hope anyone watching you and going thru this has helped them. Thank you for letting us all in. 💖🙏
Hello Val, I just want to cry your kindness and honesty to share this ordeal is so unselfish and helpful to others going through similar medical needs. You are truly beautiful inside and out. Beauty is not in perfection of physical appearance many people are considered beautiful yet they add nothing to enhance or contribute goodness to another's life. You are God sent for many and I applaud your courage and ability to explain things in an understanding way. I have had medical needs and would have been grateful to have someone like you to help me through those times. I have never been on IV steroids but oral and inhalers that caused side affects I didn't understand. I can't tell you what is in my heart your well being is a prayer I pray for you. Thank you. God bless you and your loved ones. 🙏🏻✝🌹❤️❤️
Hi Val..Good luck with your surgery. Praying for a speedy recovery. Thanks for sharing this incredible video. God bless you ❤❤❤
Wow, that is a lot to go through considering they are only the side effects of your treatment for the bigger issues! Thank you for sharing, i think it's important for people to see and understand that others may be going through difficult things, things that may not be obvious at first glance. Your other channel is always a relaxing and cheerful place, now looking forward to some real life vlogs :)
How selfless of you to share this experience when you already offer so much Val.Im grateful you have started this channel.As you know I haven't been well myself.I use the lidocaine infusion and manage it myself after my pain doctor administers it.I wish you well and know this channel will be just as successful as your other one.I have been here from the start and I am always here even if I'm not very active in comments.Love to the family.☘️💗🇺🇸
You are going to help so many people Val.This is an amazing channel already.💟
Sending you hugs! You are so courageous & admire the strength it takes to share your thoughts & daily struggle. Will follow you & pray for you🙏🙏💕
Thank you Tammy I figured if it could help anyone it would be worth it!
Thank you for sharing your MS story I'm sorry that you had another flair up after 10 years. I'm from your other channel keep the positive attitude.
Thank you for sharing that it was so informative.You have such a calming,kind way of explaining things and you are such a blessing.I pray this sends you back into remission for a very long time.
Thank you Casey that is so sweet of you❤️
Very interesting! I have had to take steroids on occasion & now I know that my insomnia side effect is part of the deal. Blessings to you. I know your surgery will be a success. I’m glad you are doing a vlog.
You are such an inspiration. You handle this with such poise and grace. Praying this passes quickly for you. 💕
Well I don't know about that but I am very happy to share if it can help anyone!
Thank you for having the courage to share what you are going through! You are inspiring!
So sorry to hear you are going through a relapse with your MS. It is such a difficult disease to control so kudos to you for attempting to even vlog when you don’t feel well. I’m going to share your channel with one of my clients who is battling a relapse with her MS. This channel will be a Godsend for those who are struggling with this and even their families. TFS!
I am happy to share my experience! I so wish something like this was around when I was first diagnosed. Even being a nurse, I just wanted to hear from real people who were going through this too!
Thank you so much for your wonderful video, It's only been 7 hours since my first ever infusion and I felt like was losing it. You were very helpful explaining the odd effects in a direct - no sugar coating (I'd just eat it anyway) way that I was able to use to better understand. It's also nice to know that no one is alone, I wish you the best, thank you again.
As I said on your other blog recently, I, too, have MS. You are a very strong lady and I'm sure your nursing background is a comfort to you. I have had a hysterectomy and while it was not bad, please, please, REST and listen to your body. I am adding you to my prayer list for both your surgery and your MS. God bless you.
Thank you Sharon ❤️
I always liked watching your other channel but now I love this!!! Being new to the ms world it’s nice to “know” some one! Sending good vibes your way
So informative. This will help ease so many people. Your calmness is inspiring.
So glad that you are doing better. So sorry that you even have to go thru this but attitude is everything. You are so upbeat in your videos. Just a joy to see you!! Praying that you continue to improve and stabilize!! God bless you.
Thank you Becky!
You are very brave and I'm sorry you have to go through this, but glad that it works. My husband had Chrones Disease and was on steroid a lot and he hated what it did to his body and how he.felt. He died 18 yrs. ago at the age of 54. It was so hard to watch him suffer. I am so appreciative for you sharing this. It's do important for people to be educated . Thank you for sharing and God bless you 💖
Oh Molly I'm so sorry to hear that! Chrones was is so hard! I am happy to share if it will help anyone!
You are one amazing woman to share all your step by step treatment routine...I have learned so much by you sharing...you are so real and encouraging for all of us battling any disease...I have MD and certainly can relate to your daily struggles..I will pray for you...much love and hugs coming your way...stay strong...God is good...💛
Thank you Kathy! Yes He is!
Wow you are amazing. I am a retired nurse and not sure I could “nurse” myself. My daughter has a friend with MS. Diagnosed in her early 30’s. Will keep you in prayer. Love your channel. Thank you for always sharing.
Thank you Jeanie! I was 33 when I was diagnosed
Thanks for sharing & giving us some understanding of your MS treatments!! Hope you're feeling better!!❤
Much better thank you!
Wow prayers for what your going through!!
Thank you for sharing...I get that "moon face" with my medication too. No fun...but you are beautiful no matter what! And very brave. Stay positive and take care of yourself. You come first, everything else can wait.
You are so positive and helpful. You will feel like a million bucks after a hysterectomy surgery and you will feel energized but do not accept that feeling and go for a long walk or go shopping. I felt so good right away and couple days after mine and went to the mall for an extensive amount of time.....Woe, bad idea, got a fever, nauseous, and super tired. Take care, rest and God Bless your journey with your health.
Thanks Cindy! I will try to behave! After my third C Section I went to Disneyland on the 10th day LOL
TH-cam can be great therapy. Sending you lots of love.
Very informative....I am nurse as well and I think you are doing a great job at sharing what it is like to have to deal with a chronic illness.
Thank you Arlene
You've got an incredible sense of humor. You're so strong.
Awe thank you!
@@auntiecoocoovlogs9226 you're welcome my friend. You're so so loved. Thinking of you and sending prayers.
This was learning experience. So thankful that you shared this with us. It's incredible to hear all you have to go through and still have a smile in your face God bless. Xoxo
Thank you Laura! I am really so fortunate!
take care and enjoy feeling better again.Hope you feel the love from your subscribers!! God Bless.
Thank you Linda
Praying for you. I have been on p o steroids for rheumatoid arthritism! The side effects are bad but we have 2 keep going! Love all your videos!
Thank you Laytonia!
Thank you for this. I am sorry that you have to go through all this.
Thanks I am really lucky, it has been a good 10 years since I have needed treatment!
So helpful. Thanks for sharing. I hope you are feeling better.
Much thank you Letty!
You are one strong lady.
Thank you for all the info
I'm sure it's going to help a lot of people !
xoxo
Thank you Annette!
:)
Thank you for sharing. If I have to do this it will make it less scary. It is nice to actually hear about your reactions so we know what to expect (although I know all are different). As noted in your other video I am in the diagnosis stage and I have no clue. I do not think I have MS, but due to symptoms it has not been ruled out. Ankylosing spondilitis runs in my family. I just had 3 MRI's last month. One more ordered, then rheumatology followed by neurology again. A process that will hopefully bring diagnosis of the problem. I am in flair of whatever so work has been sending me home (starting intermittent FML soon). As a single Mom this can be rough financially, but at this point the rest is super important or I truly would not be able to work. Fatigue seems to be my worst enemy at this point. I sleep and never feel rested (plus wake up from pain). Cluster headaches are my new symptom (I do have arthritis and a bulging disk in neck).
I hope this time of relapse/flair goes fast and your are back to your gardening and joyful things soon! 💜
Update...new lesion in brain, possible seizure, abnormal EEG and positive for anti nuclear ab. Next is video EEG, CT of chest, abdomen and pelvis and spinal tap. So Febuary will hopefully bring diagnosis. Looking like MS because of the lesions. Long process still. Again, thanks for these videos! 💜
I came over from your other channel....love your personality and additude. I have a friend that has MS....bless you.
Thank you Cammy!
Very informative & in a way that anyone can understand. Good wishes to you & hope the side effects are minimal.
I want to thank you for sharing your MS journey with us. May I ask at what age were you diagnosed and what were your early symptoms that led to seek medical attention? I watched your new Michael's video and I am so glad that you are feeling better. God bless you.
Thank you so much for this video. Hope you feel better soon. Hugs and kisses 🥰😘❤️
Thank you Nomi! Feeling better!
Hi, my dear sweet friend💕 I know exactly what you are talking about. I watched my Mom go through all of this, with Lupus. As you know, my cousin has MS. Along with a couple more people in my family. Anything autoimmune is HELL!!!!! You are so strong and amazing!!! You are going to help soooo many people!!! My cousin had optic neuritis and he ended up loosing his sight totally in that eye. Have you experienced anything like that? I also had endometrial cancer when I was 42.....and had a total hysterectomy. I’ve been cancer free since then. Just dealing with the autoimmune and heart issues now. There is SO many of us out there that are sick everyday.... and you are so kind and BRAVE to help anyone of us!!!! Thank you Val, you are such a special lady!!!! Praying for you!!🙏
~Gina💜
Thank you Gina! I have lost my sight in the past but it was temporary. I jumped right on getting on the steroids this time because the sooner you stop the inflammation the more function (sight) you are likely to regain! It keeps you humble to know that you can wake up and not be able to walk or see. There are no guarantees in life!
Thank you for sharing your story.
Thanks for this.
Hi Val 🤗 your very brave and courageous for sharing this 💗 any one fighting with MS can relate 🤗 ohh I forgot that you don’t look like your self!! Ohh yes!! The hair!! Way to go Val!! I never talk about my journey and I know I should. You look beautiful no matter what 💕 sending you giant giant hugs 🤗
Yes Bella! DO IT GIRL! Each of us have had a different road and we can learn so much from each other!
Sending hugs and prayers from Kentucky.
Bless your heart sweet lady
I’m so sorry to hear you have MS. Such a nasty disease. My 32 yr old son has MS. He was diagnosed on his 27 th birthday. Thank you for your honesty and for sharing. Are u on a drug? He is on tresarbi. I’ve seen him go through what your dealing with.
am between treatment right now waiting to be approved for Ocrevus. I have been on Copaxon and Techfedrea before. The COpaxon was great If I don't like Ocrevus I may just go back to the injections! Best to your son!
Thanks for the video
So sorry. Thank you for sharing. I have had most of the side effects you have been going through. I had to be on steroids for 3 years. Not IV. I did have IV antibiotics at home.. With the steroids got moon face right away, increased appetite, insomnia, but, I also had fatigue so badly. Anyway, I didn’t want to talk about my stuff, just want to support you in this journey. I look back at pictures of me then, and I can’t believe how I looked. You look good. How wonderful that you share this and explain everything just like you do in your shop with me videos. Please take good care, and I wish you nothing but the best. Prayers and blessings...🥰🥰
Thank you for coming over Diane! I am happy to share if it can help anyone!
Auntie Coo Coo Vlogs 🥰
Im sorry you have to go thru this. I love medical stuff. Hugs.
Thanks for sharing, I am getting IV steroids today for optic neuritis. I also have multiple sclerosis i was diagnosed unexpectedly at 17.
Just subscribed to your new channel. Sending hugs, love and prayers. Take care.💖🙏💐
Thank you Nathanlie!
This was very interesting. Would you mind sharing more in the future about your MS and what you have experienced so far? I didn’t realize it goes in and out of remission. I just thought it gradually gets worse. This treatment you are doing, what does it do for you? Thanks for sharing this. I’m gonna love this channel!
Yes definitely going to try to post weekly about my experience. Once I am eligible I would like to go live so I can answer your questions on Livestream ❤️
Hi Love!!! I just subscribed!!! Hugs!!!🐰🐥🐊
Sending love to you...take care!!!
Just love your up beat personality so happy your doing better I have to have steroid pills a couple times a year and I'v steroids about once a year I tell people they make you hot ,hungry and no sleep lol and I flush for days praying for you sweet friend !
Hi valerie!!! I think its wonderful that you are sharing this info!!! Its nice that you are able to get your treatments at home!!! Feel better soon!!! 😊❤🍒
Wish you recover.
Thinking of you Valerie. I Lupus but have never have IV steroids.
Let's home you never do Stephanie! XO
Sending lots of love to you ❤️
Thank you Crystal!
When my husband was on high dose steroids for sarcoidosis, his personality changed so much(for the worse), that I told him his disease wasn’t going to kill him, I was! I’m also an RN, but I never saw a patient become so awful on steroids like he did. Fortunately, he is off them now.
It's a HORRIBLE FEELING! This time around I knew it was coming so I was able to go be alone when the rage hit, and I am grateful I was able to give the kids a heads up. My mom was on steroids when I was a teen and I remember her telling me not to come home LOL.
I'm a diabetic when my blood sugar's go down to 40 I feel the same way. It's not a fun thing. I have worked very hard getting my weight down and walking. How did I get diabetes my grandmother had it my father had it and one of my sister has . I work with this disease everyday. I've lost 60 lb I'm at my goal weight
They worked for me but my did won’t do it anymore
Paying for you 💖🙏🙏🙏🙏
Thank you! Aidee
Love you ❤️if you need anything 🙏🏻call
Auntie Coo Coo you are Beautiful inside and out! Ans you're a very sweet lady. I bet yoy were a wonderful Nurse. God bless you! ( walking in the light with Jesus )👣🕯🔩
I’m so sorry :(
Thanks, I can't complain! I am feeling much better!