Multiple Sclerosis - 13 Years On Lemtrada

#lemtrada #multiplesclerosis #msawareness
Round One of my first treatment on the Campath/Lemtrada 11 years ago. My treatment was on the blinded trial before Lemtrada was licensed and although there were many side effects and risks to the Lemtrada treatment, my Multiple Sclerosis was rapidly worsening and I felt like it was worth taking the risks. It is called the blinded trial because the doctors did not know what treatment we had. we had a 50/50 chance of having either Rebif or Lemtrada and I got Lemtrada.
For me it was the best thing that I have done for my MS because I believe that I have been relapse free for 11 years. My disability has definitely been halted, although I have still continued to have new symptoms and more recently an issue with my arm and nerves but I will go on to talk about this in another video.
I will also be explaining why I believe my Lemtrada treatment has been such a positive experience for me in up and coming videos. Stay Positive ;-)
00:00 Introduction
0:26 talking briefly about my diagnosis and how I got onto the trial with Campath/Lemtrada
2:00 talking about the 'unlicensed' treatment
2:50 Explaining Round one with Lemtrada
3:10 explaining the treatment and what to expect
6:20 talking about side effects
9:22 be mindful after treatment
9:45 Try not to Worry about your treatment
11:04 End of Video
#lemtrada #ms #multiplesclerosis

[@lauraironstalksms]

I will go on to cover why I feel my Lemtrada Treatment has helped me in a later video. I will also explain what side effects I go on to have after my treatment and then go onto Round Two Treatment of Lemtrada. I hope this helps anyone who may be considering Lemtrada as a treatment. Please feel free to share your comments below or any suggestions on the video and let me know if there are any questions you have :-)

[@DrBrandonBeaber]

Nice video. I'll do one on Lemtrada at some point.

[@lauraironstalksms]

Thank you, that would be great! There's still a lot I'd like to know about it so Thanks 😊

[@Durace11Bunny]

What's amazing is you were brave enough to go on to this trial, and if it weren't for people like you, we would never have these forms of treatment. Thank you 😊, also..... awesome video, really well made to btw!

[@lauraironstalksms]

Thank you so much Richard, your comments mean a lot to me. Thanks for watching too, I definitely feel so privileged to have been on this trial and to be part of something that hopefully means that I've gone on to in someway help others 👍

[@Salvatore-1980]

Thanks for sharing Laura. I'm happy to hear that lemtrada has done well for your MS. 👍
I've only been diagnosed for a year and I'm still learning about my MS.
I'm curious, are you still learning new things after 11 years with your MS journey... Thank you for another great video.😀

[@lauraironstalksms]

Hi again 😊 and thanks for your message. Yes definitely, when I had only been diagnosed for a year like you it all seemed so new. I didn't understand my body and I really didn't know how to read it. Every single year with MS I've learnt something different and although I believe the Lemtrada has halted the disease progress, I have continued to go on to experience some very challenging, painful and new symptoms.. But my belief is, had I not have had the treatment, I'd not be in the place that I am now. I've learnt to recognise that stress is a trigger so my life is kept as calm as possible. Do you feel you have learnt a lot about your MS and the impact it has on you over the year, and your treatment with OCEVUS?

[@Salvatore-1980]

@@lauraironstalksms YES LAURA..
I learned real quick to cut stressful people and situations from my life. It has helped me alot. I now try to focus on my well being and the people I love. If the ONLY thing I have to worry about is my MS, It's alot easier to get past the bad parts of this disease and keep smiling and living the happiest life you can.
I almost find it funny how when I am feeling great and think I have my symptoms all figured out, MS finds a way to remind me its still here and not going anywhere...😒
As for my Ocrevus treatments, for myself its great. No needles, No remembering to take pills. I just get a 5 hour infusion evey 6 months and thats it. I do feel bad for those who don't have such a easy time and have complictions and reactions to the infusion of Ocrevus 😢 I've been told that it my take over a year or longer to get results we want. While Ocrevus is not supposed to show improvement with physical disabilities of MS In most patients, It does very well with slowing down disease progression , dramatically lowering the rate of relapses and may reduce some lesions on future mri. I have not had a mri since I was diagnosed and I haven't had another relapse...I've been still physically improving even before the Ocrevus. So I'll say I'm on the remitting side of my MS now. Credited to healthy lifestyle changes, great doctors who helped me get on the best treatment for myself so quickly. And to all the people in the MS community such as yourself Laura.😘❤
THANK YOU!!!!😀👍

[@lauraironstalksms]

Oh yes, this sneaky MS always has a way to remind us that it's there, there's usually something lurking around the corner and if it's not a new symptom, it's an old one showing its ugly head 😊. That's great about your ocrevus treatment, it sounds like you and your body are taking well to it, but yes I totally agree with you about others who don't have such an easy time. I'm so pleased that you are on the remitting side of things, and with the continuation of good diet, less stress, healthy lifestyle and a great community of people who share the shame things in common long may it continue for you. 🤞🙂🥰