Alex you are a beautiful girl. Thank you so much for hosting these videos. You and Dr. Scholz are fantastic. I have been diagnosed with 3+4 prostate cancer 3 years ago but have not had treatment so far. My original urologist wanted to schedule surgery immediately but since watching your videos I have waited. My PSA is rising gradually up to 11 from 6 four years ago. The MRIs show slow progression for the last 3 years. I am under the care of UofM Ann Arbor Oncology. They seem very willing to work with me on what I would like to do. Based on your videos I am leaning toward radiation if it comes to that. Please continue your videos. Thank you.
I had an MRI back in February that showed an 8mm lesion left anterior portion of my prostate. Nothing in the pelvic region or lymph glands outside of prostate. Due to an accident 15 years ago I had a full body CT with contrast that showed some "calcification" of the prostate. Who knows how long that had been there before that scan was done ? My highest PSA level has been 5.56, but came back down to 4.3 after a five day regimen of antibiotics for a UTI. My doctor is pressing me to have a biopsy asap. I'm still researching all the procedures and treatments and will not be pressured to do anything just yet. May not be able to get the PSMA scan done without first getting a biopsy to confirm if it is or isn't cancer. Or the genetic testing to determine if it will be something relatively benign or aggressive . I have questions and concerns and I would like to sit down with an oncologist before I proceed further. I'm still fully functional as a man, even at being nearly 73 years old. I'm going to start making phone calls tomorrow for appointments to try to talk to someone besides my urologist who's talking radiation even before I've had a biopsy. Our pastor's health was nearly ruined by brachytherapy radiation. Impotent, incontinent and wears depends. Has been "drilled" out three times, nearly bled out once, and has had to be catherterized multiple times. He's in constant pain.
I am 70 yrs old and was diagnosed Stage 4 in July 2019 with PSA of 5375. Went on ADT Lupron along with Zolomax for bone mets for 2 years. PSA dropped to 4. Couldn't continue treatment due to COVID pandemic etc. Went back into hospital in July 2023 with PSA of 1530, blocked ureters and tumor that was the size of a grapefruit. Put back on Lupron which dropped PSA down to 235 - then it started going up again so the Dr added Abiraterone which slowed PSA rise. I am going to start Taxotere in a couple weeks. My Dr is going to do genetic testing on the tissue from the 2019 biopsy to see what other treatments could be available in case the chemo doesn't succeed. It's been a long almost 5 year battle - but I am positive, I am still pain free and have been working 40-50 hours a week ( even with a urinary catheter). I appreciate all the tips on how to minimize the side effects of chemo. I will do the fasting suggestion and see how that helps - I will let you know. If you know of any additional actions that I can be taking on the natural/holistic side of the fence to augment my treatment I would appreciate it!
maybe investigate what DR Thomas Lodi of Oasis of healing has to say,..hes VERY knowledgable on that side of the fence,..there is a TH-cam video entitled 'Going integrative plus membership call with Dr Thomas Lodi' which will give you some idea of what hes about, he has the clinic in Arizona but also just opening a clinic in Bangkok
Would suggest that you keep your mouth cool with ice cubes during the chemotherapy and 30 minutes afterwards - this will prevent blisters and ulcers. Also, use ice (gel) gloves (NEWGO) and a frozen ‘hot’ water bottle for your feet- these will go a long way to prevent neuropathy. I developed neuropathy in my toes after the third of session. I used the frozen hot water bottle for the last three sessions and it didn’t get any worse. Mouth and fingers were ok.
Sadly, my son has been treated with every treatment available in PC metastatic disease without remission. He is currently at MD Anderson starting a phase 2 clinical trial. He has been fighting aggressively since day one of diagnosis…with the best care at Sloan Kettering, Detroit Michigan when PSMA was brand new, Mayo Clinic , Cleveland clinic, and now MD ANDERSON in Texas. Nothing had brought remission. Some cases are not able to end up on the list of cured, remission, ect. He’s looking at his last hope.
Google "Joe Tippins" MD And docs told him to transition to hospice because his cancer was from skull to liver to toes. Aft ~4 months of dosing fenbendazole the docs jaws dropped when scans revealed NED (No Evidence of Disease). God Speed 🫶🏻💪🏻🙏🏻
Many many men die of prostate cancer, because drugs help a limited time, I am also in an uncurable condition. Dictors dont like to talk about these paliative hopeless cases.
I had a five-digit PSA when initially diagnosed. That was almost five years ago. Lupron and six cycles of docetaxel brought my PSA down to single digits. When it doubled from nadir, I was started on abiraterone and had six cycles of cabazitaxel. Last chemo infusion was three years ago. I'm still on quarterly Lupron and daily abiraterone. PSA has been at or near 0.01 for two years now. I don't claim to be in remission, because quarterly CT scans and bone scans still show a lot of lymph node mets and bone mets, but they are not growing or spreading. The side effects are no fun, but the medications are doing what I need them to do. Some day the cancer will start to grow again. That might (or might not) be accompanied by an increase in PSA. It is encouraging to know that the variety of treatment option that will be available to me when that happens continues to grow.
Happy for you, DC. I see us as being in it for the “long game.” Sounds like you do, too. The longer we live, the better chance we have of modern medicine developing new techniques that could lead to cures and/or better quality of life. Hang in there!
Thank you helpful information my psa was 247 now after 6 months chemo and hormone therapy number at 1.0 still have more work to do stay positive and everything will work don't stop bless
Nov '23 my initial PSA was 3,500 and heavily metastasized in my upper skeleton. Started 1st & 2nd generation ADT straight away. Feb '24 I had a bilateral orchiectomy. and stopped the Firmagon. March '24 PSA had dropped to 0.7 I asked the Med Onc about triple therapy but he said he wants to keep further treatment in reserve. I get the feeling I'm on the treatment treadmill, simply following a palliative treatment process in stages instead of being aggressive with treatment. His view is I'm incurable. I'm getting a second opinion.
@@kawaahangar4570In September 2023 my PSA was 310, with Skelton metastasis and have just finished 6 sessions of chemotherapy as part of triplet therapy - the last PSA reading was .10. So my treatment was as you advised.
@@cherifwalid2233 Hi. Had second PSMA PET Scan in July this year, showed bone mets all but gone. Been keto and an alternative drug protocol for six months. Radiation Oncologist put me on 28 radiation treatments to prostate and lymph node, finished last month. PSA now 0.17. Suffering radiation side effects of bladder infection. Clearing up now, hoping to start HBOT in the next week or two. Thanks for asking.
I have a cousin who's PSA levels range at around ten. He says that's normal for him as he gets tested at regular intervals. He's had a biopsy that was negative for cancer. I'm of the opinion that he might have something else going on such as inflammation or Chronic UTIs causing his PSA levels to stay high.
Hello, we are not able to answer case questions on our comment section but we can help you through our Helpline who can speak with you either by phone or email. Here is the link to contact them: pcri.org/helpline
He may have bigger prostate. There's a formula called 'PSA density' to test if PSA is in normal range. Divide the prostate volume (in cc/ml) into the PSA. If it is lower than 0.15 then the PSA is normal. For example: If prostate volume is 74 mL and PSA is 5.7 then PSA density is 5.7 / 74 = 0.077 which is less than 0.15 and therefore in normal range.
Thank you so much for this video. I had an initial PSA above 1,600 with over 25 bone mets at age 51. My team put me on 1st and 2nd gen ADT but NOT chemo. Question, does it make sense for me to start chemo 3 years after my diagnosis? I know every situation is different, but all things being equal, is it too late to start me on triplet therapy?
Outstanding question. I’m in a similar situation. PSA 1,300, Mets all over in ribs and vertebrae, ADT 1st and 2nd gen, no chemo. PSA to 0.09 after about three and a half months. Steady PSA since May 2022. Oncologist and Urologist say I’ll be on Lupron and probably Xtandi forever. My question is the same as yours. Does it make sense to add chemo at this point?
@@bobliening5783 I think this video messed me up a little bit. The claim that if you aren't at zero, you need to add more treatment, is not backed up by research. I spoke with two oncologists this week and they say that my response (and yours) are just fine and that chemo should be held until castration resistance.
@xt8ob similar experience with my oncologist at City of Hope in Duarte, CA. I was diagnosed with a PSA of 50 at age 53 in 2021. Went with a prostatectomy and they found it spread to my seminal vesicles and 1 lymph node. My PSA started climbing to 2.6 soon after so they did low dose radiation in my pelvic region for about 4 weeks and out me on Lupron. The PSMA PET scan wasn’t FDA approved yet. That bought my PSA down to .017. That lasted until Oct 22 when my PSA jumped back up to 2. Got a PSMA PET scan and it was found in 2 ribs. Did SBRT radiation in Dec as well as adding daily Zytiga and by Feb 2023 PSA was down to
Great information I was diagnosed in March 2023 with advanced prostate cancer mets to bones and Liver . PSA at time of diagnosis was 204 I was referred to an Oncologist and Urologist they quickly had me in the Chemo Lazy Boy and started hormone therapy. I was surprised how quickly they got me to 0.1 . 12 months later my psa is at 0.3 My Oncologist will monitor my situation again on May 24 and go from there . My last psa test was near the end of my Zoladex next injection I'm not sure if that is the reason for the slight increase . Thank you for the information Dr Scholz and Alex . More tools and options 🙂
@@billhamilton7524 Hi Bill Like Dr Scholz said the chemo is actually not that bad , following the chemo you will have plenty of energy seeing they give you prednisone. But after 48 hrs you really feel the side effects of the chemo treatment mostly fatigue for 3 to 5 days . The hormone treatment is real it kills your testosterone . Basically you're not the strong Bull Moose you once were . Sex drive is gone , you feel weaker for sure . The treatments work, definitely some side effects but manageable . I consider myself lucky and hopeful that perhaps I can stretch this out for some years to come . Stay positive Stay busy Stay happy We didn't get run over by a cement truck or attacked by a bear . We have Met prostate cancer , it's not an immediate death sentence. Dr Scholz and Alex give hope and options . All the best to Everyone Stay strong mentally and physically.
I was diagnosed with intraductal carcinoma contained with in the prostate. Gleason score of 3+4 , PSA was around 12 when i got the news. After 28 sessions of radiation therapy PSA is now 4.25. Everything I've read about this type of cancer refers to an unfavorable outcome. The cancer becomes therapy resistant. I can't really get a straight answer from my oncologist to my question. Am I one of the unfortunate ones Dr Scholz sometimes mentions?
Ive heard that chemo wipes out the major tumours but does not kill off the cancer stem cells which go on spreading and the cancer 'comes back',.. after a few years with a vengeance and that the immune system has been weakened or destroyed by the chemo and not able to mount a defence. I this true with the treatments for PC that you're talking about in this video? so are these patients you are talking about in real remission or are they likely to encounter the scenario just mentioned?
Is Intermittent Hormone therapy an option for cases with Advanced Prostate Cancer but has become undetectable within 6 months? If so what is the general length of time they stay on hormone therapy? Dr. Scholz mentioned his patient was on hormone therapy for 18 months then taken off and in other cases I have heard people going on "vacation" at 9-12 months? Thanks for the great information!
Hello, we are not able to answer case questions on our comment section but we can help you through our Helpline who can speak with you either by phone or email. Here is the link to contact them: pcri.org/helpline
The Chemo is not that bad it's well tolerated mostly fatigue for 3 to 5 days . The hormone therapy kills testosterone so your sex drive is gone . I find the hormone therapy makes you tired also . I manage quite well so far and can still get out and do what I want . It's not always easy but I push through it .
I’ve been on hormone deprivation therapy for two years. I stopped for three months and 5he cancer came right back. I find it almost debilitating in terms of fatigue. My doctor told me I’m incurable, just do adt until it doesn’t work and then maybe do chemo all the way to 5he grave and be even more miserable. I’m looking right now for another opinion. Seems like doctors are afraid to be aggressive.
@northpointer7305 Absolutely get another opinion . They might have a recipe to help you . This is why the work that Dr Scholz and Alex do on their own time gives us hope and some very good pointers . My Oncologist from d.ay one was very aggressive and monitoring me closely she told me on step at a time should and when the current hormone therapy stops working she has tools in her tool box to try something else . Best of luck to you ! Go get more opinions
Hello, we are so sorry you are dealing with this. Please feel free to reach out to our helpline if you need support. Here is the link to contact them: pcri.org/helpline
When I reached age 50, my doctor included a DRE in my annual physical, and it was unremarkable. He did not order a PSA test. Later that year he retired, and I never got around to finding a replacement primary care physician. That was a mistake. Four years later, lower back pain finally motivated me to do find a doctor. So I had just turned 55 when I was diagnosed metastatic de novo.
@@dcplunkett Sorry to hear about your situation but am glad to hear that you’re doing well. You mentioned that your PSA levels were in the 5 digits? From what it sounds like with numbers that high, I highly doubt the PC started and increased that much within those five years. Probably had PC much longer. What are your thoughts?
My husband had been treated for a prostate infection for two years. His PSA was actually flagged high years earlier, but CT and MRI were clear. By the time he had symptoms, urologist insisted it was just an infection. Threw antibiotics at it for 2 years. Eventually husband landed in ER for what we thought was a stroke-it was metastatic PC. PSA was over 300. Found out the urologist had done another MRI which showed suspicious for cancer and he never did anything about it, never told us, nothing. Tried filing a malpractice suit but were told we didn't have a case either. Go figure.
My husband had high PSA and advanced disease at diagnosis 1 year ago. We asked about chemo upfront and oncologist said no need, so he only did hormone therapy. He is now castrate resistant and starting chemo. Oncologist dropped him when disease worsened. We are in a new system with new doctor, and don't like it. Trying to find a good oncologist that will be aggressive and fight this thing. Every doctor weve talked with seems so hopeless. The wait to get into the Mayo Clinic is also very frustrating. It takes months.
Don't give up trying to find an oncologist who will work with you. My husband was diagnosed stage 4 3 years ago. We were disappointed with local doctors and finally got in to be seen at Mayo in Rochester, MN. He's being treated there and it made all the difference. Every patient's situation is different, but we feel like there is hope. These PCRI videos have also been very helpful.
Ok I'm confused can someone explain to me how, the five-year survival rate for men with localized prostate cancer is nearly 100%. However, up to 40% of men will experience a recurrence, so it is important to understand your risk for recurrence..so reoccurrence means it spreads up to almost 50 percent of the people...what the heck...explain this
That 40% recurrence rate might be on the high side, but even so, having a recurrence doesn't mean that the survival rate will be changed substantially at the 5-year mark. After recurrence, there are still many treatment options that can work to prolong survival well beyond 5 years.
The information provided gives us the tools to ask our Oncologists what is plan B or C ..... Should the initial treatment stops working. The more information we have the better . Best of luck
To us who have uncurable status is of little help advice to look for new treatments or to listen of cases where disease has dissapeared. To come in paliative status is a hard blow and defeat for patient and for the doctor who couldnt cure the patient too. Its a lost fight for life.
Alex you are a beautiful girl. Thank you so much for hosting these videos. You and Dr. Scholz are fantastic. I have been diagnosed with 3+4 prostate cancer 3 years ago but have not had treatment so far. My original urologist wanted to schedule surgery immediately but since watching your videos I have waited. My PSA is rising gradually up to 11 from 6 four years ago. The MRIs show slow progression for the last 3 years. I am under the care of UofM Ann Arbor Oncology. They seem very willing to work with me on what I would like to do. Based on your videos I am leaning toward radiation if it comes to that. Please continue your videos. Thank you.
I had an MRI back in February that showed an 8mm lesion left anterior portion of my prostate. Nothing in the pelvic region or lymph glands outside of prostate. Due to an accident 15 years ago I had a full body CT with contrast that showed some "calcification" of the prostate. Who knows how long that had been there before that scan was done ? My highest PSA level has been 5.56, but came back down to 4.3 after a five day regimen of antibiotics for a UTI. My doctor is pressing me to have a biopsy asap. I'm still researching all the procedures and treatments and will not be pressured to do anything just yet. May not be able to get the PSMA scan done without first getting a biopsy to confirm if it is or isn't cancer. Or the genetic testing to determine if it will be something relatively benign or aggressive . I have questions and concerns and I would like to sit down with an oncologist before I proceed further. I'm still fully functional as a man, even at being nearly 73 years old. I'm going to start making phone calls tomorrow for appointments to try to talk to someone besides my urologist who's talking radiation even before I've had a biopsy. Our pastor's health was nearly ruined by brachytherapy radiation. Impotent, incontinent and wears depends. Has been "drilled" out three times, nearly bled out once, and has had to be catherterized multiple times. He's in constant pain.
Thank you so much for your kind words and for sharing your story!
I am 70 yrs old and was diagnosed Stage 4 in July 2019 with PSA of 5375. Went on ADT Lupron along with Zolomax for bone mets for 2 years. PSA dropped to 4. Couldn't continue treatment due to COVID pandemic etc. Went back into hospital in July 2023 with PSA of 1530, blocked ureters and tumor that was the size of a grapefruit. Put back on Lupron which dropped PSA down to 235 - then it started going up again so the Dr added Abiraterone which slowed PSA rise. I am going to start Taxotere in a couple weeks. My Dr is going to do genetic testing on the tissue from the 2019 biopsy to see what other treatments could be available in case the chemo doesn't succeed. It's been a long almost 5 year battle - but I am positive, I am still pain free and have been working 40-50 hours a week ( even with a urinary catheter). I appreciate all the tips on how to minimize the side effects of chemo. I will do the fasting suggestion and see how that helps - I will let you know. If you know of any additional actions that I can be taking on the natural/holistic side of the fence to augment my treatment I would appreciate it!
maybe investigate what DR Thomas Lodi of Oasis of healing has to say,..hes VERY knowledgable on that side of the fence,..there is a TH-cam video entitled 'Going integrative plus membership call with Dr Thomas Lodi' which will give you some idea of what hes about, he has the clinic in Arizona but also just opening a clinic in Bangkok
Would suggest that you keep your mouth cool with ice cubes during the chemotherapy and 30 minutes afterwards - this will prevent blisters and ulcers. Also, use ice (gel) gloves (NEWGO) and a frozen ‘hot’ water bottle for your feet- these will go a long way to prevent neuropathy. I developed neuropathy in my toes after the third of session. I used the frozen hot water bottle for the last three sessions and it didn’t get any worse. Mouth and fingers were ok.
Sadly, my son has been treated with every treatment available in PC metastatic disease without remission. He is currently at MD Anderson starting a phase 2 clinical trial. He has been fighting aggressively since day one of diagnosis…with the best care at Sloan Kettering, Detroit Michigan when PSMA was brand new, Mayo Clinic , Cleveland clinic, and now MD ANDERSON in Texas. Nothing had brought remission. Some cases are not able to end up on the list of cured, remission, ect. He’s looking at his last hope.
Prayers for all.
Barbara, we are so sorry. Please reach out to our helpline if you need support: pcri.org/helpline
Google "Joe Tippins" MD And docs told him to transition to hospice because his cancer was from skull to liver to toes. Aft ~4 months of dosing fenbendazole the docs jaws dropped when scans revealed NED (No Evidence of Disease). God Speed 🫶🏻💪🏻🙏🏻
Many many men die of prostate cancer, because drugs help a limited time, I am also in an uncurable condition. Dictors dont like to talk about these paliative hopeless cases.
Stay strong everyone. Keep fighting and keep informed and updated
🙏🏻💙🙏🏻
Thank you Brandy! You are the best.
I had a five-digit PSA when initially diagnosed. That was almost five years ago. Lupron and six cycles of docetaxel brought my PSA down to single digits. When it doubled from nadir, I was started on abiraterone and had six cycles of cabazitaxel. Last chemo infusion was three years ago. I'm still on quarterly Lupron and daily abiraterone. PSA has been at or near 0.01 for two years now. I don't claim to be in remission, because quarterly CT scans and bone scans still show a lot of lymph node mets and bone mets, but they are not growing or spreading. The side effects are no fun, but the medications are doing what I need them to do.
Some day the cancer will start to grow again. That might (or might not) be accompanied by an increase in PSA. It is encouraging to know that the variety of treatment option that will be available to me when that happens continues to grow.
Glad your here ,,side affects ,,
Hi, did you include a radiation therapy as well? thanks
@@steppenwolf3930 No, too many mets, and too widespread.
@steppenwolf3930 No, too many mets, and too widespread.
Happy for you, DC. I see us as being in it for the “long game.” Sounds like you do, too. The longer we live, the better chance we have of modern medicine developing new techniques that could lead to cures and/or better quality of life. Hang in there!
Thank you, folks!
Thank you helpful information my psa was 247 now after 6 months chemo and hormone therapy number at 1.0 still have more work to do stay positive and everything will work don't stop bless
Nov '23 my initial PSA was 3,500 and heavily metastasized in my upper skeleton. Started 1st & 2nd generation ADT straight away. Feb '24 I had a bilateral orchiectomy. and stopped the Firmagon. March '24 PSA had dropped to 0.7 I asked the Med Onc about triple therapy but he said he wants to keep further treatment in reserve. I get the feeling I'm on the treatment treadmill, simply following a palliative treatment process in stages instead of being aggressive with treatment. His view is I'm incurable. I'm getting a second opinion.
Triple therapy including chemotherapy was the way to go.
That's the standard of care for high burden cases for many years now.
@@kawaahangar4570In September 2023 my PSA was 310, with Skelton metastasis and have just finished 6 sessions of chemotherapy as part of triplet therapy - the last PSA reading was .10. So my treatment was as you advised.
How are you now??😢
@@cherifwalid2233 Hi. Had second PSMA PET Scan in July this year, showed bone mets all but gone. Been keto and an alternative drug protocol for six months. Radiation Oncologist put me on 28 radiation treatments to prostate and lymph node, finished last month. PSA now 0.17. Suffering radiation side effects of bladder infection. Clearing up now, hoping to start HBOT in the next week or two. Thanks for asking.
I have a cousin who's PSA levels range at around ten. He says that's normal for him as he gets tested at regular intervals. He's had a biopsy that was negative for cancer. I'm of the opinion that he might have something else going on such as inflammation or Chronic UTIs causing his PSA levels to stay high.
Hello, we are not able to answer case questions on our comment section but we can help you through our Helpline who can speak with you either by phone or email. Here is the link to contact them: pcri.org/helpline
He may have bigger prostate. There's a formula called 'PSA density' to test if PSA is in normal range.
Divide the prostate volume (in cc/ml) into the PSA. If it is lower than 0.15 then the PSA is normal.
For example: If prostate volume is 74 mL and PSA is 5.7 then PSA density is 5.7 / 74 = 0.077 which is less than 0.15 and therefore in normal range.
Thank you so much for this video. I had an initial PSA above 1,600 with over 25 bone mets at age 51. My team put me on 1st and 2nd gen ADT but NOT chemo. Question, does it make sense for me to start chemo 3 years after my diagnosis? I know every situation is different, but all things being equal, is it too late to start me on triplet therapy?
Outstanding question. I’m in a similar situation. PSA 1,300, Mets all over in ribs and vertebrae, ADT 1st and 2nd gen, no chemo. PSA to 0.09 after about three and a half months. Steady PSA since May 2022. Oncologist and Urologist say I’ll be on Lupron and probably Xtandi forever.
My question is the same as yours. Does it make sense to add chemo at this point?
@@bobliening5783 I think this video messed me up a little bit. The claim that if you aren't at zero, you need to add more treatment, is not backed up by research. I spoke with two oncologists this week and they say that my response (and yours) are just fine and that chemo should be held until castration resistance.
@xt8ob
similar experience with my oncologist at City of Hope in Duarte, CA. I was diagnosed with a PSA of 50 at age 53 in 2021. Went with a prostatectomy and they found it spread to my seminal vesicles and 1 lymph node. My PSA started climbing to 2.6 soon after so they did low dose radiation in my pelvic region for about 4 weeks and out me on Lupron. The PSMA PET scan wasn’t FDA approved yet. That bought my PSA down to .017. That lasted until Oct 22 when my PSA jumped back up to 2. Got a PSMA PET scan and it was found in 2 ribs. Did SBRT radiation in Dec as well as adding daily Zytiga and by Feb 2023 PSA was down to
@@koof1776 Your opinion is ill-informed. Considering he said it had spread, it was NOT a false positive.
@@xt8ob Who really knows, most men die not knowing they have mets. Think~
tks the effort to discuss this important topic
Great information
I was diagnosed in March 2023 with advanced prostate cancer mets to bones and Liver .
PSA at time of diagnosis was 204
I was referred to an Oncologist and Urologist they quickly had me in the Chemo Lazy Boy
and started hormone therapy.
I was surprised how quickly they got me to 0.1 .
12 months later my psa is at 0.3
My Oncologist will monitor my situation again on May 24 and go from there .
My last psa test was near the end of my Zoladex next injection
I'm not sure if that is the reason for the slight increase .
Thank you for the information Dr Scholz and Alex .
More tools and options 🙂
Glad your here ,,side affects ,,
@@billhamilton7524
Hi Bill
Like Dr Scholz said the chemo is actually not that bad , following the chemo you will have plenty of energy seeing they give you prednisone.
But after 48 hrs you really feel the side effects of the chemo treatment mostly fatigue for 3 to 5 days .
The hormone treatment is real it kills your testosterone .
Basically you're not the strong Bull Moose you once were .
Sex drive is gone , you feel weaker for sure .
The treatments work, definitely some side effects but manageable .
I consider myself lucky and hopeful that perhaps I can stretch this out for some years to come .
Stay positive
Stay busy
Stay happy
We didn't get run over by a cement truck or attacked by a bear .
We have Met prostate cancer , it's not an immediate death sentence.
Dr Scholz and Alex give hope and options .
All the best to Everyone
Stay strong mentally and physically.
@@billhamilton7524
Mostly fatigue
Restless crazy legs at times
Some muscle aches
All in all not bad at all .
Thanks for hope Dr. I'm On docetaxel 2nd time. ADT washed out-So did Radiation..
Thanks. Very informative and assuring
I was diagnosed with intraductal carcinoma contained with in the prostate. Gleason score of 3+4 , PSA was around 12 when i got the news. After 28 sessions of radiation therapy PSA is now 4.25. Everything I've read about this type of cancer refers to an unfavorable outcome. The cancer becomes therapy resistant. I can't really get a straight answer from my oncologist to my question. Am I one of the unfortunate ones Dr Scholz sometimes mentions?
Ive heard that chemo wipes out the major tumours but does not kill off the cancer stem cells which go on spreading and the cancer 'comes back',.. after a few years with a vengeance and that the immune system has been weakened or destroyed by the chemo and not able to mount a defence. I this true with the treatments for PC that you're talking about in this video? so are these patients you are talking about in real remission or are they likely to encounter the scenario just mentioned?
Is Intermittent Hormone therapy an option for cases with Advanced Prostate Cancer but has become undetectable within 6 months? If so what is the general length of time they stay on hormone therapy? Dr. Scholz mentioned his patient was on hormone therapy for 18 months then taken off and in other cases I have heard people going on "vacation" at 9-12 months? Thanks for the great information!
Hello, we are not able to answer case questions on our comment section but we can help you through our Helpline who can speak with you either by phone or email. Here is the link to contact them: pcri.org/helpline
Any comment about FAPI pet scans for PSMA negative cancer such as sensitivity compared to PSMA and when they might be available?
He doesn't say how bad the side effects are that make you deathly ill.
The Chemo is not that bad it's well tolerated mostly fatigue for 3 to 5 days .
The hormone therapy kills testosterone so your sex drive is gone .
I find the hormone therapy makes you tired also .
I manage quite well so far and can still get out and do what I want .
It's not always easy but I push through it .
I’ve been on hormone deprivation therapy for two years. I stopped for three months and 5he cancer came right back. I find it almost debilitating in terms of fatigue. My doctor told me I’m incurable, just do adt until it doesn’t work and then maybe do chemo all the way to 5he grave and be even more miserable. I’m looking right now for another opinion. Seems like doctors are afraid to be aggressive.
@northpointer7305
Absolutely get another opinion .
They might have a recipe to help you .
This is why the work that Dr Scholz and
Alex do on their own time gives us hope and some very good pointers .
My Oncologist from d.ay one was very aggressive
and monitoring me closely she told me on step at a time should and when the current hormone therapy stops working she has tools in her tool box to try something else .
Best of luck to you !
Go get more opinions
Hello, we are so sorry you are dealing with this. Please feel free to reach out to our helpline if you need support. Here is the link to contact them: pcri.org/helpline
Doctors seem to gloss over or not even mention the nasty side effects of any treatment. I think they have an OBLIGATION to do so.
For all of those with extremely high PSA’s ~ How did your PSA’s get that high & How old were you when you found out your high PSA level.
When I reached age 50, my doctor included a DRE in my annual physical, and it was unremarkable. He did not order a PSA test. Later that year he retired, and I never got around to finding a replacement primary care physician. That was a mistake. Four years later, lower back pain finally motivated me to do find a doctor. So I had just turned 55 when I was diagnosed metastatic de novo.
@@dcplunkett Sorry to hear about your situation but am glad to hear that you’re doing well. You mentioned that your PSA levels were in the 5 digits? From what it sounds like with numbers that high, I highly doubt the PC started and increased that much within those five years. Probably had PC much longer. What are your thoughts?
@jasonroberts556 It was 11,201.7 -- so I have to wonder what it was when I had the "unremarkable" DRE at age 50.
My husband had been treated for a prostate infection for two years. His PSA was actually flagged high years earlier, but CT and MRI were clear. By the time he had symptoms, urologist insisted it was just an infection. Threw antibiotics at it for 2 years. Eventually husband landed in ER for what we thought was a stroke-it was metastatic PC. PSA was over 300. Found out the urologist had done another MRI which showed suspicious for cancer and he never did anything about it, never told us, nothing. Tried filing a malpractice suit but were told we didn't have a case either. Go figure.
@@shannonrogers5648 😪
How can I contact you is there any email?
Here is our contact page: pcri.org/helpline
My husband had high PSA and advanced disease at diagnosis 1 year ago. We asked about chemo upfront and oncologist said no need, so he only did hormone therapy. He is now castrate resistant and starting chemo. Oncologist dropped him when disease worsened. We are in a new system with new doctor, and don't like it. Trying to find a good oncologist that will be aggressive and fight this thing. Every doctor weve talked with seems so hopeless. The wait to get into the Mayo Clinic is also very frustrating. It takes months.
Is there an NCI-designated cancer center near you? www.cancer.gov/research/infrastructure/cancer-centers/find
Don't give up trying to find an oncologist who will work with you. My husband was diagnosed stage 4
3 years ago. We were disappointed with local doctors and finally got in to be seen at Mayo in Rochester, MN. He's being treated there and it made all the difference. Every patient's situation is different, but we feel like there is hope. These PCRI videos have also been very helpful.
You may try to ask TallAllen in section Advanced Prostate Cancer on HealthUnlocked forum.
Hello Shannon, please reach out to our helpline. They may be able to help you find someone: pcri.org/helpline
I hear there's a test call PSE. That's more accurate than the standard PSA. Why isn't everyone going to get the PSE test?.
Ok I'm confused can someone explain to me how, the five-year survival rate for men with localized prostate cancer is nearly 100%. However, up to 40% of men will experience a recurrence, so it is important to understand your risk for recurrence..so reoccurrence means it spreads up to almost 50 percent of the people...what the heck...explain this
That 40% recurrence rate might be on the high side, but even so, having a recurrence doesn't mean that the survival rate will be changed substantially at the 5-year mark. After recurrence, there are still many treatment options that can work to prolong survival well beyond 5 years.
Why should the patient have a backup plan..isn't that the doctors job to know the best backup plans
The information provided gives us the tools to ask our Oncologists what is plan B or C .....
Should the initial treatment stops working.
The more information we have the better .
Best of luck
18:52
You only talk about successful cases, never about medical defeat when the patient is going to die in spite of all medicines.
To us who have uncurable status is of little help advice to look for new treatments or to listen of cases where disease has dissapeared. To come in paliative status is a hard blow and defeat for patient and for the doctor who couldnt cure the patient too. Its a lost fight for life.