Cracking Down on a Rare Bone Disorder
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- เผยแพร่เมื่อ 1 ก.ค. 2021
- NIDCR pediatric endocrinologist Alison Boyce is investigating better ways to treat and diagnose patients with Fibrous Dysplasia/McCune Albright Syndrome (FD/MAS), a rare disorder of the skeleton, skin, and endocrine system. In this video, she talks about her longstanding relationship with the FD/MAS patient community. Learn more: go.usa.gov/x6H3d
- วิทยาศาสตร์และเทคโนโลยี
Thank you for this from a FD warrior. I will be sharing. It gets old explaining this to people.
THANK YOU! In a few short minutes, you've given me a better understanding of my condition than anyone else has given me in the 21 years since my diagnosis. And seeing sweetest Alyvia and Rylan; I'm crying. Truly, thank you for the gifts that you are giving our community.