Tourette Syndrome Q&A with Jamie Grace (Part 2/3)

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  • เผยแพร่เมื่อ 28 ก.ย. 2024
  • your questions from instagram :)
    The Doctors (2015): • Video
    The Doctors (2017): jamiegrace.com...
    my podcast: imafighter.org
    INSTAGRAM + TWITTER + FACEBOOK:
    @jamiegraceh
    APPLE MUSIC + SNAPCHAT:
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    team@jamiegrace.com

ความคิดเห็น • 34

  • @DefineMorena
    @DefineMorena 6 ปีที่แล้ว +7

    True, people tend to say stuff like "I'm a little OCD because I have to click all my red notifications." or "I'm a little OCD about this and that." I read a book called Am I Normal Yet? by Holly Bourne and it really showed me how many misconceptions there are about OCD.

  • @Kaynaydiaandkumo
    @Kaynaydiaandkumo 5 ปีที่แล้ว

    I love your voice so much like you need to be a voice actress

  • @rodumicich-sanchez8911
    @rodumicich-sanchez8911 6 ปีที่แล้ว

    Just wanted to say: ThAnK YoU for posting about your life with Tourettes. I will share -- & believe this will help thousands, if not millions of folks.
    Also, albeit I missed your wedding celebration (as I didn't receive a code via Email), I pray God's blessings on your marriage to Aaron, the God-fearing man our Lord gifted you.
    Love and GRACE to you --- always!!!
    Ro Dumicich-Sanchez
    Lilburn, GA

  • @edlakaumbi8619
    @edlakaumbi8619 6 ปีที่แล้ว

    lol on eye twitching comparison

  • @victormacias4612
    @victormacias4612 6 ปีที่แล้ว

    Great info 👍👍👍👍

  • @mariedaquano6474
    @mariedaquano6474 6 ปีที่แล้ว

    Hello, i just found you on line. I watched parts of your Part 1 2 and 3. I noticed something...and wanted to ask...if its ok, the other videos, your mouth looked different, as if something was there. I noticed it in part 3 also, but not in your introduction. I am seeing these videos Jan/2018.

    • @tatyanamelvin2810
      @tatyanamelvin2810 6 ปีที่แล้ว

      Marie Daquano she has a mouth piece in her mouth that’s why it looks different. In the first part of part one she wasn’t wearing it

    • @auroraautumn8764
      @auroraautumn8764 6 ปีที่แล้ว

      Actually if you watch the entire part 1, you’ll see her put it in because it helps to reduce the tics.

  • @mandyseils8177
    @mandyseils8177 6 ปีที่แล้ว +7

    I LOOOOVE YOU! Last time you responded to me it was my birthday!! 😘 When are you going on tour again?😀🤗

  • @christinalong5144
    @christinalong5144 6 ปีที่แล้ว +3

    Yeah seriously when people compare normal everyday stuff to disorders like Tourettes or ocd. Just the worst like the heck are ya thinkin random person?😂

  • @saintpearl5429
    @saintpearl5429 6 ปีที่แล้ว +6

    Jamie Grace I have ADHD I love your song "with you". Especially love the line "I misplaced my master plan courtesy of my attention span" I do that a lot in school. There are times where I wish I was home schooled times where I feel insecure because I have ADHD I can't use be used by God. I watch all three parts by the way all the way through. I have a lot of friends with special needs I've been bullied for having special needs and having friends with special needs. But this is why I don't call it a disability, this is why I call it special needs. Disability means I can't and I won't. Special needs so much deeper. We need a little extra help but like you said sometimes it's nothing we can do. I see all of this as a blessing in disguise. I know that seems strange but let me explain. We see the world differently, we act differently, we talk differently, some people with special needs even look different. Yeah I think that's beautiful as you ended every video with "I'm just a little different". You may have TS but your singer and songwriter God is using TS to write your testimony just like, He's using ADHD to write my testimony. Our testimonies are different but He uses a special needs to write them. The Lord said to him, “Who gave human beings their mouths? Who makes them deaf or mute? Who gives them sight or makes them blind? Is it not I, the Lord ?
    Exodus 4:11 NIV
    bible.com/111/exo.4.11.NIV. Yes we go through struggles. But that's just another part of the blessing in disguise. "In all this you greatly rejoice, though now for a little while you may have had to suffer grief in all kinds of trials. These have come so that the proven genuineness of your faith-of greater worth than gold, which perishes even though refined by fire-may result in praise, glory and honor when Jesus Christ is revealed.Though you have not seen him, you love him; and even though you do not see him now, you believe in him and are filled with an inexpressible and glorious joy,"1 Peter 1:6-8 NIV. When you struggle for any reason reason rejoice. See all these struggles are just pressure, we are like coal, but what happens when coal undergoes pressure and heat, it becomes a diamond. So let's surrender to the power of being crushed by His love to the beauty that was hidden isn't covered up. See in the end this is all just a blessing in disguise so cleverly disguised that someone would dare to call it a disability. I don't have a disability neither do you and neither do my friends. I like the fact that you didn't use the word disability. Remember when I said before that people bully me because of my special needs and because I have friends with special needs. Well the only disability, I actually have is that the ability to control my anger when someone calls me or my friends "retarded" is disabled. Yes I need control my anger but no one has the right to call us that. Remember this is blessing in disguise cuz we are amazingly different and we go through crazy pressure that turns us into diamonds. This comment is for all of you. And for those who don't have special needs, spending time with a special needs person lets you see how different and amazing their life is. It gives you a special kind of love, patience, and acceptance that God wants us to have for everyone. Remember this is a blessing in disguise. Very clever disguised. Thank you to all those who support and love someone special needs. Who takes the time out today to make them feel like they are special. Thanks this world needs more people like you.

  • @joejoexm
    @joejoexm 6 ปีที่แล้ว +5

    Awesome word Jamie! Keep fighting the good fight!

  • @beautifulangel294
    @beautifulangel294 6 ปีที่แล้ว +4

    OMG I know exactly how you feel if you had read my comment on the first video then you will know my problem with his narcolepsy so getting to the point. I hate when people trying to relate as if they understand they be like, "Oh yeah I know exactly how you feel I was sleepy in class today" or something like "I fell asleep while waiting in doctor's office"🤔😐. Like try falling asleep multiple times uncontrollably, I get that they may be trying to be helpful but it's very aggravating at times. So I totally get it

  • @hopskotchsquirrel9504
    @hopskotchsquirrel9504 3 ปีที่แล้ว

    Girl those earrings are fire! I'm glad I 'stumbled' to you...I needed this. I really did...someone that looks like me who has TS --never seen it, but I'm grateful I have now. Thanks :)

  • @johnwinters3129
    @johnwinters3129 6 ปีที่แล้ว +3

    I've commonly seen Torrettes portrayed as inappropriate verbal utterances (swearing and the like). Is that a typical Hollywood exaggeration or is that a real thing for some people with Torrettes?

    • @haelynnestudio
      @haelynnestudio 6 ปีที่แล้ว

      John Winters it's typical hollywood exaggeration. It's different for everyone. I've had Tourettes since I was 5 and just like Jamie, mine were mostly muscular and visible.

    • @MintAndFriends
      @MintAndFriends 6 ปีที่แล้ว +2

      For some people, that is the case. I had a friend at one point who struggled with verbal tics, although most weren't inappropriate verbal utterances. Most tics it seems tend to be physical, though.

  • @TheSes31
    @TheSes31 6 ปีที่แล้ว +3

    Tics would be like breathing for you just as stims would be like breathing for me. You cannot help it any more than I can help it.

  • @miamanzanillo2994
    @miamanzanillo2994 5 ปีที่แล้ว

    too tourttte syn drome

  • @natalialopes2874
    @natalialopes2874 6 ปีที่แล้ว +3

    😍😍

  • @delcymansour68
    @delcymansour68 6 ปีที่แล้ว +1

    the 2017 link doesn't work :(

  • @deborahm7769
    @deborahm7769 6 ปีที่แล้ว +1

    Thank you for sharing this.

  • @gracehoening3804
    @gracehoening3804 6 ปีที่แล้ว +1

    Twins I got a d in biology too

  • @jameelabellingport6357
    @jameelabellingport6357 6 ปีที่แล้ว

    Awesome Personality and encouraging Spirit, Lord prosper,protect,keep,better, in JESUS name.

  • @RoxxieDymond
    @RoxxieDymond 6 ปีที่แล้ว

    I'm 18 and still can't get my drivers license bc of my autoimmune disease :/ I don't have tourettes but I relate to everything in this video. My disease is so rare though & it's hard to treat bc nobody cares enough to study it since there's hardly anyone in the world with it. There are no stats about it but my doctor says there are roughly 300 people worldwide who have it. If you see this, please look up VKH!!! I love you Jamie!!

  • @vebtinkerbellable
    @vebtinkerbellable 6 ปีที่แล้ว

    With your ticks, do you have the obscenity outbursts? And how has that made you feel knowing your a born again xhristian

  • @pamela12735
    @pamela12735 5 ปีที่แล้ว

    I love that you can share your story. I suffer from tremors, where high pitch noises trigger me. And I'm like a kid. And say and do things that normal adults wouldn't say or do.

  • @SoBlessedDetroitDiva
    @SoBlessedDetroitDiva 6 ปีที่แล้ว

    I love your music Jamie, you are an incredible young lady. Such a blessing to me when I'm down or feeling incompetent in my homeschooling ventures with my children. I throw on my "Jamie Grace" playlist and I automatically feel better. You are in my positive thoughts and prayers. Thanks for sharing your story with us.

  • @angelacox9765
    @angelacox9765 6 ปีที่แล้ว

    First I want to tell you what a beautiful person you are inside and out. You emulate grace and it's you. I would've never guessed that you had Tourette syndrome until I came across this set of videos. I can't even imagine what it's like for you. I do understand the ocd and anxiety and I've told my children, and we joke about it But that it's just mommies bat shit craziness so give me a min or two or three... There's so much involved with those alone though so you are an amazing young woman for living with everything you do and still accomplish what you do so way to go chicka!!!
    My son is dyslexic and every Monday it's a screaming match to go to school bc he hates it so bad. I'm a disabled single mom of two kiddos though so I've just started looking into homeschooling bc I don't know if it's even feasable for me to be able to homeschool him. In the meantime I am fighting his school bc the reading program they're teaching in general ed classes and special ed classes has no bearing on structured literacy. I've found proof on the us dept of ed website that the reading programs this school uses doesn't have any proof what so ever and they don't recommend them at all. My oldest daughter thrives in the school environment and is straight a's. If she gets below a 97 she starts freaking out. So as a mom from the age I grew up in that it was all about the grade you brought home, I've had to completely turn my thinking around for my son and take a step back and realise that it's not about the grade at all and about if he understands it. We do a lot of science experiments and things he loves doing here at home bc I want him to know that dyslexics have amazing brains and can think powerfully that most people can't and that some day he will do amazing things with that brain. I knew the day in first grade when he came home and told me that he was stupid and dumb bc all of his other friends can read and understand things and he can't, that I would never allow him to grow up thinking that he's dumb or stupid. So I fought with the school and found out my legal rights and had him tested for a learning disability. I'm extremely upset that I've brought it up to his preschool, kindergarten, and first grade teacher that his dad is dyslexic and it usually runs in the family and every single one of them had no clue what I was talking about or how to even screen for it. So for now I think of anything I can to have him do something to help me out like learning how to garden. There's over 70 different learning styles and for me I have to read it, see it, and do it in order for me to understand, so I have him Google something or watch a few TH-cam videos on something and then he explains to me how it's done. I could do it myself but I'd much rather him put the hard work into it and help me so it'll help his self esteem. His dad never had that extra moral boost for his self esteem and I don't want him to go down that road. I told him he will always have to work harder at reading and other things bc he is dyslexic and it will never go away but god never gives us something that we can't handle without Him helping and supporting us. I worry though about taking him out of public education and how he'll react bc he loves going to see his friends and I'm worried that would have an impact on him. Sorry for the long post, but for you was it a hard adjustment to go from public school to homeschool and how did you adjust to it.

  • @mariedaquano6474
    @mariedaquano6474 6 ปีที่แล้ว

    Ahh...a mouth piece. I just saw your video

  • @kimbiannazielinski6088
    @kimbiannazielinski6088 6 ปีที่แล้ว

    God bless you Jamie

  • @juanag2194
    @juanag2194 6 ปีที่แล้ว +1

    Hi Jamie.
    TH-cam Emmanuel TV when you get a chance.