[195]"OHANA"Even if their lives are shortened.
ฝัง
- เผยแพร่เมื่อ 9 ก.พ. 2024
- From First: • [087E]" OHANA" I will ...
My daughter, Kuri, has DRPLA, a disease that causes atrophy of the brain.
It is hereditary and progressive. There is no cure. Kuri is bedridden. My husband, Chiaki, passed away 6 years ago from this disease.
I wrote "OHANA Family" in hopes of finding a cure. I pray that I can save my daughter.
![[196]"OHANA"Birthday in Despair](http://i.ytimg.com/vi/dLKfV_S2SIk/mqdefault.jpg)
![[196]"OHANA"Birthday in Despair](/img/tr.png)
![[213]"OHANA"難病家族がハワイに住む](http://i.ytimg.com/vi/Iiz-LV0VOgQ/mqdefault.jpg)
![[211]"OHANA"Fighting Back Against the Remaining Life](/img/n.gif)