Going to the gps in a few days to ask to be put under palliative care and also to get a syringe driver for meds for my IF pain. Kinda nervous and it’s awesome to find another zebra with gastro issues who uses a syringe driver! Thanks for putting this video up! Hope your okay and not in too much pain x
This is so great Hannah 😊 You look so much happier and brighter. I know there is so much still going on for you but we have to take any positive that comes our way, right? 😊 And the bags are such a good idea. x
Thank you! My wonderful friend Gem from Australia got it for me - I love how dainty it is. She's commented on here actually! She has a great blog you should check out on Wordpress called Glimpsing Gimbles ! X
Hey Ellie! Just replied to your letter! In the post tomorrow! It's buscopan. I had the injections first, and now I'm on a really high dose all the time. buscopan is usually really bad for dysmotility patients - but I have a weird side effect of it speeding up my transit a teeny bit (I'd have to run to the loo if I had sensation and didn't have to do bowel care if you get my drift...) It's amazing stuff!
Jesus can heal you of any sort of pain and any condition. Get to know the lover of your soul, your father and closest friend. Engage the holy spirit in all that you do.
Going to the gps in a few days to ask to be put under palliative care and also to get a syringe driver for meds for my IF pain. Kinda nervous and it’s awesome to find another zebra with gastro issues who uses a syringe driver! Thanks for putting this video up! Hope your okay and not in too much pain x
Thank you for sharing. Im glad this has brought you some relief. 😊
Thanks! It feels like one big victory! X
This is so great Hannah 😊 You look so much happier and brighter. I know there is so much still going on for you but we have to take any positive that comes our way, right? 😊 And the bags are such a good idea. x
I feel okay-is, and that's one huge victory! I love the bags, they are super handy. I'm wearing your necklace in the video!
Mam My Transfusion pump T34 version 2 setting plz
Period value, Auto bolus value,Demand value etc plz
Love your necklace! Glad the pump is helping your pain 😊
Thank you! My wonderful friend Gem from Australia got it for me - I love how dainty it is. She's commented on here actually! She has a great blog you should check out on Wordpress called Glimpsing Gimbles ! X
So great to see you so happy. I can't stop smiling now. x
Aw, I can't stop smiling at this comment. it's so wonderful to know that people care. Thank you so much xx
:)
Awesome and informative
Merry Christmas and Happy New Year Hannah. Peter
So glad this is helping! Nice to see you smiling
Chronic pain is the worst. I have endometriosis so I almost always have abdominal pain. thank goodness for medicine!
I know right! It's life changing! X
btw those bags are such a good idea!
Thank you! I really like them, super handy!
'your back, where your bum ends, at the sides' hahahaha that's where you keep your love handles if you're old and fat!
I'm so glad your syringe driver is helping you!
Did you hand sew your bags or use a sewing machine? The edges are so neat!
I sewed them on a machine. I love sewing, it's very relaxing!
Hannah Hodgson I love seeing too but I hand sew because I don't have a machine. I love doing embroidery and appliqué.
I am so very glad you are getting some relief!
So wonderful to hear this is helping. Would you feel comfortable sharing what the new medication is out of interest? Obviously understand if not! :)
Hey Ellie! Just replied to your letter! In the post tomorrow! It's buscopan. I had the injections first, and now I'm on a really high dose all the time. buscopan is usually really bad for dysmotility patients - but I have a weird side effect of it speeding up my transit a teeny bit (I'd have to run to the loo if I had sensation and didn't have to do bowel care if you get my drift...) It's amazing stuff!
Hannah Hodgson that’s really interesting, thank you. Look forward to reading your letter :)
Jesus can heal you of any sort of pain and any condition. Get to know the lover of your soul, your father and closest friend. Engage the holy spirit in all that you do.