I had a rectal tumour removed in April and since I also have a kidney disease, I've had 3 IV drips after every chemo treatment since May. I'm happy to say that I only have 2 more drips to do and I'm done! I have a PICC line so it's much easier. My drip is supposed to be 4 hours but I don't do it home and I'm able to get it done in 2 hours. When I'm getting chemo, they also give me a hydration drip but they do it in an hour as my body can handle it. Thankfully, I live in Ontario and it is covered 100%. I'm very grateful. The only cost I have incurred since my cancer diagnosis a year ago is $4 every two weeks for my anti-nausea drugs after chemo. No cost at all to me for MRI, CT scans and hospital stays for 2 surgeries (one for the ostomy and one for the tumour removal). Just one more surgery to reverse the ostomy!
That's fantastic the medical system in Canada takes care of people like that 💕 It's an utter tragedy in the US how most medical care will put a patient into crippling lifelong debt. I hope someday the US will follow suit 🙏 Very thankful you're on the road to recovery!!
Maggie for the IV netting cut it a lot bigger and make a thumb hole. Also lope the tubing around your thumb. It can help prevent the IV from coming out.
Hello Maggie, I understand your frustration about feeling like a 'patient' in your home BUT I saw a brave woman, facing a challenge and dealing with it in a practical fashion. I am pleased that you exploring all the medical interventions to determine what is wrong. Glad to see you are able to wear your rings again. From Collette in the UK.
Maggie, my mother had an ileostomy for most of her life, and when she would have time of high output, the doctors prescribed codeine to slow things down. Which it did help her. Like with you, she would end up in the hospital to be rehydrated and to get her electrolytes straightened out.
Maggie you are such an inspiration 💗. Thank you for sharing your journey. I'm in recovery from colorectal cancer stage3. I'm having major output for months now. I have an appointment in December with doctor. I feel your pain. I can't tell you how many stages I've gone through since my recovery 4 years this November. One day at at at a time as they say. Good luck hope you get well soon.
Hi Maggie, I know how tough it can be at times. I’ve been dealing with Crohn’s myself for over 26 years. Wishing nothing but the absolute best. Take care.
Chron's/jejunostomy/short bowel /IF person here from the UK. I've been having home IV fluids via a Hickman line for about 7 1/2 years now and it's not only saved my life but given me a quality of life. Good luck with your journey. Rose x
Maggie, my sweet girl you do not have to explain to anyone why you were tired or why you have a lack of energy. Most of us who watch your channel already realize that you have health issues. I feel that apologizing for something that you cannot control that is beyond any of your control or consideration is not necessary for you to say. You are just trying to do the best you can with what you were given. I think you’re amazing and every day I’m rooting for you.
I hope the IV fluids help you to feel much better Maggie. You have had so many issues to deal with but you always keep your beautiful smile! You are such an inspiration ❤
Hi Mags, Tu for showing the process in such detail. I have often thought of doing it at home but always chickened out. I am an inch away from where I think I COULD PASS my boards from sheer experience. Very similar to my 9 mos on TPN. I was going to tell you let that puppy run wide open and yes the speed increases drastically the higher up you can get that bag. Also when you put the gauze over those tiny wrists to protect your IV tubing try putting a smaller hair scrunchie around your wrist. Sometimes it would help me with the tubing and just keep it a little more stationary. Again always thinking of you. Good Job today. Well wishes Amy
You being a Nurse and UNFORTUNATELY your Health YOU know so much in Healthcare… I am so SORRY you have Problems but you are a Fighter and you have to be when your Health is involved.. Always watching from Virginia 🌹
My mom had a renal ultrasound last month. It was fascinating to watch! I really hope that it was just dehydration that caused your pain. And yes! Fluids will make headaches go away!
hi!! I eat oatmeal every morning and apple sauce for lunch. that really helps keep me from diarreah. i get infusions 2 bags every 1 to 2 weeks over 2 hours, depending on how I feel. i have passed out multiple times from being dehydrated
Hi Maggie and Zak!! Sorry I missed this earlier. My mother in law just got out of the hospital today from a shoulder replacement. Family members are taking turns making meals and today was mine. I hope these IV's help you feel better. And I hope they can figure out what is causing the problem. Take care.
Wishing you health and renewed energy, Maggie. This must be so emotionally draining for you. Hoping that soon you'll be back to your peppy self. Thanks for sharing your journey with us.
Eat marshmallows which helps thicken output……works every time for me. I also need rehydrated from time to time in hosp. I have Ileostomy from Crohn’s and also stage 5 renal failure. Waiting for another transplant, meanwhile on dialysis. Good luck to you.
I have a picc line ,they will be teaching my husband and I how to give infusions at home this week. I have Crohn’s disease that is in remission ,illeostomy from the Crohn’s and now type 1 brittle Diabetes
I get how you feel and how it makes you feel like a sick person but I have pots and I have a port and give myself 1/2 liter bags of saline 4 times a week. A lot of us with pots do hydration therapy. It's one of the few treatments there is for pots. Not only that I get infusions for RA every 2 months. Your feelings are normal and completely valid but some of us are "patients" daily.
Hi Maggie, I want to preface this with I am in no way a Dr, but have you considered that your watery output could be a side effect of Zoloft (I think I remember you saying you were taking it)? I am on Zoloft (sertraline) and while my anxiety is now under control, my tummy is upset most days.
❤You will need a little time! All good things come in time! You have had a pretty busy year! Maybe a rest is necessary so just go with it, and forget when you are not hookrd up! It's necessary sometimes for us! ❤
I get IV fluids 4 times a week have had TPN and have had my ostomy for 10 years.I 've had pic line ,port know central line. My pancreas quit making enzymes that digest food. I hope this works for you and only temporary
It’s a blessing that with my central line, I do most treatments at home. Stomach cancer sucks. The aqua guard doesn’t work. And can u get a port that u access when it’s being used.
How interesting, I get a headache when I go to the infusion clinic for fluids. And I take Tylenol a little before it. My BP is always up, even we flow for 2 hours. I commented on the video about you receiving your supplies. I meant to mention I have a port so it’s easier than getting an iv each time. I still get stuck, just not the same way.
Maggie I totally understand what you mean about feeling like a sick person somethings hospital related do that alot and it's not the best feeling you're amaizing inspiring awsome person love and hugs Maggie 💜
The “Christmas” lights looked purple on screen, maybe they’re for Halloween 🎃 I hope the IV situation works out. I have to avoid IVs near my wrist because they make my hand swell, but sometimes I just have to take it where they can locate a vein. At my infusion this week, she got a great spot that wasn’t affected by any joint movement, and she was able to do it in one stick (I’m usually a hard stick with multiple tries). Yay for veins when they work! Best wishes. 💜🦋💜
Love your blogs and have learned so much from you. Although this session was posted a year ago, it just showed up today. Coincidentally I had my first infusion for dehydration yesterday. Four hours later I had a kidney ultrasound and would you believe while lying on the table, my bag sprung a leak. In the future I will try not to schedule 2 procedures on the same day.
I’m in Canada so I’m not entirely sure how cost works in USA but it sounds terrible that you need to leave in the IV due to cost. I have a port-a-cath that I do the flushes myself. All supplies are covered. I just started lidocaine infusions, it’s sub-q very pain the whole time. It takes 44-60hrs it’s roughly 2mL it’s horrible. If this becomes a more permanent treatment would you get a port?
Chronic conditions when properly maintained become the new normal. I can imagine that leaving in the IV is a 24/7 symbol for TREATMENT needed. However beyond that existential pain, is the more present irritation of having that stay in your hand. Maybe buy cheap knitted gloves or mittens at a thrift shop and just cut off the "fingers"? An adult-sized mitten would probably not give the preferred amount of firmness, but a child's size version might do.
site = location; sight = view. English has so many words that sound alike but are spelled differently with different meanings. No wonder so many people have trouble with it.
how come you dont loose your hair with being so unwell ? you are a sick person & its great you can do IV fluids at home. Chronic illness is hard work, im 55 now & look every year of it but was once a very slim, attractive, happy, outgoing young woman. It horrifies me now how much ive aged after 32 pelvic surgeries & years of infections, severe pain etc I look at you & pray you dont suffer for many more years 🙏🏽❤️🇳🇿love from New Zealand
I worked in pediatrics which often has a specified IV team so your patients don't become scared of their bedside nurse! Only thing I avoid right now is avocado!
I know you want to wear your rings but you might want to take them off while you're getting infusions. Your hand may swell. Just a little advice 1 nurse to the other nurse. You don't usually have to worry about that with kids, but from past experiences it may help you in the long run.
Please can anyone remember what Maggie uses to deal with poorly skin under her flange. I have developed an awful allergic reaction to my Ileostomy flange . I live in the UK and the stoma nurse can't help.
Hi Maggie I still watch on my tv and always forget ti comment … I finally know what is wrong with my bowel apparently is rare it’s called visceral myelopathy and it’s my nerve that makes everything work isn’t working so now I’m on muscle wasting disease medication I’ve been on them a week and my bowel is not happy and I’m not my dehydration 😢I can’t keep hydrated if I drink it gets worse and I added hip pain injections for pain relief to the list and made myself even worse for a few days till they help 😊… so we are going through rough times together ❤ Do you feel better now your on the drip I always do but I’m normally an inpatient and I’m avoiding that at all costs my bladder maybe fixed too with the medication apparently they have helped other patients so I’m hoping they help as the next option is both bowels going 😢as what you have apparently mine doesn’t work so it wouldn’t help me I don’t understand how taking the lot will help if these meds don’t work will help sending love to you from the U.K. … my kidneys ain’t happy about my hydration I’ve passed 3 stones in 3 weeks I’m having a rough time ❤
You are one strong lady! I especially don't like this "you got this." (Camille, not criticizing you, its that expression I don't like referencing anything to do with cancer.) The brain is a computer, and I think it reaffirms cancer, not wellness. Maybe I'm too picky, but I keep hearing it, and I have said for over twenty years I don't have cancer. Maybe the infusion is a good way to get some extra rest.
Nobody has never even suggested that to me see what I mean about Maggie being the ONLY way I Get information about this stuff And I really get upset about this but I mean happy for her but not for me lol
I understand your fatigue hun. If people haven't been there it's hard to understand. I get it. Just remember your not alone and you obviously have a lot of people who love you. Stay strong...also check out the overnight bags, or they are called the highoutput. bags. Next week I'm getting a bag I can hang of my bed, this way I can sleep through the whole night! It a bag I will have to rinse and reuse , and I'm ok with that. When I was in the hospital last for one of my surgeries my ostomy nurse hoo,ed me up with one so I didn't have to get up in the middle of the night every hour on the hour dragging along iv polls etc. I was able to stay in bed all night! It's a lot of work just wanting to feel good it seems, but worth it!
![[LIVE] : ONE ลุมพินี 83 วันนี้!! คู่เอก "พันฤทธิ์ vs ซุปเปอร์บอล วันของโอม MBK"](http://i.ytimg.com/vi/1b4pkKHa_Fk/mqdefault.jpg)
I had a rectal tumour removed in April and since I also have a kidney disease, I've had 3 IV drips after every chemo treatment since May. I'm happy to say that I only have 2 more drips to do and I'm done! I have a PICC line so it's much easier. My drip is supposed to be 4 hours but I don't do it home and I'm able to get it done in 2 hours. When I'm getting chemo, they also give me a hydration drip but they do it in an hour as my body can handle it. Thankfully, I live in Ontario and it is covered 100%. I'm very grateful. The only cost I have incurred since my cancer diagnosis a year ago is $4 every two weeks for my anti-nausea drugs after chemo. No cost at all to me for MRI, CT scans and hospital stays for 2 surgeries (one for the ostomy and one for the tumour removal). Just one more surgery to reverse the ostomy!
That's fantastic the medical system in Canada takes care of people like that 💕
It's an utter tragedy in the US how most medical care will put a patient into crippling lifelong debt. I hope someday the US will follow suit 🙏
Very thankful you're on the road to recovery!!
Maggie for the IV netting cut it a lot bigger and make a thumb hole. Also lope the tubing around your thumb. It can help prevent the IV from coming out.
Hello Maggie, I understand your frustration about feeling like a 'patient' in your home BUT I saw a brave woman, facing a challenge and dealing with it in a practical fashion. I am pleased that you exploring all the medical interventions to determine what is wrong. Glad to see you are able to wear your rings again. From Collette in the UK.
Maggie, my mother had an ileostomy for most of her life, and when she would have time of high output, the doctors prescribed codeine to slow things down. Which it did help her. Like with you, she would end up in the hospital to be rehydrated and to get her electrolytes straightened out.
i have codeine for another bowel issue and it really works...i dont care about the addiction but the relief from constant diarrhoea is amazing
@@sararaftery3729 I'm glad to hear that it worked for you too , Sara
Maggie you are such an inspiration 💗. Thank you for sharing your journey. I'm in recovery from colorectal cancer stage3. I'm having major output for months now. I have an appointment in December with doctor. I feel your pain. I can't tell you how many stages I've gone through since my recovery 4 years this November. One day at at at a time as they say. Good luck hope you get well soon.
Glad you've been able to find joy with the pups and your garden :) Hold onto those joys when things get tough, you got this!
Hi Maggie, I know how tough it can be at times. I’ve been dealing with Crohn’s myself for over 26 years.
Wishing nothing but the absolute best. Take care.
I'm so glad you can do IV fluids at home. I hope they help you feel better.
Thinking of you from Australia. Hope all goes well I’m sure it will. Zac is a great guy always with a smile so are you. Love following you. ❤
Chron's/jejunostomy/short bowel /IF person here from the UK. I've been having home IV fluids via a Hickman line for about 7 1/2 years now and it's not only saved my life but given me a quality of life. Good luck with your journey. Rose x
Maggie, my sweet girl you do not have to explain to anyone why you were tired or why you have a lack of energy. Most of us who watch your channel already realize that you have health issues. I feel that apologizing for something that you cannot control that is beyond any of your control or consideration is not necessary for you to say. You are just trying to do the best you can with what you were given. I think you’re amazing and every day I’m rooting for you.
I hope the IV fluids help you to feel much better Maggie. You have had so many issues to deal with but you always keep your beautiful smile! You are such an inspiration ❤
Hi Mags,
Tu for showing the process in such detail. I have often thought of doing it at home but always chickened out. I am an inch away from where I think I COULD PASS my boards from sheer experience. Very similar to my 9 mos on TPN. I was going to tell you let that puppy run wide open and yes the speed increases drastically the higher up you can get that bag. Also when you put the gauze over those tiny wrists to protect your IV tubing try putting a smaller hair scrunchie around your wrist. Sometimes it would help me with the tubing and just keep it a little more stationary.
Again always thinking of you. Good Job today.
Well wishes Amy
I feel your pain. It is nice to get the fluids and meds at home. You're in my prayers. ❤️
You being a Nurse and UNFORTUNATELY your Health YOU know so much in Healthcare…
I am so SORRY you have Problems but you are a Fighter and you have to be when your Health is involved..
Always watching from Virginia 🌹
My mom had a renal ultrasound last month. It was fascinating to watch! I really hope that it was just dehydration that caused your pain. And yes! Fluids will make headaches go away!
hi!! I eat oatmeal every morning and apple sauce for lunch. that really helps keep me from diarreah. i get infusions 2 bags every 1 to 2 weeks over 2 hours, depending on how I feel. i have passed out multiple times from being dehydrated
It's called a dial-a-flow. We use them a lot in veterinary medicine. When we are super busy and run out of fluid pumps this is what we use.
So good to see you looking better, definitely improved.
Hi Maggie and Zak!! Sorry I missed this earlier. My mother in law just got out of the hospital today from a shoulder replacement. Family members are taking turns making meals and today was mine. I hope these IV's help you feel better. And I hope they can figure out what is causing the problem. Take care.
Wishing you health and renewed energy, Maggie. This must be so emotionally draining for you. Hoping that soon you'll be back to your peppy self. Thanks for sharing your journey with us.
I hope you feel better soon!
Eat marshmallows which helps thicken output……works every time for me. I also need rehydrated from time to time in hosp. I have Ileostomy from Crohn’s and also stage 5 renal failure. Waiting for another transplant, meanwhile on dialysis. Good luck to you.
Hello and good seeing you again and hope all works out for you as it's hard not feeling like you're self. Please take care and thanks for sharing...
I have a picc line ,they will be teaching my husband and I how to give infusions at home this week. I have Crohn’s disease that is in remission ,illeostomy from the Crohn’s and now type 1 brittle Diabetes
I get how you feel and how it makes you feel like a sick person but I have pots and I have a port and give myself 1/2 liter bags of saline 4 times a week. A lot of us with pots do hydration therapy. It's one of the few treatments there is for pots. Not only that I get infusions for RA every 2 months. Your feelings are normal and completely valid but some of us are "patients" daily.
Happy Anniversary,and We just had our 32nd Anniversary Oct 23rd
What is the AMAZING eyeshadow you are wearing? And the blush…soooo pretty
my eye shadow is from huda beauty mercury retrograde palette and the blush is the balm hot mama blush! thank you so much!!
Hi Maggie, I want to preface this with I am in no way a Dr, but have you considered that your watery output could be a side effect of Zoloft (I think I remember you saying you were taking it)? I am on Zoloft (sertraline) and while my anxiety is now under control, my tummy is upset most days.
Hi Maggie ❤. So how are you going to find out why your ostomy output is so high? Wishing you all the best. I know Crohn’s is a journey 🥰
You're a courageos woman. More power to you!
Great job Maggie! Hope you won't have to repeat but it is nice to know you have this to help youl
❤You will need a little time! All good things come in time! You have had a pretty busy year! Maybe a rest is necessary so just go with it, and forget when you are not hookrd up! It's necessary sometimes for us! ❤
They IV tubing is so cool! I’ve never seen that!
I get IV fluids 4 times a week have had TPN and have had my ostomy for 10 years.I 've had pic line ,port know central line. My pancreas quit making enzymes that digest food. I hope this works for you and only temporary
You can make a whole for your thumb to keep the wrap on the IV easier :)
It’s a blessing that with my central line, I do most treatments at home. Stomach cancer sucks.
The aqua guard doesn’t work. And can u get a port that u access when it’s being used.
Thats what i have at my remicade infusions there great my infusions are gravity feed
I’ve been looking for you! So glad I found you!
I hope you are feeling better soon! I love your Halloween blankets 😊. Have you thought of cutting a sock to cover the IV?
Omg why is there so much output ? Out of nowhere. So puzzling and terrible it interrupts your sleep . Hope this gets resolved soon ❤
How interesting, I get a headache when I go to the infusion clinic for fluids. And I take Tylenol a little before it. My BP is always up, even we flow for 2 hours. I commented on the video about you receiving your supplies. I meant to mention I have a port so it’s easier than getting an iv each time. I still get stuck, just not the same way.
Maggie I totally understand what you mean about feeling like a sick person somethings hospital related do that alot and it's not the best feeling you're amaizing inspiring awsome person love and hugs Maggie 💜
The “Christmas” lights looked purple on screen, maybe they’re for Halloween 🎃
I hope the IV situation works out. I have to avoid IVs near my wrist because they make my hand swell, but sometimes I just have to take it where they can locate a vein. At my infusion this week, she got a great spot that wasn’t affected by any joint movement, and she was able to do it in one stick (I’m usually a hard stick with multiple tries). Yay for veins when they work! Best wishes. 💜🦋💜
Care and wear makes a really awesome shower cover for lines I wonder if that could help!
Love your blogs and have learned so much from you. Although this session was posted a year ago, it just showed up today. Coincidentally I had my first infusion for dehydration yesterday. Four hours later I had a kidney ultrasound and would you believe while lying on the table, my bag sprung a leak. In the future I will try not to schedule 2 procedures on the same day.
I wonder if you could add a little IV vitamin C, also vitamins B. (B6 B5 B12) ? Your looking better & beautiful as usual.
Could they just put in a pic line? I think it was not a problem several times I was sent home with I v meds, so I don’t know.
Love the blankets!
I. started fluids a month ago and I can feel the difference.
Have you tried uninstalling and reinstalling the printer. That usually cures stubborn printers
Hi Maggie, I'm glad to see you. You are looking better. Say hi to Zak for me please.
Just read this comment out loud to him - he says "Hi! Hope you're doing well!"
@@LetsTalkIBD I'm doing well. Still in remission of my Ulcerative Colitis.
😄 🤣 Maggie, "I'm a brat, I recognize that." You are to funny!
Love the gourds! They’re so cute!
Will keeping the IV in reduce the cost that you were talking about earlier?
I’m surprised you’ve never seen those drip wheels (for lack of a better word). They’re not a new thing.
I've only worked inpatient where we always used a pump!
Maggie I missed this video earlier. I hope that you are ok.
Nice one getting that done x
As someone who had a central line tagderm is far better and it’s more bang for your buck
Yes worrying for dad getting a call no back story
Interesting covering over iv
I’m in Canada so I’m not entirely sure how cost works in USA but it sounds terrible that you need to leave in the IV due to cost.
I have a port-a-cath that I do the flushes myself. All supplies are covered.
I just started lidocaine infusions, it’s sub-q very pain the whole time. It takes 44-60hrs it’s roughly 2mL it’s horrible.
If this becomes a more permanent treatment would you get a port?
zak's shirt is on point. love it.
Chronic conditions when properly maintained become the new normal. I can imagine that leaving in the IV is a 24/7 symbol for TREATMENT needed. However beyond that existential pain, is the more present irritation of having that stay in your hand. Maybe buy cheap knitted gloves or mittens at a thrift shop and just cut off the "fingers"? An adult-sized mitten would probably not give the preferred amount of firmness, but a child's size version might do.
site = location; sight = view. English has so many words that sound alike but are spelled differently with different meanings. No wonder so many people have trouble with it.
We have the same dog ghost blanket lol!
Hey Maggie. Do you still have your port? I'm going on 4 years with mine. I have no veins
I've actually never had a port! I had a picc and a central years ago though!
That’s called the “dial a rate” it is not always 100% accurate. It seems to be more the height of the bag that affects the rate then the dial
Whatever happened to their wedding venue? Are they still holding weddings on their property??
We are still in the process of working on the venue. LOTS of unexpected delays
You are the best.
You look better after the fluids
"Looking at a Circus."😂😂😂
how come you dont loose your hair with being so unwell ? you are a sick person & its great you can do IV fluids at home. Chronic illness is hard work, im 55 now & look every year of it but was once a very slim, attractive, happy, outgoing young woman. It horrifies me now how much ive aged after 32 pelvic surgeries & years of infections, severe pain etc I look at you & pray you dont suffer for many more years 🙏🏽❤️🇳🇿love from New Zealand
At least you’re able to do the IV yourself because you’re a nurse
She actually explains in her last video that she wasn’t trained to do IVs as a nurse bc she was in pediatrics in PA
I can hook myself up to fluids, just needed someone else for the iv placement! I've never actually placed an iv (successfully haha)
@@LetsTalkIBD really wow what type of nurse were you? Do you stay away from certain foods that bug yy
I worked in pediatrics which often has a specified IV team so your patients don't become scared of their bedside nurse!
Only thing I avoid right now is avocado!
Cool updates liking willing
I thought the first gourd looked like a butternut squash. Yum.
I know you want to wear your rings but you might want to take them off while you're getting infusions. Your hand may swell. Just a little advice 1 nurse to the other nurse. You don't usually have to worry about that with kids, but from past experiences it may help you in the long run.
❤
I kept saying "no occlusion no occlusion"
hahaha yes!
Why haven’t you had a port or a pic one put in at this point with as sick as you are at times? Just wondering.
Please can anyone remember what Maggie uses to deal with poorly skin under her flange. I have developed an awful allergic reaction to my Ileostomy flange . I live in the UK and the stoma nurse can't help.
I use Flonase!
Hi Maggie I still watch on my tv and always forget ti comment … I finally know what is wrong with my bowel apparently is rare it’s called visceral myelopathy and it’s my nerve that makes everything work isn’t working so now I’m on muscle wasting disease medication I’ve been on them a week and my bowel is not happy and I’m not my dehydration 😢I can’t keep hydrated if I drink it gets worse and I added hip pain injections for pain relief to the list and made myself even worse for a few days till they help 😊… so we are going through rough times together ❤
Do you feel better now your on the drip I always do but I’m normally an inpatient and I’m avoiding that at all costs my bladder maybe fixed too with the medication apparently they have helped other patients so I’m hoping they help as the next option is both bowels going 😢as what you have apparently mine doesn’t work so it wouldn’t help me I don’t understand how taking the lot will help if these meds don’t work will help sending love to you from the U.K. … my kidneys ain’t happy about my hydration I’ve passed 3 stones in 3 weeks I’m having a rough time ❤
I cant believe what a hard life you have.
❤❤❤
Could you just drink the same amount over the same time period? I don’t understand why you need IV fluids instead of drinking.
Because I don't absorb it (I don't have a colon which does a large portion of absorbing fluid). When I drink water, a lot comes out in my ostomy bag!
How many round of Iv fluids do u need if u Kno?
☀️
You are one strong lady! I especially don't like this "you got this." (Camille, not criticizing you, its that expression I don't like referencing anything to do with cancer.) The brain is a computer, and I think it reaffirms cancer, not wellness. Maybe I'm too picky, but I keep hearing it, and I have said for over twenty years I don't have cancer. Maybe the infusion is a good way to get some extra rest.
I have a pic line
❤❤❤❤❤❤❤❤❤
You can't give yourself heparin injections I'm assuming
Nobody has never even suggested that to me see what I mean about Maggie being the ONLY way I Get information about this stuff
And I really get upset about this but I mean happy for her but not for me lol
You look tired, emotionally especially, I hope things improve for soon
Is your husband a nurse too?
nada!
Your so Cute ❤
Maggie I really like you but you are your own worst patient. Go get your tesst done, dont put things off. You are your best advocate.
it's really hard when you want to feel well first! I know I'm not the best, but I knew fluids would get me feeling up to getting tests done.
I understand your fatigue hun. If people haven't been there it's hard to understand. I get it. Just remember your not alone and you obviously have a lot of people who love you. Stay strong...also check out the overnight bags, or they are called the highoutput. bags. Next week I'm getting a bag I can hang of my bed, this way I can sleep through the whole night! It a bag I will have to rinse and reuse , and I'm ok with that. When I was in the hospital last for one of my surgeries my ostomy nurse hoo,ed me up with one so I didn't have to get up in the middle of the night every hour on the hour dragging along iv polls etc. I was able to stay in bed all night!
It's a lot of work just wanting to feel good it seems, but worth it!
where do u get the larger bag?
❤