So relatable and the fact you can find a quick way to share a whole month in 15 minutes is a huge skill girl. I'm feeling shit too and am missing my Christmas party today but you raising visibility like this warms my heart. Your family and cat are so so lovely and so are you. We will all keep moving forward together. Lots of love xx
Jenny Sherman aw Thank you so much Jenny! I actually really enjoy the editing of these videos so at least that’s something! Sending you lots of love really hoping we will get to meet one day! And yes I am so lucky to at least have such a wonderful family and friends to support me. I’m so sorry that you had to miss your Christmas party but health is more important isn’t it? Maybe next year you will get to go to all of the Christmas parties😊🙌🏻🙌🏻💕
Holy cow this whole video was *so* freaking relatable. The endless time spent doing absolutely nothing, the isolation, the struggle to accept this is your life, and the benefits stress... I really felt this whole vlog as this is so similar to my life with ME. I think it is great you are raising awareness. Love your Instagram, love your music, love your vlogs, love you. Will share your video! xxx
Lucinda Holy cow indeed! Ha ha ha that made me laugh so much ha ha! Thank you so much for your comment, I’m so sorry that you struggle with this too! It is unbearable sometimes isn’t it! I am sending you love and spoons x x
"This weird thing happens sometimes where I kind of shit out a song" (then proceeds to make shit sound) lol 😂 Your brother is hilarious he literally had me lol'ing! I'm sure you've heard this a million times but please keep going Alice. You're loved by many people and you're raising fantastic awareness by doing these vlogs. I'm going to share it with a few people. You're so strong for battling this for so long and you are an inspiration to many people myself included. Keep up the good fight Alice we are with you all the way! ❤️
Ha ha, I am so lucky to have my brother in my life to support me and cheer me up! Ha ha yes I do shit out songs! It’s really the best way to describe it ha ha! Thank you so much for your support Stephen it means a lot.💕
Hi Alice, I'm a long time ME sufferer and this video touched me to see how you're struggling. I see you questioning about doing your 5 mins walk every day and I feel like maybe 5 mins is too long at this point. To try to keep a daily walk going I would cut the time right down and if you're not up to going out, then I wouldn't personally go especially as the cold weather uses more energy x
Claire Welch hi Claire, thank you so much for your message I think you might be right in that my baseline has been too high hence why I haven’t been able to stick to it. I am starting on a new program this week all of which will be in Decembers video diary of course! Thank you so much for taking the time to message me and I am so sorry that you are suffering too! It really is the worst🙈💕💕💕
tom8008135 thank you so much Tom! I really hope that these videos will help raise a tiny bit of awareness and help people understand what we go through x x
Wish there was just something we could do to make it all better for you, I know I can't but what I can do is thank you for sharing reality and giving insight and without even knowing helping others, you are amazing Alice and I'm sure you've heard it a million times but truth we speak you really are a beautiful person and a rare kind gentle soul, no other words but thanks and we love you as a fellow human 👍 x
dwfmedia UK thank you so much, you are so so kind! I wish there was something that could help myself and my fellow sufferers! Hopefully in the next few years it is looking like more and more is being discovered about this horrible illness! Really hope all is well with you 💕
@@ItsAliceElla lol 😂🙌 I'm really looking forward to it. Just shows what a rad person you are that you an make watching a month of someone living with m.e. entertaining 😂😘
This is just brilliant. So brilliant because it is something that I can share with my friends family so they can see I’m not the only one. I’m sorry things are so bad for you xx
jsc9000 It makes me so happy that you feel like you can share this in order for people to understand a little more. That literally makes this whole process seem worthwhile to me so I honestly thank you from the bottom of my heart for reaching out and for letting me know that. I’m so sorry that you also struggle with this as I really know how hard it can be. Sending lots of love and spoons x x
Thanks for putting this out there. You say what a lot of us are feeling. Xxxxx p.s. I always find winter is always worse for M.E. so you are not alone in how you are feeling right now x
Creating Rebeccah winter is so hard isn’t it? I feel like I am hibernating ha ha I am an actual bear! Sending lots of love your way and thank you so much for your support Rebeccah x x
These always make me cry.. I’m so sad you have to go through this 😔 Sending you lots of love! I really hope that things turn around for you in December ❤️ keep strong. You’re so amazing to do all you do when you have to deal with all of this pain. Xx
Ciitten aw thank you so much girl, and sorry for the tears! Thank you for supporting me for so long, I really hope we get to meet up soon and I get to meet your little one 😊💕
Alice Ella don’t be sorry! You’re also hilarious so isn’t all tears haha your brothers funny too 😂 makes it all a good balance. Yes please ❤️ that would be lovely. I’ll bring him to Brighton once I’m driving in March hopefully 🙏🏻🤞🏻
Instagram gypsy_michelle_price it is so stressful isn’t it? And they just don’t seem to be on our side. I’m really sorry that you have to go through this and I’m sending you lots of love and support x x
This is such a good idea to show how up and down chronic illness can be I’m tempted to do a week in my life with ME because I never know what I’m going to be like from one day to the next. Thank you for sharing xx
Beverley Butterfly go for it Beverly! You have nothing to lose, and I for one would love to watch it! Thank you so much for your support, yes it’s very hard to plan anything even within the hour! Ha ha! Sending lots of love and hugs as I know just how hard this is x x
Chanti ha ha it is all about the loungewear and pyjamas isn’t it? To be honest Tesco’s do you have the best ones ha ha! Thank you so much for your support, now onto December 💕🙌🏻
H L M Hi darling, I’m so sorry to hear that you are suffering with this as well, as it is so so tough! I’m sending all the hugs! I haven’t actually been tested but I do know that my blood pressure drops when I stand up, but I also know that there is no real treatment available for that anyway? Unless I am wrong x x x
Alice Ella it’s more to do with heart rate rising when you stand and your.brain not getting enough blood so your heart overcompensates to pump enough blood. Sometimes my blood pressure actually increases.I think the pots might be the reason for my ME/cfs. There are heart medications and lifestyle changes but no magic cure unfortunately. I just thought it would be worth testing for as it could explain why you get so tired easily. Im housebound for a few years now, but the pots diagnosis really gave me some answers. 💓💓💓
And yet you’re funnier than most people without ME. Perhaps we find the best parts of ourselves when we have nothing else to lose. You’re doing better than you think you are 👊
Seeing you like this just breaks my heart. I just want to give you a big virtual hug for now :') I can't even think of the sheer amount of mental strain of being inside your house for days. I wouldn't be able to cope, and I don't blame you for having a hard time accepting it, no matter how long have you had it for, going from being 'normal' to not being able to do anything must be a great shock. I just hope you would be able to find better mental help that could push you to not listen to your body often and that when you do you don't have to feel guilty about it. Also, is there any news about the health assessment credit?
Seeta Al-Khaldi thank you for sending me such a lovely and understanding message, it has really touched my heart. It is a very hard and lonely struggle that is for sure! So thank you for your support! There is no news on the benefits yet! They do like to make us wait 🙈🌹
Ughh, that was a rough month for you. Massive crash after such a lovely time with the new single release. Hopefully your ME will allow you to have fun at Christmas.
Graham P Hi Graham! Yes it has been a bit of a nightmare! But as my mum keeps telling me 2020 is going to be my year! Ha ha ha oh the irony I don’t really believe it just yet😂🙈🙈🌹
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So relatable and the fact you can find a quick way to share a whole month in 15 minutes is a huge skill girl. I'm feeling shit too and am missing my Christmas party today but you raising visibility like this warms my heart. Your family and cat are so so lovely and so are you. We will all keep moving forward together. Lots of love xx
Jenny Sherman aw Thank you so much Jenny! I actually really enjoy the editing of these videos so at least that’s something! Sending you lots of love really hoping we will get to meet one day! And yes I am so lucky to at least have such a wonderful family and friends to support me. I’m so sorry that you had to miss your Christmas party but health is more important isn’t it? Maybe next year you will get to go to all of the Christmas parties😊🙌🏻🙌🏻💕
Holy cow this whole video was *so* freaking relatable. The endless time spent doing absolutely nothing, the isolation, the struggle to accept this is your life, and the benefits stress... I really felt this whole vlog as this is so similar to my life with ME.
I think it is great you are raising awareness. Love your Instagram, love your music, love your vlogs, love you. Will share your video! xxx
Lucinda Holy cow indeed! Ha ha ha that made me laugh so much ha ha! Thank you so much for your comment, I’m so sorry that you struggle with this too! It is unbearable sometimes isn’t it! I am sending you love and spoons x x
"This weird thing happens sometimes where I kind of shit out a song" (then proceeds to make shit sound) lol 😂 Your brother is hilarious he literally had me lol'ing! I'm sure you've heard this a million times but please keep going Alice. You're loved by many people and you're raising fantastic awareness by doing these vlogs. I'm going to share it with a few people. You're so strong for battling this for so long and you are an inspiration to many people myself included. Keep up the good fight Alice we are with you all the way! ❤️
Ha ha, I am so lucky to have my brother in my life to support me and cheer me up! Ha ha yes I do shit out songs! It’s really the best way to describe it ha ha! Thank you so much for your support Stephen it means a lot.💕
Hi Alice, I'm a long time ME sufferer and this video touched me to see how you're struggling. I see you questioning about doing your 5 mins walk every day and I feel like maybe 5 mins is too long at this point. To try to keep a daily walk going I would cut the time right down and if you're not up to going out, then I wouldn't personally go especially as the cold weather uses more energy x
Claire Welch hi Claire, thank you so much for your message I think you might be right in that my baseline has been too high hence why I haven’t been able to stick to it. I am starting on a new program this week all of which will be in Decembers video diary of course! Thank you so much for taking the time to message me and I am so sorry that you are suffering too! It really is the worst🙈💕💕💕
"it's not all meowgical, IS IT PUSHEEN!?"
Jenny Sherman pahahaha 😂😂😂 god damn it pusheeen!! 😂😂😂
A great insight into life with M.E. - so good for raising awareness!
tom8008135 thank you so much Tom! I really hope that these videos will help raise a tiny bit of awareness and help people understand what we go through x x
Wish there was just something we could do to make it all better for you, I know I can't but what I can do is thank you for sharing reality and giving insight and without even knowing helping others, you are amazing Alice and I'm sure you've heard it a million times but truth we speak you really are a beautiful person and a rare kind gentle soul, no other words but thanks and we love you as a fellow human 👍 x
dwfmedia UK thank you so much, you are so so kind! I wish there was something that could help myself and my fellow sufferers! Hopefully in the next few years it is looking like more and more is being discovered about this horrible illness! Really hope all is well with you 💕
Thanks for these Ella. You are awesome at showing candidly and openly how this illness affects us
karlmuller1976 thank you so so much for your support! Bring on December 😂🙌🏻
@@ItsAliceElla lol 😂🙌 I'm really looking forward to it. Just shows what a rad person you are that you an make watching a month of someone living with m.e. entertaining 😂😘
This is just brilliant. So brilliant because it is something that I can share with my friends family so they can see I’m not the only one. I’m sorry things are so bad for you xx
jsc9000 It makes me so happy that you feel like you can share this in order for people to understand a little more. That literally makes this whole process seem worthwhile to me so I honestly thank you from the bottom of my heart for reaching out and for letting me know that. I’m so sorry that you also struggle with this as I really know how hard it can be. Sending lots of love and spoons x x
Thanks for putting this out there. You say what a lot of us are feeling. Xxxxx p.s. I always find winter is always worse for M.E. so you are not alone in how you are feeling right now x
Creating Rebeccah winter is so hard isn’t it? I feel like I am hibernating ha ha I am an actual bear! Sending lots of love your way and thank you so much for your support Rebeccah x x
These always make me cry.. I’m so sad you have to go through this 😔
Sending you lots of love! I really hope that things turn around for you in December ❤️ keep strong. You’re so amazing to do all you do when you have to deal with all of this pain. Xx
Ciitten aw thank you so much girl, and sorry for the tears! Thank you for supporting me for so long, I really hope we get to meet up soon and I get to meet your little one 😊💕
Alice Ella don’t be sorry! You’re also hilarious so isn’t all tears haha your brothers funny too 😂 makes it all a good balance. Yes please ❤️ that would be lovely. I’ll bring him to Brighton once I’m driving in March hopefully 🙏🏻🤞🏻
I want to give you such a big hug. I'm going through my hearing for social security disability here in the states, its such a nerve wracking process.
Instagram gypsy_michelle_price it is so stressful isn’t it? And they just don’t seem to be on our side. I’m really sorry that you have to go through this and I’m sending you lots of love and support x x
This is such a good idea to show how up and down chronic illness can be I’m tempted to do a week in my life with ME because I never know what I’m going to be like from one day to the next. Thank you for sharing xx
Beverley Butterfly go for it Beverly! You have nothing to lose, and I for one would love to watch it! Thank you so much for your support, yes it’s very hard to plan anything even within the hour! Ha ha! Sending lots of love and hugs as I know just how hard this is x x
Alice Ella if I do I will definitely link you and credit you love xx
Thank you so much! your honesty and your bravery is inspiring
Chanti ha ha it is all about the loungewear and pyjamas isn’t it? To be honest Tesco’s do you have the best ones ha ha! Thank you so much for your support, now onto December 💕🙌🏻
Really enjoyed your video! I have the same condition plus a few more. Just wondered if you’ve ever been tested for pots? X
H L M Hi darling, I’m so sorry to hear that you are suffering with this as well, as it is so so tough! I’m sending all the hugs! I haven’t actually been tested but I do know that my blood pressure drops when I stand up, but I also know that there is no real treatment available for that anyway? Unless I am wrong x x x
Alice Ella it’s more to do with heart rate rising when you stand and your.brain not getting enough blood so your heart overcompensates to pump enough blood. Sometimes my blood pressure actually increases.I think the pots might be the reason for my ME/cfs. There are heart medications and lifestyle changes but no magic cure unfortunately. I just thought it would be worth testing for as it could explain why you get so tired easily. Im housebound for a few years now, but the pots diagnosis really gave me some answers. 💓💓💓
And yet you’re funnier than most people without ME. Perhaps we find the best parts of ourselves when we have nothing else to lose. You’re doing better than you think you are 👊
Seeing you like this just breaks my heart. I just want to give you a big virtual hug for now :')
I can't even think of the sheer amount of mental strain of being inside your house for days. I wouldn't be able to cope, and I don't blame you for having a hard time accepting it, no matter how long have you had it for, going from being 'normal' to not being able to do anything must be a great shock. I just hope you would be able to find better mental help that could push you to not listen to your body often and that when you do you don't have to feel guilty about it. Also, is there any news about the health assessment credit?
Seeta Al-Khaldi thank you for sending me such a lovely and understanding message, it has really touched my heart. It is a very hard and lonely struggle that is for sure! So thank you for your support! There is no news on the benefits yet! They do like to make us wait 🙈🌹
Seeta Al-Khaldi Did you mean ‘mental help that could push you to not listen to your body’, or was that a typo?
Ughh, that was a rough month for you. Massive crash after such a lovely time with the new single release. Hopefully your ME will allow you to have fun at Christmas.
Graham P Hi Graham! Yes it has been a bit of a nightmare! But as my mum keeps telling me 2020 is going to be my year! Ha ha ha oh the irony I don’t really believe it just yet😂🙈🙈🌹
@@ItsAliceElla Mum knows best! 👍😁🦄
🙂😢🙂
Gareth P 💕 thanks Gaz! Hope you’re going as well as possible! Onto December!!! 🌹