When I Walk Video Journal #76
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- เผยแพร่เมื่อ 8 ก.ย. 2024
- I am currently losing the ability to use my upper body. This video is about the craziness that the world has become for me.
I am a documentary filmmaker currently working to share my story and provide ease for those dealing with similar struggles as me. He is the founder of AXS Map which is a tool for people with disabilities and their allies to share and receive information about locations' disability friendliness - www.axsmap.com The tool is available on the web and as an mobile app.
You can follow Jason on facebook here: www.facebook.c...
Thanks for tuning in!
![[Live] : ONE 168 วันนี้!! "โจนาธาน vs ซุปเปอร์เล็ก"](http://i.ytimg.com/vi/0jIN65KgJsI/mqdefault.jpg)
... this disease makes me mad! Appreciate that you are recording what you are going through
I wish I could give you back the life you had in your early 20's.
Thank you for continuing with your passion of filmmaking so the rest of us can benefit from your positivity and honesty ♡
You're a rock star, Jason. I love your honesty and incredible smile! You make such a difference in this world. My son's 18-year-old friend was just diagnosed with MS and I'm going to send him and his family a link your your film, When I Walk, and your video blog. Shine on!
What a hero you are for talking like this. Thank you. It's something I think about (and try not to think about) everyday. I hope you talk more about how you deal with it. And it'd be interesting to hear from your caregivers too. You used the phrase, "driving me insane" a lot of times just now. I know what you mean. I feel that way too.
:( How frustrating and very heart breaking what this disease does to the body and in turn our psyche. Keeping you in prayer for comfort and peace.
I am sorry to hear this. You are courageous and show grace in this difficult time. Blessings friend.
I can't imagine what it is like to be in your body and I am so sorry your body is failing you now more than ever. I send you a big hug of encouragement and support. Thinking of you, stay courageous, stay strong.
Thanks for sharing. I very much hope that things will get easier for you.
Thank you for taking the time to do this. i’ve slowly progressed now in the early stages of ppms, was initially diagnosed in 2005 having rrms. did injections every other day for 13 yrs now on to tecfidera and hope to stop 🛑 this progression but has you know this disease is relentless. I have 2 kids and the most generous wife. We’re all cheering for you my friend; but why not ocrevus for you? there’s also one that finished phase 1 clinical trials with excellent results. it’s something to do with wiping out the mono virus which likely gave you this ms.
Thanks Jason for sharing this!
Dear Jason. So sorry to hear of this. It seems your breathing has been effected as well. Wish things were easier. Much love.
Hang in there bud.
I'm so sorry Jason. You've been a big help to me and my family. This is the scary part for me. Not looking forward to it. You've had a great attitude through it all. I hope I will as well.
I hate to see you going trough this jason. My dad is in the same situation and I hate beiing powerless and seeing the monster that is MS take more and more from him and you and everybody else with this disease. I wouldn't wish it on my worst enemy. Sending you strenght from Holland!
Jason I am sending you big hugs from me here in LEICESTER UK .So many of us worldwide care about you so much .
Hey Jason, Been shadowing you awhile out here w/ PPMS as well. A deep bow to your warrior self-allowing such transparency is that warrior act. I feel part of our service is modeling human frailty from our blessed non-victim attitude. I see it makes a difference. I see you..warmly and with great empathy and gratitude. Cathy
I can tell Jason by looking at you are you having trouble breathing also from your last video it seems like that I too have regressed it's getting harder and harder to get out of bed God why are we going through this
I have ms...im scared
I can't imagine what it is like to be in your body and I am so sorry your body is failing you now more than ever. I send you a big hug of encouragement and support. Thinking of you, stay courageous, stay strong.