Transient Global Amnesia • 2.16.22
ฝัง
- เผยแพร่เมื่อ 6 ก.ย. 2024
- I'm ready to discuss my recent neurology appointments and tests, and the corresponding medical issues I've experienced in the past two years.
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#TransientGlobalAmnesia #TGA #Amnesia
I glad to know that this doesn't sound serious, but here's hoping this doesn't keep happening. I'm glad Mal has been helping you out, too. Good vibes all around!
Geez, can we just talk about this guy’s reaction real quick? Most people would be freaking out and despairing over something like this, but he’s cracking jokes about it (and was even doing it during his episodes, too), providing all this great information and recommendations, and even saying that he’ll film it if it happens again (which, I cannot imagine anyone else saying or doing, but would invariably be a helpful case study in the medical world).
Absolute champion
"it is a very emotionally charged experience" - i work in neuropsychology and do cognitive testing for patients who experience seizures (mostly epileptic), and it's basically an everyday occurance for me to have someone start crying in front of me because they realise that they just can't remember things properly or they can't find words properly or things like that. it's rough for them no matter how old they are or what their background is. and i can only imagine how rough and terrifying those episodes must have been for you and mal.
my background in that field might also be why my first thought when you mentioned "neurologist" as well as eeg and mri on the vlog was seizures, but i had an easier time not worrying too much about you because both you and mal kept saying that things are probably fine and that the neurologist also said that things are probably fine (which is not usually a thing they tell to patients at the hospital i work at, because well, seizures.) i am glad to hear you probably figured out what is going on, i am very glad that it is not related to seizures even though as a commenter on a vlog pointed out recently they don't have to be the big tonic clonic ones one usually thinks about and can be treated very well with modern anti seizure medication. I also think that you sharing your experiences and stories with those episodes is a thing that might help a lot of folks deal with their own issues. So as i definitely said before on twitch and probably on youtube as well, thank you for everything you (and mal as well!) do.
Stephen, you are an incredible human being and your desire to make others feel good even while you are experiencing something really scary like that is truly remarkeable. i know that you have helped me and probably many others retain sanity in extremely difficult times and brought a smile onto my face when everything was terrible. which is why i wish you only the very best and hope you won't have to experience it again. but even if you do, i am glad you have the great kind of support network that you have and have some sense of clarity as to what is happening. sending you all kinds of good vibes
As bad as this sounds, I'm sadly not all that shocked by the existence of transient global amnesia, but of course- I'm very sorry this happened to you. The reason why it's not that surprising/shocking to me is because I recognise a lot of it in myself; it's happened to me, as well. Not _exactly_ TGA, but the more frequent kind of short-term memory loss which I know now was caused by heavy long-term stress. I at least know that I've shared this story in a comment before, but I'll do it again just in case someone might find parts of it useful to help prevent the same thing happening to them.
So, the way I first noticed memory problems was when I worked at a helpdesk a few years ago. I was experienced at that place, I knew what I was doing and thus didn't have to really document things into the task as I went and could do that after I hung up, basically. So this one time when I was in a call with someone, I helped them with their issue, and as soon as I hung up, it was as if my memory of that entire thing was wiped clean. I remembered _nothing_ of what I'd just talked about, what I did, if I even solved their issue, if I needed to send the task forward to on-site support, etc. Nothing. And the scary thing is that my boss had asked me only months earlier, since she knew I was experiencing stress at work, if I was more irritable as of late, and also if I had issues with my memory. At the time, I didn't. But when that one incident happened, I talked to her and I said "it happened".
Since then I've been working on getting some of my short-term memory-retaining abilities with therapy, and it's getting better but very, very slowly- and it's been over three years. These kinds of things are incredibly scary, and in the case of TGA, it doesn't seem like there's any known causes for it, that it just happens. In my case, it was stress. So all I can say is... don't make the same mistake I did. Don't overwork yourself. Your workplace can replace you if you get sick/quit/etc, but you can't replace yourself, physically or mentally. So, take care of yourself/yourselves! Take breaks. Slow down. It's all worth it in the end; take it from someone who made the mistake of burning themselves out because I thought "eh, I can handle it". Clearly, I couldn't. :P
The Georg family really out here willing to talk about all sorts of medical things on camera. Thank you for the learning experiences, and for raising awareness about things that many of us otherwise wouldn't know of.
Now, I don't think I have TGA, but I do feel a disconnect between my memories and reality, and hearing about TGA makes me want to look more into it (and maybe get some peace of mind)
What i love about it is that both stephen and mal want to know the facts so they can actively discuss it and not mislead anyone. And they dont just talk out thier butts without having looked into it just incase someone else needs the info.
Kepler is about to become an emotional support cat for Steven, he’s a good strong kitty!
My dad suffered from a period of Transient Global Amnesia probably 6 years ago. Luckily, he stayed home instead of going to work in New York City that day because he couldn't create new memories for a period of about 6 hours, and who knows if he would've been able to come home. He was similarly diagnosed with Transient Global Amnesia, and similarly kept saying the same things. He told the same joke to the nurse in the room four times in 2 minutes, which, while somewhat funny, was also a terrifying thing to witness. Just as fast as it came, it went away again. He hasn't suffered from it again since, and hopefully he never will, but it was definitely a scary time. I'm glad you're okay, and I hope it stays away for good this time!
Mind things are always scary. Dementia is something that runs in my family, and I'm currently seeing my Grandma go through it. I'm glad you're taking it in stride, and with Mal there to always help you and take care of you, I know that things should be okay. Thanks for sharing, I love that you try to normalize these discussions more, what with Mal's thing in November, and before that some of your father's stuff.
While they are very personal and you deserve your privacy, I think that if we talk more about these things, we can continue to raise awareness and interest in these medical problems that can hopefully lead to more research and potential cures. Thank you again for sharing, and I hope this was the last time you have to experience it.
I'm sorry to hear that you're going through this. I saw my grandma go through Dementia 2 years ago (it'll be 2 years in March that she passed on). It was incredibly difficult to watch her go through it and it will be a time that will be hard for me to forget.
@@slamdunkgator915 Yeah. My grandma is the matriarch of our family. She worked at my high school and drove me to school for four years. I love her a lot. So to have her get so frustrated with forgetting things, or getting defensive when my mom or aunt try to remind her of things. It hurts to see. It's such a hard thing to go through because it feels so futile. I'm sorry you had to go through this as well.
Man...I'm pausing this halfway through with literal tears in my eyes because that is tough to hear and I can only imagine how scary that must be for you and Mal both. I don't know why that hits so deep but it does. Just know I love you guys and I hope things get better and no matter what happens just do your best Stephen, I appreciate you and all you do and idk I'm just crying right now it just makes me sad to see someone I've watched countless hours of video of for years now have something like this happen to them, it's honestly heartbreaking.
I'm sure things will be okay in the future and now I'm going to power through the second half of this but just know I'm rooting for you big time bro.
TGA sounds pretty scary, i can't imagine what that must feel like. Just having a poor memory is bad enough for me but yikes. Glad to hear that just the TGA is all that seems to be wrong, hope you and mal are doing ok and that everything works out so it doesn't affect you guys to much
I have tga too and it is rlly scary like one second ur talking about something and then suddenly ur saying something else without remembering it I haven’t told any friends or family and it’s rlly brave of him to open up and tell everyone
I've had TGA twice. But unlike this guy I wasn't aware!!! I was having a problem .until I came "back in the room" as it were . First-time I drove 35 mins to my destination and came too wondering how I got there, couldn't remember driving at all after getting in the car. Complete autopilot. I had no notice or warning what was about to happen . And unlike him, couldn't make notes! As I was oblivious to the problem. This was 2010. Just had another episode Jan lasting 5 hrs. In which time last thing I remember, I was waiting for an Amazon delivery. Lights went out. When they came on, didn't know the day, month ,year. What I'd been doing , Amazon stuff was unpacked! Didn't remember that, and I'd had an expected visitor and spent time with him. 🙈 WTF. Though it was either stroke, brain tumour, dementia, I'm 70. Thank God I got a diagnosis. I've always had migraine which I've read is one thing that is common amongst people who experience this . Just when you thought you'd heard it all! 😲😅
Sending the good vibes. The honesty and courage to share this with the community are very much appreciated. How sudden the incident(s) happened is incredibly scary and concerning. HOWEVER, this shouldn't make anyone change their opinion of you.
Super glad Mal urged Stephen to document the details about the experience(s). Also super glad Mal and Kepler are able to accompany Stephen through these experiences. Here's to hoping that all or most things will be alright!
As the literature has said, it's not connected to dementia or early onset Alzheimer's. Also, it's super rare for future episodes to occur, even if they are spread 2 years apart, even if the causes and criteria for diagnosis are very vague. Again, sending the good vibes.
We ain't gonna treat Stephen differently because of this. Stephen is still our internet grandpa with occasional gosh awful memory and charming humor.
I’m only a couple minutes in, and already hearing a lot of myself in this vlog; I don’t think I have TGA, but it’s something that I definitely want to keep in mind. Thank you for sharing this.
Edit: I definitely don’t have TGA because now I know it’s not chronic, but my point stands
Hearing about others coming to learn about their ongoing or sudden conditions really help people relate to another.
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I had that type of concept happen to me when I was explaining to a friend about my constant physical pains after dealing with stress.
And he pushed me towards the right lead through discovery.
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Those are hard talks that are difficult as we come to learn about each others and links us closer together as we are able to see ourselves in others people shoes.
People are unique but we are all connected one way or another!
Same ish. I don't have epsodes to the extent of what Stephen describes, but some mornings time goes by in weird ways for me.
Sending good vibes for your health!
And thanks for normalizing talking about health issues, as you continue to do. Your candour is always appreciated!
Sometimes the open, canid, reality is just surprising. You don't see a lot of people willing to talk about events like this. And here we have Stephen being like 'If it happens a THIRD time, Imma record it"
Never stop being you Stephen, we're glad to hear that you're alright and that, as scary as this experience was it isn't overly serious.
As you were describing your symptoms/episodes I just pictured a etch a sketch just randomly erasing itself.
I’m glad you guys have found some answers to what’s been going on. I haven’t been watching the vlogs in awhile because of my own mental illness. I’m glad I checked in for this one. Thanks for sharing and keeping us updated. Much love to you and your fam.
When I saw the title of the video, I thought "that phrase sounds familiar" and as you described it, my suspicions were confirmed. This same sort of thing happened to my Grandfather a few years ago. I was away with my grandmother and mom visiting family hours away in a different state and when my grandma called my grandpa to check in at the end of our last day out of town, he was confused as to where she was--he'd thought she was out in the garden, not in a different state. She kept repeating to him where she was, what she was doing, and that I was there with her (my mom was out of the room at the time). Eventually she handed the phone to me and I tried to explain it as well, repeating the same explanations over and over to his same few questions. It was especially terrifying knowing how far away we were and how long it would take us to get back home.
My grandmother got in touch with her brother-in-law (who luckily lives not too far from her and my grandpa) and he and his wife took my grandpa to the hospital while we checked out of the hotel and drove through a nasty rainstorm to get back home. He was still experiencing the fog and amnesia hours later when we made it back into town and my mom and grandma got to go in to see him. Luckily it was just TGA and not a stroke or something more serious. As far as I know, he hasn't had an episode since, either.
But I can definitely sympathize with some of what Mal must have been going through during your episodes. It was very scary hearing that level of confusion on the phone and not knowing what to do, especially with us so far away. I'm sorry you had to go through this, and to do it twice, but I'm glad that you're bringing light to a rare and terrifying thing.
I appreciate the candidness of this vlog, as with the videos of Mal's Endometriosis. While it may just be the parasocial interaction side of things, you and your's are a regular aspect of my day to see what's going on. Thank you for all the content you make and share with the randos on the interweb, Stephen.
Before you mentioned TGA, I was also on the “migraine?” train. Migraines are WILD, everyone knows them as “headache from hell” but they’re actually closer to a complex neurological disorder. I personally get aphasia (inability to speak), severe mental fog almost exactly like the “TV static in your brain” you described, and weakness in my arms alongside the more traditional pain, nausea, and sensory overload when I have attacks. I’m very glad it doesn’t appear to be something serious, and hopefully it never happens again! As for the head pain during your episodes, it could be a result of the stress caused by not knowing what’s going on during it. Bodies do weird things when they know *something* is wrong but can’t place what it is.
Yeah, migraines can be wild. My mum has had a thunderclap migraine, which is debilitating pain that basically gets you to the ER convinced you’re dying. Doctors diagnosed it, then said « you’ll get it once or twice more in the next few weeks, then never again ». So far that’s holding up. Super weird.
I have a lot of those symptoms, but I have never considered it could be migraines. I always thought they were just anxiety attacks/sensory overload issues. Something to think about for me then
I experience migraines from time to time. Mine are caused by weather changes or strong smells. I also get visual "hallucinations" which are similar to looking at oily water. Except it slowly covers my eyes until i cannot see anymore.
Wow I can definitely see how scary it must be. Looks like you'll be okay according to what I read I HOPE at least that you will be okay.
That does sound scary, The fact that the brain is such a complex organ where we still can't comprehend every detail in it does not help. I hope you and mal are ok now and in the future.
I feel so horrible for this, but while you were describing your episode a few weeks ago where Mal looked up TGA, I could not stop laughing? It's a mix of "oh my god that's horrible I have no idea how to react to this so I'm going to have a nervous laugh" and "this situation is genuinely comedic after the fact, especially since the way Stephen is talking seems to indicate it's not a severe or dangerous problem and can be handled".
Telling the same joke three times about "if you've ever had something you want to tell me, now's the time" is just... I feel so bad for Mal in the moment but god that's almost a joke that makes itself!
I'm so glad you were able to get tested and are pretty confident you know what it is, I really hope it is just TGA and doesn't turn out to be secretly anything more severe. Hopefully now that you know what it is, any future episodes are far less terrifying for the two of you! Mind problems are always a big terror, but at least you know what it is now!
Thank you for letting us know everything that’s been going on. Very glad to see that you seem to be dealing with it well and are still in good spirits, despite how scary it kinda sounds! I’ve never heard of TGA until now, but it sounds like it has more to do with forming memories like you said. That means it shouldn’t interfere with any retrieval of your other memories, which is good! Two comments I wanna make:
1: In grad school, I’ve learned that a diagnosis is actually very difficult to get “revoked” once it’s part of your medical records, so that might explain why you weren’t given a diagnosis, since they weren’t entirely confident that’s what you were experiencing. Regardless, now that you better understand it, it still accomplishes giving you some peace of mind about what’s happening.
2: it sounds like it doesn’t affect your procedural memory, which relates to long term memory concerning your ability to do certain things. As you said, it wouldn’t make you unable to remember how to drive, since that’s a procedural skill. It also explains how you were able to get through filming a whole patreon video with it occurring. You’ve done vlogging for so long, that it’s a skill embedded into your memory. Just thought you might like to know that.
I got shivers when you said you'd already written TGA down twice, that's terrifying stuff. I'm glad to hear that it isn't chronic, though it's awfully ironic in the dramatic sense that the man who documents every day of his life is struggling with bouts of amnesia. All of the love to both of you guys, your candidness means so much to us fans.
haven’t finished the entire video yet but man this sounds like such a scary experience, i think as humans we really cling to our memories and the assurance that we have them; i can’t imagine that feeling of being there but not being able to form any memories about it. i’m glad you at least got to figure out what it is (or at least a Very good idea that it is) and that you have mal there to help you with it, she is very strong for being able to go thru this too..! i wish you guys the very best (*˙˘˙)♡
It's so nice to hear and see how they help and support each other on their respective issues. They've been through a lot in the last couple of years.
This is scary to hear because my daughter just had this happen to her yesterday, scared the crap out of me. She just dropped her baby off at day care, went to dunkin and came home. I was on my way to bed (I work night shift) and we were talking in the kitchen about her wedding plans and she stopped, said "i feel weird, like a Deja vu" and then started panicking because she did not know where her baby was or how she got her coffee. I'd tell her and she kept asking and after about 30-40 minutes she was back and knew everything that she didn't know a few minutes ago. And here I am 'researching', thank you for making this video, at least I now know this is a real thing and she isn't alone. She went to ER, had a workup, MRI, etc...all clear. My daughter is 28 and hopefully she won't have it again.
Damn Stephen, sorry this happened to you…twice! You and Mal have been through a lot these past few years. TGA sounds really bad. I have Epilepsy so I know what it’s like to have a neurological disorder. I hope you guys get through this.
We had a scary experience with TGA in my family a few years back and a old TH-cam video of a woman documenting her experience brought us comfort and made us feel less alone. I know this video will bring the same to someone else. Thank you for sharing, and I'm so sorry you and Mal had to go through that.
It's always amazing hearing Stephen talk like this cause he has an excellent way of really helping you understand what it felt like and the positive outlook and the humor he always keeps is great to see. I hope for the best for both You and Mal
I have problems with dissociative amnesia and I have memory problems because of it. Sometimes I lose hours of my day, sometimes only minutes. I don't recognize my voice or my face or my body. I forget how to walk sometimes and how to breathe. I forget those I love's faces. I understand how scary it is to not know what's happening and to lose time and memories. I hope it never happens to you again. Thank you for sharing your experience, Stephen. I hope things go wonderful for you and Mal. I'm a long time fan.
Hearing you talk about the conversation you had with Mal where stuff kept being repeated and you couldn't form new memories reminded me of one time when my dad had a seizure and he kept asking the same questions over and over afterwards for 30 minutes to an hour. I guess the same kind of "memory resets" happen in that scenario too. It's a little scary that it can also happen without any kind of obvious trigger, like a seizure.
Yeah I can imagine how it would feel to not remember recording that but watching it and feeling like “that’s not me, like logically I know that’s me, but it feels like that’s someone else wearing my face.”
I don’t have personal experience in that area, but in Dungeons and Dragons my favorite race is the Changeling, so I often think about stuff like that and it brings weird feelings of anxiety and I know I’d be freaking out.
As someone who has dealt with neurological issues (epilepsy/seizures), that first occurrence is probably THE most scariest moment of your life. I feel for you so much right now Stephen. For me it took almost a year for my family and I to get the right diagnosis and it was scary at times. There was no convulsing, just zoning out (best I can explain it) for short periods of time, but I am happy that you were able to get your diagnosis figured out quickly. I've been on my meds for over 10 years and I've only had one breakthrough episode. So that's good right?
Again happy that you've gotten this issue figured out, man. Cause damn is it scary.
I love your love for recording things for posterity. The fact that you wanted to record an episode of this phenomenon for researchers is virtuous.
Thank you for sharing. I had my 2nd TGA episode last week. The first one was 4 years ago. Both happened immediately after waterskiing, many hours away from civilization on a houseboat. One member of our party 4 years ago had seen it before, and after googling, it was clear that it was textbook TGA. Then when it happened again, my husband could easily tell what it was. I lost about 10 hours of time/memory this time as opposed to only 1.5 hours the first time. Also came out of it with a headache, and I'm not a headache-y person in general. I still haven't been to a Dr. about it because it doesn't seem necessary, but I may change my mind. It is such a disorienting experience and scary when coming out of it.
That does sound so scary to go through, but I’m glad you’ll be okay, Stephen! Take care!
Definitely an alarming thing to hear about, but I'm glad you and Mal have taken such serious steps to understand what it is and what to do about it. Thanks as always for keeping us informed. And let us know if you ever want us to lay off the grandpa jokes for a bit. 👍
This is no doubt rough to go through and deal with, I’m very glad to know it’s not as serious as it could have been. Here’s hoping it doesn’t happen again, and it’s nice to know you have Mal for support the way you do regardless.
I remember watching the start of the vlog where you got the EEG & MRI (2.3.2022) and thinking to myself "Oh, an EEG! I remember those from my misdiagnosis of Epilepsy" and wanting to post that it was neat to see something from my childhood. Now, knowing the reason why you were getting a baseline brainwave reading, it puts that vlog into a new perspective. Thank you for sharing this, and best vibes going forward for both you and Mal. Fingers crossed it doesn't happen again!
I'm sorry to hear of your experience. I just wanted you to know that your not alone. I've been going through the same thing all my life. It started when I was about 9 or 10 years old. I seen a neurologist when I was in my 20's and it seemed like she wasn't sure of what it was. She said that it could be Mild brain seizures but she didn't seem to convinced. I'm in my 50's now and learned how to control it. You can actually feel when an episode is about to hit. And I learned that when I'm in a certain situation like restaurants, parties and concerts where there is a lot of music or loud noises it triggers it. But when I feel it coming I just get up and walk away and it stops. Unfortunately, I had an episode today (8/7/22) which lead my to your video because of its intensity I decided do do more research. It was my fault because I did not heed to my getting up and walk away. As a child it lasted a few seconds and a couple of minutes as I got older. I feel that because I hadn't had an episode in year's. But the episode today was very bad. I actually found my way home to my wife because I was able to function in my driving and knowing where I lived but when I was face to face with my wife she Knew something was wrong. I did find that my cognitive function is declining though. As the doctor did say it would happen. And I did experience headaches and tiredness after an episode. Thought that this might help.
I cried watching this video. Even seeing the title hit me hard. Nearly five years ago, my mom had an episode of TGA. It happened while all of us were out at work or school. The only reason we knew something happened was because she was on a call with her family in another country, and they noticed something was wrong. They called my dad (through the world's worst game of telephone) and he took my mom to the hospital and called me home early from school to take care of my brother. My mom had a stress-related mini stroke around 12. She doesn't remember anything that day after then. You're right, it's a very emotional time for everyone involved, and it must have been even more so for you and Mal, since it happened twice and it wasn't officially diagnosed like my mom. My mom spent weeks after it reaching out to everyone she talked to that day, talking to us, trying to piece together what she did because none of us were home between 12 and 2-ish, when my dad came home to take her to the hospital. One person thought she was mad at them. Another didn't realize anything. I wrote up what happened that day on my end for my mom when she asked, too.
While I hope you never have another episode, if you do, I would like to see it, and show my mom. She desperately wished she could have seen what she was like, but my dad would have never wanted to record her in such a vulnerable state without her consent. I still remember her voice when I talked to her on the phone, though. It broke my heart.
Nevertheless, I hope this never happens again, and that you at least have some peace of mind knowing that it wasn't related to seizures or your family's medical history. And as a someone in their 20s who has a condition more common in middle aged people, yeah... it can happen.
In regard to the doctor not diagnosing you I suspect that TGA may be a rule of exclusion. My mom has had a whole slew of medical problems for the past two years and we just recently found out she has Sarcoidosis, however, she hasn’t been diagnosed with it. The reason is that it’s pretty rare thing that presents very similarly to many other things, and thus to properly diagnose it you have to jump through many many hoops. I don’t know if TGA is the same but that might be why the doctor was hesitant to give a diagnosis :)
Stephen, I am 31 and 4 years ago I was referred to a neurologist to seek help for recurring cluster headaches. While I described my symptoms and the experiences before and after each episode, she told me that she believed I was suffering from short term amnesia, but without the extremely expensive procedure of a CT scan during multiple episodes, there couldn't be a proper diagnosis.
However, I believe she was onto something when about a year ago I had bought 7 bags of catfood over the span of 2 days during a headache, and couldn't remember buying a bag to then feed the cats, so assuming I was out, I went to get more. Wasn't until my friend came by to check on me and she was confronted by hungry screaming cats and fed them that she found all the catfood. Obviously not the same thing as you, as the mind works weirdly, but similar enough that I somewhat knew how you feel about this.
To this day, I don't remember buying any of the catfood, just my friend there talking to me and suddenly, there's a crap-ton of catfood in my house. Another visit to the neurologist with the friend there to list off all the things she remembers that I don't later, and it was confirmed that I'm not just simply forgetful. So, good to have an answer at least.
But I will say, from personal experience, even during a bad headache and not remembering things, I remember thinggs better then I was with her, my friend. And I'm gonna go out on a limb and say that it's tge feeling of safety and familiarity that helps a bit. I often call her when I'm at work to talk to her when I get headaches cause she helps me to remember little things like, "this is where I set down my box knife" and "I already wrote down these numbers for this item in stock".
Kind of a cookie-cutter disney magic resolution, but the feeling of comfort I have with her certainly does help me to remember things better. And I hope you can find what it is that helps you to latch onto memories better.
TL:DR : I too got Kingdom Hearts'd and my close friend is my Door to Light.
Or something like that.
That all must have been very scary indeed; I'm so sorry you had to go through it, Stephen. Mal, too - she did a great thing in keeping you company and grounded, and in researching what was happening. You're wonderful people and you deserve wonderful lives free of medical woes. I wish you both the very best, and hope you don't suffer anything further
I don't usually comment on TH-cam videos, and I'm generally more of a lurker here, but God...this hits real close to home. Listening to you describe your memory resetting every few minutes, saying the same things over and over again, having a persistent headache through it all, never recovering the memory from that time...that's pretty much EXACTLY what happened to my mom at the beginning of January. My parents and I all were suffering from COVID at that point, which (according to the doctor) can apparently, on rare occasions, screw with the brain enough to trigger something like this, which it did for her. My dad and I were in the same position Mal was in with you, trying to figure out what was happening and growing increasingly more worried as she kept asking us the same questions over and over and over again. Thankfully, she's doing much better now, but that was, without a doubt, the scariest night of my life. Sending all the good vibes to you and Mal, my family and I know firsthand how terrifying that ordeal must've been.
I am glad you have seen a neurologist and been tested. It is also remarkable how much you and Mal choose to share. Take care of yourself.
Good to hear you have a better understanding of what's going on at least. I also have suffered from ocular migraines, though for me it's much less frequent, maybe like once a year or so if that for the past ten years. Just like you described, I get a little visual distortion for a little bit and then if I lay down for like a half hour it's gone.
I'm very thankful that you made this video. I was just in ER with my mom last week with some issues, and she was diagnosed with having a TGA. I remembered this video and was immediately relieved because I knew it was something that wouldn't be lasting. Thank you so much for being open about your experiences with TGA.
Your description reminds me of a documentary I saw not too long ago called The Man with No Short-Term Memory, where after an almost deadly bout of flu he was in that state for decades, never remembering anything he just did and feeling like he wasn't there in the moment, as if he wasn't able to think. I can't imagine how scary it'd be even for a couple hours being in the state of remembering nothing that happens.
Geez...I can imagine that's been super scary. I've had some past and lingering memory issues related to chemo so I can understand a little of how it feels. I'm glad this isn't something as a result of a stroke or anything that you've found, and that it'll hopefully likely not happen again. It's particularly frustrating when you have something happen and there's just no real answer to why.
...I don't want it to happen again, but I would be fascinated to see it caught on camera. At the very least it would be an interesting diagnostic tool
Regardless, here's hoping you don't have to deal with this again. Good vibes~
Not gonna lie, I cried a lot this video out of sympathy for you. It sounds so scary and serious.
I don't experience TGA, so I can't imagine or truly understand what you went through - on your side of the experience as well as Mal's. I can only relate to the experience of dissociating and panicking, of feeling something is wrong with your mind and being aware that you need help. I wouldn't wish that feeling on anyone, much less you Stephen. I imagine Mal's heart stopped when she got the "I need help" text.
I'm so glad you're okay and that you WILL likely be okay if it EVER happens again. As always, thank you for bringing awareness to these topics and being so open. Please take care, and I wish all the best to you and Mal.
I'm glad this popped up in my recommended list. I've been watching your channel ever since you did the Zelda BOTW series and knew you and Mal both had faced some health issues. That had to be a frightening experience. Hope you don't experience anything like that again. Thanks for sharing.
I am happy that you can remember. I can’t remember anything that happened that day. I have lost six hours of my life. AccumulatedEmergency room bills.It is very frustrating to have to call someone because you can’t relocate your items in the gym that you swear you never went into. You’re lucky and I’m glad that you have been able to recall some of the information. At least you wrote some things down
Hi Stephen, I suffered an episode of TGA on October 3, joined some support groups, Googled endlessly and found you. Thanks so much for sharing your experience, mine was almost spot on to yours. I forgot some past stressful events (like my stepmom passing away in July), and my poor son had to tell me over and over again she died, and I cried every time. I had never heard of this before, and some in the medical field I've encountered don't know much about it either. Take good care, self-care is important for everyone, especially if we are in this club that nobody wants to belong to!!!
This literally just happened to me yesterday. Thank you so much for making this video. I've been chillingly frightened for the last several hours wondering what happened to that chunk of time. This puts me at least a little at ease.
Thank you for this video! It's amazing to have someone/something to relate to. I had my second tga experience today. 14 months since the first time. I also have occular migraines. Not nearly as often as tho.. It was nice to share your video to try to help my friends and family have a better understanding of what I went through. Absolutely terrifying! Thank you thank you thank you. Crossing my fingers there won't be a 3rd episode of this.
Damn. 2020 was such a shitty year for so many. The start of terrible times.
Throughout the years, we always joked about Stephens bad memory and how Mal was his external hard drive essentially. He would say he has a goldfish brain, he would ask Mal consistently for which day of the week it is. Occasionally I've wondered whether or not 13 years of constant memory dumping into video diaries would affect his brain somehow. This was a scary experience, but it sounds like hopefully it wouldn't happen again. I'm sending you good vibes and I hope the doctor eventually gives you a clear diagnosis. Here's to a couple more dozen years of your content, eh?
Man, hearing your experiences with TGA reminds me of Dory with short-term memory loss. I remember seeing my grandmother have dementia, which is really jarring because she went from being self-sufficient to being barely functional in a few years. She passed a couple years ago. Either way, we hope things get better for you soon, Stephen! Lots of love! 💚
The part about you writing down TGA twice and forgetting reminds me of that story about the British musician with amnesia and he spent a large amount of the early stages of his condition where he would write in journals every moment and it was just…repeated lines of the same thing. Things like “I am awake now!…I am finally awake!”
It gave me chills and made me very sad.
I praying for you and Mallory. ❤️
Hey Stephen, I’m really sorry that you got diagnosed with TGA. I hadn’t heard about it until this vlog came out, but I went online and found out something that may be of interest to you. I remember you mentioned on one of the other vlogs about getting a specific type of migraine. Turns out according to what I read, migraines can increase the likelihood that you’ll get TGA. I don’t know if that’s going to help you pinpoint anything but I just thought I’d pass on that information to you and Mal. I hope things get better for you soon.
that's really terrifying to hear, and i cannot imagine how you and Mal felt during it. and i hope it never happens to you again.
Knowing this now kinda makes all the "Bad Memory Grandpa" jokes in bad taste. I hope everything gets better, Stephen.
I don't know; I mean, he was making memory jokes *as it happened*, so it feels like he's okay with it. Which is a good attitude to have, really.
Kind of does yea but if he runs with it and owns it then it should be okay. If hes making the jokes and says "please guys continue" then it is what it is.
You two aren't wrong, but it is a little morbid to think about. I don't mind so long as Stephen's okay with it.
@@DarkusFireBlaze3582 That sort of thing isn't for everyone, but a lot of people are fine with it. In fact, there's a tendency where of people start avoiding the issue it makes the person feel worse about it, as it can emphasize the 'something is wrong with me' feeling. There's a REASON people in wheelchairs tend to laugh the hardest at wheelchair jokes, or why Carlos Mencia was particularly popular among those suffering from retardation and similar conditions. Treating them differently (outside of necessary accomodations) just reinforces the idea that something's wrong with them, whereas being willing to joke at their expense helps them feel like regular people.
@@adamchaplin9702 Well, I specifically asked about it elsewhere in these comments, and he said that yes, we should continue. He doesn't want us treating him any differently than before.
This showed up on my recommended…hmmm. Universe aligning or algorithms? I had a day-long TGA several years ago. I don’t remember any of it, but it scared the bejesus out of my
s/o. I woke up that day about 10 years behind real life, spent the day trying to do stuff for my kids (who were in high school), thinking they were in elementary school. Trying to clean things we no longer owned. I wanted to run errands, driving. My poor s/o had to manage me and god knows how, kept me from figuring out I was existing in the wrong decade. The next day I woke up back to normal, but lord, I was tired, stiff, headachy and bleary. Got to the doc: TGA. Hasn’t happened again. Thank goodness for my s/o.
Stephen, I hope you never have another episode. Mal, you’re a saint. 💖💕
This sounds so scary to experience Stephen, I'm really sorry you've been going through this. The part where you made the same joke twice while Mal was talking to you broke my heart.
It was when you were talking about dealing with vertigo a couple years back that I ended up discovering I have it, too (luckily nowhere near as prominent now as it was the year I found out I had it). I really hope the TGA is something that can be subdued with time too.
Also, how scary this must have been for Mal. Give her some love for us!
On the subject of missing memories, what essentially happened is that there was a disconnect between your short term memory storage and your long term memory storage, so when your short term memory tried to transfer it to long term memory, it was unable to get through and the data was lost. This is referred to as anterograde amnesia.
Great video. Thanks for sharing. I too had a TGA incident just a few months ago, which is what led me to your channel. Quite scary and bizarre, as you so well described.
My mother just got this today literally like 6h ago. I came to see if theres any info or experiences about TGA. It must be really scary feeling, I talked to my mom by phone since shes in hospital and she sounded super confused since couldnt remember why she was in hospital, how she got there, who called the ambulance etc.. She forget almost right away what we talked about, I just tried to sound calm and made her feel comfortable as possible and everything will be ok, but for now it must be very confusing but no need to worry about it. Forgetting everything after being talked of.. So scary!
This is actually happened to my father, its only happened the once, at the time we worked at the same place, as we were leaving for the evening, he noticed something on the ground, that was related to our work. We would remind him, he'd look back at the warehouse notice something else and this went on for about ten minutes until we finally said, okay let's go home and figure this out. My mother called his neurologist, talked to him said this is whats happening, get him home, and essentially wait it out. So after a few hours of going through the exact same questions, I wrote him a paper, of the questions he was going to ask along with the answers, everything else he did, like eat he was fine he could do, as long as it was passive. He knew us, he knew where he was, everything except the events of the day. In the morning the day after, he did remember that he had this paper and he was resetting a bit, and we had to tell him no that actually happened. To this day he still doesn't remember that day or what happened.
When you think about it, consciousness itself is bizarre. It's kind of a miracle it works at all. So you have 99.9% success now instead of perfection... Life is a crazy ride!
I’ve been suffering from migraines since I was eleven. When I was younger they used to heavily affect my motor skills, and the scintillating scotoma (which is a mouthful so I usually call it an aura) was terrifying to me. Having dealt with them for over ten years, I can see why most doctors would draw parallels between them and TGA, considering milder migraines don’t have as much effect on motor skills.
This explains the experiences that I've had when eating edibles. The symptoms of TGA sound exactly like what happened to, for example the paranoia and the resetting memory. Thank you Stephen. It's good to know it wasn't anything more scary than that.
I have to say I rarely comment on these vlogs, but given one of my deepest-rooted fears is "loss of self" which in my philosophy is tied very much to memory, it was a Rollercoaster hearing you describe your experiences.
I'm very happy that you will most likely be okay, and that you're taking it in stride in hindsight, which is weird to say because we have never met, and likely never will but hey I'm an empathetic person
I'm not sure I could have remained as calm or humorous as you described yourself as being, but it was reassuring to hear you talk about it, the way you have.
Stay Awesome Stephen
The real life Memento. That's pretty wild man, I hope that was the last time you go through TGA.
I'm sorry to hear that, Stephen. Hopefully you find a smooth path to medical and self recovery and can recuperate your emotions. This must've been super jarring. Feel better soon, buddy!
I'm glad you have an answer and that nothing deeper is wrong! It's unfortunate that you have dealt with this at all, but you sound confident that you will handle this well now that you have some answers.
(obligatory not a doctor)
I can't say I've experienced TGA specifically, but I do relate from dissociation due to other mental health conditions. Having gaps in memory and "general confusion" about what's happening is scary. Having someone there to support you is helpful and can lessen the distress for sure!
I also tend to have tension headaches/migraines when I'm most stressed which makes me prone to the dissociation (and vice versa), so perhaps the emotional charge of the situation is giving you a similar issue?
I hope you never have a severe TGA episode again, but I'm glad at your willingness to educate. You and Mal both have done wonders to help inform others about the reality of certain conditions, which is never expected but much appreciated.
Wow, I'm sorry to hear this happened to you, Stephen.
Sending good vibes. I remember you mentioning having to re-record the patreon video, so now it makes sense why. Definitely scary sounding. I am glad you're ok.
I’ve never hear of TGA before but it’s sounds terrifying, I can’t imagine going through it and I’m sorry that you did, I’m glad that Mal was there with you during all of this despite it being a scary experience for both of you.
Thank you for sharing this with us all Stephen, I’m wishing you and Mal all the best; I sincerely hope you don’t have to go through this again but if by chance it does I think that your idea of capturing it on film is a good one.
My grandfather had an episode of this actually, he was out counting butterflies as is one of his hobbies and came back with the similar "I don't remember what I've been doing" and needing to re-explain to him that they were on their way to the doctor every 4 minutes, and then it just wore off and he's been completely fine since. It sounds like a very emotional experience, but thanks for sharing your life and spreading awareness.
It's very jarring how similar these symptoms were to what I experienced with drug-induced delirium. It's really such a frightening, confusing experience, and my heart goes out to you, to Mal, and to anyone else who has experienced this. I wish you all the best.
I'm thankful you posted this Stephenvlog, my Grandma has been suffering from TGA and this has helped me understand her issue a whole lot more.
I would like to watch this all the way through, but I become incredibly anxious with topics like this. With that being said, I can not imagine how truly terrifying that experience was for you, and I'm so very sorry you had to go through it, and had it pushed back, and are still going through it. I am very happy and grateful that you have people there to accompany you and reassure you as you are dealing with this, and are continuing to hopefully improve! I wish the absolute best and hope that everything turns out Stephen Mal and Keppy!
At the risk of grossly oversimplifying the issue, the good news is that both episodes happened in January. So if the next episode happens in January 2024, then it's something you can plan around. Obviously I'd prefer you not have a third episode at all, but if one's and accident, two's a coincidence, and three's a pattern, then from my outside perspective, that sounds a lot better to me than it happening randomly.
Up until 2 days ago I had never heard of TGA....until my mum was diagnosed. She has still not regained all of her memories and I'm so worried about her, but her doctor says she will recover.
You are very brave talking about your own experience, so unlucky for you to have had two episodes....
really scary stuff! glad to hear you're more or less ok
Man. Sounds like seriously scary stuff, but glad it's not something to really need to worry about, at the very least. I respect that you're being real with us about this stuff, too. Hoping you never experience it again- worrying or not, it still sounds like a bad time.
Hi Stephen (and, of course, Mal)....I am pausing this video roughly half way through. This same incident happened to my mother-in-law several years ago. My wife was in San Francisco when it it occurred. My mother-in-law, in 2010, could not remember things/conversation that happened just moments prior. The doctor felt it was probably related to stress. Though I was not the one who suffered from this, I do know that it is FRIGHTENING AS ALL HELL....watching this video has brought up memories of this experience... I am glad you and Mal are doing okay. Wishing the best for you both!
Man that’s insane to see and yeah the brain is a scary thing to see when it thing happen to it. My migraines are now full of not gone but it caused blurred vision and incredible pain. To this day I don’t know what triggers it nor exactly what it is.
Also I love that you’d capture it on camera that’s so you. It’s rare and scary but thankfully it doesn’t seem to happen again if ever like you say. Keep on going and doing what you do! ✌️
i remember reading about TGA for my psychology course back in 10th grade. I don't remember much about the topic but your video gave a good refresher. I'm glad that you and Mal were able to confirm what it was and are trusting enough to share it. Sending Good Vibes to both of you so it doesn't happen again or if it does it's not as bad as the January 2021 episode. ❤
Much love Stephen and Mal
Wishing you both good vibes. It sounds extremely scary and I know I've experienced things similar, although I always thought it was annoying rather than scary.
Sometimes I'll ask someone what time it is, then takes out a bowl of food, and five seconds later ask what time it is again. I can't remember if I thought of the question, or if I actually asked it. I can't remember what I ate or what I did during the day unless it's a habit, such as going to class in the morning. I'll think about taking a shower while in bed, and I can't remember actually taking a shower until I'm laying in bed again. I can remember big details if something happened, like for example hitting my elbow on the shower wall or something.
Probably not the same thing, but I understand it is a very confusing time. Being alarmed or paranoid is a good word for it. You can't tell if you can trust yourself, or the others around you even if you recognize them. Did your doctor ask if you were stressed during the time, or really sleepy? I feel like mental health would have a big impact, but of course, I'm not an expert. I hope now that you know a bit about it, it'll be a little easier to understand! Again, good vibes.
TGA sounds pretty scary. I'm glad that Mal is able to help you out with this. Just like how you helped her during her surgery. 🙏
I almost hope it does happen again, not because I wish any distress or discomfort on Stephen or his family, but because it would be an incredibly unique and perhaps valuable thing to have documentation of this happening at the time that may help people both understand more about it being as close to a first hand witness as you could be and to let people who have suffered from it or think they have know what's going on
Hope this gets better for you love your content on both channels prayers for yall both.
Sending good vibes your way. I just had to stop what I was doing to listen to all of this cause omg that's quite scary. I'm glad you have Mal to be with you and vice versa.
Stephen, you are so brave. I am glad this likely doesn’t indicate further scary moments or health concerns, but I want you to know that even if it did, I (and I am sure most everyone here) would be here with you. You are brave to make the vlog at all, to make a vlog about this, but most of all you are brave to be able to ask for help. I’m sure your family is grateful that you have this invaluable skill. I respect you so much, Stephen. You have such an impact on so many peoples’ lives just by being yourself. Sending so much love to you and Mal and your folks.
I’m so glad you and Mal were finally able to get you to a neurologist and make sure everything is okay. While I don’t have TGA, I’ve had similar experiences before with neuro stuff and it is absolutely terrifying for both you and your loved ones.
I used to have chronic migraines due to an undiagnosed/untreated neuro condition. I was having migraines with visual aura like 5 times a week or more (sometimes multiple in a day) at one point. It was awful but anyway sometimes with these migraines I would get transient aphasia (language loss) and essentially forget how to speak my native language. I couldn’t spell or remember everyday words or use the correct tenses or understand other people or even communicate what was happening. That shit was terrifying and would usually last for like a half hour. I could sort of see it coming (like if I had already had the visual part and was texting a friend and starting to find it difficult to remember how to spell words) so I’d try to quickly find a friend and explain what was about to happen and how to help before I became completely unable to communicate. It was super scary every time it happened, especially for people who had never seen me like that before. And of course while all this was going on I had horrible massive head pain. Not a fun time.
I find the concept of forgetting things pretty scary just in general, so my heart goes out to you. I'm happy that you're able to share things like this, I feel like it's important to get things like this out there, regardless of if people knew you before it.
Honestly, the way this is described reminds me of what I often have nightmares about. In the dream, I come too after going through the motions and not remembering anything for weeks or months.