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- เผยแพร่เมื่อ 7 ก.ย. 2024
- Hey, so I decided to make a video about my experiences living with Speech Apraxia. I wanted to show people what a 21 year old sounds like with this disorder. Sorry about the video being so long. Hopefully you guys don't mind. Enjoy!
FYI- I did not edit this video.
Hey everybody. Thought I would drop a line here and say that I was diagnosed with apraxia of speech as well. At the time of my diagnosis, I was about 18 months old. I didn't start talking or say my first word until 3 1/2. My Mom put me in five sessions of speech therapy per week from 18 months-5 years old. I had moderate apraxia. Today, I'm 20, and if you met me on the street, there is absolutely no way anyone could tell that I had apraxia. The one person I have in my life to thank for overcoming my diagnosis is my Mom. She was my biggest advocate, and never gave up on me. Also, I'm doing well in college, and studying human physiology! Anything is possible, you are your child's biggest advocate in life.
Amazing! :D
Thank you for this!
Brilliant, my little boy and us where told this morning that he has apraxia. You automatically think the worse and panic yet the more videos I've watched the more hope I know my son will get better with it. He has over 40 words as of yet but struggles to ask for the right thing with associated word to it unless we tell him the correct word and then he'll repeat it. Its so frustrating as we know he knows what he wants.. thanks for giving me hope for my little boy
My son is 22 and is very lonely. He was very young when he was diagnosed. He’s always struggled to have friends even though he played team sports for 8 years and all through high school. Now he is really scared of getting a job(not being able to perform good enough). Not motivated to go to college. He wants to be a gamer and TH-camr but is struggling. I’m worried he doesn’t have anyone like him to talk to that understands him. Does anyone have any suggestions?
Thank you for recognizing the efforts that your mom made to ensure you succeed. I want to be that mom too and stay positive. I know these comments are from years ago but my son was suspected of having it today, he’s 2.5yr. I just want to be as educated as I can be in every single aspect I can think of to help as much as I can without being overbearing/overprotective parent either as I want him to be independent and experienced success and failures too.
Jaron, Thank you. Our son was diagnosed today, and my wife is on the verge of tears. I am totally sending her this video. She is so worried that he isn't going to have a normal life. You are proving otherwise. :)
Kelvin Gerold it'll be okay! I had this too, and I'm 22 now. I went to speech therapy for a total of 13 years. I'm a pre-nursing student, about to apply for the nursing program at my college after this semester!! 😻 I’m also thinking of becoming a dental assistant, so I need to make a decision soon lol
Kelvin Gerold can you tell us how your son is doing now, a year later?
Well i always know I had speech issues. But I always thought it was minor problems. I recently recorded my ps4 online play and I can even tell what I'm saying.
I had 8 years of speech therpapy now I am 14 going on 15 and I can talk people can understand me. Not only that but i am enrolled in flvs online, and all my grades ar good. But the thing is I wouldn't change me having apraxia, but you will have hand corridantion and once and a while a word that I get stumped on.
How are things going? I am that Mom right now with no support from my husband. I think he is in denial.
Thanks, my son has Apraxia as well. ALSO he is bilingual. So, its been fun. But he is getting there. Thanks so much for sharing your story. Spanish at this point is easier than English so we are letting him learn what is easier for him.
I was curious about those who are bilingual and have apraxia. Interesting to hear that he has no issues with Spanish.
my little sister has apraxia. when she was younger my parents took her to doctors and none of them could figure out what she had. All the doctors thought she was deaf at first. they even made her wear hearingaids. later one of her teachers figured out that she had apraxia and she began speech therapy. She is 15 years old now. she is still pretty hard for strangers to understand even some family can't understand her but I am the one who is the most close to her so I know what she is saying all of the time. she is my best friend. (:
I have a 5 year old son with your same story, he is very severe. It's nice to see my son metaphorically in the future, stay strong!
DaRyVision thank you. I hope your son is doing well!
Same here ❤️ You give me MUCH hope ❤️
Same
Jaron, I just came back to this 5 years after responding to this video and saw how many people had responded. This is the video that helped my wife see hope in my son having apraxia. This is the video that got her comfortable with watching other apraxia videos and helped her get my son the help she needed. Thank you.
This helped me a lot I spent the last week crying my eyes out. My daughter going to be 4 and she talks and talks and yells an we have no idea what she’s saying I know she is trying so hard, and as her mom I can’t believe I don’t know what she is trying to say. Watching this helped me so much realize we have a lot of hope with the right help. How are you all doing now?
@@CCAnne my son is now 9, my in-laws funded 6 day a week speech for a few years and now at 9 he is in speech 2 times a week. He lives a very normal life, his friends understand him, though he does have issues still you can understand him. His friends understand him and when he has trouble all of his teachers know so about his apraxia and just ask him to say it again slower and he is very comfortable with it. Have faith, it feels like yesterday he would just stand in a corner looking miserable because he couldn’t communicate.
I am 18 and also have verbal apraxia. Like you I started speech therapy early on, but I "graduated" from it in 2nd grade. I moved around a lot in middle school and I have had schools send me to their speech therapist and I have been told that there is nothing else that they can do for me. Recently, I have also almost had to think about what I am saying more because I am having trouble pronouncing everything. There are even some words that I avoid saying at all possible costs.I often feel really insecure when I hear recordings of my voice and have often thought about doing voice therapy to change it. Watching your video helps me feel a little better about myself and not so ashamed, so thank you for sharing your story!
+kherron7 Thank you for sharing your story as well!
kherron7 I feel you bro I have the same problem and Spanish is the worst. I can barely speak English and I have to try to speak in Spanish like fk this
i also have a huge problem with spelling words
Thank you so much for making and sharing this video. I have a 7 year old son with apraxia. He was diagnosed at 3 and I constantly wonder what he will sound like as an adult or what any adult with apraxia sounds like. You have given me so much hope and comfort in knowing the possibilities. As I write this I am in tears. I can't thank you enough. You are awesome for sharing this. I know it will help many kids and families dealing with apraxia of speech.
That's exactly why I clicked on this video as well. My 6yo is struggling with AOS but we found out he is graduating from one phase of therapy to the next ahead of schedule. It's so hard when people assume your child has a cognitive disability and they treat them differently. They need people to treat them like every other child.
I am a father of twin 4 1/2 year old boys. One of them has Apraxia. He has been in therapy since he was 3. He is a ever happy, every positive kid, but he is starting to realize he is different. Watching this helped me. I thank you for that. But more so it showed me that he has a future much like yourself.
Sean Dawley, my name is Samantha, I'm 18 and a apraxia as well, I also have a twin brother but he's doesn't have apraxia or anything he's really smart it's only me who has apraxia between my twin brother and I. 💙
OMG, we love you Jaron! We have a little boy who is 7 right now with CAS, he was only 18mos when we learned it and we, too, have been to "a LOT of doctors." He has global dyspraxia, so as hard as speech is, so is pointing or walking or anything else. He works very hard, and we are so proud of how far he has come. As a mother I am very grateful to you. I know not every kid with CAS will turn out like you, but seeing even one such amazing person is so moving, even though you have lived it, you can't know what it means to a parent, until you are one. Thank you for not editing it, too. I understood every word, love your sense of humor and your honesty. Thank you
You're an inspiration! My son has speech Apraxia, is in college and is doing very well. God bless. :-)
As a dad with a son with CAS I appreciate you putting this out there! thanks, bro.
James Panzini thank you! I hope this really helps :)
My 8 year old with apraxia has been asking me about adults with apraxia. He seems more aware of it than he ever has. I wondered if he knew how he sounded to others. It doesnt seem like he does. Would it be helpful for.me to record him speaking and show him? Hes such a trooper. He doesnt let it hold him back all. He volunteers to pray for everyone.
Thank you for sharing your story. Its so helpful!! Im going to show my son your videos so he doesnt feel so alone. Youre amazing. Youve overcome so much and youre so strong. Thank you for paving the way for others and just being so genuine and authentic. God bless you sweetheart!
I am not a native English speaker and sometimes I don't understand what people say. However, I believe your speaking is totally clear and understandable! because I can understand it. good job :)
I grew up with the same condition and art really helped me out. Art was a big part of my life to help express myself. I also had melt downs when I was in preschool and elementary because they didn’t understand what I was saying. Thank you sooo much for sharing.
Thank you so much for doing this video. My little sister had Speach apraxia and was diagnosed at 17. For a long time we could always tell she struggled with speech but your video has helped me understand how she feels and how there is hope for her.
Hope for her in the future
Hi Teresa,
I was diagnosed around that age, too, actually, found that funny
Thank you for posting this. My son was diagnosed with Childhood Apraxia when he was 2 and is now in Kindergarten. It helps me to see the possibilities. And when he is ready, I think this video will help him, too.
I am exactly where you are. It breaks my heart that my 2 year old can't say I love you yet. He is the sweetest boy though. This video gives me hope
Same. My 6 yr old is just starting kindergarten.
I actually have two children with verbal apraxia. My 10-year-old had come a long way but it's great to see how far you've come to reassure me that things will be fine when she's grown. Hers was diagnosed are 'severe.' I also have a 5-year-old who has it even more severe than she did.
I have apraxia too. I am 13! Thank you Jaron. 😊
Thank you for doing this! My darling little boy is almost 3 and he has apraxia. Like you, he tells us all kinds of things and we have no idea what he is saying. I am worried about bullying and thinking we might need to home-school him or find a private school. I love your way of expressing yourself, and I know when my son is older your courage and perseverance will inspire him. Thank you again.
I had CAS and went to public school. I remember getting frustrated that people couldn't understand me and was almost held back in kindergarten because of it (mom fought to have me advance). Thankfully I didn't experience any bullying in school because of my speech impediment. Especially with early intervention, I'm sure your boy will be fine in school!
Thank you so much Jaron, I am from Saudi Arabia and my 3 years old was diagnosed Apraxia today. My wife and I were panicked thinking he won’t have a normal and successful life, until we saw this video. Watching this video of you made us feel better. You are great 👍
Thank you Jaron, you're a strong person. I'm studying to be a SLP and have more hope after seeing this. I want to work with adults and know it will be harder than younger children but if they are anything like you I'm sure we will have fun anyway.
+Nicole Johnson Good Luck!
Your video gives me hope for my 12 year old son. He was diagnosed when he was 3 years. I'm going to show him this video to inspire him. Thank you so much. I wish you the best.
I really wish there was more of this kinda of awareness on Apraxia!
Thank you so much for sharing your story. I understand what you say nursing school is tough! I just graduated and started my first big girl RN job! But at the same time, I'm learning that my son is apraxic. I'm super emotional about it right now and your story has helped me. You're going to be a great nurse! Good job.
Thank you.
My 5 year old just started speech therapy, and he gets very frustrated at school when teachers and other kids dont understand him. My wife and I understand him perfectly, so not being understood is a new experience for him. You just helped me understand his frustration.
Be proud of your "flaws". Your personal and professional achievements mean do much more knowing the obstacles you had to overcome.
Hi Doyle,
Just wanted to comment, I have speech dyspraxia (another way of saying apraxia basically). For me, that has followed me through to college, it's not too bad though, others around will repeat what I say to the teacher if they understood me.
How is your son doing?
@@Ocean40197 by the grace of God, you'd never know he had any issues now, 6 yrs later.
He had a great speech therapist when i made this comment, and by the time he was 7 or 8, his speech was on par.
Now his little brother was born 5 yrs back, and his speech was effected by the same thing.
Both were NICU babies, and apparently their speech issues arose from having a vent tube in their throats. So my youngest, they tore the flap that allows you to swallow, and early on, he was diagnosed with laryngo malaysia. (spelling it how it sounds, sorry. Lol)
Starting at 6 months, he had surgery 5 times until he was 4 years old, to fix that flap in his throat. That delayed his speech pretty bad, but he's had speech & feeding therapy since birth. Covid and masks did not help.
So my youngest, at 5, is a little better than his older brother was at 5, but his throat problem, which stemed from vent tube damage as a premature baby in the NICU, was much worse than his older brother.
We power through our problems, you know. After yrs of surgeries, and spending so much time in children's hospitals, i've seen so many kids and families with so many different issues.... So we are just thankful that we have 2 healthy boys to raise. We are supposedly done with corrective surgeries for now. No special thickners, and speech for my youngest is on par with most preschoolers, and getting better.
When you see kids with serious, life threatening problems, and families who have to commute 5 hours to visit their child who can not leave the hospital for over a year, it really puts things in perspective. I still pray for those people and their kids. It really changed my life.
My son has severe apraxia..
your video makes me so happpppy, thank you.
Thank you for sharing! My 3 yo son was just diagnosed with moderate to severe apraxia. It's a mixture of hope and fear and seeing your video added to the hope.
Can you give an update on the situation? Thank you
@@darlenecrone5585 We're in speech therapy twice a week. I've seen improvement with a lot of words, but no sentences yet. I've been learning a lot along side my son. We're in this together ❤
@@Ali-dj1cc thanks for replying . My 3vyo granddaughter has mild cp and apraxia. Shes almost 4 now. Words are slowly coming and even a few of them together. Prayers are with you and for all the little ones.
@@darlenecrone5585 I'm planning on it :)
We have been shocked! Granddaughter is now 4. All of a sudden she started saying many words. Then sentences. She is still missing sounds like " L's" but wow!!!! Her speech therapist was doom and gloom and is now speechless herself.
Thank you so much for sharing your story. I have a 2 year old who has is red flagged for apraxia. He is only just starting to imitate sounds/basic words so we will go for his official evaluation in another 6 months (assuming he is imitating enough to evaluate). It has been weighing on my heart a lot lately on what his future will look like. Your story gives me hope that with continued support and therapy he can go on to accomplish his dreams. Congratulations on all your successes
Thank you for your video! My daughter is almost 2 and motor and speech delays which have me ao worried about making the right decisions for her. I've done a lot of research, and many of her symptoms are pointing to speech Apraxia. Your video gave me so much hope for her future, no matter how her doctors diagnose her in the near future.
Jaron! You have NOTHING to cringe about when you go back and watch that video. I can't tell you how much I appreciate your honesty, humor, and humility. You are the face of hope to mothers like me who worry about my child. For you to say apraxia has been a blessing fills my heart with joy. I absolutely loved watching this. Thank you so much for sharing. I'm also an SLP and I will be showing your video to many clients to come.
I agree with Laura. NOTHING to cringe about! You are bringing great joy to many parents of children with apraxia through your honesty and positive perspective on life. We have speech therapy 3x's/week all summer long for my daughter and listening to you has just made my day :) P.S.**Congrats on getting through nursing school! As someone who has spent extended time inpatient at hospitals, I think the world needs more male nurses. You remind me of my oldest son, caring and funny. I've always told him he should go into nursing!
+Laura Smith Awe thank you! That means a lot to me. I'm glad that you're using this video :)
+onomatopoeia onomatopœia Nursing is a great field :)
Hi Jaron! Thank you so much for doing this video. The doctors are working on diagnosing my three year old niece with apraxia, and seeing a "big kid" who has overcome it is truly encouraging and inspiring. You are an incredible young man. Good luck with your future. :-)
Hi, I'm Lola and I have Dyspraxia. When I was younger my mum noticed that I wasn't speaking when other children was, around the same age your mum noticed for you, she went to the doctors and was referred to a speech therapist that specialised in autism. This meant that people supposed that I was autistic but we found out that I had verbal dyspraxia. I don't ever remember not being able to speak because I just assumed everyone could understand me. My mum fought for me to have a teaching assistant so that I was able to attend a mainstream school, as I was told I would never be able to read or write if I did, I proved then wrong having achieved lots academically and outside of school. I usually say that I could speak properly when I was 6-7 but I still struggle to his day and get taken the mick out of when I say the wrong word or blur my speech. You are the first person who I've found that I think has been on a similar journey.
Dude I'm so proud of you! I suspect my 2 year old has speech apraxia. I can only hope he'll have a great attitude like you.
Thank you so much for making this video. My four year old son has apraxia and with so much being unknown it's extremely wonderful hearing your story. It has been so inspiring and encouraging. So again thank you.
Can you give an update? Thank you
Thank you THANK YOU! This video has given both my husband and I hope and brought us both to tears. Words can't tell you how awesome it is to hear you speak so well and to tell your story! You remind me of my son who is currently 6 but my husband and I both said we can hear our son through your words. Thanks again for the uplifting and educational video. I wish more would put themselves out there like you. Good job with schooling and becoming a nurse! Rock on! :-)
Jaron, Your work ethic to overcome Apraxia is outstanding. I would be honored to have you as my nurse.
You are adorable, bless you fur sharing. Thus video helped my daughter to bring my grandson, he’s 3, to see a doctor and get a referral for speech therapy. We knew he was having a speech problem when other kids in his age group were able to speak clearly. Thanks again, you’re a really sweet young man.
Hey Jaron , i write from Rio de Janeiro - Brazil, i have a little boy with 2 years and 7 months and he has Apraxia just like you had. Its really cool, as a father to watch your video. Thank you so much ! I cried a liitle bit but I also think like you, i like to see the positive side of things, you know. You are 21 by now maybe, and you faugth and won this Apraxia thing , bro !! You are a winner !! As my son will be too !! Im sure !! How many guys in your age never had an obstacle in life ?? Any new difficult will be nothing for you , just remember what you did and you will be stronger !! Thank you again !!
I would like to thank you for this video. My son was diagnosed with Childhood Apraxia of Speech two years ago. It gives me hope to know that people are able to overcome this disorder and my son can have a future much like yours. Thank you!
I can't thank you enough for this video. You have given my family hope.
Thank you for this video. My son (currently 4) was diagnosed at 3 with speech apraxia, but he had been receiving speech therapy for a year before that since we thought it was a delay. I'm glad for your success and glad your mom was such an amazing advocate for you.
thank you so much for this video. My daughter is 2 1/2 and i had never herd of this disability till her diagnosis 5 months ago. And I always wonder which no one can answer if she will ever talk properly. And you give us hope ;-) she is just like you how she wants to do all these things.. she wants to dance and take gymnastics and be a regular kid. And your story has given us so much hope. Thank you so much for this
Thank you for this video! My son was diagnosed this year & he is 5 going on 6. He just started kindergarten & receives speech therapy at home & school. Your video gives me hope for my son that he'll one day have full speech. God bless!
Thank you Jaron for sharing this video. My son was diagnosed very late when he was 5,5 years old with servere Apraxia. In Germany it is not very known within therapists, so you can guess, it was quite a struggle. He`s 12 now and luckily doing well and a strong person, like yourself! Good luck and thanks again for sharing.
Dear Jaron, yes this did help a lot, thank you so much, you can be proud of yourself and also looking to the fact that you are in College is really giving me hopes for my 5 year old who faces a similar journey. Again many thanks and good luck with your college endevour.
I hope everything is going well!
This gives me hope, your speech sounds great, but most importantly you have a great outlook! I can tell you have had to be strong in life. I don;t think people can fully appreciate just how much a language impairment can affect someone, the nuisance of having to repeat yourself more then once to get someone to understand, awareness that your speech is different, anxiety, and just the general exhaustion you must feel at the end of the day having to work so hard at something that just comes effortlessly to others. My son ( age 12) has apraxia and a language disorder (dyslexia) I know he has to work really hard at his speech and his school work. My heart breaks for the daily struggles he goes through. As his mother i want to push him to improve but i also want to let him just be him. I also can't hear his speech disorder as clearly as others can because ive developed the ability to lip read over the years. He's been in speech therapy since the age of 3. Its hard as a parent because people like to bring it up, mainly teachers giving you a laundry list of your child's weaknesses not bothering to mention the positives. My own mother, loves to constantly bring up how she can't understand him on the phone and make up reasons (seemingly in an effort to prove its my parenting at fault because i let him play video games and watch tv sometimes) It bothers me when others approach me because they can't understand him. Like as if its so hard to the decent thing and clarify what someone is trying to say with them instead of treating them essentially like a non human. His main issue now is he speaks too fast. I think he does this out of habit trying to cover up the fact that he makes speech errors, or maybe he is just excited. Its encouraging to hear that you didn't get bullied in school for it. My son has been at the receiving end of a few rude comments. I Still worry a great deal about how he will be treated in high school, he doesn't always wanna talk to me about mistreatment. I can tell when he's had a bad day, because he is moody towards me, and typically we get along great. I often wonder what his speech will sound like when he is older, i used to wonder at age 3 and so on at the earlier years i figured he would be speaking 100 percent clearly before age 10. I now realize, he may never be 100 percent coherent with his speech no matter how hard he works at it . Likely he will improve greatly as you have, but whether he does, or how much he improves, in the large scheme of life it doesn't matter its who you really are that matters most! Thanks for the inspiration and best of luck to you in the future!
thank you so much our daughter will be three soon and has a speech delay. she loves music too. thank you for this. you gave me hope
Thank you for posting this. My son has not been diagnosed with Speech Apraxia yet, but he is working with Birth to Three right now. A therapist comes out once a week. I teared up when I watched your video because you seem like a very fun loving guy, and remind me of how my son could be one day. He has such a goofy personality. I worry all the time about it, but seeing this video and hearing where my son could be one day with supportive people in his life is very encouraging. Thank you.
Hello,
My son has autism and childhood apraxia of speech. I have been so worried about whether he will speak because he is about to be five and still has no more than ten words and they are unintelligible to most people. He has been in speech therapy since two and I have not seen a lot of progress. I know this video is old, but thank you for posting this. I am happy you gained the ability to speak and that it is understandable. I hope my son learns to speak.
How could 15 people dislike this ...? So strange !! Thanks so much for this video!
Thank you. My daughter was diagnosed a year ago. This helps me to deal with the future. You are wonderful! 😊
Thanks for posting this video, Jaron! I'm studying to become a Speech-Language Pathologist like some of your other viewers and I'm glad to know that your therapy was helpful. Thankfully, I will also be able to work with awesome people like you someday. I admire your bravery in sharing your journey; it's never easy to show vulnerability, but you did so selflessly for the benefit of others. God bless you! Wishing you a lifetime of happiness.
Thank you for sharing your story. My 4 year old has apraxia and I have been fighting for her delays to be acknowledged for years. No one is able to provide a prognosis due to lack of research so seeing you doing so well is amazing. Thank you.
I just want to say how you are an inspiration to others. I haven't seen a doctor yet for my son who is 3 years old who I'm an very certain has speech apraxia. You have shown me (and I'm sure others) that nothing can stand in your way. ❤️ God has blessed you with a beautiful heart. Xox keep being the amazing you!
Hi Jaron! I think you don’t have any idea how wonderful it was to found you on you tube. I have a five year old daughter. Two years ago She was diagnositicated with apraxia, the therapist who evaluated her told me that my daughter could never speak fluently, that She would only speak in short, very short and simple sentences and that it would be difficult for her to have a future at school, that means would be highly improbable to achieve a career. But finding you and seeing how well you are doing have brought me more hope. Thank you very much for shared part of your life without imagining how significant it is to hear you speak. Congratulations for all your achievements and may God bless you and continue helping you in your goals, in your plans and dreams that you wish to achieve. once again, thanks for everything!
Hi Jaron,
I am a mature aged student and I am training to be a Speech Pathologist. Thank you for this amazing video, how generous of you. As a Mother, I was in tears when you spoke of the bullying. You are an inspiration! All the best with the rest of your life!
Thank you, my nephew has apraxia he is now 11, & is doing well with his speech but at one point we couldn't understand a thing he said. Great job! I love your positive attitude!
Your video that features your remarkable speech progress has touched many people, Jaron. Thank you for bravely creating and sharing it to give many families hope! I'll gladly share it on my social media sites soon. ~Keri
+myspeechparty.com Thank you :)
God Bless you. Thank you for sharing and understanding that parents DO want to know what the future can be for our children. My son is 6 years old and believed to have apraxia. I am desperate for his speech therapy to increase so that other children can understand him so that he can make friends. Nothing but love and good wishes to you - always!!!
Thank you so much for this video. Speech Apraxia was completely unknown to my family and I before my sweet (now) 3 year old came along. He's currently involved in speech therapy and is making such great progress. You bring such hope to my little man. I'm so glad you have been able to conquer your speech challenge, I know my little guy will be able to as well. Thanks for showing us the end result of early intervention, hard work and love!
Thank you so much for sharing your story. Your speech sounds quite good actually. I currently work with a middle school student with apraxia and I think your experience and this video will really help and motivate him. Best of Luck to you Jaron!
Thanks so much for posting this. My niece has speech apraxia, and she posted this saying that it speaks her mind very well. I hope all your plans are progressing well. You're clearly an intelligent and caring person who will do well in life. (Like my fabulous niece.)
Thank you for posting this. My son is 3 in 2 months and we believe he has apraxia. You are amazing and give me so much hope for my boy.
Thank you SO much for sharing this video and your story with us. My son isn't old enough to be formally diagnosed with speech apraxia, but his SLP is pretty sure that's what he has and his symptoms match up. I was completely heartbroken and overcome with despair, worried about the obstacles he would face his entire life, until I watched your video. I still feel overwhelmed at not being able to help him as much as I would like, but you gave me such hope and encouragement iwith your testimony. Thank you for giving other parents something bright to look forward to!
THANK YOU SO MUCH FOR YOUR VIDEO !! i have a two year old who recieves speech therapy , has no autism but its obvious he has speech delay. Your video gives me hope that we put our own limitations !! GOD BLESS YOU
Good information,we just discovered my 3 year old daughter has speech apraxia . This video is a total awareness to the world so ppl can understand what other ppl go through from an early age.
Just want to add my voice to the parents saying thank you for this video. my three-year-old has apraxia and my wife and I are both asking ourselves what his future looks like. To see you gives us a lot of confidence bat everything is going to be okay. Thank you for making this video. You've done something really great.
I just wanted to say how much I appreciate your video. I have a 4 year old with apraxia of speech. He's been in therapy for 2 years and is considered severely delayed in his speech. It's encouraging to see how you've persevered and overcome your challenges. In a little over a year, he'll be starting school, and I am concerned about his getting teased. Is there anything in particular that your parents said or did to help you out when you faced teasing at school? Thanks so much for posting this video, your honesty about apraxia, and for showing an unedited version. It's really helpful to us parents out here in cyberspace!
Thank you so much for posting this, my son was recently diagnosed with apraxia of speech and i feel so heartbroken..you have given me hope, thank you for that
My almost 2 year old is about to be diagnosed with apraxia. He only says jibberish. He wants to talk so bad and loves being social. He only says mama and bye and those dont even sound right. He will say a long sentence in jibberish and be so happy saying it. He doesnt imitate any words. Its scary not knowing the future. Also I worry about school and bullying. Thank you so much for this video.
My 3 year old son has just been diagnosed. Thank you for posting this!
Thank you Jaron for this video. My little boy is 4.5 and has speech apraxia and I spend everyday worrying about his future and how he will be able to communicate as an adult. Your video gives me alot of hope that he will be able to overcome his challenges one day.
Hey Jaron, I know you probably won't see this haha but I just wanted to let you know that this video really helped me to feel for people speech apraxia and today I'm actually going to volunteer for a fundraiser for speech apraxia today with this business I work with as Rapunzel. I'm so excited to make these kids days after hearing this story.
I would also like to add that you speak so well, I know how much harder you have to work just to talk! I watch my son struggle every day, thank you thank you thank you x
I know this video is old. But you are my inspiration! I've been on this journey with childhood apraxia of speech with my son who is 3 1/2 for a long time! I know no one else personally who has it. You are awesome! I hope you're enjoying your job as an RN!
Hey Jaron, good on you for making this video! It's so nice to know there are other people out there who are fighting battles similar to yourself. I am about to qualify as a RN this September :) Nursing school was so hard when giving handovers ect there were times where I would just come home and cry through frustration of not being able to communicate as efficiently as I wanted to but by the end of it, it was just another situation which I learnt from and made me stronger. I am with you that having speech dyspraxia (British term) has made me into who I am and I wouldn't change it, it has also taught me a lot and given me insights into situations which others will not experience and I can use that to help others. This Friday I have a job interview to become a health visitor which is a nurse in the community which works with families and young children. I hope that I am able to help others to recognise these development issues and show that they can become a strength with the right support and hard work :) All the best with your future career and thank you for sharing
Jaron, THANK YOU for sharing this! I'm a grandmother of a 2 year old who has been diagnosed with apraxia of speech. He's a funny, happy, energetic little boy. Your success gives me such hope! You're an intelligent, accomplished, well-spoken young man. Thank you!
Thankyou for the video it helped us understand more. My son is 5 and has severe verbal apraxia. Thank you for the time you spent making this.
Thank you for this. My adult son (24) has exactly the same symptoms as you describe talking to your mother. I didn't even consider he doesn't understand that people find him difficult to understand.
Thank you so much for this video and your courage. My 4 yr old granddaughter is fighting this fight. The words are coming slowly. I learned a lot.
Jaron, my daughter has Apraxia and we have been treating for 5 years. Your video has been helpful for me. Thank you for sharing your journey
Thanks for putting this up / out there, Jaron.
You are doing a fantastic job of handling your circumstance. I have a 19-year old who is dealing with apraxia and a severe stutter. I'm showing him this video and hopefully he can use your experience as a springboard to take his progress to the next level.
And congratulations on the RN, and I assume your BSN in 16.
It can take you a long way, and you can affect far more people than you will ever imagine - says the spouse of a Former NA who went on to get her BSN and then her MSN/CRNA. It gets waaay better!
Cheers!
+Jody Silvers I graduate in two weeks with my BSN :). Planning on my MSN real soon.
Thanks Jaron, my daughter has this and we have seen about 15 therapists and specialists in the last 4 years. We have found a therapist who is just wonderful . Your story made me cry as I see my daughter in you.
Wow truly a blessing to see you talking about the exact same thing I deal with and all the OBSTACLES that we have deal on the daily and its awesome to hear another person like you spreading a positive light on things. THANK YOU I REALLY APPRECIATE!!!
You are a huge inspiration to families navigating the Apraxia journey. You sound fantastic. Thank you so much for posting.
Tysm this gave my mother so much reassurance. My brother was diagnosed with speech apraxia, and she literally cried herself to sleep. This made her feel so much better
Thank you for posting this. My 2.5 year old was just diagnosed this week. She is already getting made fun of by 3 year olds not understanding why she cannot talk and how she talks.
Your description of what yiu experienced is so articulate and organized. Thank you for being courageous to share this so others may benefit.
Thank You so Much for sharing We just found out our grand daughter has Apraxia of Speech she just turned 3 on July 10 , 2016 God Bless You ...... You are Precious !!!
I’m so glad I found your video. Thank you for sharing your story.
I feel comfort and hope for my 3 year old niece that was diagnosed 6 months ago. You are the type of person I always wanted my kids to look to. Positive through hard work.
Professional role model. You are awesome. I’m glad you didn’t edit the video. It was perfect as is.
God Bless you all your days.
Thank you Jaron for making this video and sharing your experiences. My son has speech apraxia, really touched to see the wonderful, sweet and caring adult he could become. All the best to you, God bless
Jovita Sosa I agree with jovita! I thank Jaron for sharing and I pray my son becomes just as confident & intelligent as Jaron. I personally can not even tell that Jaron has any speech issue! he is amazing!
Thank you so much for sharing!! My 3 year old was diagnosed a couple months ago. I have been overwhelmed researching trying understand what the future will hold for him.. Thank you Thank you Thank you!!!
God bless you, God bless you so much. I'm moved to tears watching this. We are planning to get our son tested and suspect its Apraxia and this gives me so much hope.
Thank you so much for sharing, you are an inspiration and God sent to so many parents, me inclusive. God bless you as you have given us a truth to hold onto for our own miracle and testimony as we walk with our son. Continue to excel in all you do.
Thank you for making this video. My daughter is three years old and has been diagnosed with apraxia of speech. We knew from around 18 months that her speech wasn't coming along, everyone told us to relax. It's amazing how everyone is an expert when they haven't gone through this themselves. Seeing and hearing you is really inspiring. We are proud of our daughter, she has a huge personality for someone with no words. I can see that apraxia made you a very kind young man. Good luck with your nursing career. I wish you all the best.
Thank for sharing, like Nicole I am in grad school to become an SLP. You giving us your first-hand experience living with apraxia is amazing and will help students and families learn more about it.
Hi I am 10 and 3/4 and I have apraxia i was diagnosed at the age of 1 and 1/2 and have not been able to say anything or get out a sound until 5 I would clap 2 times and point to the things I want. I have been in speech therapy 4 days a week ever since and now people can under stand me I know how you feel, people can be the meanest but you can let them beat you down or then they know your week. I love and embrace my apraxia I love music i sing and play the piano thx for making a video about apraxia! much love here!
Thank you for posting this! My 13 year old needs a little more inspiration to push when he doesn't want to go to speech. You're just what we needed!
I'm a 38 year old dad with a 3 year old just was just diagnosed with CAS. Watching this made me cry for the first time in years... I am so worried about my son, and all the bullying that he most likely faces in the upcoming years, worried if he will live a normal life, or will he be generally okay??? Thank you for making this video. You have shown me that yes, my son has a very good chance at being just fine...