Nurse here as well also with lymphedema. My lymphedema is in my right arm and trunk. I developed neuropathy through my chest, breasts and now, both arms, greater in my right arm. I wish those of us in the medical profession were more informed in identifying and addressing lymphedema/lipoedema earlier! I told the Nurse Practitioner at the physician’s office where I go, that something wasn’t right when I first experienced issues. I was first told that the enlargement was because I was swimming. Then when the right arm was significantly larger, I was told it was simply because I was also right hand dominant. I suggested lymphedema because of past surgeries I had but she assured me that I was imagining it. This year she said, “I bet you have lymphedema.” Yes, I visibly rolled my eyes! This year, I finally started with treatment. I can’t help but wonder if this was more well known and more information was out there with providers, so many cases would be treated sooner, possibly with better results or even preventing a lot more suffering! Perhaps some people wouldn’t ever have to get to stage 3. Just finding anyone to treat or evaluate lymphedema seems to be a problem for so very many people. I see so many times spammers advertise on the support pages on Facebook with someone promising some miracle cure. So many people have reached a point that they become so incredibly desperate that they will do anything! It breaks my heart when I see members of the pages believing in these “cures.” The medical support and resources for this disease is often limited. Many times insurance won’t cover the needs people with this condition. It is honestly amazing that in the 21st century, so little is known and medical professionals are not nearly as aware of lymphedema as they should be. Anyone who goes into treating this condition as a profession, you are going to corner the market no matter where you are!
Walking, Movement is important. Jump lightly on a small trampoline daily. Dry brushing before a SHOWER or a epsom Salt BATH SOAK. Seems to help some. Chronic disease for lifetime. 📝 Note.
Another nurse here, thanks! This was helpful...yes, so much disinformation re lymphedema among clinicians...they usually just want to throw diuretics at it... Er often the worst...
I have lymphedema from my cancer surgery I didn’t know what was happening to my body until I found a primary doctor that told me it looks like you have a lymphedema I said what the heck is lymphedema I have had lymphedema for years. I was so afraid because I was gaining weight every day my weight was different and it was going up and up I did see several doctors all these doctors did not tell me that I had lymphedema they all told me I had severe. rheumatoid arthritis and also they told me I had fiber myalgia. I have lymphedema all over my body but my left side is the one that feels the pain and the inflammation the heaviness in my legs I also wear 1/12 shoe size bigger I feel so uncomfortable when my blouses do not fit my left side is tighter than my right side but now that I found out that is lymphedema disease and it’s not curable I am so very very very angry.
I also am a nurse & am very angry too. Went to so many Dr’s & received very few answers. Went to a Dermatologist for a different reason, at the end of the visit I said by the way can you just look at my leg & tell me what these blister things are? She promptly told be I had lymphedema & needed specialized care & sent me to one two lymph specialists in the state where I started on a plan of care. My primary Dr never seemed to notice a thing even though he saw me frequently. Thank-goodness the dermatologist spoke up. Feeling for you. The lymph specialist close by focuses her care on cancer patients, so I am just out of luck now. But I am learning a lot from videos like these.
Nurse here as well also with lymphedema. My lymphedema is in my right arm and trunk. I developed neuropathy through my chest, breasts and now, both arms, greater in my right arm. I wish those of us in the medical profession were more informed in identifying and addressing lymphedema/lipoedema earlier! I told the Nurse Practitioner at the physician’s office where I go, that something wasn’t right when I first experienced issues. I was first told that the enlargement was because I was swimming. Then when the right arm was significantly larger, I was told it was simply because I was also right hand dominant. I suggested lymphedema because of past surgeries I had but she assured me that I was imagining it. This year she said, “I bet you have lymphedema.” Yes, I visibly rolled my eyes! This year, I finally started with treatment. I can’t help but wonder if this was more well known and more information was out there with providers, so many cases would be treated sooner, possibly with better results or even preventing a lot more suffering! Perhaps some people wouldn’t ever have to get to stage 3. Just finding anyone to treat or evaluate lymphedema seems to be a problem for so very many people. I see so many times spammers advertise on the support pages on Facebook with someone promising some miracle cure. So many people have reached a point that they become so incredibly desperate that they will do anything! It breaks my heart when I see members of the pages believing in these “cures.” The medical support and resources for this disease is often limited. Many times insurance won’t cover the needs people with this condition. It is honestly amazing that in the 21st century, so little is known and medical professionals are not nearly as aware of lymphedema as they should be. Anyone who goes into treating this condition as a profession, you are going to corner the market no matter where you are!
very informative. very helpful. Thank you for speaking out.
Thank you for your time & wllingness
Walking, Movement is important. Jump lightly on a small trampoline daily. Dry brushing before a SHOWER or a epsom Salt BATH SOAK. Seems to help some. Chronic disease for lifetime. 📝
Note.
How does one get the links to your resource guide?
Can we get link to bibliography you mention?
Another nurse here, thanks! This was helpful...yes, so much disinformation re lymphedema among clinicians...they usually just want to throw diuretics at it... Er often the worst...
I have lymphedema from my cancer surgery I didn’t know what was happening to my body until I found a primary doctor that told me it looks like you have a lymphedema I said what the heck is lymphedema I have had lymphedema for years. I was so afraid because I was gaining weight every day my weight was different and it was going up and up I did see several doctors all these doctors did not tell me that I had lymphedema they all told me I had severe. rheumatoid arthritis and also they told me I had fiber myalgia. I have lymphedema all over my body but my left side is the one that feels the pain and the inflammation the heaviness in my legs I also wear 1/12 shoe size bigger I feel so uncomfortable when my blouses do not fit my left side is tighter than my right side but now that I found out that is lymphedema disease and it’s not curable I am so very very very angry.
I also am a nurse & am very angry too. Went to so many Dr’s & received very few answers. Went to a Dermatologist for a different reason, at the end of the visit I said by the way can you just look at my leg & tell me what these blister things are? She promptly told be I had lymphedema & needed specialized care & sent me to one two lymph specialists in the state where I started on a plan of care. My primary Dr never seemed to notice a thing even though he saw me frequently. Thank-goodness the dermatologist spoke up. Feeling for you. The lymph specialist close by focuses her care on cancer patients, so I am just out of luck now. But I am learning a lot from videos like these.
Can anyone contact me? I am trying to talk and would like to get treatment asap. Please help me.
Elevation of legs for how long? How many times a day? Women experience excessive WATER WEIGHT through Out LIFE. A HASSLE .TIME STEALER.