Tony, thank you so much for sharing your personal experience and providing information that made living with a catheter and prostatectomy surgery far less frightening. I will never be able to thank you enough. Best wishes to you for great health and happiness.
Awww man, thanks for the kind words. You made me smile this morning and it makes me really happy to know that the videos helped you out. Cheers and wishing you well. Tony
Hi my husband was sent home with catheter as you say no advice or catheter to change weekly. He was poorly so up to me to sort it out. You were very helpful and to the point. Thanks you are doing a good job helping a lot of men.glad you are now well to enjoy life. Thanks again
Hello and thank you for the kind words of support....it really means a lot. It seems that you were not given any information about life with a catheter. I'm sorry. It keeps happening which is awful. It's truly the definition of "adding insult to injury", however, I'm glad you found the videos. I'm happy to try and fill in where the medical professionals have left off. Has your husband been with a catheter long? What was his diagnosis that led to catheter use? How is he doing? How are you doing? Often times people forget to ask the person who is taking care of the person with the catheter how they're doing as it impacts their life too. Sending you both positive energy. Tony
Tony, I had my prostatectomy about 7 months ago and am doing fantastic. I wanted you to know your catheter videos truly provided me piece of mind before my surgery. Thank you, thank you thank you for your guidance and caring nature! I will never forget your smiling and happy demeanor in my desperate time if need…David, a prostate cancer survivor…
David, your kind words have touch me deeply and made me smile. You are exactly why I continue to support people who are going through this very difficult time when no information is given. I am so glad to hear you're doing fantastic! Brilliant!!!! Is it fair to assume you escaped with minimal side effects? For me, almost three years later post prostatectomy, I'm doing great. I still sometimes say thank you every time I take a leak. LOL! Lifes simple pleasures right?!. I am honored and humbled to have been a part of your journey back to health. I hope you stick around as I share the joys of getting older. There's a lot to cover. I'll give you this tip....take baby steps every day to make positive changes and pat yourself on the back for those little steps because lil steps over time make BIG changes. Cheers, and wishing you and your loved ones great health - the foundation of everything. Tony
My surgery was successful. 7 months post surgery and undetectable PSA, having great sex with my wife (90% erection which is amazing ) and going from very incontinent the first 2 months to now 99% continent, just use 1 small shield a day. Better than those huge diapers and 4-5 massive pads per day! I did have a huge setback after surgery which was a Lymphocele, basically the lymph nodes they removed continued to leak (230ml/day) and I had to have a abdominal drain installed and multiple scaro treatments (inject 99% pure alcohol into your body via the train!) to chemically seal the leaking lymph system. 5 weeks of hell, worse than recovering from the prostatectomy! To add to this horror, the drain they installed into my lower abdomen damaged my Obturator nerve and I was unable to raise my left leg for months… It’s been 5 months since the Lymphocele treatments ended and I’m getting back to my fighting state again and hitting the gym 4-5 times per week. The nerve is healing so I can move my leg again to about 75% of what it was, should be 100% in time. I’m 64 and am 100% in agreement on your view that I have 15-20 years remaining at best and I’m enjoying every day! My mother always said “life is not a dress rehearsal, you only get one shot at it!
Your mother is absolutely right! I can freakin feel your positive energy in your comments. I'm happy for you that you're on the other side of a very difficult time and striving to live your best life. The damaged nerve on top of everything.....damn!!! You are a survivor man. I'm really glad to hear you hitting the gym too. Best way to ward off aging ailments. I hit the gym about the same as you. I got more serious after my surgery because I wanted to represent what a 60-year-old could be and avoid a slow crawl into old age. My pull-up game is on point. Just to challenge myself I want to do muscle ups by the spring. It's been so cool to have this exchange. If someone told me 5 years ago I would be talking to so many amazing people from around the world about catheters, BPH, and prostates, I would been are you #$%@in kidding me, but it's the best thing that's ever happened, besides being able to pee again like a racehorse LOL!
Hi David, I hope this message finds you doing great! As you know I continue to support people who have to endure having a catheter and the challenges faced with getting a prostatectomy. Also, I am working hard to get the pamphlet I made into doctor's offices and into the ER at hospitals. I have asked several people to provide a recommendation letter stating how the channel has helped them when no information was available. To which they gladly obliged. I was hoping that maybe you would possibly do the same to endorse the channel as it helped you through a difficult time. Of course, your anonymity would be respected. You can email me at Tony.Alcindor@Maletenace.com If not I completely understand. All my best Tony
Hello from Barcelona, Spain. I'm 60 years old too. Since I was first given a cath over a year and a half ago, I found your videos. You guidance, experience and tips have been very helpful to me. Thank you very much, Tony! I'm waiting for HoLEP laser.
Hello from New York. Oh Wow! I never thought in a million years that the videos would reach anyone let alone people around the world. I am so happy and humbled that the videos have helped you. I thought when I had my catheter for over three months it was a long time but you've had yours for over a year. Indwelling or Intermittent? How has life been having a catheter for so long and why did it take so long to schedule your procedure? How are you doing? What was your diagnosis that led to catheter use...BPH? Why did you choose the HoLep? When is the procedure scheduled? Sorry for all the questions - I learn a lot from people. which helps me support others. You're welcome to email me at Tony.alcindor@Maletenance.com if you prefer some anonymity or not answer which I respect. Cheers, Tony
I'm happy to have helped. That was my motivation for putting up the videos. I had a prostatectomy. My diagnosis and the severity of my BPH warranted it. What's going on with you? What is your diagnosis? How're you doing? You can email me if you prefer some discretion. Tony.alcindor@Maletenance.com
Hi, I was diagnosed with severe BPH before undergoing a prostatectomy. It was so bad that I could no longer urinate. My prostate had completely blocked my urethra. Before surgery, I lived with an indwelling catheter for over 3 months and fortunately did not have cancer. Yes, I could not agree with you more....it is a painful, stressful, and anxiety-inducing time. However, I got through it. Please watch all my videos on TH-cam as I believe they will help. I cover everything very candidly from someone thats been there. If you'd like to speak with me personally to answer questions you can reach me via Maletenance.com. I've also spoken to men from around the world as peer support and I know it has helped tremendously to help alleviate the stress. Hang in there. Tony
How long have you been having the indwelling catheter? 3 months? How many urinary infections? Are you waiting for surgery? I have been going through all your videos, they are helpful. Just like you said, Urology clinics do not provide you with any printed instructions after the catheter is inserted and you are left on your own to find out, that is unfortunate.
Hi, I had an indwelling catheter for over 3 months before a radical prostatectomy. During that time I had two UTIs but from what I understand it's pretty normal for any with an indwelling catheter that has it for some time. I started the channel to provide information as so little is given to those who encounter a urinary catheter. I continue to support the people who come here, who feel lost, and have questions, and provide a safe space to get some support and have spoken to so many people from around the world. It's my small contribution to my fellow man. Whats going on with you? Are you currently using a catheter? What is your diagnosis?
@@maletenance Thanks for your prompt response. You are doing a great service, keep doing it. Life has a purpose. My situation is this this. Three weeks ago I happened to go to Maryland from Boston. After reaching my friend's home I had acute urinary retention. I have a long history of BPH on medications. An indwelling catheter was inserted at the ER, I returned to Boston with the catheter and called my Urology office but unfortunately I could not speak to my doctor or the N/P even today. However the Urology clinic nurse changed my catheter, and now it is almost 3 weeks I am still waiting for an appointment to see my N/P. I guess I will be scheduled for HoLep surgery in the coming months, but no one has told me anything. I am now stuck with a catheter for a long time. My Urology clinic does not give any printed instructions about how to live with an indwelling catheter for months. I am trying to learn from videos like yours on TH-cam. Keep doing your good service to humanity. By the way, what was the need for radical prostatectomy in your case? Cancer?
Hi, Thank you for sharing your journey this far. It sounds so familiar to me and many others who visit the channel. Severe urine retention, first catheter in the ER, history of BPH, no information given, no returned calls, just left waiting for a procedure. Anxiety-inducing and mental gymnastics are required to get through it all. I've been there. Thank you for the kind words of encouragement.....it's so important to me because so many of people get their first introduction to a catheter in the ER and a discharge with no information..... it's just not right. If I can provide some information or peer support it's what I will continue to do because it's just not fair. That said I had a prostatectomy for severe BPH.....I stopped urinating completely. My prostate had grown exponentially and odd-shaped. Fortunately, I did not have cancer. If you have any questions that you have not found answers to in the videos please feel free to email me. Tony.alcindor@Maletenance.com. Also, what are the reasons you're choosing Holep? Just curious. Cheers Tony
@@maletenance Thanks, it is unfortunate that so many patients are left in the dark after catheter insertion without any proper written instructions. I did not choose HoLEP, I have been followed by a Urologist for many years who happened to be doing this procedure. I am happy that you do not have prostate cancer, however, I am puzzled that you had to go through an extensive procedure for BPH. I guess that you had an open prostatectomy and not a TURP, the usual surgery for BPH. I have one more question for you, how many times have you had urinary tract infections while having the catheter and you had to go to the ER or Urology Clinic for a change of catheter and antibiotics? Thanks,
Hi, I honestly think and like to believe that the prostatectomy was an absolute necessity and not because I have incredible health insurance. I know that the procedure is often associated with cancer. A lot was going on, it was the beginning of Covid, I was alone and scared and had been living with a catheter for months. Would I have made a different choice.....the million-dollar question. Anyhow, it's in the past now and I'm healthy. To answer your question: I had two UTIs during the three-plus months of having a catheter and two rounds of antibiotics. Having a catheter and getting a UTI almost go hand in hand no matter how good your hygiene is. I always got my catheter changed at my urologist's office and never had to go back to the ER, which was a blessing because that place gave me PTSD. It took them seven tries, poking and prodding to finally get it in. It was terrible. This is why I am advocating to put the brochures in the ER and doctors' offices that I made so people are not left with NO information on how to navigate their new reality. It's really the definition of adding insult to injury. It is difficult to get the medical industry to change though but I'm not giving up. How are you doin?
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Tony, thank you so much for sharing your personal experience and providing information that made living with a catheter and prostatectomy surgery far less frightening. I will never be able to thank you enough. Best wishes to you for great health and happiness.
Thank you for the generous and kind words.
Cheers, and wishing you and your loved ones great health. T
Fantastic Channel has helped me greatly. Many thanks for the courage You have given me at the most scared time in my life.
Awww man, thanks for the kind words. You made me smile this morning and it makes me really happy to know that the videos helped you out.
Cheers and wishing you well. Tony
Hi my husband was sent home with catheter as you say no advice or catheter to change weekly. He was poorly so up to me to sort it out. You were very helpful and to the point. Thanks you are doing a good job helping a lot of men.glad you are now well to enjoy life. Thanks again
Hello and thank you for the kind words of support....it really means a lot.
It seems that you were not given any information about life with a catheter. I'm sorry. It keeps happening which is awful. It's truly the definition of "adding insult to injury", however, I'm glad you found the videos. I'm happy to try and fill in where the medical professionals have left off. Has your husband been with a catheter long? What was his diagnosis that led to catheter use? How is he doing? How are you doing? Often times people forget to ask the person who is taking care of the person with the catheter how they're doing as it impacts their life too.
Sending you both positive energy. Tony
Tony, I had my prostatectomy about 7 months ago and am doing fantastic. I wanted you to know your catheter videos truly provided me piece of mind before my surgery. Thank you, thank you thank you for your guidance and caring nature! I will never forget your smiling and happy demeanor in my desperate time if need…David, a prostate cancer survivor…
David, your kind words have touch me deeply and made me smile. You are exactly why I continue to support people who are going through this very difficult time when no information is given.
I am so glad to hear you're doing fantastic! Brilliant!!!! Is it fair to assume you escaped with minimal side effects?
For me, almost three years later post prostatectomy, I'm doing great. I still sometimes say thank you every time I take a leak. LOL! Lifes simple pleasures right?!.
I am honored and humbled to have been a part of your journey back to health.
I hope you stick around as I share the joys of getting older. There's a lot to cover. I'll give you this tip....take baby steps every day to make positive changes and pat yourself on the back for those little steps because lil steps over time make BIG changes.
Cheers, and wishing you and your loved ones great health - the foundation of everything. Tony
My surgery was successful. 7 months post surgery and undetectable PSA, having great sex with my wife (90% erection which is amazing ) and going from very incontinent the first 2 months to now 99% continent, just use 1 small shield a day. Better than those huge diapers and 4-5 massive pads per day! I did have a huge setback after surgery which was a Lymphocele, basically the lymph nodes they removed continued to leak (230ml/day) and I had to have a abdominal drain installed and multiple scaro treatments (inject 99% pure alcohol into your body via the train!) to chemically seal the leaking lymph system. 5 weeks of hell, worse than recovering from the prostatectomy!
To add to this horror, the drain they installed into my lower abdomen damaged my Obturator nerve and I was unable to raise my left leg for months…
It’s been 5 months since the Lymphocele treatments ended and I’m getting back to my fighting state again and hitting the gym 4-5 times per week. The nerve is healing so I can move my leg again to about 75% of what it was, should be 100% in time. I’m 64 and am 100% in agreement on your view that I have 15-20 years remaining at best and I’m enjoying every day! My mother always said “life is not a dress rehearsal, you only get one shot at it!
Your mother is absolutely right! I can freakin feel your positive energy in your comments. I'm happy for you that you're on the other side of a very difficult time and striving to live your best life. The damaged nerve on top of everything.....damn!!! You are a survivor man. I'm really glad to hear you hitting the gym too. Best way to ward off aging ailments. I hit the gym about the same as you. I got more serious after my surgery because I wanted to represent what a 60-year-old could be and avoid a slow crawl into old age. My pull-up game is on point. Just to challenge myself I want to do muscle ups by the spring.
It's been so cool to have this exchange. If someone told me 5 years ago I would be talking to so many amazing people from around the world about catheters, BPH, and prostates, I would been are you #$%@in kidding me, but it's the best thing that's ever happened, besides being able to pee again like a racehorse LOL!
Haha… yes pissing like a race horse is an added benefit nobody told me about! I had about 70% restriction before surgery… not any more!!!
Hi David, I hope this message finds you doing great!
As you know I continue to support people who have to endure having a catheter and the challenges faced with getting a prostatectomy. Also, I am working hard to get the pamphlet I made into doctor's offices and into the ER at hospitals. I have asked several people to provide a recommendation letter stating how the channel has helped them when no information was available. To which they gladly obliged. I was hoping that maybe you would possibly do the same to endorse the channel as it helped you through a difficult time. Of course, your anonymity would be respected. You can email me at Tony.Alcindor@Maletenace.com If not I completely understand.
All my best Tony
Hello from Barcelona, Spain. I'm 60 years old too. Since I was first given a cath over a year and a half ago, I found your videos. You guidance, experience and tips have been very helpful to me. Thank you very much, Tony! I'm waiting for HoLEP laser.
Hello from New York. Oh Wow! I never thought in a million years that the videos would reach anyone let alone people around the world. I am so happy and humbled that the videos have helped you.
I thought when I had my catheter for over three months it was a long time but you've had yours for over a year. Indwelling or Intermittent? How has life been having a catheter for so long and why did it take so long to schedule your procedure? How are you doing? What was your diagnosis that led to catheter use...BPH? Why did you choose the HoLep? When is the procedure scheduled? Sorry for all the questions - I learn a lot from people. which helps me support others. You're welcome to email me at Tony.alcindor@Maletenance.com if you prefer some anonymity or not answer which I respect.
Cheers, Tony
What kind of surgery did you have? TURP? HoLEP? Thanks for all your help.
I'm happy to have helped. That was my motivation for putting up the videos. I had a prostatectomy. My diagnosis and the severity of my BPH warranted it.
What's going on with you? What is your diagnosis? How're you doing? You can email me if you prefer some discretion. Tony.alcindor@Maletenance.com
Your facial hair and black hair makes you look like you're in your 30s! Good job for looking young
Thanks! I dye my beard but have never dyed my hair. It's a little strange....I chalk it up to genes.
@@maletenance good genes! :)
What caused you to have a catheter put in..did you have urine retention..? I am going thru it now ...and it is so painful, stressful.
Hi, I was diagnosed with severe BPH before undergoing a prostatectomy. It was so bad that I could no longer urinate. My prostate had completely blocked my urethra. Before surgery, I lived with an indwelling catheter for over 3 months and fortunately did not have cancer.
Yes, I could not agree with you more....it is a painful, stressful, and anxiety-inducing time. However, I got through it.
Please watch all my videos on TH-cam as I believe they will help. I cover everything very candidly from someone thats been there. If you'd like to speak with me personally to answer questions you can reach me via Maletenance.com. I've also spoken to men from around the world as peer support and I know it has helped tremendously to help alleviate the stress.
Hang in there. Tony
How long have you been having the indwelling catheter? 3 months? How many urinary infections? Are you waiting for surgery?
I have been going through all your videos, they are helpful. Just like you said, Urology clinics do not provide you with any printed instructions after the catheter is inserted and you are left on your own to find out, that is unfortunate.
Hi, I had an indwelling catheter for over 3 months before a radical prostatectomy. During that time I had two UTIs but from what I understand it's pretty normal for any with an indwelling catheter that has it for some time. I started the channel to provide information as so little is given to those who encounter a urinary catheter. I continue to support the people who come here, who feel lost, and have questions, and provide a safe space to get some support and have spoken to so many people from around the world. It's my small contribution to my fellow man.
Whats going on with you? Are you currently using a catheter? What is your diagnosis?
@@maletenance Thanks for your prompt response. You are doing a great service, keep doing it. Life has a purpose. My situation is this this. Three weeks ago I happened to go to Maryland from Boston. After reaching my friend's home I had acute urinary retention. I have a long history of BPH on medications. An indwelling catheter was inserted at the ER, I returned to Boston with the catheter and called my Urology office but unfortunately I could not speak to my doctor or the N/P even today. However the Urology clinic nurse changed my catheter, and now it is almost 3 weeks I am still waiting for an appointment to see my N/P.
I guess I will be scheduled for HoLep surgery in the coming months, but no one has told me anything. I am now stuck with a catheter for a long time. My Urology clinic does not give any printed instructions about how to live with an indwelling catheter for months. I am trying to learn from videos like yours on TH-cam.
Keep doing your good service to humanity. By the way, what was the need for radical prostatectomy in your case? Cancer?
Hi, Thank you for sharing your journey this far. It sounds so familiar to me and many others who visit the channel. Severe urine retention, first catheter in the ER, history of BPH, no information given, no returned calls, just left waiting for a procedure. Anxiety-inducing and mental gymnastics are required to get through it all. I've been there.
Thank you for the kind words of encouragement.....it's so important to me because so many of people get their first introduction to a catheter in the ER and a discharge with no information..... it's just not right. If I can provide some information or peer support it's what I will continue to do because it's just not fair.
That said I had a prostatectomy for severe BPH.....I stopped urinating completely. My prostate had grown exponentially and odd-shaped. Fortunately, I did not have cancer.
If you have any questions that you have not found answers to in the videos please feel free to email me. Tony.alcindor@Maletenance.com. Also, what are the reasons you're choosing Holep? Just curious. Cheers Tony
@@maletenance
Thanks, it is unfortunate that so many patients are left in the dark after catheter insertion without any proper written instructions.
I did not choose HoLEP, I have been followed by a Urologist for many years who happened to be doing this procedure. I am happy that you do not have prostate cancer, however, I am puzzled that you had to go through an extensive procedure for BPH. I guess that you had an open prostatectomy and not a TURP, the usual surgery for BPH. I have one more question for you, how many times have you had urinary tract infections while having the catheter and you had to go to the ER or Urology Clinic for a change of catheter and antibiotics? Thanks,
Hi, I honestly think and like to believe that the prostatectomy was an absolute necessity and not because I have incredible health insurance. I know that the procedure is often associated with cancer. A lot was going on, it was the beginning of Covid, I was alone and scared and had been living with a catheter for months. Would I have made a different choice.....the million-dollar question. Anyhow, it's in the past now and I'm healthy.
To answer your question: I had two UTIs during the three-plus months of having a catheter and two rounds of antibiotics. Having a catheter and getting a UTI almost go hand in hand no matter how good your hygiene is. I always got my catheter changed at my urologist's office and never had to go back to the ER, which was a blessing because that place gave me PTSD. It took them seven tries, poking and prodding to finally get it in. It was terrible. This is why I am advocating to put the brochures in the ER and doctors' offices that I made so people are not left with NO information on how to navigate their new reality. It's really the definition of adding insult to injury. It is difficult to get the medical industry to change though but I'm not giving up.
How are you doin?