My new diagnosis: Lyme disease

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  • เผยแพร่เมื่อ 21 ธ.ค. 2024

ความคิดเห็น • 96

  • @Dermatillomaniac
    @Dermatillomaniac 2 ปีที่แล้ว +10

    It's so sad how many people are not correctly diagnosed early on when it would be easier to treat. As a fellow Lymie battling for 8+ years, it can be a long road. I felt a lot better after a few months on disulfiram (worked up to 300 mg/daily for 2 months). You know yourself and what you can tolerate. Advocate for yourself and keep trying other routes when things aren't going well. Expect to be worse before you get better....but with persistence you can get better! Sending love and light for the fight ahead 💐

    • @adrianhuerta9098
      @adrianhuerta9098 ปีที่แล้ว

      Un consejo porfavor me pico hace 4 meses y me estoy muriendo

  • @amishsunshine
    @amishsunshine 2 ปีที่แล้ว +10

    I've been fighting Lyme for 15+ years. It's a difficult road but knowing you have it is one of the biggest hurdles. I've also found that it causes a ton of other co-conditions, and that treating the lyme causes the others to calm down quite a bit as well.

    • @SantoshaSpirit
      @SantoshaSpirit  2 ปีที่แล้ว +2

      That’s really encouraging to hear! Thank you ❤️

  • @Chessflower9
    @Chessflower9 12 วันที่ผ่านมา

    Hi Rachel, I am a Yoga teacher and chronic illness warrior myself and love your inspiring videos. I have gotten infected with lyme for four times already. In my country rarely a physician takes it serious, they know little about it and the health insurance wont pay treatments except of antibiotics. Long story short, the best approach is patience and to keep up with yoga and herbs and all the other good stuff :) Low doses for a long time worked better for me than high doses for a short time (what concerns supplements). Oregano oil is great and Artemisia vulgaris, also Kalmegh and Scutellaria Baicalensis. Nature has given wonderful medicine. Sauna is also good, homeopathy, and and and. The lyme healing route can take many twists and turns. Hugs. Thank you for your amazing work, you strong soul :)

  • @TheRachamuffin
    @TheRachamuffin ปีที่แล้ว +2

    Watching this video broke my heart, I feel so strongly for you ❤ chronic illness is hard, and developing layers of them is so tough. Have you ever heard of a musician called Ren Gill? He has lyme disease, and a lot of his work is about his struggle and how he is overcoming it. I highly recommend giving his stuff a listen. I hope you're feeling better by now, but still remember to be patient with yourself every day. And always remember that you're not on your own. Sending love ❤

  • @WhiskeyTango68
    @WhiskeyTango68 ปีที่แล้ว +1

    15 years chronic late Lyme, treated for 18 months with a antibiotic/antiviral protocol and a SOT treatment. I’m better physically but mentally I’m damaged. The panic disorder I used to have (3 attacks a day) was hard, this depression, feelings of worthless, friends turning their back on you, family not understanding or caring is much worse. I have suicidal ideation and 2 light suicide attempts. This disease has been a nightmare that will never end.
    Going to a new doc soon for re-test and treatment.

  • @James-ln3hx
    @James-ln3hx 8 หลายเดือนก่อน +1

    I've been fighting it for 10 yrs I do understand

  • @itsnellmarie
    @itsnellmarie 2 ปีที่แล้ว +6

    14 years in and still sick BUT mostly functional and far better than I used to be. I have Lyme, Pots, chronic migraine, possibly mold, and arthritis. Lyme essentially destroyed my body but with long-term herbs (after 4 years of antibiotics) I'm doing much better than I was and have learned how to live life with all the sickness in my body. Knowing everything going on in your body is the first step, and a very very important step, so I'm rooting you on!

    • @SantoshaSpirit
      @SantoshaSpirit  2 ปีที่แล้ว +1

      Thank you so much Nell! Glad to hear you’re feeling better now. Any level of improvement I think is worth the effort!

  • @patriciaherlevi6217
    @patriciaherlevi6217 4 หลายเดือนก่อน

    I suffer from this disease too. My heart goes out to everyone with Lyme. This is one heck of a surreal disease. It's good to research. And there are people who have healed from the disease. I'm going to look into rewiring my brain.
    Homeopathy helps.
    That description in the book applies to me, plus, I wasn't good at setting boundaries.

  • @happyandfreehealing
    @happyandfreehealing 2 ปีที่แล้ว +2

    I've been following you forever and we have such similar journeys... I also had a CFS diagnosis for years but had so many negative other labs and was considered a "mystery"... recently a new functional doc ordered extensive labs that were out of pocket and it turns out I also have Lyme a four other tick illnesses. It feels so scary but also validating at the same time to know there is a real answer out there. I really hope you find healing!

  • @teenavanderlaan4086
    @teenavanderlaan4086 2 ปีที่แล้ว +2

    Thanks for sharing.
    I’m in Australia and have had Lyme for nearly 9 years now. Drs don’t believe that we have it here so any help is so hard to get. I have improved so much in the last 6-12 months and am finally beginning to get out and about. I had tests sent to US and Germany. Treatment with a naturopathic dr in San Diego and spent 6 weeks in Cyprus for Ozone (10 pass) treatment plus much more. It took a few years for everything to come together but I finally feel like I may get there. A big improvement anyway.
    Your reading from that book was spot on for me. Thanks for sharing. You already know so much about healing and detox, don’t stress, your on the right path and I believe you will find your way out of this disease. Take care.

    • @SantoshaSpirit
      @SantoshaSpirit  2 ปีที่แล้ว +1

      I’m sorry to hear it isn’t taken more seriously in Australia!
      Ozone and hydrogen peroxide treatments are one of the things my doctor recommended but he said it would be 20 infusions and they’re $150 each 😳 so I’m not sure about it. Do you feel like they made a significant impact on your improvement?

    • @SantoshaSpirit
      @SantoshaSpirit  2 ปีที่แล้ว

      And thank you for speaking such positive words over me. I appreciate that so much 💖

    • @teenavanderlaan4086
      @teenavanderlaan4086 2 ปีที่แล้ว

      I feel the treatment I had in Cyprus did make a huge difference but for me it took a few years. It wasn’t using hydrogen peroxide (i don’t know about that one) but I did 10 pass and so many other type of treatments at the clinic mostly working on gut health. When I got home it took me a year to get all my amalgams in my mouth replaced safely which I also believe made that difference eventually. I began the antibiotic way but after 11 months I could not afford the cost as we had to go private so my dr would not get struck off. I’m sure you will keep on researching and find what’s right for you. It’s confusing with so many types of treatment all over the world. (There are a lot of great drs in US.)Then extra hard to phantom when your unwell and can’t think straight. I wish you the very best.

  • @kendellbauer_taves9207
    @kendellbauer_taves9207 2 ปีที่แล้ว +2

    I love when you share your health struggles it makes me feel.less alone

  • @Gabriellekidd
    @Gabriellekidd 2 ปีที่แล้ว +3

    Look into SOT therapy. I have chronic Lyme and this the path I'm taking. Also ozone has helped a lot.

  • @sapphiremountainhandcrafts3319
    @sapphiremountainhandcrafts3319 2 ปีที่แล้ว +2

    Hey sweet lady. I wish I could give you a hug because I know exactly what you are going through. I can tell you exactly where I was standing and what I was doing 9 years ago when a wave of strange feelings hit me and I nearly collapsed. After months and months and months of searching for answers I found myself at a natural medicine clinic where I too was diagnosed with Lyme disease. My tests were negative but I was diagnosed based on my symptoms and the fact that I grew up on a ranch in Montana made me immediately believe it because we picked ticks off our horses all the time. I went through about two years of treatment that left me in far worse condition than where I started. Don’t mean to scare you there, it’s just the truth because what happened next was so important. It’s a very long story but eventually we came to learn that what was actually making me sick was toxic mold grow hidden in our home. There are tens of thousands of people in a toxic mold support group on Facebook and so many of them have both Lyme and mold illness. In fact, it’s actually the mold that is the primary cause of so many chronic illnesses because it destroys your immune systems ability to control things that it should be able to. Just thought I would share because, as you know, solving your chronic health issues is an ever evolving process and I never would have figured out my mold issue if someone else hadn’t suggested it to me and it sounds like it may be something you might want to check out. I really hope you find healing. ❤❤❤

    • @SantoshaSpirit
      @SantoshaSpirit  2 ปีที่แล้ว

      Yes! Mold illness is something my doctor (I'm so fortunate to have this one now) and I talked about along with heavy metal toxicity. I have had issues with mold in the past, but it seems that those issues have been resolved since I got out of the moldy apartment and did some treatment on my own for it. I feel like I'm cleaning up one mess at a time 😅
      Thank you so much for sharing your story and knowledge ❤️

  • @auntycori
    @auntycori 2 ปีที่แล้ว +13

    My first advice is to find a Lyme literate physician, which you may already have. My second advice is to know that you can make it to remission and begin to feel better. In fact, I finally received the "no hint of Lyme" message from my recent labs this week. This after years of different types of treatments for both Lyme and multiple co-infections and feeling like I would never get there. You can

    • @SantoshaSpirit
      @SantoshaSpirit  2 ปีที่แล้ว

      Thank you so much for your encouragement! And yes, my doctor is a LLMD. I’m very lucky to have him.
      That’s so exciting to hear that you’ve started up a channel to help others! I will definitely check it out 💞

  • @JessieLee_
    @JessieLee_ ปีที่แล้ว

    Never boring sweetheart and I definitely research all my symptoms and illnesses. My son was diagnosed with Autism when he was 11 and it’s because of my research. He’d had it since he was born but back in 1998 when he was born and early 2000’s autism specialist were hard to come by, so my husband and I along with the school got him to where he’s at. Not long after his diagnosis when he was 14 or so we finally had an expert in autism and unfortunately we only got her for a year or so. She was amazing and listened more then any doctor or psychologist we’ve been to, so we was heartbroken when she left the clinic. She was one of 3 in the whole state and she raised a son on the Autism Spectrum. Anyway’s that’s why I research and it’s also like you said so I feel in control. Thanks for sharing 💜

  • @mcjerz
    @mcjerz 2 ปีที่แล้ว +3

    I am currently in the process of finally getting the proper testing done. I have suspected chronic Lyme for years because of my combo of other chronic illnesses, growing up in the mid-Atlantic which has had pandemic levels of Lyme infections since at least the 1970s, AND a bout of Bell's Palsy in my childhood. All signs point to Lyme, but it took me until 35 (aka this year) to find a Lyme-literate doctor who was appalled that no one had me tested 20 years ago when I had Bell's Palsy.
    I've lived through the same scenario of negative test results. The two most common (but still a hassle to get ordered) tests are the Western Blot and the ELISA. They both test for antibody levels, which is really only useful for acute infections so false negatives are very common. I'm guessing your diagnosis came after an ELISPOT test, which is what I am waiting on now, finally!!
    I worry that if I do have a positive diagnosis that I will also struggle with the antibiotics. Sorry that you are having to navigate this whole new world of Lyme, especially in a country with a completely broken healthcare system, but I am grateful that you are sharing your story for the rest of us dealing with chronic illness in dystopian 21st century America.

    • @jessiebeltran5928
      @jessiebeltran5928 2 ปีที่แล้ว +1

      HI, what were the results from your ELISPOT test?

  • @mirzafatic1663
    @mirzafatic1663 2 ปีที่แล้ว +2

    Speedy recovery Dear Rachel. I don't know much about Lyme Disease but I know that antibiotics over a period of few weeks tend to help. Yes follow a good recovery plan whatever works for you. Sending you lots love, your Canadian neighbor ❤. Keep us updated 😊

    • @SantoshaSpirit
      @SantoshaSpirit  2 ปีที่แล้ว +1

      Thank you Mirza! ❤️
      You are correct that antibiotics are the usual course of treatment. For acute cases, they usually work really well. But my case is chronic, and unfortunately the antibiotics gave me a really severe reaction. So I’m looking into alternatives. Thank you for your support ☺️❤️

    • @mirzafatic1663
      @mirzafatic1663 2 ปีที่แล้ว +1

      @@SantoshaSpiritOh you are very welcome dear Rachel. I have been following you for quite some time now 😊. Anything alternative, especially natural products are good. I hope that you will find products for fast healing.

  • @michelleihry8047
    @michelleihry8047 8 หลายเดือนก่อน

    Thank you for sharing. Your story is nearly identical to mine. I have a great Lyme Specialist in Alexandria, Mn. I take herbs and supplements still after three years. I have done SOT's, acupuncture, chiropractic and cranial sacral therapist. Still in recovery.

  • @angelesct5803
    @angelesct5803 7 หลายเดือนก่อน

    I almost cried when you read that entry... it hurt.

  • @forisma
    @forisma 2 ปีที่แล้ว +4

    I'm so sorry that you received this diagnosis. I remember when I received mine. I was devastated and I cried.
    It's been years ago, and I believe now that that diagnosis was incorrect. All those lyme tests are not really accurate (mine was an 'advanced' test from a lyme doctor, but I've eventually become very sceptical of those).
    I've received a (herbal) treatment (Samento and such) for lyme though for two years.
    The test came in negative eventually but my symptoms haven't changed one bit.
    Now I believe the lifestyle is much more important than all those anti-lyme treatments.
    I don't want to discourage you! Maybe the treatment will work for you, I hope it will ❤ I hope to give you an alternative view on this, maybe it can help you.
    In my case, I improve more with lifestyle and working on my gut issues.
    My diagnosis is ME/CFS.

    • @SantoshaSpirit
      @SantoshaSpirit  2 ปีที่แล้ว +2

      This is interesting! I really appreciate you sharing. And I agree that lifestyle is so important!

  • @Katharina353
    @Katharina353 2 ปีที่แล้ว +2

    Hej sweet person. Thank you for opening up to us publically. I was also diagnosed with late stage lyme disease last year. I got a tick bite in 2017, they gabe me antibiotics and that was it. Until march 2021 it was ok for me to live with it, the symptoms were so mild that i could just push them away or ignore them... then i got vaccinated for a job in march 2021 with AstraZeneca. This totally changed everything. Since then i got several symptoms like brain fog, my brain is a tiny little bit infected, head ache, neurological symptoms, dizzyness, concentration problems, anxiety, depression, limb pain, etc....
    I found a doctor who is treating with traditional medicine. I got several treatments, for example IHHT and plant based tinctures. I really need to take care of what i am eating and also what i consume mentally and emotionally. I recommend to make a detox 2-4 times a year. I am also a big fan of sellery juice in the morning on empty stomach. Asanas and Pranayama really help me. Going for walks in nature support me a lot. Grounding on the earth. (But take care of the ticks everwhere of course.) I recommend also the "Lyme Ease Survival Guidebook" written by Jenn Hyla. Wolf-Dieter Storl has written also a book about lyme and its treatments. I hope you can find it in english. He recommends also the use of the wild teasel and i can approve that. If you need more information or want to talk, i am always happy to talk about it via zoom or so. Take care and lot's of love. We can go through this together.

  • @paavooksanen3346
    @paavooksanen3346 2 ปีที่แล้ว +4

    Hi! Its a long road, and it not maybe ever fully recover. But you can make it livable :-) i changed my diet completely, no red meat no sugar no wheat, basically minimize the carbohydrates and coffee and dairy.. And i eat or drink raw garlic ewery day (mashet it to glas, give it 10-15min litle water and drink) start small (1 clove) a day about 10days and add second.. it can mess your belly.. Garlic is the world oldest antibiot.. Herx is normal it means its working its killing the virus.. Remember listen to your body, you learn what is good for you and whats not. Try not to stres, it wont help. And dont give up, you can (and you will) beat it!
    Lymeguy from Finland

  • @2009ashmi
    @2009ashmi 2 ปีที่แล้ว +1

    Sending you tons of healing light and love. I take low dose naltrexone for my fibro and it does help. That book looks very interesting! I also feel called out by what you read. I definitely want to get a copy! Definitely keep us updated on your fight with Lymes. Rest and take care of you. Love you and Jared's little home. Looks so cozy and peaceful! Hugs!! 🥰🥰🥰🥰💜💜💜💜💜

    • @SantoshaSpirit
      @SantoshaSpirit  2 ปีที่แล้ว +1

      So glad to hear the naltrexone helps you too! It’s been my magic pill honestly.
      That book is amazing! Would definitely recommend. Under the description, it gives journaling prompts too.
      And thank you! We love our little home so much 🥰

  • @James-ln3hx
    @James-ln3hx 8 หลายเดือนก่อน

    I'm here for you and I'm in the same boat

  • @sergiorodriguez2443
    @sergiorodriguez2443 2 ปีที่แล้ว

    Hi Rachel. Thank you for your video. I was diagnosed with Lyme recently. This after I went to an orthopedic doctor when one of my knees swelled up really bad while I was at work. The more I go into the rabbit hole of Lyme disease the more difficult it gets to really nail down what Lyme disease actually is. Prior to my diagnosis, I had no idea that the medical community is very divided on the topic. I am curious to see how you are doing today, seven months later

  • @TruthSeeker410
    @TruthSeeker410 ปีที่แล้ว

    Once you get a on a treatment plan, the major thing is cyst busters and biofilm busters. You also want to look into Jawbone Cavitations with a Biologic dentist. Especially if you have had any teeth like wisdom teeth removed, root canals, and amalgam fillings is an issue too. Detox, detox, detox, and check for Mold toxicity. In your body and environment. Lastly, lots of parasite cleanses. Good luck! 🙏🙏🙏🙏🙏

  • @drinette7669
    @drinette7669 2 ปีที่แล้ว +1

    New diagnoses are overwhelming, that’s so true! I don’t have Lyme desease, so I can’t help you, but I can relate to researching a lot trying to be in control… 😅 Although I feel much better when I let go and just follow my intuition…
    Take care of you, and I wish you to be as well as possible!

    • @SantoshaSpirit
      @SantoshaSpirit  2 ปีที่แล้ว

      Glad to know I am not alone! Thank you so much ❤️🙏🏼 This is good advice!

  • @teresarichards7246
    @teresarichards7246 ปีที่แล้ว +1

    Hello Rachel, I am sorry for your condition, but I think I have information that can help you. Maddy Rae Cooper has a video on TH-cam titled "SOT treatment for Lyme disease - frequently asked questions." Approximately 6 minutes into this video she will mention RGCC. RGCC stands for "Research Genetics Cancer Center." The center also deals with Lyme as well. They are headquartered in Switzerland, with locations I believe in 20 other counties worldwide including the US and with a Lab in Greece. Blood samples are collected from the patient and then sent to Greece. About 3 or 4 weeks later they send back a formula specifically designed for that patient. That is what Maddy is talking about in the video. This is state of the art, cutting edge technology. We are going to use this approach in our family for someone who has suffered for 15 years with Lyme. The trick is finding a doctor who deals with this approach. Two doctors on TH-cam you can listen to regarding this approach are Dr. Virginia Von Schaefer, and Dr. Leigh Erin Connealy. I hope I spelled their names correctly. May the Lord bless you richly in your quest to restore what He gave you when you were born, your health. Best Regards Bob R.

  • @andreakline5436
    @andreakline5436 2 ปีที่แล้ว +1

    I just saw this- I am so sorry. I still don't have a diagnosis-I got my report from NIH- their tests say not Sjogrens. I see a new rheumotologist next week-hoping for LDN for symptoms. I have a friend with Lyme who has been treated with prednisone and antibiotics- a number of times. I understand that is not possible for you because of reactions. And it hasn't cured her but she has had relief. She recommended the book Chronic by Phillips and Parish- I have not read it yet. Let us know how you are doing and what help you find.

  • @deborahkish5411
    @deborahkish5411 ปีที่แล้ว

    I've had Lyme disease for 38 years. It took 27 years to get diagnosed. Lyme destroyed my jaw joints and I had 3 major jaw surgeries. There has been no help from doctor's for my severe pain and symptoms.

  • @wedgerut
    @wedgerut ปีที่แล้ว +2

    My advice is to take this humble struggle patiently. I would ease my anxiety by rushing into taking multiple herbals at large doses which has lead to severe herxheimer reactions. You have to be patient with this healing process, but know that your body is designed to heal, to grow, to live.
    I have days where I feel alone in my pain, anger at the medical system and its lack of treatment options, fear over whether I can better or not, resentment from peoples lack of understanding. But the truth is suffering can help us connect and even be more compassionate towards others,
    I look at how much this illness has forced me to not drink alcohol, to be more organized, to be more honest in my feelings. To be appreciated of the natural remedies God provides, I hope you as well can see the light of healing to guide you in the darkness.

  • @popmeow3368
    @popmeow3368 2 ปีที่แล้ว +7

    Lyme is weird. There’s life before Lyme, and life after. Getting diagnosed and treat3d is a huge step

    • @Lannie74
      @Lannie74 ปีที่แล้ว

      I just got a Lyme test from Igeneix but not sure what to do after I go to a lab to do the test. I think I can go to something like Anylabs and get the test done but after that I think it says you have to get your doctor to read the results and I don’t know of any Lyme doctors but I can search online for them

  • @desireedawn
    @desireedawn 2 ปีที่แล้ว +3

    Hey, this is a late comment but I just want to draw your attention to the chronic infection bartonella. People with lyme often call it a coinfection of lyme, but it can very much stand on its own or travel alongside it. People who work in vet clinics are high risk for contracting this because many animals and vectors can transmit this - up to 80% of outdoor cats, up to 40% of indoor cats, 30% of dogs; mosquitoes, sandflies, fleas etc. In fact, Dr. Ed Breitschwerdt who is a veterinarian has been leading some of the research out of North Carolina State University on this stealth pathogen when he saw that many of the vets, vet techs and animal owners were presenting with rheumatological and neurological symptoms. I don't know your other diagnoses but if they happen to be any or all of MCAS, hEDS, POTS or Sjogren's they are all very linked to bartonella (not in all cases but there is a connection for some people). Just to say, if you treat lyme and don't find you're making progress I'd recommend looking into this. Bartonella babe on youtube has a ton of informative videos, as well as the research of Dr. Robert Mozayani and Dr. Breitschwerdt :) Best wishes!

  • @marconiki6302
    @marconiki6302 7 หลายเดือนก่อน +1

    Which test did you do second time? And which IgM and IgG were positiv? Thank you and good luck

  • @pamalbert5750
    @pamalbert5750 ปีที่แล้ว

    I can relate to you 100% in everything you are saying..I have also just been diagnosed with Lyme and it's apparent I've had it for at least 8 years..I also along the way have been diagnosed with autoimmune hashimotos disease..I was put on 2 wks worth of antibiotics but that won't be enough to rid my body of Lyme because I've had it for so long now..at this point I am researching like you trying to figure this out because I can't afford to go to a specialist because it's not covered by my insurance.

  • @PascaleDesrosierHickey
    @PascaleDesrosierHickey 2 ปีที่แล้ว +2

    i so relate - orageno oil and black seed oil daily has helped me alot - never tested positive but in canada lyme screnning is a joke

  • @JessieLee_
    @JessieLee_ ปีที่แล้ว

    I’m so sorry you’ve been diagnosed with Lyme disease, my father in-law has Lyme disease because he’s a Hunter (sorry if you’re a vegan) and has had it for years. It doesn’t surprise me you’ve been diagnosed after having it for several years, after watching this documentary called under your skin which I suggest you watch if you haven’t yet. My mom got bit by a tick but they didn’t test her because it was too soon to get the test and with her insurance you can only get two test if I recall correctly!? So she hasn’t been diagnosed and has the symptoms. My husband and I really talked her into getting checked out because the spot she was bitten at kept getting bigger, was painful and warm to the touch and it definitely looked like a tick bite. I know this was one year ago and I hope you’ve made progress since, I know antibiotics are a huge part of treatment so I really hope you found something for you. You really do get the side effects from medication like you’ve mentioned in the past and having side effects to antibiotics has to be a struggle when sometimes we need them. I’m thinking of you, but in your newest video you really looked like you was doing well, but than again that doesn’t mean you’re not feeling sick as all of us spoonies know. So sending you healing vibes my friend 💜💜💜

  • @sarahdrury732
    @sarahdrury732 ปีที่แล้ว +1

    I have been battling an illness for 2 years. They keep telling me it is fibromyalgia. I am so so sick and no one else with fibro has these sever symptoms. I think I may have lyme. In the process of trying to find a doctor. Anything I can do to make myself feel better before I get on a waiting list to see a doctor...

  • @darlachapman3186
    @darlachapman3186 2 ปีที่แล้ว

    Sorry for your new illness . . . Hugs . . .

  • @cindyre85
    @cindyre85 ปีที่แล้ว

    I just found out too. I was misdiagnosed for a long time I just started doxycycline. I have temporary paralysis in my face

  • @SunshineSarah74
    @SunshineSarah74 ปีที่แล้ว +1

    I’m fighting for my life right now from Lyme. Could you tell me what you are doing for it and how you feel?

    • @shirlp6046
      @shirlp6046 ปีที่แล้ว

      A new study, a year ago, shows Stevia (the whole leaf) can kill the pathogen causing Lyme disease.

  • @guidopeeters4396
    @guidopeeters4396 ปีที่แล้ว +1

    I have chronic Lyme i know ,but the test in the Netherlands is negative😢

    • @bloedzuigahh070
      @bloedzuigahh070 หลายเดือนก่อน

      Heb je al een diagnose?
      Mijne is namelijk ook negatief en weet gewoon zeker dat ik het heb

  • @SkepticTalk
    @SkepticTalk ปีที่แล้ว +2

    Questions for video poster and this disease. Lately I've been going through hell with health issues.
    One if thr worst issues is muscle SPASAMS in random places throughout my body that twitch or fasciculations. Feet, hands, legs, arms, face, you name it.
    I'm going to try and get tested for ALS which is absolutely horrifying, and I'm not saying it couldn't have ALS because I've also had issues swallowing.
    That being said, I've also felt extremely nauseous now and then, and I just got a horrible rash on my face like a burn that looks like sunburn, but it's actually not from the sun, it just appeared over the course of a week or so.
    I have to ask the poster and others if thry had or are having muscle spasms with chronic Lyme disease?
    I did some research myself and apparently Lyme disease is mistaken for ALS sometimes as it can cause neurological damage. Looking forward to what others say?

  • @JS-dv9ji
    @JS-dv9ji 2 ปีที่แล้ว +1

    It's so frustrating how inconsistent the tests can be and how few doctors actually take it seriously...at least here in Canada. We have crappy tests and no doctor wants to test "because it's rare". It's "rare" bc they don't test. *brain explodes* Anyway, SO glad you finally know for sure and have that sense of control. I haven't been tested yet but I think I finally have a doc who might do it. Thanks for sharing your story, Rachel. I know it's comforting yet scary to get a new dx. 😘💜 I have a friend who's an herbalist and she also has chronic Lyme. Herbs have helped, in combo with other treatments.

    • @SantoshaSpirit
      @SantoshaSpirit  2 ปีที่แล้ว +2

      It’s the same frustration in the USA! I am very grateful for my doctor. He is an outlier.
      That’s good to hear that your friend has had success with herbs. Thank you so much for your comment ❤️

  • @BrynnMcmaugh
    @BrynnMcmaugh ปีที่แล้ว +1

    After 18 years of suffering and unemployed for the last two years i was diagnosed with lyme and 2 co infections. Worse disease ever. I lost everything i worked for snd its devastated our family. I was told i was fine by every dr i saw over the years. I just watched “under our skin”. Greed by the CDC is the cause of all of why we are all so sick with no insurance to cover treatment. Drs license are suspended because they treat lime??? Its crazy

  • @honeybeebusywhatsallthebuz1922
    @honeybeebusywhatsallthebuz1922 ปีที่แล้ว

    How are you doing now?

  • @ashleywarner7995
    @ashleywarner7995 2 ปีที่แล้ว +2

    heyy❤ I'm a certified Regenerative Detoxification Specialist and would love to talk to you about a way to totally heal yourself, naturally! Especially before you go ahead with any other "protocol". definitely don't take anymore antibiotics!!! That will make it worse. And yes, you can heal, and reverse the damage done, btw. Praying for you, love❤

    • @SantoshaSpirit
      @SantoshaSpirit  2 ปีที่แล้ว

      Thank you for the prayers and encouragement 💖

    • @ashleywarner7995
      @ashleywarner7995 2 ปีที่แล้ว

      @@SantoshaSpirit of course, let me know if you want to talk. I know what it's like to suffer with chronic illness (I've had multiple chronic conditions over half my life - I'm now 32) and it's a really hard way to live! I spent so many years searching for answers. Everything was only treating the symptoms, not healing the cause. And then I finally found the truth and it resonated so much. I've healed many of my issues and what isn't completely healed, is getting better all the time (specifically my fibromyalgia which they said would only get worse and is now only a fraction of what it was before). I also healed my son of some issues he had since birth, and my husband who had gout. I've even healed my cats 😊 About 1.5 years ago, after seeing really big improvements after just a couple months of making certain changes, I decided to get certified and increase my knowledge to continue our healing. And I'm so glad I did because I finally have all the answers I knew were out there, but just didn't know where to look. Anyways, I know how it feels to have a diagnosis like this (as I mentioned the fibromyalgia, but I also had a few other "incurable" conditions). But I just want you to know that true healing is very possible!!! And is actually easier than you think. Well the concept is simple, but the journey can be rough at times - but well worth it!

    • @kenmosely540
      @kenmosely540 ปีที่แล้ว

      ​@@ashleywarner7995please tell me how to be totally healed of this Lyme's deseae

  • @TheCambra
    @TheCambra หลายเดือนก่อน

    What test did you take to find out if you had Lymes because the test I took was very inaccurate

    • @SantoshaSpirit
      @SantoshaSpirit  หลายเดือนก่อน +1

      Igenex

    • @TheCambra
      @TheCambra หลายเดือนก่อน

      @SantoshaSpirit thank you

  • @JazzComedian79
    @JazzComedian79 2 ปีที่แล้ว

    I am so sorry to hear you have this dx my friend Xxoox Have you looked into daily affirmations? I’m sure you have but I use them all the time to help me get as healthy as possible (multiple myeloma over 8 years now). There’s medical astrology too. My best friend is an astrologer here in Australia (works online) so I know a bit about this and I mention as you are very intuitive, an Aquarius ♒️ if I recall from another post (my moon and asc is Aquarius btw) so I know you are very open minded. Do you get kinesiology? I do mine remotely (anything is possible!) and it helped clear up old patterns, memories in my body that were keeping me neutropenic for a few years. Medication didn’t work, acupuncture didn’t fix the neutrophil issue and now my neutrophils are mostly normal and bounce back when low. It’s incredible how the body can heal with the right tools. You give so much to others to help them heal and it breaks my ❤️ heart to see you in pain Xxo and I hope🤞something I mentioned above 👆helps you. Sending love and light

    • @SantoshaSpirit
      @SantoshaSpirit  2 ปีที่แล้ว +1

      Hi Jasmine! I appreciate this so much! And yes, I love affirmations. I have never heard of medical astrology before but it sounds really interesting. Thank you for sharing this with me 💞

  • @genevievebingham940
    @genevievebingham940 ปีที่แล้ว +1

    What test did you take? I suspect I have Lyme and trying to find an appropriate test since most of them give a 50% false negative.

    • @SantoshaSpirit
      @SantoshaSpirit  ปีที่แล้ว +2

      I had a test through Igenex which is considered the gold standard of testing

    • @genevievebingham940
      @genevievebingham940 ปีที่แล้ว

      @@SantoshaSpirit thanks for answering! Can I ask how much it cost?

  • @carolinavespucci9584
    @carolinavespucci9584 2 ปีที่แล้ว +1

    Hi! Have you tried medical medium protocol ? I have started with them 8 months ago and I feel some improvement .
    💕💕

    • @SantoshaSpirit
      @SantoshaSpirit  2 ปีที่แล้ว

      I did for awhile but it wasn’t sustainable for me long term because I was struggling to get enough calories and kept losing too much weight. Glad to hear it’s working so well for you though!

  • @janegelberg2003
    @janegelberg2003 2 ปีที่แล้ว

    Hi, big hug! Some days are up, some days are down. If you don't mind my asking, what does the LDN help you with? I've been interested in trying it. Thanks :)

    • @SantoshaSpirit
      @SantoshaSpirit  2 ปีที่แล้ว +1

      The LDN positively affects the immune system so it can help with autoimmune conditions like Hashimoto’s and Addison’s (both of which I have). But it can also help with Lyme and a lot of other conditions because it makes the immune system function better. It’s been my magic pill. It’s normal to have some uncomfortable side effects the first couple weeks but I have had nothing but positive effects since then. You can read more about it here: ldnresearchtrust.org/conditions

    • @-living4jesus4ever-
      @-living4jesus4ever- ปีที่แล้ว

      @@SantoshaSpirit what were the main negative physical effects you had of LDN?

  • @tedslife7086
    @tedslife7086 ปีที่แล้ว

    Bone broth soup 2 times a day

  • @sandi6818
    @sandi6818 ปีที่แล้ว +1

    Which test did they use or did u go through Igenix? I’m convinced I’m dealing with this. I was diagnosed with Fibromyalgia and CFS and now RA based on very high rh level. I’m so sorry you’re going through this. Hugs🤗 on a side note: Our medical system is all about money unfortunately. Healthcare is s multi-billion dollar industry. It’s a shitshow bc it’s more important to keep people ill and coming bk and making more profits. It’s sickening.

    • @-living4jesus4ever-
      @-living4jesus4ever- ปีที่แล้ว +1

      I thought I had rheumatoid arthritis and now I think I have lime. Going to test with my Igenex soon. Did you end up having Lyme and not the other diagnoses they thought you had?

  • @James-ln3hx
    @James-ln3hx 8 หลายเดือนก่อน

    Where are you living?

  • @JesusGodHolySpirit3
    @JesusGodHolySpirit3 ปีที่แล้ว

    Have you been able to cure the lyme disease you have?

  • @mikecarey1990
    @mikecarey1990 ปีที่แล้ว

    I can help you.

  • @anapaulacastro2224
    @anapaulacastro2224 ปีที่แล้ว

    Eu uso uma meditação do Joe Dispensa para me ajudar.

  • @myst-hicfarm6124
    @myst-hicfarm6124 ปีที่แล้ว

    Curious to hear your protocol a year later? I'm a year into buhner protocol, added many other things as well, doing better myself. "Umm" is definitely the word of brain fog, I feel sympathy for you in this video, hope your healing is going well!