19. 4 19 Update and Thoughts

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  • เผยแพร่เมื่อ 28 ก.ย. 2024
  • Thoughts... the NORMAL ups and downs of my new life.

ความคิดเห็น • 12

  • @toma2292
    @toma2292 5 ปีที่แล้ว +2

    Hi Dan,
    I liked your vibe today! Authentic, some attitude, honesty about the medical system and your inner thoughts. You GO! You are here and you are helping many of us out here too. I have had the best couple months I have had in years after a Dr. tried a treatment. I am feeling grateful. Not sure if it will hold and I'm not saying there are no bad days but much improved!

    • @toma2292
      @toma2292 5 ปีที่แล้ว

      PS My insurance called me a couple weeks ago and said they would cover a full review of my case at Mayo. I said not now; I just want to enjoy what I have.

    • @amyloidosismyjourneytosucc4995
      @amyloidosismyjourneytosucc4995  5 ปีที่แล้ว

      Thank you Tom!!

  • @cheryllaity2369
    @cheryllaity2369 5 ปีที่แล้ว +2

    Hello Dan, My Dad suffered with AL Amyloidosis ...affecting his liver...it was the same with him going back and forth between doctors until finally diagnosed... I had never heard of this disease until then ..who did?!..I know exactly what you’re going through...I love your positive outlook!!!..Wishing you health and happiness...🍀

    • @DanLier
      @DanLier ปีที่แล้ว

      Thank you Cheryl

  • @subasu478
    @subasu478 4 ปีที่แล้ว +1

    Dan, how are you doing? I did to see your recent video. I hope, you are doing good. Your health is good.please post your recent video about your amyloid..

  • @dvrprotechs
    @dvrprotechs 8 วันที่ผ่านมา

    Hello Dan! It's present day but I'm still catching up on, and drawing inspiration from all of your videos. This is Manny from Texas with a status of unknown/undetermined. Although I've had negative bone marrow and fatty tissue biopsies, am not ruling out AL due to all the symptoms I am suffering from. And like you back in 2017 - 2019, feel like I'm slowly dying from. Cannot agree with you more regarding Cardiologists and their dismissive attitude despite the gauntlet of tests. Putting my trust in Hematology/Oncology, and Neurology for now. And of course, the positive vibes I receive from you. Thank you for all you do, and look forward to seeing you Wed.

  • @theself-helpconnection3731
    @theself-helpconnection3731 4 ปีที่แล้ว +1

    Hi Dan, you mentioned that you do visualization and positive mind set, but I'm wondering if you have come across with the work of Dr Joe Despenza aprouch. Do you practice meditation! Have you read any of his book's. Please let me know if you have!Thanks

    • @DanLier
      @DanLier ปีที่แล้ว

      Yes, I love Dr. Joe

  • @SuperRuthJ
    @SuperRuthJ 5 ปีที่แล้ว +1

    My husband was diagnosed with cardio amyloidosis, too late. Passed away 4 months later, on April 15. He is with Jesus now, where there is no pain and suffering. Amen! You have helped me, when I was researching about this disease. Hearing about your journey and positive attitude. I will keep you in my prayers. God bless you!

    • @DanLier
      @DanLier ปีที่แล้ว +1

      I'm so sorry Maria. Amyloidosis is a very challenging disease as it's so often overlooked and undetected. Sigh. thank you.

    • @SuperRuthJ
      @SuperRuthJ ปีที่แล้ว

      @@DanLier Thank you❤ I have been following you since my husband was diagnose with amyloidosis. God bless you!❤