I appreciate all your postings. As someone living with metastatic breast cancer, I can reassure you that many survivors and warriors I have met and spoken with are very comfortable with the expression "chemo brain". There is instant recognition and connection that the symptoms of it are real and a common occurrence. No need to select different terms for it. It can actually be frustrating when word selection and memory are a challenge, to have to verify in discussion that a different set of terms are referring to the same condition, because then you have to work in the discussion first just to agree on definition of terms. Every survivor/warrior I have spoken to agrees though, this is a condition that requires a great deal more research. Thank you again.
Yes, you're right! A shared language is so important when communicating with others. Many of us who treat people with chemotherapy and care for survivors have had the term "chemobrain" rejected that we've become careful with the words we use. At the same time, I know that the term resonates with people and makes them feel less alone. Thanks for sharing your opinion and experience with us.
I have watched so many of your videos and they are so Informative for everyone - I just having my second ACT next Wednesday and I am learning French or relearning that’s how I pass the time and it really resonated with me when you mentioned languages - on a personal note your presentation on all videos is so calming and very clear thank you from London
I am glad that I developed a lot of small habits over the last 5 or so years, i.e always putting my keys in the same basket and handbag on the same chair when I walk in the door, always taking the dog for a walk before I really start my day, always making my bed in the morning... these have helped me while feeling sick all over my body, yet not quite sick enough to call the doctor. (I have just had #2 of 8 chemos.)
Hello, I am 14 years old and I'm very worried about my mother and the memories we've made. My mother has come back home after 8 days of being in the hospital, i think it was blood transfusion or something along those lines. After i came back from school, my father approached me and told me to talk to my mom more often as she is experiencing memory loss. I need a clear answer if this is curable or if she will forget everything. I'm extremely worried, I can't live without my mother. I'm extremely sad because I myself was not the perfect son for her, and I don't want to end it here.
Thank you so much for writing. It is so clear how much you love your mother. She is fortunate to have a son who cares so much about her. It is common after being diagnosed with cancer to have problems with staying on top of things. We get distracted and overwhelmed. It is highly unlikely that your mom will have difficulty with memory in the way that you're worried about. The memory problems we see in people who get chemotherapy are primarily problems with finding words and with focusing. These are not trivial problems of course! But we do not see problems with making memories with family, etc. I hope this is helpful. As your mom recovers from surgery and the acute stress eases up, you will probably see her be more like herself.
I already have these problems. I would be a vegetable if I had to go through chemotherapy. Luckily, my cancer was caught extremely early and I will not be having chemo. I really feel for women having to go through all of this. It is bad enough having to go through surgery and radiation. Add on chemo and estrogen blockers....it is just not fair.
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I appreciate all your postings. As someone living with metastatic breast cancer, I can reassure you that many survivors and warriors I have met and spoken with are very comfortable with the expression "chemo brain". There is instant recognition and connection that the symptoms of it are real and a common occurrence. No need to select different terms for it. It can actually be frustrating when word selection and memory are a challenge, to have to verify in discussion that a different set of terms are referring to the same condition, because then you have to work in the discussion first just to agree on definition of terms. Every survivor/warrior I have spoken to agrees though, this is a condition that requires a great deal more research. Thank you again.
Yes, you're right! A shared language is so important when communicating with others. Many of us who treat people with chemotherapy and care for survivors have had the term "chemobrain" rejected that we've become careful with the words we use. At the same time, I know that the term resonates with people and makes them feel less alone. Thanks for sharing your opinion and experience with us.
It's so true, I have been watching my wife suffering from brutal chemotherapy
Chemotherapy can indeed be very hard. Your wife is fortunate to have you.
I have watched so many of your videos and they are so Informative for everyone - I just having my second ACT next Wednesday and I am learning French or relearning that’s how I pass the time and it really resonated with me when you mentioned languages - on a personal note your presentation on all videos is so calming and very clear thank you from London
Thank you for watching and your positive feedback!
I am glad that I developed a lot of small habits over the last 5 or so years, i.e always putting my keys in the same basket and handbag on the same chair when I walk in the door, always taking the dog for a walk before I really start my day, always making my bed in the morning... these have helped me while feeling sick all over my body, yet not quite sick enough to call the doctor. (I have just had #2 of 8 chemos.)
Thanks for sharing these tips. I know that they will help other people who watch these videos.
In addition to the insomnia and hot flashes, I am going to be losing my keys for the next 5 year's? I really hate breast cancer!
We hate breast cancer too! You are not destined to be losing your keys for 5 years. We promise!
Hello, I am 14 years old and I'm very worried about my mother and the memories we've made. My mother has come back home after 8 days of being in the hospital, i think it was blood transfusion or something along those lines. After i came back from school, my father approached me and told me to talk to my mom more often as she is experiencing memory loss. I need a clear answer if this is curable or if she will forget everything. I'm extremely worried, I can't live without my mother. I'm extremely sad because I myself was not the perfect son for her, and I don't want to end it here.
Thank you so much for writing. It is so clear how much you love your mother. She is fortunate to have a son who cares so much about her. It is common after being diagnosed with cancer to have problems with staying on top of things. We get distracted and overwhelmed. It is highly unlikely that your mom will have difficulty with memory in the way that you're worried about. The memory problems we see in people who get chemotherapy are primarily problems with finding words and with focusing. These are not trivial problems of course! But we do not see problems with making memories with family, etc. I hope this is helpful. As your mom recovers from surgery and the acute stress eases up, you will probably see her be more like herself.
very helpful .. thank you 🎉
Glad it was helpful!
I already have these problems. I would be a vegetable if I had to go through chemotherapy. Luckily, my cancer was caught extremely early and I will not be having chemo. I really feel for women having to go through all of this. It is bad enough having to go through surgery and radiation. Add on chemo and estrogen blockers....it is just not fair.
Totally agree that it's not fair!
It is so true, I literally forget words sometimes. It's horrible, I laugh at malot these days ❤
Thanks for sharing your experience. It's so helpful for other people to know they are not alone.