The many lives irreversibly destroyed by the hair loss drug Finasteride

แชร์
ฝัง
  • เผยแพร่เมื่อ 12 ก.ย. 2024
  • Learn more: pfsnetwork.org
    Finasteride is a popular drug marketed to young men for male pattern baldness. In our latest podcast series, patients, their loved ones and clinicians speak about the devastating impact Post-Finasteride Syndrome has had on their lives.
    Post-Finasteride Syndrome is the current term for a rare syndrome of devastating physical, neurological, and sexual side effects which continue even after stopping finasteride. The condition occurs primarily in younger men who have taken the drug to treat hair loss. There is currently no effective treatment.
    PFS Network is the largest patient-led organisation and a registered charity. We aim to increase awareness of Post-Finasteride Syndrome and advance scientific understanding of what is a poorly understood and highly stigmatised disease.
    More research into Post-Finasteride Syndrome is desperately needed. Learn more about and support important new scientific research here: pfsnetwork.org...
    Please subscribe to our channel for patient stories and content regarding PFS.
    Stay connected with us:
    Twitter: / pfsnetwork

ความคิดเห็น • 113

  • @mitchsabine4248
    @mitchsabine4248 2 ปีที่แล้ว +59

    Enormously proud of everyone who shared their stories. You are all heroes.

    • @northernstar6526
      @northernstar6526 2 ปีที่แล้ว +5

      A big thank you to all the brave men who spoke out. And also thank you for putting all this together, Mitch! We have been in the shadows for too long. If all these stories had been out there in the past, I would have never taken Finasteride. All of you are heroes and saving lives, if we can tell people the true cost they risk when taking Finasteride.

    • @MrCaradras
      @MrCaradras 2 ปีที่แล้ว +6

      I'm very glad you're doing this for us Mitch!

    • @David-so6kv
      @David-so6kv ปีที่แล้ว

      Thank you so much so sharing your stories guys. You are saving lives!!

    • @tired_of_everything0
      @tired_of_everything0 ปีที่แล้ว

      ​@@northernstar6526do you have these issues too?

    • @SelleysGapFiller
      @SelleysGapFiller 6 วันที่ผ่านมา

      Finasteride ruined my life. I have a chronic itchy butthole even years after stopping the drug. And no one understands my pain.

  • @kathleent1085
    @kathleent1085 2 ปีที่แล้ว +23

    Thank you to everyone speaking up about this.

  • @ashleysilver5594
    @ashleysilver5594 2 ปีที่แล้ว +34

    Good finally a new PFS video. Keep the awareness going till they remove this toxin. The brain fog just doesnt go away and also the emotional numbing.

  • @imeleventeen
    @imeleventeen 2 ปีที่แล้ว +30

    These videos stopped me from starting finasteride even after ordering. Thank you guys for this.

    • @GigaChad-em9qw
      @GigaChad-em9qw 2 ปีที่แล้ว +2

      What are you gonna do about your hair

    • @imeleventeen
      @imeleventeen 2 ปีที่แล้ว +5

      @@GigaChad-em9qw well my hair aint really bad yet so im just gonna use minoxidil and derma roll

    • @imeleventeen
      @imeleventeen ปีที่แล้ว

      @Duncan MacLeod Yeah I know about Minox, but I was able to slowly go on and find out it’s fine and have used it for a couple years at that point for facial hair only. But man, all of these stories are no go’s for me. If for some reason it reacts with me like that I wouldn’t last 6 months. Not worth it to me. I’d rather pay for a hair transplant down the road when I need one.

    • @imeleventeen
      @imeleventeen ปีที่แล้ว

      @@Thehappymasksalesman alright i’ll atleast do that

    • @victorlopezgonzalez8516
      @victorlopezgonzalez8516 ปีที่แล้ว +1

      ​@@GigaChad-em9qw lose the hair or lose the life?? You tell me what's more important?? Tell him what's more important but in the meantime keep quiet

  • @christylac8280
    @christylac8280 2 ปีที่แล้ว +20

    Thank you for sharing this information and these personal stories so that others may see the seriousness of PFS. Love you Rita, never doubt that your strength in sharing Danny's story will make a difference.

  • @marielux7372
    @marielux7372 2 ปีที่แล้ว +19

    Big Pharm needs to be held accountable

  • @AO-ss2eo
    @AO-ss2eo ปีที่แล้ว +7

    I took it for two weeks bc my hair was falling out, I got a prescription from the “hims” application. I started it five months ago…..I literally feel like I died inside. If I could choose be bald in my twenties over these adverse effects I have experienced, I would choose being bald

  • @richard9124
    @richard9124 2 ปีที่แล้ว +22

    I’m another long-term sufferer from this drug. I quit over 11 years ago. My symptoms include chronic, debilitating fatigue, practically non-existent libido, severe muscle wastage, digestive issues (bloating, GERD, very slow transit), brain fog, very low body temperature (almost hypothermic at times), and probably 30+ other more “obnoxious” symptoms. This drug can definitely change your life and make you a shell (or worse) of your former self.

    • @shawnpeters2196
      @shawnpeters2196 2 ปีที่แล้ว +1

      How long did you take it?

    • @antoneckhart4010
      @antoneckhart4010 2 ปีที่แล้ว

      I have a protocol for brain fog. Its a bit dangerous though. Felt like my brain had been rinsed with fresh mountain spring water.

    • @RichCwm
      @RichCwm ปีที่แล้ว

      lol. You're just a hypochondriac. This drug isn't to blame.

    • @carlospalma_
      @carlospalma_ 11 หลายเดือนก่อน

      Do you point your symptoms back the Finasteride? Aren’t you sure it wasn’t a Placebo?

    • @antoneckhart4010
      @antoneckhart4010 9 หลายเดือนก่อน

      who is the question too?@@carlospalma_

  • @MC-pc2hf
    @MC-pc2hf 2 ปีที่แล้ว +21

    Thanks to everyone who is speaking up about this. As someone living with PFS for over ten years now, I can relate to many of the people in this video. The soul-destroying anhedonia and cognitive problems are the worst symptoms for me. And there's no help to get from doctors.

    • @marlon323
      @marlon323 2 ปีที่แล้ว

      Antidepresivos?

    • @benking869
      @benking869 2 ปีที่แล้ว

      @@marlon323 what do you mean by that?

    • @marlon323
      @marlon323 2 ปีที่แล้ว +2

      @GABA weight training 💪helped me.

    • @SaiSai-zm5oz
      @SaiSai-zm5oz ปีที่แล้ว

      @GABA well said

    • @carlospalma_
      @carlospalma_ 11 หลายเดือนก่อน

      Man, I was about to start taking it today. I have never tried that before. You have had side effects FOR 10 YEARS?! What happened?

  • @AC-ns4gu
    @AC-ns4gu 2 ปีที่แล้ว +16

    Thank you to everyone at PFS Network and the patients for sharing their stories. Takes tremendous courage to go on camera with this condition.

  • @MT-nu3vl
    @MT-nu3vl 2 ปีที่แล้ว +11

    As a fellow sufferer I greatly appreciate all the work that has gone into this to help raise awareness for this horrific condition.

  • @jboesky8
    @jboesky8 2 ปีที่แล้ว +12

    Thank you for posting this video. I deeply appreciate the awareness that your bringing to this horrifying condition.

  • @georgecrespo370
    @georgecrespo370 ปีที่แล้ว +7

    Jesus. I bought this maybe 1.5 years ago. For some reason or another I never touched it. I've had mental health issues since 18 on and off. I couldn't not imagine what this would have done to me. Just threw this away Just now. Thank God I never touched this stuff.

    • @Josh-fp2qn
      @Josh-fp2qn ปีที่แล้ว

      And I have even heard stories that guys were fine until 10 years after using the drug. Then the side effects occurred.

  • @CiproIsPoison
    @CiproIsPoison 2 ปีที่แล้ว +13

    Horrible. Some good the FDA is, huh!?

  • @mansoorahmad8980
    @mansoorahmad8980 2 ปีที่แล้ว +7

    My friend you are doing God's work. Thank and stay blessed

  • @yildirim.bayezid44
    @yildirim.bayezid44 หลายเดือนก่อน

    Thanks to this video I changed my plan, I'm never touching finasteride ever. I would rather be bald or wear a hair system than taking this drug. I hope all of you get well soon.

  • @jaapjan858
    @jaapjan858 2 ปีที่แล้ว +4

    Brave People.. thanks for sharing yr stories

  • @atvbass10
    @atvbass10 ปีที่แล้ว +7

    If you think for one instance that suppressing a male sex hormone won’t have consequences, you are sadly mistaking.

    • @Josh-fp2qn
      @Josh-fp2qn ปีที่แล้ว +1

      This drug is basically change a man into a woman.

  • @jeysmith7445
    @jeysmith7445 2 ปีที่แล้ว +1

    you are so brave on showing publicly your cases

  • @ryanclark5193
    @ryanclark5193 2 ปีที่แล้ว +10

    Let's hope this raises awareness the world needs to know what this drug can do and sufferers need help before more lives are destroyed or even lost

  • @TheDash35
    @TheDash35 2 ปีที่แล้ว +13

    I have taken 1mg everyday since 2018 and I only had 1 side effect. My hair improved.

    • @grv91vr23
      @grv91vr23 2 ปีที่แล้ว +12

      Till you stop the drug and then experience a crash

    • @FCS81
      @FCS81 ปีที่แล้ว

      Your comment is worthless

    • @zuu1701
      @zuu1701 3 หลายเดือนก่อน

      Good for you

  • @jamie0008
    @jamie0008 2 ปีที่แล้ว +2

    Thanks for that video, really informative

  • @NpcAvoider
    @NpcAvoider ปีที่แล้ว +6

    I’ve noticed that the men interviewed on this channel almost instantly experience adverse effects (within 1-4 uses). Which leads me to believe there are men with genetic predisposition to the drug’s sides and should NOT take it. Has there been any research into this, and if not, why? There are many men who have no issues - but clearly, there are some men who should never ever touch this stuff. And how/why that’s not tested for beforehand is unfathomable.

    • @RichCwm
      @RichCwm ปีที่แล้ว +1

      I guarantee the majority of these guys are just placebo and are depressed for other reasons and attributing it to this drug. I mean look how ridiculous the first guy was, he thinks taking ONE pill of finasteride 2 1/2 years ago has irreversably fucked him up. That's plain retarded.

    • @RichCwm
      @RichCwm ปีที่แล้ว +1

      @@tired_of_everything0 lmao!! you can't be that silly surely. It's all in your head man

    • @tired_of_everything0
      @tired_of_everything0 ปีที่แล้ว +3

      @@RichCwm I can't smell or taste anything

    • @RichCwm
      @RichCwm ปีที่แล้ว

      @@tired_of_everything0 haha. good one man

    • @tired_of_everything0
      @tired_of_everything0 ปีที่แล้ว +3

      @@RichCwm no one's stopping you to take it. don't do clownery here

  • @josephquezada6138
    @josephquezada6138 22 วันที่ผ่านมา

    the crazy part is, you either get pfs or youre stuck taking the pills the rest of your life

  • @descubriendoconisaac
    @descubriendoconisaac 2 ปีที่แล้ว +9

    I am one of them .. but life is only one

    • @Slidehhy
      @Slidehhy ปีที่แล้ว

      You ok now

    • @descubriendoconisaac
      @descubriendoconisaac ปีที่แล้ว

      @@Slidehhy no

    • @tired_of_everything0
      @tired_of_everything0 ปีที่แล้ว

      Man it's been 1 month it's brutal. What are your symptoms? please I can't live like this

    • @Slidehhy
      @Slidehhy ปีที่แล้ว

      @@tired_of_everything0 you will survive

    • @descubriendoconisaac
      @descubriendoconisaac ปีที่แล้ว

      @@tired_of_everything0 no sex drive .. And ED

  • @SeanOCallaghan0106
    @SeanOCallaghan0106 ปีที่แล้ว +3

    You prevented me from taking it. I'm gonna try natural remedies and if they dont work im just gonna shave

    • @tired_of_everything0
      @tired_of_everything0 11 หลายเดือนก่อน +4

      you just saved your life

    • @tired_of_everything0
      @tired_of_everything0 10 หลายเดือนก่อน

      @@milenavidmar2733 Weird way to come out as gay man. I understand you're obsessed with how others look.
      Just come out already

  • @Lucaaaazz
    @Lucaaaazz 8 วันที่ผ่านมา

    I took it for 4 months, barely no side effects. Then I mixed it with isotretinoin because of acne. For a short time I had an ed, but a few Days later the side effect were cone. So I dont know if i should start again when im off on isotretinoin.

  • @Josh-fp2qn
    @Josh-fp2qn ปีที่แล้ว +4

    Wow. Forget fin. Getting a hair system instead.

    • @tired_of_everything0
      @tired_of_everything0 ปีที่แล้ว +2

      you just saved your life

    • @tired_of_everything0
      @tired_of_everything0 11 หลายเดือนก่อน

      @@Josh-fp2qn probably. this dude is a psycho. Almost all the people I talked to said they had side effects

  • @malikallen9675
    @malikallen9675 2 ปีที่แล้ว +7

    Can I tell my story

    • @PFSNetwork
      @PFSNetwork  2 ปีที่แล้ว +3

      Hi Malik, we would be happy to have you on the next series. Please reach out via our website - pfsnetwork.org.
      Thanks.

    • @malikallen9675
      @malikallen9675 2 ปีที่แล้ว +2

      @@PFSNetwork also have you heard about hyperbaric oxygen therapy chambers. And do you think that would be beneficial to maybe help or heal are condition.

  • @maltiveru
    @maltiveru 18 วันที่ผ่านมา

    What about fin topical solution at low dose 0.25mg?? Does it do the same. I have been on minilox for 11 years, but still cannot keep my hair. Can someone share info pls.

  • @fredbloggs6080
    @fredbloggs6080 2 ปีที่แล้ว

    I just posted a somewhat detailed account, with a question, twice, but it disappeared. I don't know if it's been deleted by the channel owner, or more likely by TH-cam bots. If it were held for review by the channel owner I could still see it when signed in. Let me just pose a question, which I haven't found a good answer for: Does PFS happen to those on TRT trying to lower DHT, especially if one had similar symptoms to PFS decades earlier, years before TRT, after taking saw palmetto extract for one month, which took about two years to mostly recover from?

  • @randall5306
    @randall5306 2 หลายเดือนก่อน

    Finastetide rhymes with suicide for some crazy reason.
    Who woulda thunk it 😢

  • @joaotome2248
    @joaotome2248 2 ปีที่แล้ว +1

    Do you think it is possible to get this from a natural product like "pumpkin seed oil"? I took 1000mg 2 times a day for a month and ive been suffering a lot. I wish i would know. PSO is a 5ar inhibitor like saw palmetto or finasteride. Im scared this wont improve

    • @carlospalma_
      @carlospalma_ 11 หลายเดือนก่อน

      Any updates?

    • @zuu1701
      @zuu1701 3 หลายเดือนก่อน

      Absolutely you can get this from Saw Palmetto

    • @DaniboyBR2
      @DaniboyBR2 2 หลายเดือนก่อน

      You can get it from saw palmetto but I do'nt think pumpkin seed oil is strong enough to make you feel these more hardcore effects.

  • @satyamthapa7
    @satyamthapa7 หลายเดือนก่อน

    any one who successfully cure pfs ????

  • @GuiltySpark347
    @GuiltySpark347 หลายเดือนก่อน

    Ruined my semen volume and libido significantly.

  • @jayrollo1352
    @jayrollo1352 ปีที่แล้ว +1

    So guess it looks like my only option is to be bald and single. Ugh.

    • @Josh-fp2qn
      @Josh-fp2qn ปีที่แล้ว +2

      Hair system

    • @tired_of_everything0
      @tired_of_everything0 ปีที่แล้ว

      being bald is better than this shit. I don't know how to live

    • @GuiltySpark347
      @GuiltySpark347 หลายเดือนก่อน

      Hair transplant