I agree i was so happy when i found this channel. I recommend checking out another channel i found with an absolutely beautiful couple and charming content. Its called Squirmy and Grubs. Its about a 27yr old guy with SMA and his absolutely adorable fiancee. Its basically a vlog channel of an inter-able couple and it has the most heartwarming and funny content based around their lifes. I definitely recommend you check them out i promice you will thank me haha.
Earlier this year I overheard a child saying to his mom “ look it’s a wheelchair!” Her answer was “Some people have legs that sometimes doesn’t want to cooperate.” She gave a explanation of why someone may need a wheelchair. For me I have a wheelchair because my body doesn’t always want to stand or I get really lightheaded.
I'm in a wheelchair and just learned that I have another illness (yay) that will kill me in a couple of years. Being able to speak openly without worrying that I'm upsetting someone is refreshing. For instance, my daughter and I joke around about my crazy funeral choices. (I have a weird sense of humor) I'm now selling everything and moving to an island because that's my last wish. Some people don't get it, but true friends do and they'll support you. Everyone needs friends like that. Just like you have the ladies with you. It's someone who understands not only what you say, but how you must feel. Wonderful.
I have been disabled all my life, So I have been messing with people since I can remember. Plus it does have its perks. Cutting the line at DMV, being let in before the rest of the crowd and so on. Just started following wheels2walk. Keep it up the general public have no idea what we go through. Especially the parking spots.
I'm an old guy who has been in a wheelchair for the last two years because of a spinal injury. While traveling through Virginia I met this young kid in a really sick wheelchair and it was an instant connection. I enjoyed him telling me all about his chair. I had about sixty years on him but the difference in age didn't matter. We were sharing the same life experience in space and time.
Oh my god that bathroom thing was amazing! Where was that eight years ago! I struggled with that for five years and finally learned it three years ago! Thank you so much you are helping so many people
Back in the early 90's a good friend of mine took a nasty fall while at work. Crushed his cord mid back. The doctors cut him from the crack of his butt to between his shoulder blades. He wanted to die for months. One day I called him up to check on him and he didn't answer the phone. I left work early and headed to his house which we had added hand rails and ramps to before he left the hospital. When I got to his house no one answered the doorbell / intercom. I went to the back and still nothing. I panicked! After running around the house banging on Windows and trying to see if I could get in I remembered when we were kids his mom used to keep a back door key in the little barn. After letting myself in the house I yelled for Beaver ( my friend). I heard a quiet voice say "I'm in here." I flew into his room. Nothing. Flew into his bathroom. Nothing. Now I'm scared and angry. Standing in the bathroom door I yelled "G## D#####, BEAVER WHERE ARE YOU!" I'm over here on the floor. WHERE? Half under my bed. I got down on my hands and knees and looked under his bed. There he was on his belly half under the bed. I asked, "Beaver why are you on the floor?" He smiled, (it was the first real smile in 10 months) looked me dead in the face and said, "the wheels on my bed (hospital type) aren't locked. Dummy me asked, did you fall? He rolled is eyes and said no I just threw myself down here to get a better look. I got up off the floor and moved his bed out of the way and there was my friend buck naked on the floor. Beaver why are you naked was all I could think of asking. He laughed and asked me to help him up. Now I'm a med tech but I had never had to pick up someone from the floor by myself. Well it took us 4 good tries but we finely got him in his chair and into his shower because with all the pushing and pulling he crapped on himself and me. I jumped in and out of the shower and threw my clothes in the washer while he got dressed. I locked his bed wheels and he showed me what he was doing when the bed moved sending him to the floor. We had a long talk and that's when he decided to start going to the "handicap meetings" we never told anyone about him falling or laying on the floor for 6 hours but he and I can now laugh about how panicked I was. But when one of our non wheelchair friends is complaining about how cluttered their house is or how they had to park in the far end of the parking lot. We just smile. He now has a wife and 3 kids. He has friends in both the wheeled world and the non wheeled world. To tell you the truth I don't notice his chair anymore he's just Beaver. And instead of building buildings he designs them.
I have fallen out of my chair multiple times the first couple years. I'm not afraid of that at all. Someone always stops and helps. I even have had cars stop and get out and help me. I literally have NO FEAR. I like going fast downhill, it's fun. I like doing 360s in my chair, and I'm 57. Never too old to have fun. Going skydiving this summer . I say just get out there and face your fears. Who wants to live a life afraid of everything. I'm already in a wheelchair, so what's the fear of falling? We don't fall that far. I've gotten good at getting back in my chair by myself. It just takes practice if you're semi-ambulatory. We have no support groups where i live. The only thing that bothers me is the dang parking. All the lazy people get the spots then i have nowhere to park. And the police don't enforce handicapped parking here. I peed in my shoe one time. That was funny. I still laugh about that. And i laughed when i went flying out of my chair too. It was funny. I wasn't hurt but because i was laughing, i couldn't get back up in the chair for a few minutes.
I am totally new to being in a wheelchair & I certainly feel out of place because of it. I can walk completely on my own, however I have a condition called POTS & standing up for too long, even like 2 minutes can cause me to pass out or even have a seizure. I use a wheelchair when out of the house but I always feel really weird about it. I love your videos, they’re helping me slowly but definitely helping❤️
@nevaehcomey4792 expect pushing to wear you out at first I realized I was working my abs and arms so much but I could just take a break and rest right there no stress about looking for a place to sit. This video taught me a lot like the wheelie gravel travel. And backing down like off a curb. I have to reserve energy for loading my chair in and out of the car bc it's not as light weight as thiers but it's what I could get. Definitely make sure urs fits you btw.
I've been a wheelchair user probably longer than most of the people in this video and there's still a lot of things that I'm fearful of trying but this and every other one of your videos is helping me get out of my own head and to get out and do things.
@@MrMduchesne23 I've been a paraplegic 40 years. I was 17 years old when my boyfriend fell asleep at the wheel, I was in the bed of the pickup. Have a blessed glorious day in Jesus name Amen.
I love how this was like an old school PSA 😭 so heartwarming! Being an able-bodied person I love that I found your channel because I feel like I’m getting a different perspective on life and it’s refreshing to see!
What I liked so much about this video is it takes nothing for granted. What I mean is, that I've been disabled from birth, so I've used a wheelchair since I was big enough to fit into one. So, many of the things you teach in the video I just 'do' without thinking too much about how I do it. You take people through the basics which I think is cool!
As someone w/ an invisible disability, thanks for all the self-confidence encouragement and the educating video. I have a service dog and almost daily get “who are you training her for?” You’re right, humor can really help.
If I see a good-looking guy, I'll stare at him. If he happens to be in a wheelchair, I'll still stare at him, but in that case he's more likely to notice. Then I feel awkward because I think he's probably thinking that I'm staring at him because of the wheelchair. But no, actually I'm just staring at him cuz he's cute!
As a non disabled person the only advice I can give is simply this "IF YOU LIKE SOMEBODY disabled or not don't EVER be afraid to say" hi" If they look at you like your an alien with 3 heads well SCREW THEM AND MOVE ON!! you don't need that shit!! I would NEVER treat a disabled person with disrespect... But I guess that's they way I've been brought up! X
Hi, I just wanted to say thank you for posting videos like this and being so open and honest. Personally, I watch videos like this to gain perspective and knowledge about how different people approach or address situations that have required them to change their lifestyle and how to be empathetic and respectful to people living with needs that are different from my own. It's great that are channels like this that people can watch for advice and support! Keep up the good work!
So true about the bond and also about adaptive sports! When my daughter with CP went to her first paraswimming meet she looked around right after we walked in the door and said, “These are my people.”
I’m able bodied but deal with a lot of back pain from an injury. I do some things a little differently than other people because of the pain in my lower back, but your videos give me a different perspective on my issues. You’re so positive and focus on educating people and I think it really does break down the barrier between totally able bodied people and others who have to get stuff done a little differently. What a great concept for a channel, this is AWESOME. Keep up the good work
I have an autoimmune disease that cases RA, Lupus, Scleroderma etc. When I first got sick, I was very young and wanted nothing more than to ignore the problem and not have to stand out - more than I already was. Little did I know the waddling like a penguin I was doing was making me stand out more than a wheelchair ever would. 🙄 Today I use a rollator to get around my house and for small bits of walking. I use a motorized scooter for any distance. My disease goes up and down in intensity, so I’ll feel really well for years and years and then BOOM!! My mobility falls off and I spend years recovering. Sadly, exercise can exacerbate the disease and the damage done. Currently I’m dealing with bladder issues and needing surgery to remove my bladder, so Jesi’s demonstration of her catheter technique was very helpful for me. Thank you Jesi for putting yourself on display! No offense Richard, but your catheter technique-while interesting and informative-doesn’t help me much! 😳 Unfortunately for me, even though my disease is rare, there are many more people being diagnosed with it as the Internet is making the world smaller. My case is entirely unique, problems that occur to me are largely unheard of so trying to find people like me to talk with is extremely hard. Most of the people I’ve found in online “chat rooms” are newly diagnosed. I’m on 34 years living with it, I’m afraid to complain or ask for support because I don’t want to scare the newbies. Everyone is different and this disease affects everyone differently. I don’t want them to think, “Oh no. This is my future.” Thank all 3 of you, again, for this video.
I feel you, 13yrs since diagnosed, but have had it my whole life. Sometimes you can get by walking and other weeks to months all I can do is stay in my room. So I think despite the critique, ambulatory wheelchair use by be needed
I also have been dealing with multiple autoimmune diseases MCTD for over 30 years. It's very difficult to live with but on top of that I have injured my spinal cord on two occasions. The first time in 1995 injured brain stem fractured c2/c3 skull in 3 places that time I ended up in a wheelchair for 2 years and slowly learned to walk again. Then in 2018 I damaged my C6 so bad they had to remove it completely I was able to learn to use my arms but took a long time to use my legs again. Using them now I can walk some in my home and drive a standard car, almost five years after that injury and four years after my surgery but the pain, fatigue and flair it throws me into isn't worth using my legs full-time. It's very difficult life.
When she showed that she wears pull ups I was sooo happy. I was born with spina bifida and I cath but I have leaks still so I'm just like her. I've never seen anyone talk about that side of cathing before! And she wasn't embarrassed. It's my number one biggest insecurity involving my disability.
My son has Cerebral Palsy and uses a wheelchair. He has leaks too. I thought condom catheters might be the solution but it slipped off and he still leaks.
Facing a wheelchair your channel has opened a door that the world is still usable to me. I have a neurological problem that also effects my arm strength so there are things yet to figure out, but I now I know there are people who can teach me.
I ve been using a wheelchair for the last 16 years, I am very active but I do feel lonely at times because I hide so much of my life from friends and family. I dont feel like I can share everything with them. I really feel and understand everything you said, I am so glad I found your channel I cant wait to watch more of your videos, Big Thanks Dude :)
I am so grateful to you all for helping me understand that what I do on days I have to use the wheelchair isn't weird... and for showing me some ways to think about barriers that make them less awful. I am in a wheelchair "by choice" in my mid-50s because walking, even with crutches, was so painful I was considering leaving my dream profession (teaching elementary students). We are still trying to find the reason for 40 years of intermittent but increasing pain and weirdness in my legs, but for now I have decided that what is right for me is to stop waiting for a diagnosis, and to live my best life now. I am slowly going through your videos, and feeling less alone. Thank you for being honest about your struggles, for being brave enough to be vulnerable, and for realizing that many of us may not already have support or resources.
I'm reaching the point of losing it with people who want to know and saying - Covid in the hopes it will make them keep their distance! Which is true because a) cytokene storms don't just happen in Covid they can happen in any fever and I got one at birth and have CP and 2) I'm back in the chair cos it turns out if you cough enough when you have Covid it rips open the massive scarring you get from your original hernia - that is going to take some repairing!
Keep up the good work guys As as non disabled person it opens my eyes watching your videos to what we consider normal and some of the limitations you guys have to deal with every day Hmmm here's an ideal stick council people in a chair for a day..... THAT will open there eyes for the disability community RESPECT! 😂
There was never time for me to think about what other people saw it hurts too much and I feel too bad. God bless everyone that feels like this with strength 🙏
As someone who was born disabled, I have always been willing to answer questions. I love it when kids ask questions instead of staring. The problem I have is some parents who tell their kids to stay away because they will catch something. News flash people you can’t catch a disability.. I have had adults tell me to go back to the asylum where I belong too. People need to be educated. If we start in schools to teach people we aren’t scary then maybe we will get acceptance.
That is so horrible. Just horrible. My parents have only told me to "stay away" from deaf people since I couldn't sign (at that time) and I could make them uncomfortable because you know little kids stare quite a lot, but if it's a mobility issue then there's absolutely no reason to be afraid. (Not that there is a reason for being scared of other disabilities) There's no need to handle disabled people any differently in social situations.
I'm 70 and became crippled 3 years ago. You 3 are amazing help to someone who is just become disabled. Thanks to all of you. Also you 2 ladies are beautiful in and out.
Society is unaware of (And Continues to Ignore) its Own disability: being unable to view from the perspective of others, especially of those who are suffering ailments dealing with mobility. I appreciate the video, thanks for posting.
I highly recommend anyone newly injured to check out the different groups that are available to them in the city. It’s nice seeing them out later on and catching up stuff.
That's how my 8 year old daughter goes up the stairs at home. She goes up scooting on her butt. She prefers to not use her chair inside the house. She would rather crawl and scoot on the floor. She is a master at the stairs.
It took me quite a while to learn to adapt since I lost my legs channels like this gives me inspiration and shows me that I'm not helpless that I can still function like a normal person I now have a power chair which helps me better I still have my manual wheelchair I've been in a wheelchair for over two years but I don't let that stop me I'm just as normal as the next person it wasn't like this when it first happened but videos like this helps me learn that I can do things for myself thank you so much for the inspiration GOD bless
All through college I was harassed with this question (or statement) "You ever get a speeding ticket?" In a wheelchair?! As if?! I would get this moronic query numerous times daily, from students who had the thought process of a grade schooler rather than a college student!
Im not in a wheelchair (yet maybe, well see im only 27) but my chronic illness might develop into where i would need mobility aid, and i can attest to the difference that community gives you, it's incredibly important 🥰 love your videos man, i look forward seeing your no bullshit attitude and how you deal with problems, i might even be able to help someone by showing them your videos, if not for the tips and tricks then just your attitude! I'll check out these ladies too as they seemed super fun too 🥰
I’m not in a wheelchair, but I friends with all different levels of ability. I love that this video was recommended to me, and I wish it would go viral. Great people, great attitudes, great info! 🔥🙌🏻💯
I was in a motorcycle crash three years ago that resulted in a t12 incomplete SCI. I live in Las Vegas and there are literally no support groups that have found here. I’m so glad to hear about the online support group Jesi spoke of! In fact, I have bullet pointed SOOOOO many ideas to follow up on just from this video alone. Plus things to bring up to my new PT that I had been afraid to try previously. Thank u guys so much for this incredibly informative video! Much love ❤️
I’m new to being paralyzed and it’s just been hard to adapt to everything. I’ve been watching videos and I learned that people like to touch you when your in a wheel chair and I had my first experience where they touched me just because I was in a wheel chair and they get in your face 😅
I love what you had to say here. I'm part of a community in Las Vegas that has changed my life since my injury. It is at Driven NeuroRecovery Center. Thank you for your story
Y'all are heroes. Instead of being shell shocked and feeling totally lost and alone and hanging out with my self pity, I have this. What a gift. Now I'm just excited to try out all these neat moves. You rock!! (I'm 30 and my knees are totally bust, zero percent weight bearing, found out I have eds. Cannot stand or walk and knee replacement wont help. Today was my first day in a wheelchair and i had already watched some of your videos. Instead of being scared i thought 'this set of wheels is my ticket to staying independent and i can kick ass in it'. I wouldnt have been able to see it that way by myself)
My name is actually cisco and I just recently became a paraplegic and a wheelchair user it will be a year in a couple of days and I love watching these videos currently I am suffering from pain and addiction and have no friend that are in wheelchairs or disabled. But Wheels2Walking videos have helped me understand my disability and pros and cons they have also helped me learn about my wheelchair. I became disable and never transfered my weight with developed into me have 5 wounds so deep they were down to the bone then I became sepsis because I had a bone infection. Your life and habits do change alot with a spinal cord injury but you can always find ways to overcome those obstacles u think might be impossible to. But thank you guys very much for making a channel like this it truly does help
I met and made frinds with a lady who is wheelchair user I certainly never asked her why she used a wheelchair . Never had to over the course of this friendship she told all about every thing . If she did ot we would still be friends
I am a new ambulatory wheelchair user with hyper mobile Ehlers-Danlos Syndrome. Instability in the spine,hips, pelvis, and lower extremities compress vital nerves resulting in the EDS/POTS/MCAS trifecta. I am also a disabled young nursing school student and I’m learning a lot of this on the fly. My first custom wheelchair gets delivered tomorrow and my biggest concern is finding other wheelchair users to learn from I am so happy I found your channel thank you for all you do!!
It’s great to see some real life suggestions! I use a power wheelchair full time now due to a combination of chronic diseases. There’s so much learn as I go. PT’s and OT’s can suggest things but they’re coming from an able bodied textbook frame of reference, not the same. And the more intimate details of life they really just don’t know what to suggest. Thanks for sharing!
Yes girl! Pull-Ups/ protective underwear for the win! I have full paralysis, so transfering for me looks different than the ways that were shown in this video. So glad I found this channel! 👩🏻🦽❤️
For me, meeting others in wheelchairs became very important very early. But then I’ve also always seen my chair as a friend and freedom rather than as the enemy and failure. For me it even lead to becoming active in disability rights NGO’s and I went as far as being on the national board for a youth organization between 2015 and 2017, would have loved to continue but I got too old for that organization :( Now I don’t meet many with disabilities any longer other than online, but what I did earlier on gave me a good foundation to roll on when it comes to accessibility advocacy and human rights advocacy
@@Staren01 I hope it's helped you, I'm covered in Heathen tattoos, on my hand even, and I still get prayed for. I usually ask which god they're praying to tho 😇
I loved this! I would love to see a whole series on how to roll/crutch and different techniques one can use. Since I started watching you I learned how to wheelie and go down small sets of stairs but I have a hard time holding the wheelie. Can you do one on just how to hold a wheelie?
I completely agree with the video, especially the pressure to be in physical therapy and others wandering how much longer it will take to get “back to normal”. For a long time, I thought I knew what people thought of me because I used to be an able bodied person. But watching your channel has really helped me accept my situation.
I had a stroke 2 yrs ago, and I realize I will spend my life in a wheelchair. I worked hard in REHAB ti escape my chair, now I made my mind up and accept my fate. Whatever MY LORD has planned for me, I will be willing to accept. Thanks for your videos.
This is something I didn't know I needed!!! I definitely feel so seen and right when I find other people with disabilities, but so far it's only really been online. I'd love to find something local with people with similar challenges.
I have crohn's and for 3 years, like you I wanted nothing to do with other patients. but now I'm really happy I decided to join an assosioation of sufferers and I love the open exchange and talking to people who really know what you're dealing with. Everyone who's on the fence: JOIN a network in what ever form, you'll profit. what's the worst that could come from it??
I keep soaking up all the positive vibes. I checked out the Boston Abilities Expo and networked. I wanted to thank you and give you a big cyber hug! I am still in transition in physical therapy and relearning basic skills but I am now hopeful. I rock out with my walker. Everyone have a awesome day😎💪🙌
Hi guys, I'm new to using a wheelchair, thank you for sharing your expirance. The first time I used a public toilet was a nightmare. There was a steep curved slope up to the door. Luckily for me some kind person pushed me up the slope. Once inside the toilet there was Bearley room to get out of the chair. When I did manage to transfer from chair to toilet I was sitting sidesadle. But it worked, till I need paper and to wash my hands. Both were behind my back. It's amazing how a few choices words can really help. Thanks again, you have really helped me.
This is such a freeing video for me. I am getting into the process of getting my self a wheelchair and becoming an ambulatory wheelchair user. I have cerebral palsy and I’ve always thought I would have to stay on my feet and I’m having to come to the realization it’s OK to need to use a realtor even if I can still walk. And seeing you guys talk about it so freely and everything it’s really helpful. Thank you very much.
Thank you for doing this video. I live in a rural area and don't have any wheel friends, so it's nice to see some people that are disabled people living such a great .life. I learned a lot for this video, its very empowering.
It is so important to find other people who are in wheelchairs. I’ve been in one for about 10 years and I have a number of friends who also are in chairs. We had a handicap accessible gym here until it closed last year but a lot of us worked out together and now still get together periodically. I remember one time at the gym hearing a bunch of men discussing sex when you have a catheter. Most people would’ve been horrified to hear the conversation but who else are they going to talk to about this? Finding other people going through the same struggles, you are as key!
Thank you so much for posting this. I have used a wheelchair for about 15 years now as I have MD & bone decay from prednisone. My spine collapsed in August and after surgery I am an incomplete paraplegic. Being disabled was one thing, a SCI is a whole new ball of wax. My entire week was made better when you explained the bathroom and that Pull-Ups are an essential (they should sponsor you). I have a lot of disabled friends but having you folks explain life to the rest of the world is amazing (I know TH-cam shouldn't validate our existence but it sure helps). I am wondering how you folks make it through the day without gloves (dirt, damage and pushing power - also it ca get cold up here is Canada); I just use rubber palmed ones from the Dollar Store - best money I ever spent.
Hi guys this is the first video of yours that I'm watching. I am paraplegic too and you gave me a whole new perspective of things all together!??? You have my eternal gratitude... Keep up the good work and keep up with the same attitude. A friend from Greece!!😊😊😊
At the beginning of my disability I heard a wise person say, "disability is only given to the strongest among us" 💪We are so powerful how we handle it and survive day by day. I have so much respect for all of us. I see strong and wonderful heroes. 🤗 Walking on two feet is for whimps only 😉
Thank you for your courage to talk simply and plainly about dealing with voiding in public restrooms .helped me understand how to defend against public opinion .real .
This has been so helpful to me, I'm not a current wheelchair user because I'm in the middle of getting doctor's to approve it(I can't afford one on my own and I'm a really small size to find used), but most of the time I use my rollator and sit pushing myself around with my feet. I do have suspected EDS with lots of spinal issues. I'm only 22 but I keep partially dislocating my L4 and temporarily paralyzing my legs until I can get it back in place. It's a really scary thing to be taking a shower and all of a sudden my back shifts and I can't move my legs. I don't think I would have been able to survive the past month with these new challenges without this channel. I've had to learn how to transfer myself in really odd positions to the ground so I can reset things. This channel has given me a lot of hope, that even with my health issues I can find employment that's going to work out and find supportive friends, that I can live my life really amazingly. And that even if I do manage to keep injuring my back to the point the paralysis becomes permanent whilst I wait for doctor's to take me seriously and refer me to neurosurgery, that I will still be able to have a fulfilling life. You've given me a lot of hope with my recovery too, I'm nearly 10 months clean and sober, and it's really cool to see other people who have dealt with recovery and significant health challenges. Thank you so much for posting videos like these.
Thank you for sharing your lives now. I am in awe of your video. You being educational to the ignorant opens eyes and minds to be respectful of each other. Thank you
thanks for showing these skills. I'm temporarily in a wheelchair. I was frustrated last week that when I asked if a store was wheelchair accessable, I was told, "Yes, if you go around back and can get up the 5 steps we'll help you." I haven't gotten up/down a single step without help yet so I told her that 5 steps might as well be a mountain. Shortly after, I realized that yes, I could go up on my butt, though I'm not sure if I can get up from the floor and we shouldn't have to go on our butt, unless we want to! In another week, the surgeon takes pins out and I can start physical therapy, so at that point, when I don't have to be as cautious, I'll figure out how to get off the floor.
Thank you so much for all of this info! I am transitioning and using a wheelchair more, so I find this very helpful and encouraging. You guys are the best!
I have nerve damage and EDS and POTS and many other issues that mean standing is really hard for me. And so me and my doctors consider it likely that I will eventually end up in a wheelchair. Watching this video really helped me know I'm not alone and that people in wheelchairs actually can go up and down stairs! So thank you so much!
Not a spinal injury but still need to be out and about in a wheelchair. No help from the NHS either. You have helped me so much, there is no other site to compare with yours in every aspect of my new life. Thankyou so much 😊
This video should be required viewing in every OT and PT program. Your candid discussion of toilet techniques points up key skills that should be covered this well in rehab.
Tears of joy as I watched this! Thank you so much!! I needed this so very much!!! Totally paralyzed on my right (dominate) side. I need more help/training on how to get back into my power chair when I fall. Thank you for this video.
I don’t get people demanding to know personal details from complete strangers. I like the whole you know you can do it thing. I once pulled a fridge up 3 floors of stairs. As a woman I know I can do it, I had the right to do it, and I can choose to never do that again. It’s about choices. Choose to accept the seat, or not, choose to care about strangers, or not. Thank you for being so open. It’s not questions I would ever ask anyone. You guys are super brave to do those stairs, that would terrify me. You guys are awesome, I suspect this helps a lot of people and it gives everyone more insight which I feel is Important. I personally like to know everything I can. I’d love to see a vid like stuff members of the public shouldn’t do. Like if there are social no-nos people might not know about. I always worry I’m going to say or do something dumb without knowing it because I usually suck at social rules.
I don’t think will ever be able to get over having skinny sticks for legs. I have to cover them so I don’t see them. I’m glad some of you have the strength to overcome. I dont know how you do it. I am grateful to have found your channel because you are an inspiration and have enlightened me to many products that potentially could improve my quality of life. Keep it going
I love that you and the commentors are so positive. It's important to have an upbeat outlook. But also, you have to take it easy on your bodies. Being active & a wheelchair user doesn't mean you have to do everything. You don't need to do stairs or parachute or go climbing rocks. Your shoulders & arms will have to last you a lifetime. Mine wore out after 20 yrs of manual w/c use. The pain was excruciating. I use both power & manual now. I wish someone would have told me that my arms & shoulders weren't meant to take the abuse . Instead I kept hearing there will be a cure for SCI in 5 yrs, 10 yrs, etc. I'm 39 years post-injury now. There is still no cure in sight.
You guys are doing great. When I first got injured I was sent home from hospital before rehab and did not even know how to transfer. Been living 26 yrs with C7 injury(incomplete) and I can still learn new things from others or at least different ways to do it. THANKS!!!! 😊 good video for family and friends also
Just found your channel. I live in the uk and there isn’t really a “wheelchair community” where I live and I don’t really know many people who use wheelchairs so your channel has helped me. Thanks keep it up
This was really helpful thankyou. As a person who looks after someone who uses a wheelchair the things in this video was really helpful especially the gravel stuff! Love this video xxxx
I don’t have a spinal cord Injury, but I do have POTS and EDS a,omg some other things, and meeting my Chronic Friend (what i call a friend with chronic illness) was one of the best things in my life. We only have 1 condition in common (POTS) but I can talk to her about ANYTHING, and we just get to be Spoonies together Finding that support system, and online groups made me so much more comfortable with my diagnoses. I used to kind of be reserved about sharing my disability, and now I’m pretty much a walking (although not well-) awareness ad.
People complain about the algorithm recommending random things but your channel is the best thing that TH-cam has ever recommended to me.
I love reading comments like this ❤️
@@Wheels2Walking So true. Your friends are very beautiful, I loved this video very helpful. You are very cute too.
Same here
I agree i was so happy when i found this channel. I recommend checking out another channel i found with an absolutely beautiful couple and charming content. Its called Squirmy and Grubs. Its about a 27yr old guy with SMA and his absolutely adorable fiancee. Its basically a vlog channel of an inter-able couple and it has the most heartwarming and funny content based around their lifes. I definitely recommend you check them out i promice you will thank me haha.
Same here. I am not in a wheelchair, but I really enjoy watching the videos and learning about other people's lifes an difficulties.
Earlier this year I overheard a child saying to his mom “ look it’s a wheelchair!” Her answer was “Some people have legs that sometimes doesn’t want to cooperate.” She gave a explanation of why someone may need a wheelchair. For me I have a wheelchair because my body doesn’t always want to stand or I get really lightheaded.
I'm in a wheelchair and just learned that I have another illness (yay) that will kill me in a couple of years. Being able to speak openly without worrying that I'm upsetting someone is refreshing. For instance, my daughter and I joke around about my crazy funeral choices. (I have a weird sense of humor) I'm now selling everything and moving to an island because that's my last wish. Some people don't get it, but true friends do and they'll support you. Everyone needs friends like that. Just like you have the ladies with you. It's someone who understands not only what you say, but how you must feel. Wonderful.
Hey, hope everything is going well for you! And I’m glad you can approach that with humor, your daughter is lucky to have a parent like you ❤️
Enjoy the island 🤍
Thank you Hannah and Jesi for being so open about toileting!! That means a lot for us in the SCI community.
No, the doc sewed it up and called it a loss - Jess, you're soo funny. :)
I have been disabled all my life, So I have been messing with people since I can remember. Plus it does have its perks. Cutting the line at DMV, being let in before the rest of the crowd and so on. Just started following wheels2walk. Keep it up the general public have no idea what we go through. Especially the parking spots.
Best response 😂
I’m very sensitive & careful abt disabled people I wouldn’t dream of asking what happened to you .
he had a chance to say they were his wheelie good friends and he didn’t
Shelby Zielke he diiiid like right at the beginning
He said wheel good friends
I'm an old guy who has been in a wheelchair for the last two years because of a spinal injury. While traveling through Virginia I met this young kid in a really sick wheelchair and it was an instant connection. I enjoyed him telling me all about his chair. I had about sixty years on him but the difference in age didn't matter. We were sharing the same life experience in space and time.
Seriously a special kind of bond.
Oh my god that bathroom thing was amazing! Where was that eight years ago! I struggled with that for five years and finally learned it three years ago! Thank you so much you are helping so many people
Back in the early 90's a good friend of mine took a nasty fall while at work. Crushed his cord mid back. The doctors cut him from the crack of his butt to between his shoulder blades. He wanted to die for months. One day I called him up to check on him and he didn't answer the phone. I left work early and headed to his house which we had added hand rails and ramps to before he left the hospital. When I got to his house no one answered the doorbell / intercom. I went to the back and still nothing. I panicked!
After running around the house banging on Windows and trying to see if I could get in I remembered when we were kids his mom used to keep a back door key in the little barn. After letting myself in the house I yelled for Beaver ( my friend). I heard a quiet voice say "I'm in here." I flew into his room. Nothing. Flew into his bathroom. Nothing. Now I'm scared and angry. Standing in the bathroom door I yelled "G## D#####, BEAVER WHERE ARE YOU!"
I'm over here on the floor. WHERE?
Half under my bed.
I got down on my hands and knees and looked under his bed. There he was on his belly half under the bed. I asked, "Beaver why are you on the floor?" He smiled, (it was the first real smile in 10 months) looked me dead in the face and said, "the wheels on my bed (hospital type) aren't locked. Dummy me asked, did you fall? He rolled is eyes and said no I just threw myself down here to get a better look.
I got up off the floor and moved his bed out of the way and there was my friend buck naked on the floor. Beaver why are you naked was all I could think of asking. He laughed and asked me to help him up.
Now I'm a med tech but I had never had to pick up someone from the floor by myself. Well it took us 4 good tries but we finely got him in his chair and into his shower because with all the pushing and pulling he crapped on himself and me. I jumped in and out of the shower and threw my clothes in the washer while he got dressed. I locked his bed wheels and he showed me what he was doing when the bed moved sending him to the floor.
We had a long talk and that's when he decided to start going to the "handicap meetings" we never told anyone about him falling or laying on the floor for 6 hours but he and I can now laugh about how panicked I was. But when one of our non wheelchair friends is complaining about how cluttered their house is or how they had to park in the far end of the parking lot. We just smile.
He now has a wife and 3 kids. He has friends in both the wheeled world and the non wheeled world.
To tell you the truth I don't notice his chair anymore he's just Beaver. And instead of building buildings he designs them.
This is an amazing story! Thanks for sharing it with me 😁😂😭
How long did it take you to Wright it
Marcy Cooper I ain’t got Time to read that
@@kristinsheldon7940 it's TOTALLY worth reading 📚
@@leafy7717 did you ever find out that's not how you spell (write) lol !
“If you can eliminate the fear of falling you can open up a whole new world of possibilities”
It’s truly an amazing feeling when you can fall and get back in your chair with no help 😊
@@Wheels2Walking I feel the same is true for everyone but perhaps in a more metaphoric way.
Truuuueeee
I have fallen out of my chair multiple times the first couple years. I'm not afraid of that at all. Someone always stops and helps. I even have had cars stop and get out and help me. I literally have NO FEAR. I like going fast downhill, it's fun. I like doing 360s in my chair, and I'm 57. Never too old to have fun. Going skydiving this summer . I say just get out there and face your fears. Who wants to live a life afraid of everything. I'm already in a wheelchair, so what's the fear of falling? We don't fall that far. I've gotten good at getting back in my chair by myself. It just takes practice if you're semi-ambulatory. We have no support groups where i live. The only thing that bothers me is the dang parking. All the lazy people get the spots then i have nowhere to park. And the police don't enforce handicapped parking here. I peed in my shoe one time. That was funny. I still laugh about that. And i laughed when i went flying out of my chair too. It was funny. I wasn't hurt but because i was laughing, i couldn't get back up in the chair for a few minutes.
I am totally new to being in a wheelchair & I certainly feel out of place because of it. I can walk completely on my own, however I have a condition called POTS & standing up for too long, even like 2 minutes can cause me to pass out or even have a seizure. I use a wheelchair when out of the house but I always feel really weird about it. I love your videos, they’re helping me slowly but definitely helping❤️
i have pots too and am getting my first wheelchair today. any tips?
More POTS pals! I've just started using a wheelchair it's so worth it.
@nevaehcomey4792 expect pushing to wear you out at first I realized I was working my abs and arms so much but I could just take a break and rest right there no stress about looking for a place to sit. This video taught me a lot like the wheelie gravel travel. And backing down like off a curb. I have to reserve energy for loading my chair in and out of the car bc it's not as light weight as thiers but it's what I could get. Definitely make sure urs fits you btw.
I've been a wheelchair user probably longer than most of the people in this video and there's still a lot of things that I'm fearful of trying but this and every other one of your videos is helping me get out of my own head and to get out and do things.
How long have you been a wheelchair user?
28 years for me, how long for you?
@@MrMduchesne23
I've been a paraplegic 40 years.
I was 17 years old when my boyfriend fell asleep at the wheel, I was in the bed of the pickup. Have a blessed glorious day in Jesus name Amen.
Me too!! I'm so afraid of stairs, but actually this video made me want to try the things they showed in the video, like how to get up the stairs.
I love how this was like an old school PSA 😭 so heartwarming! Being an able-bodied person I love that I found your channel because I feel like I’m getting a different perspective on life and it’s refreshing to see!
Like that, you added different type of mobility tools in the video such as the forearm crutches.
Both of them a
re gorgeous 😍
What I liked so much about this video is it takes nothing for granted. What I mean is, that I've been disabled from birth, so I've used a wheelchair since I was big enough to fit into one. So, many of the things you teach in the video I just 'do' without thinking too much about how I do it. You take people through the basics which I think is cool!
As someone w/ an invisible disability, thanks for all the self-confidence encouragement and the educating video. I have a service dog and almost daily get “who are you training her for?” You’re right, humor can really help.
If I see a good-looking guy, I'll stare at him. If he happens to be in a wheelchair, I'll still stare at him, but in that case he's more likely to notice. Then I feel awkward because I think he's probably thinking that I'm staring at him because of the wheelchair. But no, actually I'm just staring at him cuz he's cute!
As a non disabled person the only advice I can give is simply this
"IF YOU LIKE SOMEBODY disabled or not don't EVER be afraid to say" hi"
If they look at you like your an alien with 3 heads well SCREW THEM AND MOVE ON!! you don't need that shit!!
I would NEVER treat a disabled person with disrespect... But I guess that's they way I've been brought up! X
Me too. He is very cute.
KyiHsin then tell him. He might think the same or just make his day
I did.@@WheelyHeidi
pari young 💕
Hi, I just wanted to say thank you for posting videos like this and being so open and honest. Personally, I watch videos like this to gain perspective and knowledge about how different people approach or address situations that have required them to change their lifestyle and how to be empathetic and respectful to people living with needs that are different from my own. It's great that are channels like this that people can watch for advice and support! Keep up the good work!
So true about the bond and also about adaptive sports! When my daughter with CP went to her first paraswimming meet she looked around right after we walked in the door and said, “These are my people.”
I’m able bodied but deal with a lot of back pain from an injury. I do some things a little differently than other people because of the pain in my lower back, but your videos give me a different perspective on my issues. You’re so positive and focus on educating people and I think it really does break down the barrier between totally able bodied people and others who have to get stuff done a little differently. What a great concept for a channel, this is AWESOME. Keep up the good work
I have an autoimmune disease that cases RA, Lupus, Scleroderma etc. When I first got sick, I was very young and wanted nothing more than to ignore the problem and not have to stand out - more than I already was. Little did I know the waddling like a penguin I was doing was making me stand out more than a wheelchair ever would. 🙄 Today I use a rollator to get around my house and for small bits of walking. I use a motorized scooter for any distance. My disease goes up and down in intensity, so I’ll feel really well for years and years and then BOOM!! My mobility falls off and I spend years recovering. Sadly, exercise can exacerbate the disease and the damage done. Currently I’m dealing with bladder issues and needing surgery to remove my bladder, so Jesi’s demonstration of her catheter technique was very helpful for me. Thank you Jesi for putting yourself on display! No offense Richard, but your catheter technique-while interesting and informative-doesn’t help me much! 😳 Unfortunately for me, even though my disease is rare, there are many more people being diagnosed with it as the Internet is making the world smaller. My case is entirely unique, problems that occur to me are largely unheard of so trying to find people like me to talk with is extremely hard. Most of the people I’ve found in online “chat rooms” are newly diagnosed. I’m on 34 years living with it, I’m afraid to complain or ask for support because I don’t want to scare the newbies. Everyone is different and this disease affects everyone differently. I don’t want them to think, “Oh no. This is my future.” Thank all 3 of you, again, for this video.
I feel you, 13yrs since diagnosed, but have had it my whole life. Sometimes you can get by walking and other weeks to months all I can do is stay in my room.
So I think despite the critique, ambulatory wheelchair use by be needed
I also have been dealing with multiple autoimmune diseases MCTD for over 30 years. It's very difficult to live with but on top of that I have injured my spinal cord on two occasions. The first time in 1995 injured brain stem fractured c2/c3 skull in 3 places that time I ended up in a wheelchair for 2 years and slowly learned to walk again. Then in 2018 I damaged my C6 so bad they had to remove it completely I was able to learn to use my arms but took a long time to use my legs again. Using them now I can walk some in my home and drive a standard car, almost five years after that injury and four years after my surgery but the pain, fatigue and flair it throws me into isn't worth using my legs full-time. It's very difficult life.
When she showed that she wears pull ups I was sooo happy. I was born with spina bifida and I cath but I have leaks still so I'm just like her. I've never seen anyone talk about that side of cathing before! And she wasn't embarrassed. It's my number one biggest insecurity involving my disability.
My son has Cerebral Palsy and uses a wheelchair. He has leaks too. I thought condom catheters might be the solution but it slipped off and he still leaks.
When I try to pull a heavy door like that open, my shoulders dislocate bc I have a rare illness that causes my joints to dislocate.
Facing a wheelchair your channel has opened a door that the world is still usable to me. I have a neurological problem that also effects my arm strength so there are things yet to figure out, but I now I know there are people who can teach me.
What neurological problem you have cause i also have it
I ve been using a wheelchair for the last 16 years, I am very active but I do feel lonely at times because I hide so much of my life from friends and family. I dont feel like I can share everything with them. I really feel and understand everything you said, I am so glad I found your channel I cant wait to watch more of your videos, Big Thanks Dude :)
Don’t forget FB groups are a great way to meet friends and feel understood
I am so grateful to you all for helping me understand that what I do on days I have to use the wheelchair isn't weird... and for showing me some ways to think about barriers that make them less awful. I am in a wheelchair "by choice" in my mid-50s because walking, even with crutches, was so painful I was considering leaving my dream profession (teaching elementary students). We are still trying to find the reason for 40 years of intermittent but increasing pain and weirdness in my legs, but for now I have decided that what is right for me is to stop waiting for a diagnosis, and to live my best life now. I am slowly going through your videos, and feeling less alone. Thank you for being honest about your struggles, for being brave enough to be vulnerable, and for realizing that many of us may not already have support or resources.
My favorite comeback (to what happened) has been "The most intense game of hopscotch you've never heard of"
🤣😂😭
I just say I'm old. That seems to shut everyone up.
I'm reaching the point of losing it with people who want to know and saying - Covid in the hopes it will make them keep their distance! Which is true because a) cytokene storms don't just happen in Covid they can happen in any fever and I got one at birth and have CP and 2) I'm back in the chair cos it turns out if you cough enough when you have Covid it rips open the massive scarring you get from your original hernia - that is going to take some repairing!
Keep up the good work guys
As as non disabled person it opens my eyes watching your videos to what we consider normal and some of the limitations you guys have to deal with every day
Hmmm here's an ideal stick council people in a chair for a day..... THAT will open there eyes for the disability community
RESPECT! 😂
There was never time for me to think about what other people saw it hurts too much and I feel too bad. God bless everyone that feels like this with strength 🙏
As someone who was born disabled, I have always been willing to answer questions. I love it when kids ask questions instead of staring. The problem I have is some parents who tell their kids to stay away because they will catch something. News flash people you can’t catch a disability.. I have had adults tell me to go back to the asylum where I belong too. People need to be educated. If we start in schools to teach people we aren’t scary then maybe we will get acceptance.
That is so horrible. Just horrible. My parents have only told me to "stay away" from deaf people since I couldn't sign (at that time) and I could make them uncomfortable because you know little kids stare quite a lot, but if it's a mobility issue then there's absolutely no reason to be afraid. (Not that there is a reason for being scared of other disabilities)
There's no need to handle disabled people any differently in social situations.
I'm 70 and became crippled 3 years ago. You 3 are amazing help to someone who is just become disabled. Thanks to all of you. Also you 2 ladies are beautiful in and out.
Society is unaware of (And Continues to Ignore) its Own disability: being unable to view from the perspective of others, especially of those who are suffering ailments dealing with mobility. I appreciate the video, thanks for posting.
I highly recommend anyone newly injured to check out the different groups that are available to them in the city. It’s nice seeing them out later on and catching up stuff.
That's how my 8 year old daughter goes up the stairs at home. She goes up scooting on her butt. She prefers to not use her chair inside the house. She would rather crawl and scoot on the floor. She is a master at the stairs.
Haha 😂 lol
What happened to your daughter?
@@allisond.46 nothing happened to her. She has a genetic disorder that causes brain damage, developmental delays and muscle weakness.
Ashley Neal yup I call it “butt-scoot” when I visit friends
Imglad you have a community of friends.❤
I’m a c3 incomplete quad. Walking with assistance. Hands are starting to work. Thanks for great videos and insight. We’re all in this together!
It took me quite a while to learn to adapt since I lost my legs channels like this gives me inspiration and shows me that I'm not helpless that I can still function like a normal person I now have a power chair which helps me better I still have my manual wheelchair I've been in a wheelchair for over two years but I don't let that stop me I'm just as normal as the next person it wasn't like this when it first happened but videos like this helps me learn that I can do things for myself thank you so much for the inspiration GOD bless
All through college I was harassed with this question (or statement) "You ever get a speeding ticket?" In a wheelchair?! As if?! I would get this moronic query numerous times daily, from students who had the thought process of a grade schooler rather than a college student!
Im not in a wheelchair (yet maybe, well see im only 27) but my chronic illness might develop into where i would need mobility aid, and i can attest to the difference that community gives you, it's incredibly important 🥰
love your videos man, i look forward seeing your no bullshit attitude and how you deal with problems, i might even be able to help someone by showing them your videos, if not for the tips and tricks then just your attitude!
I'll check out these ladies too as they seemed super fun too 🥰
I’m not in a wheelchair, but I friends with all different levels of ability. I love that this video was recommended to me, and I wish it would go viral. Great people, great attitudes, great info! 🔥🙌🏻💯
I was in a motorcycle crash three years ago that resulted in a t12 incomplete SCI. I live in Las Vegas and there are literally no support groups that have found here. I’m so glad to hear about the online support group Jesi spoke of! In fact, I have bullet pointed SOOOOO many ideas to follow up on just from this video alone. Plus things to bring up to my new PT that I had been afraid to try previously. Thank u guys so much for this incredibly informative video! Much love ❤️
Man I love what you are doing in this channel! It makes parents like me raising two kids who will be using wheelchairs so hopeful (and less anxious!)
Last time I was this early, David and Liza were still together
😂🤣😭
Who is liza ?
@@Dumi232 r/whoosh
@@Andrewdeitsch Its a whoosh because I dont watch this channel, can you explain?
Ionut DU 🤦🏽♀️
I’m new to being paralyzed and it’s just been hard to adapt to everything.
I’ve been watching videos and I learned that people like to touch you when your in a wheel chair and I had my first experience where they touched me just because I was in a wheel chair and they get in your face 😅
I love what you had to say here. I'm part of a community in Las Vegas that has changed my life since my injury. It is at Driven NeuroRecovery Center. Thank you for your story
Y'all are heroes. Instead of being shell shocked and feeling totally lost and alone and hanging out with my self pity, I have this. What a gift. Now I'm just excited to try out all these neat moves. You rock!!
(I'm 30 and my knees are totally bust, zero percent weight bearing, found out I have eds. Cannot stand or walk and knee replacement wont help. Today was my first day in a wheelchair and i had already watched some of your videos. Instead of being scared i thought 'this set of wheels is my ticket to staying independent and i can kick ass in it'. I wouldnt have been able to see it that way by myself)
I have post polio paralysis and this is the most I have learned about my disability in one day. Thank you
My name is actually cisco and I just recently became a paraplegic and a wheelchair user it will be a year in a couple of days and I love watching these videos currently I am suffering from pain and addiction and have no friend that are in wheelchairs or disabled. But Wheels2Walking videos have helped me understand my disability and pros and cons they have also helped me learn about my wheelchair. I became disable and never transfered my weight with developed into me have 5 wounds so deep they were down to the bone then I became sepsis because I had a bone infection. Your life and habits do change alot with a spinal cord injury but you can always find ways to overcome those obstacles u think might be impossible to. But thank you guys very much for making a channel like this it truly does help
I met and made frinds with a lady who is wheelchair user I certainly never asked her why she used a wheelchair . Never had to over the course of this friendship she told all about every thing . If she did ot we would still be friends
You guys are so full of lifeforce, i would be honored to have friends like you all
I am a new ambulatory wheelchair user with hyper mobile Ehlers-Danlos Syndrome. Instability in the spine,hips, pelvis, and lower extremities compress vital nerves resulting in the EDS/POTS/MCAS trifecta. I am also a disabled young nursing school student and I’m learning a lot of this on the fly. My first custom wheelchair gets delivered tomorrow and my biggest concern is finding other wheelchair users to learn from I am so happy I found your channel thank you for all you do!!
It’s great to see some real life suggestions! I use a power wheelchair full time now due to a combination of chronic diseases. There’s so much learn as I go. PT’s and OT’s can suggest things but they’re coming from an able bodied textbook frame of reference, not the same. And the more intimate details of life they really just don’t know what to suggest. Thanks for sharing!
I love that we have other lovely children in wheelchairs at my child's school. Live your best life.
It's weird when people are surprised your still paralyzed, like "Haven't you recovered yet" Seriously.
The correct response is, “Haven’t you learned manners yet?”
Yes girl! Pull-Ups/ protective underwear for the win! I have full paralysis, so transfering for me looks different than the ways that were shown in this video. So glad I found this channel! 👩🏻🦽❤️
For me, meeting others in wheelchairs became very important very early. But then I’ve also always seen my chair as a friend and freedom rather than as the enemy and failure. For me it even lead to becoming active in disability rights NGO’s and I went as far as being on the national board for a youth organization between 2015 and 2017, would have loved to continue but I got too old for that organization :( Now I don’t meet many with disabilities any longer other than online, but what I did earlier on gave me a good foundation to roll on when it comes to accessibility advocacy and human rights advocacy
My favorite is the awkwardness of people asking to pray over me lol
I’ve had a group of “prayer people” try to steal my wheelchair from me because “I won’t need it when they’re done praying” 😭😂
Lol I'm a christian I wouldn't do that only if you wanted
a nugget same
This is the exact reason I started wearing a pentacle openly in college. I do consider myself Wicca, but thought of it mostly as a witness replant.
@@Staren01 I hope it's helped you, I'm covered in Heathen tattoos, on my hand even, and I still get prayed for. I usually ask which god they're praying to tho 😇
I loved this! I would love to see a whole series on how to roll/crutch and different techniques one can use. Since I started watching you I learned how to wheelie and go down small sets of stairs but I have a hard time holding the wheelie. Can you do one on just how to hold a wheelie?
I completely agree with the video, especially the pressure to be in physical therapy and others wandering how much longer it will take to get “back to normal”. For a long time, I thought I knew what people thought of me because I used to be an able bodied person. But watching your channel has really helped me accept my situation.
I had a stroke 2 yrs ago, and I realize I will spend my life in a wheelchair. I worked hard in REHAB ti escape my chair, now I made my mind up and accept my fate. Whatever MY LORD has planned for me, I will be willing to accept. Thanks for your videos.
In wheelchair 2yrs not healed,55yr female, homeless,you comment gives me hope
Thankyou for talking about all the things you talk about! I'm one of those who's still struggling with floor transfers. It's so difficult!
This is something I didn't know I needed!!! I definitely feel so seen and right when I find other people with disabilities, but so far it's only really been online. I'd love to find something local with people with similar challenges.
Favorite video thus far! I love how you can hear a vehicle going in reverse beeping while Richard is going down the stairs backwards 😂
HAHAHA didn't even notice that!!
I have crohn's and for 3 years, like you I wanted nothing to do with other patients. but now I'm really happy I decided to join an assosioation of sufferers and I love the open exchange and talking to people who really know what you're dealing with.
Everyone who's on the fence: JOIN a network in what ever form, you'll profit. what's the worst that could come from it??
hansjakobwurst I have Crohn’s (5years) as well and used to feel the same way..
I keep soaking up all the positive vibes. I checked out the Boston Abilities Expo and networked. I wanted to thank you and give you a big cyber hug! I am still in transition in physical therapy and relearning basic skills but I am now hopeful. I rock out with my walker. Everyone have a awesome day😎💪🙌
Hi guys, I'm new to using a wheelchair, thank you for sharing your expirance. The first time I used a public toilet was a nightmare. There was a steep curved slope up to the door. Luckily for me some kind person pushed me up the slope. Once inside the toilet there was Bearley room to get out of the chair. When I did manage to transfer from chair to toilet I was sitting sidesadle. But it worked, till I need paper and to wash my hands. Both were behind my back. It's amazing how a few choices words can really help.
Thanks again, you have really helped me.
Man the upper Body strength and sheer skill you guys have is dope
This is such a freeing video for me. I am getting into the process of getting my self a wheelchair and becoming an ambulatory wheelchair user. I have cerebral palsy and I’ve always thought I would have to stay on my feet and I’m having to come to the realization it’s OK to need to use a realtor even if I can still walk. And seeing you guys talk about it so freely and everything it’s really helpful. Thank you very much.
Thank you for doing this video. I live in a rural area and don't have any wheel friends, so it's nice to see some people that are disabled people living such a great .life. I learned a lot for this video, its very empowering.
It is so important to find other people who are in wheelchairs. I’ve been in one for about 10 years and I have a number of friends who also are in chairs. We had a handicap accessible gym here until it closed last year but a lot of us worked out together and now still get together periodically. I remember one time at the gym hearing a bunch of men discussing sex when you have a catheter. Most people would’ve been horrified to hear the conversation but who else are they going to talk to about this? Finding other people going through the same struggles, you are as key!
Thank you so much for posting this. I have used a wheelchair for about 15 years now as I have MD & bone decay from prednisone. My spine collapsed in August and after surgery I am an incomplete paraplegic. Being disabled was one thing, a SCI is a whole new ball of wax. My entire week was made better when you explained the bathroom and that Pull-Ups are an essential (they should sponsor you). I have a lot of disabled friends but having you folks explain life to the rest of the world is amazing (I know TH-cam shouldn't validate our existence but it sure helps). I am wondering how you folks make it through the day without gloves (dirt, damage and pushing power - also it ca get cold up here is Canada); I just use rubber palmed ones from the Dollar Store - best money I ever spent.
Newly injured…feel like I’m stuck…I needed this video! Thank you! You guys are beautiful to share your experience. ❤
Hi guys this is the first video of yours that I'm watching. I am paraplegic too and you gave me a whole new perspective of things all together!??? You have my eternal gratitude... Keep up the good work and keep up with the same attitude. A friend from Greece!!😊😊😊
At the beginning of my disability I heard a wise person say, "disability is only given to the strongest among us" 💪We are so powerful how we handle it and survive day by day.
I have so much respect for all of us. I see strong and wonderful heroes. 🤗
Walking on two feet is for whimps only 😉
Thank you for your courage to talk simply and plainly about dealing with voiding in public restrooms .helped me understand how to defend against public opinion .real .
This has been so helpful to me, I'm not a current wheelchair user because I'm in the middle of getting doctor's to approve it(I can't afford one on my own and I'm a really small size to find used), but most of the time I use my rollator and sit pushing myself around with my feet.
I do have suspected EDS with lots of spinal issues. I'm only 22 but I keep partially dislocating my L4 and temporarily paralyzing my legs until I can get it back in place. It's a really scary thing to be taking a shower and all of a sudden my back shifts and I can't move my legs. I don't think I would have been able to survive the past month with these new challenges without this channel. I've had to learn how to transfer myself in really odd positions to the ground so I can reset things. This channel has given me a lot of hope, that even with my health issues I can find employment that's going to work out and find supportive friends, that I can live my life really amazingly. And that even if I do manage to keep injuring my back to the point the paralysis becomes permanent whilst I wait for doctor's to take me seriously and refer me to neurosurgery, that I will still be able to have a fulfilling life. You've given me a lot of hope with my recovery too, I'm nearly 10 months clean and sober, and it's really cool to see other people who have dealt with recovery and significant health challenges.
Thank you so much for posting videos like these.
Jess I can relate to you so much! You do things the way that I do them & have shown me new ways to try to do things. Thank you!
None of this applies to me but enjoy the positivity!
im note even in a chair lol
You never know when it might; whether you or a good friend ❤️
It's funny how simple he made it to get up stairs and I've never thought of that.
Very tidious but if you gotta do it, you gotta do it :)
Thank you for sharing your lives now. I am in awe of your video. You being educational to the ignorant opens eyes and minds to be respectful of each other. Thank you
I’ve CP and with no friends. You guys are very fortunate to have each other as friends
As a fellow disable person. I love this type of channel that shows our community as a unified communtity. Keep up the great job!!
omg that pun was amazing. Having "wheel" friends ... Having Real Friends xD :D
thanks for showing these skills. I'm temporarily in a wheelchair. I was frustrated last week that when I asked if a store was wheelchair accessable, I was told, "Yes, if you go around back and can get up the 5 steps we'll help you." I haven't gotten up/down a single step without help yet so I told her that 5 steps might as well be a mountain. Shortly after, I realized that yes, I could go up on my butt, though I'm not sure if I can get up from the floor and we shouldn't have to go on our butt, unless we want to! In another week, the surgeon takes pins out and I can start physical therapy, so at that point, when I don't have to be as cautious, I'll figure out how to get off the floor.
Thank you so much for all of this info! I am transitioning and using a wheelchair more, so I find this very helpful and encouraging. You guys are the best!
I have nerve damage and EDS and POTS and many other issues that mean standing is really hard for me. And so me and my doctors consider it likely that I will eventually end up in a wheelchair. Watching this video really helped me know I'm not alone and that people in wheelchairs actually can go up and down stairs! So thank you so much!
I'm an Ed's wheelchair user. I promise it's not as scary as it seems
@@theillogicalpunk5752 Thanks, that helps a lot
Not a spinal injury but still need to be out and about in a wheelchair. No help from the NHS either. You have helped me so much, there is no other site to compare with yours in every aspect of my new life. Thankyou so much 😊
This video should be required viewing in every OT and PT program. Your candid discussion of toilet techniques points up key skills that should be covered this well in rehab.
Tears of joy as I watched this! Thank you so much!! I needed this so very much!!! Totally paralyzed on my right (dominate) side. I need more help/training on how to get back into my power chair when I fall. Thank you for this video.
I'm just gonna say it Hannah is gorgeous 😍
Both the ladies are very pretty and the guy is handsome as well! This looks like a fun group to chill with!!!
I don’t get people demanding to know personal details from complete strangers.
I like the whole you know you can do it thing. I once pulled a fridge up 3 floors of stairs. As a woman I know I can do it, I had the right to do it, and I can choose to never do that again. It’s about choices. Choose to accept the seat, or not, choose to care about strangers, or not.
Thank you for being so open. It’s not questions I would ever ask anyone.
You guys are super brave to do those stairs, that would terrify me. You guys are awesome, I suspect this helps a lot of people and it gives everyone more insight which I feel is Important. I personally like to know everything I can.
I’d love to see a vid like stuff members of the public shouldn’t do. Like if there are social no-nos people might not know about. I always worry I’m going to say or do something dumb without knowing it because I usually suck at social rules.
I don’t think will ever be able to get over having skinny sticks for legs. I have to cover them so I don’t see them. I’m glad some of you have the strength to overcome. I dont know how you do it. I am grateful to have found your channel because you are an inspiration and have enlightened me to many products that potentially could improve my quality of life. Keep it going
I love that you and the commentors are so positive. It's important to have an upbeat outlook. But also, you have to take it easy on your bodies. Being active & a wheelchair user doesn't mean you have to do everything. You don't need to do stairs or parachute or go climbing rocks. Your shoulders & arms will have to last you a lifetime. Mine wore out after 20 yrs of manual w/c use. The pain was excruciating. I use both power & manual now. I wish someone would have told me that my arms & shoulders weren't meant to take the abuse . Instead I kept hearing there will be a cure for SCI in 5 yrs, 10 yrs, etc. I'm 39 years post-injury now. There is still no cure in sight.
You guys are doing great. When I first got injured I was sent home from hospital before rehab and did not even know how to transfer. Been living 26 yrs with C7 injury(incomplete) and I can still learn new things from others or at least different ways to do it. THANKS!!!! 😊 good video for family and friends also
Just found your channel. I live in the uk and there isn’t really a “wheelchair community” where I live and I don’t really know many people who use wheelchairs so your channel has helped me. Thanks keep it up
Check out Gem aka Wheelsnoheels here on TH-cam. She’s on your side of the pond
@@Wheels2Walking Anya Darlow is also a UK manual wheelchair user on TH-cam.
This was really helpful thankyou. As a person who looks after someone who uses a wheelchair the things in this video was really helpful especially the gravel stuff! Love this video xxxx
THANK YOU for being frank about bathroom tips. Obstacle tips were so interesting! You all are great!
Hi from Niagara falls Ontario canada.. I'm new to being in a wheelchair and thank to all three
Thanks to God we have a lot of help for disabled people. Thanks for sharing your experience
The advice that they gave in the beginning is helpful for everyone not just for disability
I don’t have a spinal cord Injury, but I do have POTS and EDS a,omg some other things, and meeting my Chronic Friend (what i call a friend with chronic illness) was one of the best things in my life. We only have 1 condition in common (POTS) but I can talk to her about ANYTHING, and we just get to be Spoonies together
Finding that support system, and online groups made me so much more comfortable with my diagnoses. I used to kind of be reserved about sharing my disability, and now I’m pretty much a walking (although not well-) awareness ad.