So proud of Griffin!!! He's doing such a great job. He looks so happy and proud of himself. He really looks so strong and his balance is better!!! So happy for all of you!
My mom worked at a camp for disabled people and they benefited SO much from being in the pool and they LOVED it. I'm autistic, so not physically disabled, but swimming is so therapeutic for me and helps me a lot.
I am SO PROUD of Griffin!! He’s doing great in the water!! He KNOWS how to just whip that rope right over his head, to let him through!! And he must SO ENJOY the weightlessness of the water!! How fun for him, and also SO GOOD for his muscles!! Way to go Emily and Will!! You know how to help your kids and U DO IT!!!
This is unrelated, but the video where you showed your family, it was made a few videos after this one, was so lovely and I love how much you and your husband love your children
I just love to see Griffin’s smile. With all the work you do with him it’s going to pay off at the end. His balance will be a lot better, even to the point he might need his braces
I'm autistic and I go swimming every week. I'm not great with personal hygiene and swimming is so far the only way that gets my hair washed every week and me in a shower every week with no stress to anyone. I'm in supported living and doing showers and hair washing this way is working for me and staff. It is also great for exercise and mental health.
@FronteirWolf Hey can I ask you about supported living? I'm about to graduate from my school program (it goes until 22 for disabled students) and I'm really nervous about it!!! How is it? Are you in a place like a group home? Or is it a place you (or your parents/guardians/family) pay for?
@@spencereli I have never been to a group home, so I don't know what they are like. It is really good. It's kind of like a house share, except there are staff members running things. However you are encouraged to be as independant as possible. You have your own bedroom and space in the kitchen everything else is shared space, you buy your own food, and if you can you prepare your own food. You pay bills and rent. There's a cat and a dog. They are looked after by residents, not staff. There is one to one sessions with your key worker and groups like emotions groups on. The place I'm at is a mental health scheme, a lot of us came here straight from mental wards, others didn't, you have to be referred here. Family doesn't pay for it. In my case it is run by a charity, and we pay rent and bills.
Though I might just share this but if you ever go to Myrtle Beach SC there is an awesome playground that has accommodations for people. Anyway this is called Savana’s Playground and it’s in Market commons.
Hi momma! How do you obtain consent from your kiddos to post private medical information and some of their toughest moments given they're well below the age of consent?
You are being pretty judgmental. She is trying to raise awareness and show people the realities of disabilities. I have several genetic diseases and disabilities (a lot physical disabilities, medical conditions, autism and developmental delay) Each mom can choose what they think is right for there family and you are asking in a rude way too
@@spencereli cant you raise awarness without exposing extremely personal information. How would you like if your medicines therapies and things like this were shared without your consent
@@Ilovebluey214yeah but maybe it’s like sensory I don’t know I’m autistic and I hate camping. It’s usually the car ride in the first day the second day I love it.
@@mackennaroberts676 true but they like live in Colorado so I was just wondering. Also not all of them have to go, like it’s still fun to just be at a ski resort and there is other stuff to do on some of the resorts
Please introduce plenty of whole foods and cold pressed oils into his diet .I am sure you already have . Just that I know it makes a lot of difference in the overall health and mental well being of kids
I have a lot of disabilities too. I have Autism, Seizure disorder, Tethered cord syndrome (a type of Spina bifida), Osteogenesis imperfecta, gastroparesis, mast cell activation syndrome, Wolff-Parkinson-White syndrome, Chiari malformation, CRPS/RSD (chronic regional pain syndrome, also called reflex sympathetic dystrophy), Median arcuate ligament syndrome, Craniocervical instability, and a very rare type of Ehlers-Danlos syndrome called Arthrochalasia Ehlers-Danlos Syndrome. Those aren't even all the things I have, there's more like scoliosis, asthma, postural orthostatic tachycardia syndrome (also called POTS), mitral valve prolapse, ADHD, OCD, PTSD, sensory processing disorder, generalized anxiety disorder, nonverbal autism, and more that I also am forgetting right now. So basically, people can have lots of disabilities. It is common for people who have complex conditions and genetic disorders to have lots of disabilities that are all connected or related to each other. My genetic disorders are the reasons I have so many disabilities. I hope this answers your question and helps you understand
@@theog9000well nobody will want to watch the videos if all she does is record herself talking about it if the viewers have a visual aid they will understand it better
@@ThoughtlessIntro doesn’t matter the kid deserves privacy. How about you film all your doctors appointments, medications and personal information and put it online
Angelman syndrome is a genetic disorder, meaning it's caused by an abnormality in one of the genes. Each gene doesn't affect just one thing in the body, but multiple. So for example, one gene may control traits in both the brain and the muscles. That's why people with genetic disorders have multiple different issues, instead of only one part of their body being affected.
I have a lot of disabilities too. I have Autism, Seizure disorder, Tethered cord syndrome (a type of Spina bifida), Osteogenesis imperfecta, gastroparesis, mast cell activation syndrome, Wolff-Parkinson-White syndrome, Chiari malformation, CRPS/RSD (chronic regional pain syndrome, also called reflex sympathetic dystrophy), Median arcuate ligament syndrome, Craniocervical instability, and a very rare type of Ehlers-Danlos syndrome called Arthrochalasia Ehlers-Danlos Syndrome. Those aren't even all the things I have, there's more like scoliosis, asthma, postural orthostatic tachycardia syndrome (also called POTS), mitral valve prolapse, ADHD, OCD, PTSD, sensory processing disorder, generalized anxiety disorder, nonverbal autism, and more that I also am forgetting right now. So basically, people can have lots of disabilities. It is common for people who have complex conditions and genetic disorders to have lots of disabilities that are all connected or related to each other. My genetic disorders are the reasons I have so many disabilities. I hope this answers your question and helps you understand. Your comment was very rude and demeaning and I hope you learned something from the people who have replied to you. You could have easily asked the same question without being so judgmental and mean
It's not funny he's a kid who was born with or developed disabilities no one had control over it there just trying to give him and his siblings a healthy happy life.
So proud of Griffin!!! He's doing such a great job. He looks so happy and proud of himself. He really looks so strong and his balance is better!!! So happy for all of you!
My mom worked at a camp for disabled people and they benefited SO much from being in the pool and they LOVED it. I'm autistic, so not physically disabled, but swimming is so therapeutic for me and helps me a lot.
So wonderful to see him smiling and getting around so quick. You are a wonderful mom.❤❤❤❤❤
I am SO PROUD of Griffin!! He’s doing great in the water!! He KNOWS how to just whip that rope right over his head, to let him through!! And he must SO ENJOY the weightlessness of the water!! How fun for him, and also SO GOOD for his muscles!! Way to go Emily and Will!! You know how to help your kids and U DO IT!!!
I’m so happy griffin can do water therapy your a good parent ❤
Griffin is so amazing!❤ I hope he grows up to be an amazing boy!❤
Griffin is adorable
That is good parenting thank u for sharing your story u guys motivate me 😊
He is so cute and adorable
He looks like he's having so much fun! It's so wholesome❤
Griffin is so cute!! That smile of his could light up the world! ❤ Enjoy your water therapy Griffin!
Can’t be more proud for Griffin!❤️
This is unrelated, but the video where you showed your family, it was made a few videos after this one, was so lovely and I love how much you and your husband love your children
May God Bless your son😌❤️ he’s a true warrior and I am so proud of Griffin
And walking around in the knee-high water provides a cushion to land on when he falls! Really great stuff here
I just love to see Griffin’s smile. With all the work you do with him it’s going to pay off at the end. His balance will be a lot better, even to the point he might need his braces
hearing you say, your son has angelman syndrome will never get old he is so special, and so are you
His smile is so cute
You are a wonderful mother, doesn't matter what we think but I'm glad you may be an influence to other mothers
I'm autistic and I go swimming every week. I'm not great with personal hygiene and swimming is so far the only way that gets my hair washed every week and me in a shower every week with no stress to anyone.
I'm in supported living and doing showers and hair washing this way is working for me and staff.
It is also great for exercise and mental health.
@FronteirWolf Hey can I ask you about supported living? I'm about to graduate from my school program (it goes until 22 for disabled students) and I'm really nervous about it!!! How is it? Are you in a place like a group home? Or is it a place you (or your parents/guardians/family) pay for?
@@spencereli I have never been to a group home, so I don't know what they are like. It is really good.
It's kind of like a house share, except there are staff members running things. However you are encouraged to be as independant as possible. You have your own bedroom and space in the kitchen everything else is shared space, you buy your own food, and if you can you prepare your own food. You pay bills and rent. There's a cat and a dog. They are looked after by residents, not staff.
There is one to one sessions with your key worker and groups like emotions groups on.
The place I'm at is a mental health scheme, a lot of us came here straight from mental wards, others didn't, you have to be referred here.
Family doesn't pay for it. In my case it is run by a charity, and we pay rent and bills.
Much love for your wonderful son😊❤️
Way to go Little man...Bravo 👏👏👏👏👏👏
He is doing soo well xxx keep it up wee man xx you've got this xx
Do your other kids love water just as much?
Possibly, but one specific trait of Angelman syndrome is being very attracted to water! Almost all people with Angelman syndrome have that trait.
Though I might just share this but if you ever go to Myrtle Beach SC there is an awesome playground that has accommodations for people. Anyway this is called Savana’s Playground and it’s in Market commons.
ill be praying for your son!😊
Griffin is so cute❤ but I do have a question, how do you go down a slide incorrectly?
Aim so pred finaly. And griffin is so so so cute❤
Hi momma! How do you obtain consent from your kiddos to post private medical information and some of their toughest moments given they're well below the age of consent?
You are being pretty judgmental. She is trying to raise awareness and show people the realities of disabilities. I have several genetic diseases and disabilities (a lot physical disabilities, medical conditions, autism and developmental delay) Each mom can choose what they think is right for there family and you are asking in a rude way too
@@spencereliwhat are you talking about, this is the nicest comment i've seen asking this question
@@spencereli cant you raise awarness without exposing extremely personal information. How would you like if your medicines therapies and things like this were shared without your consent
About your video short when he got a upper endoscopy and how he might have EOE and there are things that can prevent it.
If you don’t mind me asking why does Griffin always have his mouth open
I have a disability to your tick tocks are so amazing
What a strong handsome boy!
Beautiful smile
Day 2 of asking can u guys go camping?
I would probably be hard for the family with 6 kids 3 kids with special needs it would probably be to hard
Yeah but mabey
@@EquineLilly they will probably have to do glamping
@@Ilovebluey214yeah but maybe it’s like sensory I don’t know I’m autistic and I hate camping. It’s usually the car ride in the first day the second day I love it.
At school how do you deal with the griffins diapers?
He is so cute
Griffing is so handsome 😍
❤❤❤
Griffin is so so
Do u guys ever go skiing?
I dont think they can because griffin has a balance issue and it might be harder for him to keep balance on them
@@mackennaroberts676 true but they like live in Colorado so I was just wondering. Also not all of them have to go, like it’s still fun to just be at a ski resort and there is other stuff to do on some of the resorts
awesome pal! looks like lots of fun! Hope it’s helping you out! ❤
Please introduce plenty of whole foods and cold pressed oils into his diet .I am sure you already have . Just that I know it makes a lot of difference in the overall health and mental well being of kids
Has he always been a water baby?
So proud but what if he has seizure in the pool ?
Im not angry, but i just have a question; how does griffin have so many dissabilites? Im not angry. Im so so proud of him. I just had a question.
I have a lot of disabilities too. I have Autism, Seizure disorder, Tethered cord syndrome (a type of Spina bifida), Osteogenesis imperfecta, gastroparesis, mast cell activation syndrome, Wolff-Parkinson-White syndrome, Chiari malformation, CRPS/RSD (chronic regional pain syndrome, also called reflex sympathetic dystrophy), Median arcuate ligament syndrome, Craniocervical instability, and a very rare type of Ehlers-Danlos syndrome called Arthrochalasia Ehlers-Danlos Syndrome. Those aren't even all the things I have, there's more like scoliosis, asthma, postural orthostatic tachycardia syndrome (also called POTS), mitral valve prolapse, ADHD, OCD, PTSD, sensory processing disorder, generalized anxiety disorder, nonverbal autism, and more that I also am forgetting right now.
So basically, people can have lots of disabilities. It is common for people who have complex conditions and genetic disorders to have lots of disabilities that are all connected or related to each other. My genetic disorders are the reasons I have so many disabilities. I hope this answers your question and helps you understand
Some people are just born with alot of disabilities even though nothing really caused it.
@@spencerelithat’s a lot
@@sanzbluf yes it is. unfortunately life gave me a lot of struggles.
😊😊😊
Does sawer like swimming to
if you guys want another god swimming pool go to westminster rec center
Is that in Colorado Springs
@@carolinemarshall4625 no its in westminster
Whats water therapy
How old r they now
Does he toe walk in the water too? I would think he wouldn’t do it.
What if does number #2 in the pool?
Probably wears swim diapers
have you ever thought about getting respite
They do have respite.
What is pigeon toed?
Pigeon toed is where your feet turn in when you walk
Ok
What is pigeon toe?
Having toes or feet tuned inward.
How old is Griffin My little Brother Is just like Him but my brothers only 5 And it’s Bad for him So kinda here For some tips
Griffin is 6
Can you show us show show shirewimming
What if he has a seizure in the water and also well done
He looks like Missy cooper
Nim pigeon toe too
How old is griffin
He is 6
@@mackennaroberts676 thank you
CAN U POST ABOUT YOUR OTHER KIDS ❤❤❤❤❤❤❤❤❤❤❤
Can we see more of the other kids
U
Im
What if a kid made fun of him what would you do? :(
hiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiiii
All these auto immune diseases are you sleeping with your family member??
shake that thang 💅 🤪
Why r u milking content out of ur son
She is educating people on Angleman syndrome
She is raising awareness and showing people the realities of living with disabilities
@@mackennaroberts676 isnt that posible to do without showing him constantly ?
@@theog9000well nobody will want to watch the videos if all she does is record herself talking about it if the viewers have a visual aid they will understand it better
@@ThoughtlessIntro doesn’t matter the kid deserves privacy. How about you film all your doctors appointments, medications and personal information and put it online
Bro, why does your child have so many problems? 😂😂😂😂😊😊
if have something that’s not nice to say, don’t say it..
edit: I said I before but i meant IF sorry!!
Angelman syndrome is a genetic disorder, meaning it's caused by an abnormality in one of the genes. Each gene doesn't affect just one thing in the body, but multiple. So for example, one gene may control traits in both the brain and the muscles. That's why people with genetic disorders have multiple different issues, instead of only one part of their body being affected.
Its not funny Angleman syndrome is hard on some parents and it no cool to laugh or say that
I have a lot of disabilities too. I have Autism, Seizure disorder, Tethered cord syndrome (a type of Spina bifida), Osteogenesis imperfecta, gastroparesis, mast cell activation syndrome, Wolff-Parkinson-White syndrome, Chiari malformation, CRPS/RSD (chronic regional pain syndrome, also called reflex sympathetic dystrophy), Median arcuate ligament syndrome, Craniocervical instability, and a very rare type of Ehlers-Danlos syndrome called Arthrochalasia Ehlers-Danlos Syndrome. Those aren't even all the things I have, there's more like scoliosis, asthma, postural orthostatic tachycardia syndrome (also called POTS), mitral valve prolapse, ADHD, OCD, PTSD, sensory processing disorder, generalized anxiety disorder, nonverbal autism, and more that I also am forgetting right now.
So basically, people can have lots of disabilities. It is common for people who have complex conditions and genetic disorders to have lots of disabilities that are all connected or related to each other. My genetic disorders are the reasons I have so many disabilities. I hope this answers your question and helps you understand. Your comment was very rude and demeaning and I hope you learned something from the people who have replied to you. You could have easily asked the same question without being so judgmental and mean
It's not funny he's a kid who was born with or developed disabilities no one had control over it there just trying to give him and his siblings a healthy happy life.
So how do you do wanna go to do you go in there with him? Happy wife called.