Stiff Person Syndrome Life Before and After Diagnosis, Friendships. Part 1

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  • เผยแพร่เมื่อ 26 ธ.ค. 2024

ความคิดเห็น • 11

  • @Leslie-h1b
    @Leslie-h1b 8 หลายเดือนก่อน +2

    Thanks Alex and Lea! How beautiful your relationship and this dialogue is. As one who has SPS, I often wondered about others perspectives. You're both so generous of heart.

    • @stiffpersonsyndromeHeart2heart
      @stiffpersonsyndromeHeart2heart  8 หลายเดือนก่อน +1

      Getting SPS was an eye opener on who stayed in my life and who didn’t… The few that stayed will always be here. I have also been blessed to meet real friends because of SPS that have such a positive impact on my life. 🫶

  • @evelynrolon2843
    @evelynrolon2843 8 หลายเดือนก่อน +2

    What a beautiful friendship and conversation! I am also lucky to have amazing friends. This grants such a bright impact into our journeys.

    • @stiffpersonsyndromeHeart2heart
      @stiffpersonsyndromeHeart2heart  8 หลายเดือนก่อน +1

      Yes it does bring bright impact into our journeys! The ones that shined stayed in my life… many couldn’t handle it. I have come to no longer care and focus instead on all the positive there is around me 😊

  • @GregHuggett
    @GregHuggett 8 หลายเดือนก่อน +1

    Thanks for this post! I had symptoms of SPS well before diagnosis. As far as friendships and social side it has been a monumental game changer.
    In brief my friend base is very much smaller. I still keep my diagnosis very quiet. Those people I am friendly with are on the upper spectrum of intellect. They can see that there is a problem but are smart or thoughtful enough not to ask questions. My problems began in the early 1990's but not diagnosed until about 10 years ago...in the middle I went through the "Parkinsons " phase.
    The practicalities are that with SPS I cannot keep pace with others so I have fallen behind but I have accepted that ultimately.

    • @stiffpersonsyndromeHeart2heart
      @stiffpersonsyndromeHeart2heart  8 หลายเดือนก่อน

      The ones that stay I know will never leave and I am grateful for them 🫶

    • @GregHuggett
      @GregHuggett 7 หลายเดือนก่อน

      I am interested to connect with others SPS people Please let me know if interested and will send email address. Thanks. Greg

  • @tenchima1
    @tenchima1 8 หลายเดือนก่อน +1

    AMAZING!!!!!!

  • @lizblows7101
    @lizblows7101 8 หลายเดือนก่อน +1

    I only have 1 friend, when I had so many, but if they stick by you then they are true friends. The others were never your real friends.

    • @stiffpersonsyndromeHeart2heart
      @stiffpersonsyndromeHeart2heart  8 หลายเดือนก่อน

      As I mentioned in one of the comments below. SPS was a real eye opener in who was real in my life. The people that stayed I know will never leave.