Thank you for uploading this video lots of love in the UK please let us know how you do with your treatment I hope it goes well for you❤
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Please do the bone marrow transplant, my Mom has been diagnosed with this at 81 we have no hope, it’s progressing fast. She can’t tolerate the treatments. I am your future encouraging you to do all you can while you’re healthy. God speed
Last year I was diagnosed with MDS (low risk). In my research I found that it is classified as a rare group of blood cancers. It used to be called pre-leukemia until 2003, when it was deemed cancer.
I have it and it is killing me, blood transfusion with one unit of red cells made me feel great but only for a week, it means more bloods regularly but that will end when the SHTF comes in and the donors stop coming. At 75 they are not bothered with me anymore.
Snap! I've got what you've got! Ive probably had it for years. Never had any symptoms, just low white cell count. While in Australia had to see a doctor on unrelated matter, routine blood test.. doctor in panic mode, telling me I had leukaemia and treatment was Chemo. Returned to Europe. Not leukaemia, it was MDS and last thing that was needed was chemotherapy!!! I got a second opinion from one of the top specialists in Europe. Remember, this is still considered rare and it has been identified ( I'm led to believe) in this century so it's not as well researched as it will be. I first saw a specialist, unfortunately not a specialist in MDS, he hadn't a clue and bluffed it. How does one know if a specialist really specialises in your illness? I guess the give away was his attitude when I asked in-depth questions. And he hadn't written any papers himself. That is VERY important. Thank God I found a MDS specialist, shall we even say an enthusiastic specialist..who reads the research papers. I wish you luck, I wish me luck. I do hope you get to read this! Ann
Hi, my cousin has been diagnosed with mds in Denmark . He is in stage 2 or type 2 . Can you give my a little more information about treatment and how are you feeling now ?
Thank you for uploading this video lots of love in the UK please let us know how you do with your treatment I hope it goes well for you❤
Please do the bone marrow transplant, my Mom has been diagnosed with this at 81 we have no hope, it’s progressing fast. She can’t tolerate the treatments. I am your future encouraging you to do all you can while you’re healthy. God speed
I agree, you're still young. You do not want this to progress into leukemia. I wish you the very best.
Last year I was diagnosed with MDS (low risk). In my research I found that it is classified as a rare group of blood cancers. It used to be called pre-leukemia until 2003, when it was deemed cancer.
Then are u ok today
I have it and it is killing me, blood transfusion with one unit of red cells made me feel great but only for a week, it means more bloods regularly but that will end when the SHTF comes in and the donors stop coming. At 75 they are not bothered with me anymore.
Snap! I've got what you've got! Ive probably had it for years. Never had any symptoms, just low white cell count. While in Australia had to see a doctor on unrelated matter, routine blood test.. doctor in panic mode, telling me I had leukaemia and treatment was Chemo. Returned to Europe. Not leukaemia, it was MDS and last thing that was needed was chemotherapy!!! I got a second opinion from one of the top specialists in Europe. Remember, this is still considered rare and it has been identified ( I'm led to believe) in this century so it's not as well researched as it will be. I first saw a specialist, unfortunately not a specialist in MDS, he hadn't a clue and bluffed it. How does one know if a specialist really specialises in your illness? I guess the give away was his attitude when I asked in-depth questions. And he hadn't written any papers himself. That is VERY important. Thank God I found a MDS specialist, shall we even say an enthusiastic specialist..who reads the research papers. I wish you luck, I wish me luck. I do hope you get to read this! Ann
Hi, my cousin has been diagnosed with mds in Denmark . He is in stage 2 or type 2 . Can you give my a little more information about treatment and how are you feeling now ?
Have you gone with bmt or cured with chemotherapy
Hope your doing OK 🤗👌🏻