11q Deletion disorder: Jacobson syndrome

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  • เผยแพร่เมื่อ 16 ก.ค. 2024
  • A heartfelt interview with Beckie, a devoted parent to Lottie, who bravely battles 11q Deletion Disorder, specifically Jacobson Syndrome, the conversation delved into the profound challenges the family has faced. Beckie shared poignant insights into the complexities of raising a child with a rare genetic disorder, shedding light on the unique aspects of Lottie's journey.
    The interview took a deeply emotional turn as Beckie opened up about Lottie's courageous fight against cancer, adding an additional layer of difficulty to an already intricate situation. Beckie's resilience and love for her daughter were palpable throughout the discussion, as she described the family's collective efforts to navigate the intricate medical landscape and provide Lottie with the best possible care.

ความคิดเห็น • 3

  • @dasl230
    @dasl230  8 หลายเดือนก่อน +3

    Thank you so much Beckie it was really lovey to meet you today.

  • @junehope5152
    @junehope5152 8 หลายเดือนก่อน +2

    Love this made me cry

  • @dasl230
    @dasl230  8 หลายเดือนก่อน +3

    If you are facing similar challenges to Beckie please contact rarechromo.org