Multiple Sclerosis - MRI Scan Results
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- เผยแพร่เมื่อ 25 มิ.ย. 2024
- Multiple Sclerosis (MS) - MRI Scan Results
(Video 2)
In this video I share the results of my MRI Scans.. I remember for a while the results giving me hope (it might not be MS), unfortunately it was short lived.
Early Symptoms started 2007:
1. Numbness.
2. Burning.
3. Tingling, humming, buzzing.
4. Skin sensitivity or Altered Sensation.
5. Squeezing sensation especially in the Legs.
All of the above across my Feet, Legs, Hands, Tummy and Back.
New Symptoms starting Feb 2012 (Major attack)
1. Weakness.
2. Spasticity.
3. Abnormal Gait (walking as if drunk).
4. Extreme lower back weakness.
5. Severe Chest Pain.
6. Anxiety.
7. Tremors.
If you've enjoyed this video and you feel that if may help another person in some way, please consider SHARING it on your social media - Thank you.
Don't forget to check out the other videos in my MS Vlog Playlist.
• (MS) My Life with Mult...
Wow finally found someone with the same symptoms that I have with the burning hands and feet. I also struggle with leg pain and numbness. I even have the disc bulge at L4-L5 and have been referred to a spine specialist. You're videos are helping me navigate through this. Thank you for sharing.
Hey there, I’m so pleased my videos are helping you. There’s quite a few to get through, although I haven’t done any for some quite now as I just don’t feel like it, or have the motivation anymore. Yes, yours symptoms sounds exactly like mine, so I know what your going through. I’ve been dealing with this since 2007.
Me too since I wa s 25 now 60
Great videos. I get strange sensations and numbness in parts of my lower leg. I have had numbness in my feet for many years. I saw a Neurologist who said I had neurothapy. A few weeks ago I woke up in the night with severe tingling and numbness in my hands and all up my arms. Over the last year my walking has become very difficult. My legs and hips stiffen up after I walk a short distance. I do have Fibromyalgia. A lot of people with Fibro will end up with MS. I asked my doctor for a second opinion with a new Neurologist as the other one was awful. He didn’t discuss my symptoms with me and was very rough with me during testing. I have an appointment in March, 2023 with a new Neurologist. Meanwhile my hands are numb all the time I am hoping for some answers. Hope you do t get any worse and you can keep your symptoms under control. I have a lot of other strange symptoms also. ❤️🇨🇦❤️🇨🇦
Hello Pamela, thank you for your message. Some of these Neurologists haven't got the brains they were born with. It definitely sounds like you've got something neurological going on for sure. Neuropathy is just a fancy word the symptoms we experience when there is damage to the nerves (or myelin), such as numbness and tingling. The Neurologist should be looking for the underlying cause of your Neuropathy, unfortunately I've heard so many times the Dr's (not all of them, there are good ones) say similar things and don't do the proper tests.
I'm no Doctor, but I know a lot about MS and other Auto-Immune conditions. From what you've told me I would be pushing for a full body MRI scan with contrast to try and get to the bottom of why you're having all these neurological symptoms.
By the sound of it you did good asking for a 2nd opinion, so hopefully in March next year you'll have some answers. As a rule it's the not knowing what wrong, no diagnosis, which is also very distressing, as well as coping with all the symptoms.
Thank you for asking about me, unfortunately I am getting worse.. my pain and symptoms just seem to be spiraling downwards out of control and there doesn't seem to be anything I can do about it. Pain meds have stopped working (my body has built up a tolerance now) unless of course I start taking more of the which I don't want to do.
My apologies for taking a couple of days to come back to you, hang in there. I hope you get some answers soon, I'd be interested to know how you get on.
Interestingly, my symptoms started in my feet, I'll leave a link to the video which describes my very first symptoms when they started back in 2007. I was going through a nasty and very distressing divorce at the time, I believe the stress activated my illness. An awful lot has happened since then, including my being re-diagnosed several times. Take care now - Neil. (link below)
th-cam.com/video/yQsiLUJOyJc/w-d-xo.html
God speed your recovery
Good info thank you!
Thank you for sharing your story.
You’re most welcome.
Thank you for sharing this. I’ve been referred to neurology (at the start of my 3-6 month wait) for similar symptoms as you, although it’s my arms and back rather than much in my feet. This is really useful to me. I hope you are doing well, I plan to check out more of your channel now 😊
Hello Emily, I'm really pleased you found this video helpful, that's great. I am however very sorry to hear you're having these horrible symptoms. I hope you get some answers soon. A small tip would be to journal your symptoms, go back into the past as best you can remember. Then log any small changes that happen, how long they last, do they disappear, that sort of thing. This should prove valuable when it comes to talking to your Dr. I hope you enjoy some of my other videos, I've not made one for quite sometime though. Take care - Neil.
Thanks for sharing your story.
Hi Tom, and you're welcome.. thank you very much for watching. If you haven't already, you might be interested in some of the other videos in my MS Vlog playlist. Regards - Neil.
Thanks Neil, I will look up more of your video's. I may have MS myself, but the Doctor is not yet sure. Anyway, thanks for your sharing your story with all of us.-Tom
Thanks Tom - all the best.
Neil first time i see this video god bless
Ah ok Dee, I think there are well over a 100 videos on my channel now. Enjoy. God bless.
Hello Neil Bradley, my name is Barbara. I've been watching your videos and feeling like I'm sitting thru a rerun of my ordeals. I've been going thru so much of the same thing, and oddly, I remember my first sensation as standing in water. Suddenly I would feel water trickling at my feet. Water was nowhere around. Then out of nowhere my toe (3rd one over) would get so painful it felt like I broke it. Would limp home, rest, and it would go away, that happened several times. As I was walking I would find myself falling catching myself every time before my face connected to the pavement. The list goes on. When I finally was able to see a neurologist, had the MRI because he suspected MS, and one for my cervical spine as I hear grinding when I move my neck. Turns out he wasn't worried about the ms, I had 4 vertebrae that were compressing my cord was down to 7 diameter. (Normal is between 11-12) I think it's measured in cm?
Surgery was (2014) thru my throat to the spine, and everything was fine. I'm now getting spasms and cramps from my thighs to my toes where my toes turn upright. hamstring gives me hell. I'm waiting for an appt to the neurologist once
again and just wanted to let you know that there are others as frustrated as you are. I feel your pain (literally) and wish the best for you. I've watched 2 of your videos and am on to number 3. I'm interested to know your outcome. Best of luck to you. God Bless!
+Barbara Rejniak Hello Barbara, I appreciate you taking the time to watch my videos.. sometimes to just know that you're not alone with the symptoms you are experiencing is often therapy in itself isn't it!.
Very interesting to read about your foot symptoms, I do hope you never hurt yourself when falling (I have). My very first symptoms started in my feet, I don't believe I experienced the water sensation but my feet used to feel like I'd got small stones stuck to the bottom, very painful.. I still get this sensation but not as bad, usually in a flare up.
I'm glad you're surgery turned out ok, I wonder now that the compression on the spinal cord has been decompressed, the cord needs time to heal (not sure). Strangely, I often describe a feeling of curling toes to my wife when my feet are really painful which can often be at night, but my toes aren't actually moving, they just feel like they are!
I hope things improve for you Barbara, take care and all the best.
Neil.
Hi Neil! I enjoy your blogs. I've been having problems for about 6yrs now. Speech problems, balance issues etc... now my feet burning and sharp stabbing pains. Also with hands mainly finger tips. Numbness, raw feeling my MRI in the past and CT scan only showed some mild calcification. Now this was couple yrs ago. My neurologist at that time was like the one you had. Well now I'm going to a new neurologist and I'm hoping I will know something!
+Angel_eyes65 Hi Angel, I can relate to a lot of your symptoms. My Neuro and I just disagree on certain things. Good luck with your new Neuro, I hope they're really good for you. Fingers crossed.
Thank u for sharing
Same with me. My spine has scoliosis and for 7 years I've been miss diagnosed with pinched nerves! Smh
You’re so welcome! I’m sorry to hear about your Scoliosis, I do hope you’re managing your symptoms ok. I find time and time people saying to me on this channel that they are continually misdiagnosed. Sending thoughts, take care. 🙏
It’s been 5 years from my last mri and I’m begging for a new scan. Ms symptoms are so rampant. But no MS seen on last mri
Definitely not good, that feeling that something is wrong but nothing shows up. I’m significantly going downhill at the moment, I can’t do things I was able to do a couple of weeks ago. I’m just standing by whilst my body just deteriorates, and there’s not a dam thing I can do about it. 😢
Did you see your MRI SCANS YOURSELF OR GET A 2ND OPINION ?
interesting video Neil. ..I have 3 disc herniations and prior to discovering this I had the most severe nerve / burning sensation in my left leg...I also had a feeling of someone hugging me....One gpu thought I may have MS,however after a spinal mri scan it appears I have herniated discs at T5/To and L5/LG. ..also ST is also affected. ..however the meds I've been given (gabapentin ) don't make me feel good,so I'm just taking enough to stop any severe nerve pain. ..anyway good luck Neil and best wishes
Hello Brian (the snail) Aha..
Thank you very much for your comment, its much appreciate and its nice to hear from you for the first time.
Hmm, very interesting indeed.. the herniated discs at L5 which is Lumber would have been responsible for causing the severe pain in your left leg, and the T5 herniation which is in the Thoracic area of your back (a bit further up) I'm pretty dam sure would have been giving you the hugging sensation.
My disc herniation I'm pretty sure (if memory serves) was at L5/S1 but I didn't have the classic sciatic nerve pain, I had numbness and burning which did not subside when I had the decompression operation, in fact it got worse! I have spinal cord lesions (MS) in the Thoracic area of my spine which is responsible for the numbness I've got on my tummy (hug) and possibly the pain I get in my chest.
As for Gabapentin, well I agree these meds do make you feel quite lousy however, these particular type of drugs have to get into your system and only really start to work properly after taking them for several days. I'm on the 'big brother' of Gabapentin which is called Pregabalin, I've recently upped the dose and for a few days it made me feel like I'd had a couple of glasses of Port! The side effect aren't too great though at the moment, so I'm considering reduce the dose again soon.
Good luck to you too Brian, I hope you're managing to deal with your pain/discomfort ok. Please feel free to pop by here any time. I also have a MS Vlog Playlist with several more videos about "real life" MS topics, if you have time to check it out.
th-cam.com/play/PLKh4CtwH9cEUJcntnXWXyo-OtqnMccwWU.html
All the best,
Neil.
Hi Neil, thanks for making these videos. I feel I have little bit of an insight in to what you have been through and will explain a little in a moment. I have watched the first couple as my wife has just been told that she may have MS, she also as the "bright" sections in her brain and also one or her spinal column, however has had no syptoms at all and is waiting on a lumbar puncture for further tests, these bright areas were spotted after an MRI for a hip issue that no one can explain. They are pretty sure though that these MS type areas in the brain and spine are not related to the hip issue, so a little weird.
However back to why I feel a connection to your story so far. ( long story short here ) When I was around 25 i devloped back pain which got real bad real quick, it turned out i had a tumor on my spinal cord, i had this removed via an op which i was terrified about having but was in so much pain i had to get it done, when i woke up after the op, with the exception of the wound i had no pain in my legs, bum or back at all and thought thank god i was free of the pain. 3 years later an MRI showed the tumor was back but this time without any syptoms. I had to have another op and just like you on your second op i had a problem, i was getting showered the day after the op and i felt something running down my bum, it was CSF coming out my wound, just like you i ended up in bed lying flat with the most sevear sore head i have ever had, maybe even the worst pain ive ever had, i lay for a week watching my CSF run in to a bag after a spinal tap to try and stop it. eventually it started to slow and i got the tap and bag removed. since then i have also had a 3rd op and radiotherpy and everthing seems to be under control.
So i totally relate to your story and i wish you all the best in the future, i will of course watch the rest of your story before showing it to my wife as ive banned her from looking up the net about MS with out me vetting it first lol i know what shes like.
I really appeciate your story. Thanks.
Hey there,
Thanks for your message, I really appreciate it.
I'm sorry to hear about your Wife's recent diagnosis of MS, its definitely not the news any body wants to hear especially as they were going for a routine scan on the hip! The fact she's had absolutely no symptoms what-so-ever is good news though. There is no single test which can diagnose MS, its the results of multiple tests and symptoms across time which the Doctors will use. Your wife might benefit from keeping a diary if she starts to experience any strange symptoms or phenomena, keeping a time line is very important. Hopefully its not MS, but I wish her luck in her journey to figuring it all out, it can take a little while.
Wow, your story is pretty amazing and I read with real interest.. I'm guessing your CSF leak wasn't spotted whilst they'd got you opened up on the operating table then! Fortunately mine was and they did a repair, its called a Dural Tear and if it isn't spotted it can cause complications such a infection. Glad it sorted itself out for you, yep those headaches can be pretty severe for sure.
Hat off to you my friend, tumor on the spine and three operations! Really good news that everything seems to be under control now for you, brilliant news.
Thank you for your best wishes, much appreciated.. its probably a good thing you don't let your wife loose on-line because if it is MS there is SO MUCH to learn and understand about it, some of it very scary indeed. I'm still learning new things myself. I think its very important to remember that your wife is not actually presenting with any symptoms yet, so this is very good news and she shouldn't worry too much.
Anytime you and your wife want to pick my brains about MS, please feel free to contact me.
Lovely to hear from, and thank you for sharing you story.
Best Regards,
Neil.
k3vlr781 Hi, I was wondering how your wife made out. I still don't know what's wrong with me but the first unexplainable thing that happened to me was severe hip pain that lasted a few months... went away on its own and came back months later....lasted a few months again and went away... other stuff followed but it was very strange to have such severe pain in my hip and no one knows why.
At risk of commenting on _Every Single Video_ you've posted (sorry for that!), I wanted to say that I'd chatted with plenty of other folks with MS who've gotten good results from chiropractic work. I'm not saying it's a cure or anything like that, but it sounds like chiropractic care can be helpful (if you find a good person). As for your story and how it relates to belated and mis-diagnosis: I've had many of the same experiences.
Hi and please don't be sorry, it's nice to hear input from you. Yeah, I tried chiropractic back in 2007 when I started with my first symptoms, when I'd got no idea what was going on or happening with me. It's helped, but the symptoms never really went away.
I really was hoping all my symptoms would vanish once I'd had the disc repaired, sadly not.
Hey there, not sure why I've got a new notification for this message.. I just noticed you posted it 11 months ago😳
Weird: TH-cam has its wires crossed
Hope u are doing well
Not so bad, thank you for asking. I hope you are also doing well.
I will be 40 in January and I'm having MS symptoms as well. I will be getting checked soon. Hope you're doing better now!
Brandi Smith Hello Brandi, for me everything broke a 40! Although I was having symptoms since 2007 at the age of 35. But that's not to say it will be the same for you. Let's hope it's not MS, good luck with getting yourself checked out. Please pop back and let me know how you get on. Take care.
Who would stop your amazing channel. I hope you've managed to start an alternative. If you have please let me know how to find you.
Hi Fran, I think you might have the wrong person.. I'm certainly not stopping my channel.. I'm doing my best to get it up and running. Regards, Neil.
Neil, when I had my spinal tap the guy said ok so let's draw extra out seeing as how you are tolerating the procedure so well. I have never experienced pain like the headaches that I got for 6 days straight. I had to stay I. Bed to get any kind of relief from the pain. Maybe he took out too much or maybe I had a leak but either way it's put me off ever having a lumbar puncture again. I tell you this just so you know I know the pain you are talking about. Trev
Hi Trev .. I've been fortunate enough to avoid that horrible procedure (lumber puncture), you definitively have my respect going through that Trev. The headaches aren't pleasant, mine wasn't too bad but the problem was caused by the surgery I had. Pretty scary though.
Flood & Fidler , oh, I'm so sorry. I've had 4 total out of 20 years, I was diagnosed at 25. On my second one I had headaches so bad I couldn't stop vomiting ( sorry, gross I know) . I ended up back in the E.R. on day 3 for a ' blood patch' they pull out blood and inject it back in the hole or holes from the lumbar puncture as it will clot and stop the headaches. It is not pleasant but better than those headaches. I hope you are managing well, my best for wishes for you.
Hey Think Knot, for sure the headaches are certainly no fun.. A headache severe enough does actually cause sickness, so I'm not surprised you felt so unwell. Yep, I've heard of the blood patch which they use as a repair if the puncture isn't healing properly on its own. A very unpleasant procedure, fortunately I never had to have one.
When I had a epidural that went wrong when in labour I had that headache for 5 days, it’s the worst ever headache I’ve ever experienced
Hi Zoe, sounds to me like the epidural could have punctured the Thecal Sac and you might have been leaking spinal fluid. If the headache subsided upon lying down, but got worse when standing I think this was a definite possibility.
Just heard you talk about your thighs. That is one of my biggest issues is terrible pain and stiffness and tightness in my thighs.
Hi Pamela, yes indeed! My legs are so very week, and I have such a lot of stiffness in all of the muscles and joints which is caused by interrupted mis-firing nerve signals. There isn't actually anything wrong my muscles, rather it's the signals being sent to them and back to my brain via my spinal cord (where the problem is).
Worse of all for me is a group of muscles which run either side of my spine called the "Erector Spinae". These muscles are used for balancing your body when you take steps. In able bodied people, they probably wouldn't even know they're functioning as they work quietly in background doing their job. But mine don't work properly, or at least the nerve signals are damaged, and the pain, stiffness, weakness and phenomenal!! It's totally off the scale on some days.
This video was so interesting to me, and made me go "oh my god" quite a few times. The reason is that almost two years ago I had two prolapsed disks in my lower back (L4/L5 and L5/S1) which were of course extremely painful, but with a great chiro and physical therapy I got better, completely pain-free after a few months actually. Fast forward to August of this year...I woke up one morning with numbness, weakness and spasms in my right leg and feet. A week later I was hospitalized and had an emergency MRI, because all the doctors believed it had to come from my prolapsed disks and were debating whether I should undergo surgery or not. I had no pain anywhere whatsoever, which they had a hard time believing. The MRI of my lower back showed that my prolapsed disks didn´t look any worse/bigger than on my earlier scans, so the neuro surgeon ended up recommending conservative treatment rather than surgery (phew!). And boy, am I happy about that now, because the numbness etc. is NOT due to the prolapsed disks - both the eye doctor, the rheumatologist, the MS clinic and I believe it is because I have MS (I have been waiting forEVER for a brain MRI and am still waiting - and while waiting I am now having a relapse - but it´s getting closer. December 6th is the date).
Let me just add that I have been through all of this before. 8 years ago I had an "attack" similar to the one I have right now (numbness, tingling and spasticity in my left side, from scalp to knee). I was hospitalized but both the MRI and the spinal tap came back all normal, so I was told it came from stress and the depression I had. Haven´t had any symptoms since then...and 8 years later it all comes back. Crazy, isn´t it?
Oh dear, I already wrote a novel. Sorry about that. I just found it so interesting and crazy to hear how your doctor connected the numbness to the back problems too. So I just had to write this, even though it takes forever when you only have one hand that works. Okay, I´ll stop "talking" now, but thank you again for sharing your experiences!
Hi Rikke,
Yes, it certainly is crazy isn't it !! I really appreciate you taking the time to share your story which I read with interest, isn't it uncanny how similar our stories are!
I can totally appreciate how a prolapsed disc such as the one's we experienced can present extremely similar symptoms to MS. The disc presses on the nerve root causing the numbness/tingling etc, but the MS can cause the same symptoms so I suppose I can appreciate the difficult job of the Dr trying to figure it all out. Good that it wasn't the disc again and that you didn't have to have revision surgery.. this actually did happen to me and the first time was terrifying enough.
Once again, very similar to yourself I had my first "attack" in 2007 (just sensory) then slowly improved until another major attack in 2012 which hit me with all the disability, strange how there was several years in between. I do actually think stress can trigger the attacks.
Please please don't worry about "talking", its lovely to hear from you and I've really enjoyed hearing your experience. Feel free to pop by any time.
I hope your relapse isn't causing you too many problems at the moment.
Take care,
Neil.
Thank you for reading my story and writing back. I appreciate it.
I absolutely agree with you on how difficult it must be for the doctors to figure it all out from these strange symptoms. At first I also thought they came from the prolpased disks, so I certainly don´t blame them. I have never had surgery in my back though - I recovered completely with conservative treatment.
I also agree that stress can trigger the attacks, no doubt. And since my MRI and spinal tap came back normal, I understand why they figured the symptoms had to be caused by depression and stress 8 years ago. But now it´s a different story - there is something very wrong with my central nervous system, that´s for sure. Hopefully a new MRI can show the doctors what it is.
I don´t really understand how my brain MRI and spinal tap came back normal then, but I have read that others have experienced the same. Your brain MRI was normal too, so perhaps my lesions are just located elsewhere like yours (they only scanned my brain back then).
Who knows. We´ll see.
Thank you again for sharing and commenting back.
Have a good evening,
Rikke.
It's a blessing you never had to endure having back surgery, for me I'd never had an operation in my entire life and at the time I'd just turned 40. Pretty terrifying.
You just "know" when there is something no quite right don't you Rikke? If you don't mind me asking, what sort of symptoms are you experiencing? (apologies if you've already told me in a previous post).
My MRI showed absolutely no lesions on the brain which I trust because I don't experience such things as brain fog, optic neuritis etc, but it did show lesions on my spinal cord. However, I would never have spotted them because they were so faint and subtle. What I'm trying to say is, you need a very trained eye to read the scans.. so I feel its absolutely possible for the Dr's to miss things. After all they are only human aren't they.
As always, lovely to hear form you Rikke.
Neil.
Back surgery does sound terrifying! Over here (in Denmark) only around 10% of people with prolapsed disks have surgery. Most doctors don´t do it unless it affects bowel and bladder control. I don´t know if it´s the same in the UK?
Of course you can ask about my symptoms.
I have had three "episodes" or "attacks", or whatever we should call them. Two times where the symptoms were mostly located in the upper left side and once where it was in the lower right side. All three times I have had severe numbness, tingling, weakness, problems with my balance (in August this year, during my attack in the right leg, I actually ended up falling down some stairs and spraining my ankle). In two of the attacks I also experienced spasticity, which was a pretty shocking thing to wake up with. Other than that there´s the severe tightness and pain in the chest (only for a couple of days though), itching (a very weird kind of itching that cannot be itched away, because it´s not on the skin, it´s happening inside the arm or leg - I am guessing it´s in the nerves). I have also had vision problems: double vision and blurred vision and nystagmus. It was actually the eye doctor at the hospital who first mentioned MS (this year) - 8 years ago I had no vision problems, which I guess might explain why they saw no lesions on my brain MRI back then.
I don´t know if I have remembered them all (the symptoms, that is). There have been so many.
I hope they can see *something* on my scan next week. Of course I don´t want MS, but I want to know what is wrong with me. Like you said, we just *know* when something isn´t right. And I always prefer knowing, even if it´s something bad. I think most of us feel that way.
Thanks for responding again. I hope you´re feeling okay.
Trust me, it was seriously terrifying.. I don't think I've ever been so scared in my life! My surgeon told me that I was in danger of getting "cauda equina syndrome", he told me if I didn't have the surgery and soon I'd could end up in a wheel chair and loosing bowel and bladder function. So I must have fell into that 10%, and to be honest I think the UK have a similar strategy.. in a lot of cases the disc can correct itself and slot back in.
Thank you for sharing your symptoms Rikke, and wow what a set of symptoms you have there! Oh, I can relate to the spasticity big time, I get a lot of stiffness in my back which I feel contributes to wards this also, and the drunk walking even still today!! With the visual problems you've been experiencing you'd think something would show up on the scans wouldn't you. Remember though, it often takes a trained eye to spot these things.
Of course you don't want MS, I completely understand but what you do want is an explanation as to why all this is going on with you. I was actually relieved when I got my diagnosis because I could actually put a name to all the weird stuff that had been happening. The long period of time whilst the Doctors work it all out an be quite frustrating can't it.
I would love to hear how you get on, on Dec 6th.. I've got my fingers crossed for you in the hope that you get some long awaited answers.
Good luck!
Neil.
September 24 I am having neck surgery on c5 c6 c7. But I get constant head numb in spot, and tingling in down to my chin. I get random feelings of all my nerves in my body going off at the same time. Guess I'll need to learn more about those symptoms.
Hi Larry, my apologies for not getting back to you sooner.. I've been having quite a busy few days. I wish you well wish your surgery, and I really do hope that it resolves the tingling symptoms you're having. I know how distressing this must be for you, as I deal with this sort of thing on a daily basis in various areas of my body. All the best - Neil.
I can relate to everything going wrong at 40. I was diagnosed 2 months before my 40th birthday. I always say 40 kicked me in the a$$
Hi Cheryl, I couldn’t agree more. My symptoms started in 2007, but they calmed down. Eventually they came back in 2012 (when I was 40).
Boy, you've gone through hell.
I feel for you, I really do...
Thanks Trev.. hope you're doing ok.
Yes I'm not too bad. Should get my date for my next MRI scan anytime soon. Did you manage to check out some of the music?
All the best Trev
Hey Trev, be interesting to see what the scan shows up.
The music, YES! I've listened to "In the machine" very good, lots of different types of music all in one. I'm still listening to "Tales from the four seasons" liking Madrical Mornings especially, this is a bit more me.. the bird song in background is amazing. Keeping the tab open on my browser and keep listening whilst on the pc. You've got real talent there Trev, keep up the good work and doing what you love doing. After all, that's what life's all about isn't it. 👍👍👍
Hi Neil, I am so glad you are enjoying my music. I like the thought of you working away whilst listening to Tales album. I am lucky enough to be able to support myself so can dedicate time to write music. Do you work from home? I put a new short video up to promote the album. I will be doing one for each season this year so winter went up January or February and Spring has just gone up. Have a look if you get time. Anyhow I will let you know when my scan is - I have to be scanned at the Brompton as I was diagnosed with Brugada Syndrome at the same bloody time as the MS. Look it up on the tinternet, anyhow it meant I had to have an ICD fitted in my chest (internal cardiac defibrillator) which is MRI comparable BUT the Brompton is the only hospital in the UK that will scan me. Good job I live fairly nearby in Croydon. Any how enough rambling on. Have a good afternoon. Trev
Hi Trev,
I certainly will have a look, in fact I think I spotted the link on a Facebook post the other day. I've just Googled Brugada Syndrome, pretty serious stuff! Hopefully it's all under control. Has the Defibrillator ever gone off? Bet that is a bit of a shock to the system, no pun intended. Hope the scan goes well, good luck.
The light things in your spine they call it legions were the ms has attacked the milen and milen protects the nerves x
Patsy Hay Yes that’s correct Patsy.
*lesions not legions and myelin
Hi Pollee, Patsy was talking about Lesions and Myelin. The Myelin is the coating in our nerves, a little bit like rubber insulation on an electrical wire. A lesion is another name for scarring whereby the MS has damaged that area. This is what shows up as a lit area on the MRI. I hope all is well with you. Best - Neil.
Oh boy I have felt like fire under my feet sometimes water trickling numbness EBV MRI shows hyper intense foci sun cortical and periventricular
I know those feelings well, I’m sorry to say. I still get them to this day.
heres why i always suggest everyone have an MS specialist or at least a doc that has lots of experience with MS if theres a suspicion of MS cuz you fell victim to greedy docs who instantly went for spinal surgery when a long appointment of extensive examination would have gotten you closer to a real diagnosis not stabbing in the dark like a bad murderer. One of my neuros blamed my issues on herniated disks in lower back, but couldnt explain a few other issues with that diagnosis so i was outta there. Sadly you cant trust many docs to know their craft well, theres other agendas in play also so you have to be your own advocate. You may already know this but ill tell it here for anyone... Most people are deficient in Vit D take 5K day with biggest meal of the day (Its fat soluable), also make sure you eat some calcium rich foods (or take quality coral calcium, i like Dr Barefoot brand) daily as it helps Vit D absorb. This cant hurt you so everyone just do it. Take supplements, super foods, herbals etc... to get rid of inflammation! Thats just a few very basic things everyone should do.
Hey there, thanks for your input it's really appreciated.
On this occasion the disc issues in my back were definitely for real, my Dr was excellent and he showed me the scans and explained to me exactly what was going on. I could see the disc bulge with my own two eyes, and it was a bad one. I never mentioned this in the video but I'd been experiencing this weird phantom sensation prior to my back surgery, which disappeared immediately afterwards. Unfortunately the surgery had no effect what so ever on all the numbness and weird stuff going on in my legs, this I now know to be caused by the MS.
THANKS so much for the useful info regarding the supplements, I'm currently taking a Calcium & Magnesium and I actually feel like it helps. I'm going to give the Vitamin D a try as so many people (including yourself) have said how beneficial it is.
Cheers - Neil.
Not saying you didnt have an issue with disk, what i am saying is they went right to that bypassing an experienced MS specialist poking & prodding you to get you closer to a real diagnosis. Its important for you & everyone else with MS or any disease to be your own advocate. I promise you will have good results with alternative things, or coarse your doc wont put on them even if they will CURE you. P.S. Get quality Vit D with infused Vit K, I know ppl who are taking up to 10K a day, you really cant OD on it, BUT you may want to research how to take it & what to look for in case your one of the very rare ppl who have a negative reaction to high dose. Vitamins, supplements etc... sometimes get a bad rap cuz ppl dont buy quality ones & dont research how & when to take them. These days they are much better quality ;)
No worries, you're right.. the hospital halted any further Neurology investigation until I'd had the disc sorted out. Thanks for the info, already made some notes and I think it's about time to try some Vitamin D and the Turmeric also. Thanks a lot.
have you heard about ambien (the sleeping pill) for brain issues like stroke, brain injury? watch some interesting videos on it, like to hear from MS ppl on that. I know you have spinal lesions so im not sure it will work for you. Also I started taking QUALITY coconut oil for cog fog & fatigue...I like it, but again this may not help you cuz it looks like you dont have brain lesions but who knows? lol. I take less than 1 tablespoon twice a day with food or in coffee / tea. i strongly suggest you get Dua Dua brand cuz its quality extra virgin extruded (not processed) this oil has MANY uses (...watch youtube vids). P.S. Theres misinformation on this from big pharma & cooking oil industry, yes theres saturated fat but you can stop cooking with crisco, butter, lard & start using better for you coconut oil which is good for med & high heat cooking.
I haven't heard of Ambien, and your right I have only spinal lesions but I will do a search on it thanks.. also thanks for all the other info, not only is it helpful for myself but also to anybody else reading these posts. 👍
So what areas cortical periven frontal.
I’m not familiar with that area of the brain, to be honest I’m not familiar with brain geography at all. You might have your Google
That one. ☺️
Hi where you given contrast dye for your mri ?
Hi there Abdullah, thanks for the message. As a rule yes, I'm given the contrast dye especially in more recent scans. I've never had a reaction to the dye, and I've always felt absolutely fine, but I know that a lot of people are worried about it. I hope that helps. All the best.
@@NeilBradleyMS kindly talk to me I am worried to go for an MRI coz of the gadolinium. I suspect I have MS. I have this burning feeling all over from my head to feet every evening it gets worse. My knees are weak as well.
I did the first MRI without contrast and it showed I have small scattered nodules in the deep white matter and subcortical. Now the doc wants a clear picture of the inflammation but I am scared.
I don’t know if there is another way out to finding what’s causing me pain?
Hi there Amore, I completely understand your concerns with regard to the dye.. all I can tell you is about my own personal experience. I’ve had many MRI scans, I think at last count about 12 the last ten years. The majority of those scans have always been with the Dye, and I’ve never suffered any ill effects what so ever. They always ask me to wait behind for half an hour or so just to be on the safe side, but I’m always perfectly ok. Im very confident you have absolutely nothing to worry about, you will be fine. It’s a very safe procedure, otherwise they wouldn’t do it. I’m also sorry to hear you’re having to deal with such horrible symptoms, I do hope you’re managing ok.
@@NeilBradleyMS thank you. I will have to go for the test coz I need to get better for my daughter. As well start treatment. The long I postponed it wouldn’t help me. Thank you for giving me hope Bradley. I will do it and will let you know how it went. I am grateful. God bless you ❤️
Hi Neil,
I hope you read my comment ans answer me.
I'm a male 34 years old, from North Africa, so MS isn't really common in our region as in Europe,
So in 2017 i started to have pain in my back, and went to the Dr, it turned out i have slipped disc
I didn't understand what it was, so I lived in fear for a couple of months, and I'm living abroad as a student alone and i was panicking because of it and put so much stress and anxiety on my self, and during this time i started to have strange sensory symptoms, like burning sensations in my legs, arms, stomach, chest and sometimes face.
I thought it's the slipped disc but it continued, i was scared i might have slipped disc in my neck.
I went to the neurologist, and i told him about my symptom, and he told me I'm not worried of that you might have neck disc, i'm afraid you might have MS, we need to do MRI, I got even more stressed , and i didn't have money to do the MRI right away, and i remember the symptoms got worse because i was in extreme stress , it was only burning sensation, prickling sensation here and there., mostly sensory, and then he did full spinal cord MRI to me and it was clear. i told him why not the brain ? he said if there was something wrong, it would have been shown in your spine, and he gave me some anti depressants.
the symptoms didn't stop for almost a year, i went to see another neurologist, i told her about my story and i told her i'v been having the burning sensation for a year. she said this is not the pattern of MS, but I can't tell what's causing this symptom for you, it might be stress.
now we're in 2020, the symptom is still there , so basically since 2017 I have this symptom which is mostly burning sensation. I'm trying to ignore it since i'v done the MRI and it came back clear and I don't really have any other symptoms related to MS. I do have some twitches also which I told the Dr about, she said if you don't have any muscle weakness then it's nothing.
But I can't live in Peace, I keep coming back to Google, TH-cam to check . nothing scares me right now in my life than the idea of being potentially with MS but not diagnosed.
what I can do ? and what do you think ? can this burning sensation that lasted 3 years, be MS ?
and as I said I don't have other issues, some neck stiffness and that's all.
PLEASE HELP .
Dear Bahaa, thank you for your message and for being patient for my reply. Whenever I put a video out I get a massive influx of messages which I like to spend a bit of time on each day responding to each one.
I was quite fascinated to read about your symptoms, as they are so similar to mine when everything started. I was also 34!! But for me this was back in 2007, I had recently split from my now Ex-wife, there were children involved and it was a time of massive stress. For me, I believe this was the trigger of my illness which continues to get worse even to this day.
I highly recommend you watch my very first video, followed by a few subsequent one's because I describe my story in detail. I did these videos back in 2016 but I'm sure you will be able to relate to them. I will link the playlist below.
You see Bahaa, for me my first symptoms were tingling in my feet (spread to both legs) but they would BURN and turn VERY red. My hands would do the same BURN like crazy, and being a computer software engineer I would have to keep going to the bathroom and running my hands under cold water to cool them off. My finger tips would feel like somebody had pumped them up, very painful.
In 2007/08 I was diagnosed with Transverse Myelitis (Google It), to then be re-diagnosed in 2013 with MS. Then this last 12 - 18 months I've yet again been going through a further re-diagnosis phase, they're now fairly sure I've got something called "Neuromyelitis Optica" or NMO. This is documented in much more detail in my latest videos this past 12 months or so.
I note what you say about the MRI, and I'm very surprised you've not had an MRI of the brain as this is standard procedure when diagnosing MS, as is doing a Lumbar Puncture (Spinal Tap) It's actually very rare to be diagnosed with MS with only spinal cord lesions, I know because I was!! But now you see, my illness has turned out NOT to be MS but NMO which is in the same "camp" as MS but much rarer.
Have you had any visual disturbances? This is also a very common symptom of MS usually one of the first.
I'm very interested when you say you've had your symptoms since 2017 until 2020 and it's mostly burning. The reasons I say this is because from 2007 until 2012 it was the same for me. Ok, so I had the tingly altered sensation also but it was the BURNING and redness which was really problematic in my hands and feet. I'm no Dr, but you seem to be experiencing a very similar path to myself.
I suggest you Google "Transverse Myelitis" and do some research.
In the meantime, please watch some of my very first videos because I think you may be able to relate to them. I'm here anytime you want to talk.
Be well, and stay safe - Neil.
th-cam.com/play/PLKh4CtwH9cEUJcntnXWXyo-OtqnMccwWU.html
@@NeilBradleyMS Thank you so much for your extensive reply !
actually i don't think it's Transverse Myelitis because it says it's an inflammation of both sides of one section of the spinal cord and i did MRI on the spine on 2017 and it was clear ,
and it can't be Neuromyelitis optica because i have no problems with my vision at all.
so u think it might be MS even though i did MRI for the spine and it was clear, and I only have one kind of symptoms which is sensorry, and it didn't really get better or worse . it's mostly there.
As they told me, MS symptoms pattern is different, and it comes back as attacks, with new symptoms, specifically, numbness, loss of balance, muscle weakness, electrical shock when you move your neck, and vision disturbance, and i don't have any of these !
I only had burning sensation all over my body, some twitching, mild neck stiffness but it continues, i visited a Dr in 2018 and i told her about my continuous symptoms, she said this is not MS .
Anyway, what do you suggest me to do ?how can i get a firm answer, ? you don't think my symptoms can be caused by only stress and anxiety ? ..
Hi Bahaa,
I hear what you're saying, and I'm not qualified to diagnose you but I can give you my experience across my timeline since it all started happening to me in 2007, for you to compare.
In answer to your question, I think your SYMPTOMS will cause stress and anxiety, but I don't think it's the other way around. Because, my symptoms still cause me huge stress and anxiety, there's just no avoiding it really.
Many people on my channel have said to me they've had a MRI and nothing has shown up, but then how are their symptoms explained? It would seem the MRI isn't always effective at spotting everything. Also there are other factors, how keen is the eye of the Dr examining the images, lesions can be there but so very subtle they may not be spotted. And another point, there are different strength MRI's machine measured in Tesla. I think 3 is the strongest at the moment, some of the weaker one's don't produce so good quality images.
You say you've not got any eye symptoms, you might be interested to know that I've had perfect fantastic eye sight all of my life. I've never had to wear glasses either. Right up until March 2019, yet I'd been having all of my other symptoms since 2007.
The start of all of my problems was the burning in the hands and feet back in 2007 with the tingly altered sensation as well in my feet/legs/hands etc.
The only thing you can do is keeping pushing your Neurologist, and disagree with them, or look for a second opinion. I sometimes think they say stress and anxiety when they can't give you a firm answer or don't actually know themselves, I've heard so many people say it before. Bit insulting really isn't it!! Challenge them with the own research you've done, that sort of thing.
I know what it's like to be in that "un-diagnosed" , it's a very scary place.
Hang in there.
@@NeilBradleyMS Thank you again for taking the time and replying, it means a lot to me.
Okay, So, what can i do to get a firm conclusive answer ?
I'v been with 3 different numerologists ..!
after the lock down, i will go to see an MS dr, and tell him my story, and ask for a full MRI scan, if we found that my scans are clear ! what can i do then ? I heard that a lot of people living with some symptom,s with no medical explanation to it....
and until now i still don't have any strong MS symptoms, like weakness, loss in balance, numbness , cognitive issues,
Just the sensory issues for 3 years continues, it didn't stop much. and i heard that MS should come in attacks, or should get worse over time, my last Dr said that My symptoms don't follow the MS pattern. there has to be a pattern as she said.
You're doing pretty much everything you can do at the moment .. yes there is a lot of people living with symptoms with no medical explanation. I've been living with continual worsening symptoms now for 13 years, and I'm on my third diagnosis! Even though I have a diagnosis, it still doesn't instil confidence.. I just don't think medical science has all of the answers and they have to go with what's closest.
All I can say is, like you're having now I too had only sensory issues (burning, numbness and altered sensation) from 2007 to 2012 which slowly improved, but then in Feb 2012 I had another attack and its been downhill from there really. At this moment in the time I had a diagnosis of Transverse Myelitis (TM) Similar?
Can you have MS with a clean mri? Im having these syptoms like im punch drunk and watching the world from a 3rd person POV. Im having a second mri tomorrow because i kinda forced my nueroligist. But did they know you have ms on your first MRI? Second?
Hey Jorge G, thanks for the comment much appreciated.
During one of the many consultations with my Neurologist, in fact I think it was the one whereby he delivered the bad news which I'd already worked out for myself anyway (I had MS). I asked him if I could see the scans, and got him to point out to me where the lesions were which were causing me all the walking difficulties and altered sensations/numbness etc. There is noway in the world I would have spotted the problem, it was his trained eye which found the lesion(s) they were so subtle. Some of them show up as 'light' areas on the scan, but mine were more like grey areas. The point I'm trying to make here is, to the un-trained eye my lesions would have been so easy to miss, so if your scans aren't showing anything but clearly you are not well perhaps getting a second opinion might be worth it.
Another thought that comes to mind is, there are different strength MRI scanners.. some of the weaker scanners don't produce such clear images.
Regards - Neil.
Thanks neil i was just going to ask this same question and you answered it for both of us, they did say on mine I had something wrong in my neck with the scan but they couldn't tell me what, i think i will get someone else to read them thanks for the info
You’re very welcome Phillip, good luck. Ok.
Neil Bradley .
Hello Shiela.
May I ask why you were so hesitant to have an MRI?
Hello Mylee, yeah sure. I was very hesitant about my very first MRI because of being slightly claustrophobic and having to go in the “tunnel”. But not only that, I like to know how things work so I researched the technology of MRI first. I probably shouldn’t have done, but it scared me a bit. Having said all that, I actually recall settling into the scan process quite quickly, the tunnel wasn’t half as bad as I thought and I suffered no ill effects from the scan. They are very very safe. My first scan was in 2012, and since then last count was I’d had 11. I hope this helps. All the best.
@@NeilBradleyMS I have a lot of the symptoms and am just looking into being evaluated. I don't even know where to start, but am researching info. We live in a rural area. When you spoke of your burning feet, you got my attention! I had wondered it the fire in my feet waa just my imagination.
@@myleemae7858 I understand, it might help if you watch a few of my videos in the following play list: th-cam.com/play/PLKh4CtwH9cEUJcntnXWXyo-OtqnMccwWU.html
Especially my first video where I describe a lot of my symptoms when they all started in 2007: th-cam.com/video/yQsiLUJOyJc/w-d-xo.html
A lot has changed for me recently though, because I've now been re-diagnosed. I've documented this is more recent (last 12 months) video.
Any questions please just come back to me and I'll be happy to answer anything.
I wonder if general anesthesia worsens MS?
Hi Jim, it does make you wonder doesn't it because effectively once under a General your body is in paralysis. In all honesty, I think I would be concerned if ever I had to under any kind of surgery now.
@@NeilBradleyMS Yes, Induction agents like Propofol are highly lipophilic in the brain - and therefore would be picked up by myelin. I think about the anesthetic reactions that may cause free radicals, oxidations, etc.
I know exactly what u mean no ones listening
Are you on Facebook? I'd love to chat if you are still having You Tube problems. Friend request if you wish
Hi Neil..im hafiz..thanks for sharing this..can i have your skype?..or email so that i can talk to you..thanks
Hi Hafiz, yeah sure you can contact me by email at neil.bradley@hotmail.com cheers.
You mentioned legions. I remember a story in the bible where JESUS CHRIST met a mad man in a cave and and the mad man yelled at JESUS to live him alone. And JESUS asked the man what is your name and the man said my name is legion for we are many. Mind you its not really the mad man talking it was the demons in him speaking remember that he said my name is legion for we are many. But JESUS CHRIST rebuked those demons and cast them out off the man and sent them out into the pigs (that's why some religious groups don't eat pork.) But Sir now you know what legions are they are demons that manifest as deceases in the body. Your MS is a result of demons tormenting your life. Pls sir reject these deceases. Call on JESUS CHRIST name to set you free from every symptoms every deceases and every sickness he is faithfully he can and will heal you if you are willing. The bible said anyone that calls on the name of the Lord JESUS CHRIST will be saved. Not only can he save your soul but he also died to save you from sicknesses and deceases that won't allow you peace of mind. Pls sir am not saying forsake the physical physicians but also give JESUS the spiritual physician a chance GOD bless you as you do so.
Hello there, I mentioned the medical term "lesion" meaning scarring or damage to the nerve. I don't think this has got anything to do with the "Legion" you are talking about.
"Your MS is a result of demons tormenting your life" really??
I don't think so .. I think I would know if there were Demons or Multiple personalities tormenting my life. My illness is a result of a malfunctioning immune system, the same one which effects hundreds of thousands of people throughout the world. Are they all being tormented by Demons as well? Come on .. keep it real!
@@NeilBradleyMS I like you Neil haha
Thanks Abbie 😉 I hope you’re well.