Long Term Care insurance fights the existence of ME/CFS also. I just mailed a packet again to their review board and it makes me worse each time. The stress and effort of getting doctors to write something and mostly the frustration of being told I "should be able to do ADLs" is exhausting. Being told you're either lying or lazy is unbearable because most of us are or were high accomplishers and are sadly now mere fractions of our former selves. I included some great materials from Bateman Horne and will let you know their decision. It takes 4 months. Thanks for caring about us. The PEM test seems frightening. I don't want to go back to being bed-bound. Housebound is confined enough.
Long Term Care insurance fights the existence of ME/CFS also. I just mailed a packet again to their review board and it makes me worse each time. The stress and effort of getting doctors to write something and mostly the frustration of being told I "should be able to do ADLs" is exhausting. Being told you're either lying or lazy is unbearable because most of us are or were high accomplishers and are sadly now mere fractions of our former selves. I included some great materials from Bateman Horne and will let you know their decision.
It takes 4 months. Thanks for caring about us.
The PEM test seems frightening. I don't want to go back to being bed-bound. Housebound is confined enough.
I have to prove a need for home help every 6 mos to LTC insurance company. They keep canceling my caregiver.