How I Knew I Had Multiple Sclerosis (all my symptoms leading up to it, finding out on reddit)
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- เผยแพร่เมื่อ 28 พ.ค. 2024
- hey! this is a brief overview of all the symptoms i had leading up to my official diagnosis of ms ( relapsing-remitting multiple sclerosis). before i had my first relapse of optic neuritis i had a few other health issues that i didn't recognize at the time to be possible MS symptoms. now looking back, it makes so much sense why these things happened. so, maybe sharing them will help someone else recognize their symptoms sooner too!
0:00 - Intro
1:58 - How I Found Out & Leg Numbness
5:13 - Numb Feet
6:10 - Vertigo
6:50 - Hair Loss
7:25 - Dizziness & Vision
11:10 - Brain Fog
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For me Having conversations with people isn't easy specially when im tired because if they talk fast, i just get very confused and Lost in conversation, and as you said sometimes in the middle of conversation i forget what was i trying to prove to the other person.
it can be so frustrating! i hope you're doing well 🤍
I really appreciate the videos. The way you talk about the condition helps me relieve some stress about my own diagnosis too. It’s also very valuable the way you explain your symptoms. I remember being very confused when I had my first symptoms. This video would have helped during the time I was getting diagnosed. I’m 22 and got diagnosed last year and it has been a journey. I experienced the same symptoms, even the hair loss. Thanks for the videos! Your attitude towards the condition is one to take as example.
Hi it’s really great to see other young people with ms sharing their story❤❤ I was diagnosed when I was 18 and now at 22 I still think back to the obvious signs I was showing prior to my diagnosis, I wish you luck on your journey
Thank you so much! It's so nice (as nice as it can be anyway) hearing other people a similar age to me sharing their diagnosis - it makes it so much less lonely :) good luck to you too!
Isn’t it true u can’t show symptoms if you don’t have lesions?..I don’t understand when ppl say I was showing symptoms many years ago because with MS symptoms remain for weeks or months get worse and go away…
omg you’re the first person ive ever seen say they got diagnosed at age 18! im 18 rn and in the diagnosis process 😭
Thank you for this video! I only got diagnosed 1 month ago although like you had many symptoms I chalked up to being nothing beforehand until my last "flare" which i couldnt ignore and went to see someone. The biggest annoying thing I have now since my flare 2 months ago is the dizzy and weird slightly blurred vision thing! It's hard to explain to people the weird vision so it's nice to hear someone else knows what im talking about! I really hope it subsides though because it's so frustrating and a MS reminder everyday when I'm looking at stuff or trying to grocery shop.
I'm really enjoying your channel and your positive outlook to keep living and enjoying life when it's such a big blow! I'm definately in the dark hole stage of it so your videos have been so nice to dins :) I hope you're enjoying Australia (my home) ❤
thank you for your lovely message! i know how frustrating it can be, working on keeping stress and inflammation low was huge for me to reduce my vision/dizziness symptoms. the DMT i’m on was really helpful too! keep pushing through, it’ll get easier ❤
Thanks so much for sharing your story. It is so wonderful to see young people sharing and helping others. Well done.
thank you so much xx
I'm really sad you've got this sh!t disease so young but you seem really strong bless ya x I've got ppms and was diagnosed around 5 years ago at 45 and had to pretty much retire from scaffolding due to my left arm and left leg failing me. Thankyou loads for sharing and letting others have a bit more of an understanding about our multiple sclerosis 😊x
❤️
Thanks for sharing your story Charlie, im sorry you have to go through this, all the best ✌️➕❤️
thank you!
Thank you for sharing your story.For me Having conversations with people isn't easy specially when im tired because if they talk fast, i just get very confused and Lost in conversation, and as you said sometimes in the middle of conversation i forget what was i trying to prove to the other person.
Hey! Thank you for sharing! I’ve been struggling with a mystery illness for over a decade. It started when I was 12 and no one knew what it was or said I was crazy or making up my symptoms. I eventually just went home, dropped out of school and was a vegetable, rotting away. I’d fall over randomly when I was walking and I’d watch the news and it was like they were speaking a different language. I couldn’t understand. Couldn’t follow conversations. I was in this state for 2 yrs and slowly I got better. I dont fall anymore but that brain fog hits me all the time and I can’t explain to ppl one day im this IQ and this day im another. No one believes that. But thats what im dealing with. I cant tell left from right or do simple math. When im ok, well id just succeeded at skipping into 9th grade and had scored as gifted and highly on their intelligence tests. It hurts knowing what I could do and being reduced to this.
A week ago I happened to be on a date with a doctor and he immediately said I had MS and every thing I thought couldn’t be connected linked up.
So I’m going to speak with my neurologist soon. I rly hope I have it bcuz thats better than living an unknown, w no treatment, not knowing whats going to happen to u.
Anyone wondering if u have MS, bring it up to ur doctors. I dont know how all of mine dropped the ball on me but no one should have to live undiagnosed for years.
I hope everyone maintains hope and strength. Thnx!
i hope everything went well! thank you for sharing this 🤍
I feel like you were describing me! I have issues when I close my eyes too! I rock badly. I have the symptoms you do plus swallowing issues I have to blend my food. I’m sorry you deal with this too!! 🌟
I’ve had the optic neuritis, blurry vision, and mad brain fog. Just got the Kesimpta ordered today through my neurologist’s Pharmacy guy today.
i hope it all goes well 🤍
about to go through testing to see if i have nerve issues or a neurological condition so i have a question; do symptom flare ups come and go? i go through numbness (from the top of my head to my toes on my right side), muscle weakness, poor grip strength, unsteady gait (especially walking up stairs) and just general pain on one side. it sometimes lasts for 2+ weeks.
Symptoms do come and go for me, depending on how much sleep I've had/the food I've eaten (anything that can affect my inflammation). I hope the testing goes well!
Thank you for sharing 😊 I started showing symptoms at 18 but was not diagnosed until I was 21 because of the “my body will work it out” or symptoms resolving by the time I would get to the doctor.
I haven’t been diagnosed, but feel like I have MS. I relate to so many of your symptoms. Thank you for sharing.
What Eye falshes did u have?
Mine looked like driving in a blizzard but the snow looked like silver rectangle confetti. I lost vision in both eyes. After a week or two my vision returned in my left eye. I'm still blind in right eye.
Did those symptoms went away with taking kesimpta?
A lot of them did, but if I'm tired/stressed some of them come back regardless of the treatment
@@charliepayten can you go to work?
@@martinschultz2631 i work from home, but i definitely could go into work everyday if my job called for it
Hi Charlie- on Kesimpta here in US, Colorado on for almost 2 years:) Feel pretty good overall. Tiredness & brain fog & sometimes trying to come up with a specific word sometime is REAL. Keeping stress low low helps very much. Yoga is my dear friend & walking, hiking a must. Best to you
Thank r
How do we convince our doctor to refer us to a neurologist?
May I ask what are your symptoms?
@@BurningSky9 I have pretty much everything. I have muscle pain that happens suddenly without any reason but I’ve always had weak vision so not sure about that. However these could be from depression as I just got diagnosed with major depressive disorder.
@@erzas556 I'd first test for some potential deficiencies that can cause those symptoms (even depression)- B12, 25-OH D Vitamin, Magnesium. If those come back within normal limits and symptoms persist or worsen (or new symptoms appear), you can see a neurologist just to rule out a more serious cause.
@@BurningSky9 they are all normal I did recent blood work. I guess it’s time for a neurologist
Hey,
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Can I suggest to please slow down when speaking 😳😳😅
I changed playback speed to x 0.75.
@Charlie Thank you for an interesting video. I wish you well with your ms journey.
No. Sorry. Her constant fast talk is too much. Bye. I'm off.
Trash human being , leave her alone, she has to battle a monster, while you only have your ignorance to deal with