Jessica your a good mom and never let anybody tell you otherwise. I lost my son at 1 month old from SIDS and I miss him daily. Both of my kids were adopted and they are truly Gods gift to me. I have one with me and God is holding my sweet boy. Take care of your babies bc they are precious
I just found your channel yesterday. I have tears running down your cheeks. You are a very strong, brave lady. Harper is a very special baby and I believe God will use her life in a special way. May God continue to bless you. Love and prayers. 28:53
Had chills with your story. I could her your frustration...As a Christian..I was tearing..knowing God is able..He will fix it..Little mama mia( she looked so much like you.)..prayers and blessings.
I had never watched this before. I know what it's like to fight for your kids in a hospital and I do believe God gives Mama's instincts to know if a "diagnosis" is correct or not. This is a beautiful story of God's faithfulness in hard times.
I have a grandson who also suffers from seizures. Started have them right after birth. He does have brain damage but gets along fine…he is very special….four years old now. Still on meds they try to wean him off but he would have seizures…. He sat up crawled walks runs laughs…..they said he would never do those things. Just started talking…..we love him so much…..❤❤❤❤
This story of your daughter Harper has touched my heart in so many ways. I can feel what you were going through as a mom myself to 5. We have had some scary situations arise with a few of our kids like febral seizures, with a sudden high fever, and its beyond scary when you're holding them and they're laying in your arms lifeless, and unresponsive until the ambulance gets there, and the operator is talking you through what to do until they arrive to take over their care and get you to the hospital! As a mom we jave to stick with our gut instincts God has given us to protect and help our children who have no way to tell us what's going on! I'm praying Harper is doing so much better as she keeps getting older, she has the cutest smiles on your videos, and such a carefree lil girl, shes blessed to ajve you as her momma and so are your other kids! May the Lord continue blessing your family. Thanks for sharing, it brought tears to my eyes of happiness that you could finally figure out what was wrong.
“...and it is never far from me...” amen, I have been through major medical mysteries with our youngest and I felt the anguish of your momma-heart listening to your testimony and also the relief and joy of making it through such a challenging season! What an encouragement to know we mommas are not alone in these matters 🙏
Such an amazing story about your beautiful daughter Harper. My children are grown but I felt the fear you must have gone through. I am also a nurse, and now how important it is to listen to mothers about their children. I can’t even imagine the frustration you felt with all of the doctors. It is very unusual to have a doctor apologizes, good for them. I am sure they felt bad they had missed the diagnosis of infantile seizures. You are such a strong and courageous mother💕💕💕
I’ve have just one child & when he was 7 he was emergency hospitalised for 2 weeks with something very serious, so I know a teeny, tiny bit of what you went through. How you managed to stay sane, never mind looking after your children at home or anything else , is a tribute to your mothering skills. You stayed strong & true to your beliefs, & I guess you & Nathan can manage anything that life throws at you now. I’m so thankful that Harper’s problem got sorted - eventually.
In July of last year when my Mom was driving to Colorado to be close to my Brother and my Nieces. Mom told me that I was diagnosed with Epilepsy when I was 2 years old and in Kindergarten I had Seizures so my Mom left the Base to get me home. (My Mom and Dad were in the Army National Guard) I had my Seizure Tumor surgically removed when I was 8 years old.
I thank God for bringing this into the light and a diagnosis was made and proper treatment was given. I thank God for little Harper and a mom who fought for her. ❤️
Harper's story reminds me a lot of my daughter. She was around 3 when she had her first seizure. It happened when she was eating. My hubby was a medic in the army and he immediately went into medic mode as I freaked out. We rushed her to the ER. She was running a fever at the time so they said it was most likely a febrile seizure. We went home and 10 days later she had another one. This time she didn't have a fever. We got an appointment a month later to a pediatric neurologist and she ran an EEG. It was normal but the neurologist said they usually are hard to determine unless they are having one. We thought it was linked to her getting flu shot so we stopped. We thought everything was good until she was 7. She had 3 in a 4 month period. We went back to the neurologist and had another EEG and it came back normal. Her neurologist decided to put her on seizure medicine. She didn't have another seizure for 11 months on seizure meds. We had another normal EEG. Her neurologist increased the dosage and her pediatrician switched her to a diffent ADHD meds (the one she was on had a very rare side effect of seizures) what was she was good for another 10 months. This time she was sick, had a painful loose tooth. There was also a couple missed doses of meds due to prescription issues and her neurologist being on vacation. This seizures was the worse one. We at this time learned that one of her triggers is being sick or in pain or over tired. She is on seizure meds and hasn't had a seizure for 18 months. She was diagnosed with a form of childhood epilepsy but the hope is she will grow out of it. In Aug. she will be seizure free for 2 years. If she doesn't have a seizure from now till then her neurologist will take her off the seizure meds and see what happens. She had an EEG after every seizure and nothing ever showed up. I was very thankful that we had an awesome pediatrician that immediately referred us a pediatric neurologist.
Being a medical mom I so get this. I know that fear and frustration of will you listen to me! With my little boy Jeremiah I never left him every admission to the hospital, some times for months at a time, and people tried to get me to leave and it wasn’t happening. When he died I think that was the hardest thing for me, walking out of the hospital without him. I love how you keep your interruptions in the video. Makes me feel like I’m not the only one who has that happen every time
We also went through the same thing but we had febrile seizures he could be absolutely fine and pop a fever just didn’t have a second and go into a seizure and also have a grand mal seizures I know your stress and the Lord delivered my son also we would take him to the altar and have him anointed and prayed for and the Lord healed him he’s 35 years old now with his own daughter and they’re both a blessing hang in there God’s got this
Wow, just saw this video. I’m crying over here. What a scary time that was for you and your family. So glad you are a strong mom and listened to your gut feeling. ❤️🙏🏻🌷
I recently took my husband to the hospital because he was acting very unlike himself. I went home to take care of our dogs briefly, while I was at home the hospital called and said they were discharging him because they couldn't find anything wrong with him. I told them , " I've been married to this man for almost 40 years and there something wrong. No one is going to come and pick him up you need to find out what's wrong." I got a call within 8 hours later and it turned out he had a brain tumor. He had major surgery in July and is going through radiation treatments right now.. sometimes you just know.
You are so strong. I’m so glad everything worked out and God put such great people in your life to help you through it. Harper is so precious! God is so good!
Can you give me a update !? My son was Healed by God from seizures after a scary episode where I was on a 911 call preparing to give him CPR .. how is Harper sweet lady ! We have not had any other children since then however we have felt called to and have been resisting because I’m so worried we will have a replete of this ! And you have given me such inspiration! Going on and h info more kids after this !!!
I’m so sorry you have experienced the same thing with your son! It’s so scary! And Praise God for your son’s healing! So Harper has not had another seizure at all! She turned 3 this past summer!
My son hade seizures when he was born for the first two years and the same thing happened he would have them and Jess before I could get someone else he would just be sleeping we stood over the hospital as he was also a preemie and he finally had one while he was having a EEG he has finally grown out of them by the age of two but I can remember it like if it was yesterday he’s 27 years old and has autism as well mom‘s always know when somethings wrong with their babies God bless your little girl or may she be at that age when she outgrows them as well what a beautiful girl love her name and may God bless you and your family in the name oof Jesus
My son Isaiah started having complex partial seizure at age 5 , it took us several trips to the doctor's office and he had to have more than three seizures before they could see a neurologist . His seizure were not regular he would go a couple weeks inbetween , I had to get it on camera to show proof because they said there was thousand types of seizure , (my son would get nausea and then loose sight and fall to the ground his eyes would go to the right side of his head, finally after the seizure was over he would sleep for hours) 6 months later we where about to get to see a neurologist and they placed him on keppra . He was on keppra for 2 years no seizures and now he's been off the medicine for another 2 years and still seizure free . We prayed the last time he had a seizure , we took communion together , and I knew from that moment God had healed him . - Misty from Alabama
Ruperto Saldana Praise the Lord!!! Thank you for sharing that with me! Your situation sounds so similar to ours. It was so scary, especially the not knowing.
Wow!! I’m so sorry you had to go through that. We have had some similar situations. Our oldest would turn blue and everyone acted like I was crazy and finally after months I pushed hard enough (I was a first time mom so they just thought he was cold) and was able to get him to the pediatrician when he was still blue and they referred him to cardiology where he had a small heart murmur because of a PFO. It healed by age 4, and he’s had no more problems with that but often still turns blue now when he’s cold so partially right for drs and for me. Then our daughter with special needs had complex partial seizures, saw neurological, started meds then he warned she might have infantile spasms and to look it up on you tube- that night she started having them! Someone sAid to video it I did and that led to her starting Sabril on top of her Kepra. Then almost three weeks in about to titrate to her proper dose and it kicks off crazy and I’m at church counting the seizures and by Wednesday she had 5 rounds lasting 0-30min of 200+ jackknife movements. But... we called dr Monday went in Tuesday he left on family emergency and no one else would see us. Tuesday night I cAlled the on call dr he said wait and see, Wednesday during the 5th round we went to the ER. In waiting room she started round 6, they rushed us back and it took 5 seizure meds in IV to stop it. She barely moved for days, then had lung issues because of it and that started our bad respiratory journey. They still couldn’t get seizures to stop until they tried the ketogenic diet (she was cool before the fad came about!) then they stopped! Years later we were able to wean her off Sabril which was good (because it was damaging her retinas and causing peripheral vision loss) then our state approved CBD oil and that has done the most good for her than anything else. I’d love to know how your journey has gone with Harper’s seizures and development since then if you don’t mind sharing. Our daughters name is Hannah.
Wow! That’s a lot to go through!!! When they were checking Harper out to see what could be causing these blue spells they found a PFO but said it wasn’t causing them.
That is the most scariest thing of my 15-year-old son Kind of sad the same thing they called it infantile spasms seizures I just found your channel He’s OK now but he said he is at high-risk for Epilepsy
Been there. My youngest had fever seizures from 14 months til a little over 2 years old. The last time we went to hospital back in 2018 they told me the same thing video tape it. Ummmm who can think to do that when their kid is having a seizure. .
Keppra is great! I Sm on it for seizures! I had an abscess the size of an egg on my brain. It was removed snd I had to be on intervenes antibiotics for quit a while. I was in hospital about a month and then a nursing home for more IV antibiotics and rehab. That was for a bit over 3 months. I had to learn to walk and hold things again. It effected my left side. I am almost back to normal now. That was in 2008-9. It was right before ! So my 2 young sons had to go be with their worthless dad and his family! They were not nice at all! My boys were 8 and 5. They did zip for them for Christmas and told them there was no Santa! I had stuff to give them and my mon did too! A couple of my friends got them so they could be with them at least for a day off snd on! One of the worked at the hospital I was in and broke ufht me pictures! Which was fantastic since they could not get into hospital! But I have to be on my meds for life since I have a scare on my brain from all this! Never felt d find out what the abscess was from. But it was a bad one!
Is she still having the seizures? I have had my seizures for 44 years now I was told I started having them at a year old... God Bless You and your family
Jessica your a good mom and never let anybody tell you otherwise. I lost my son at 1 month old from SIDS and I miss him daily. Both of my kids were adopted and they are truly Gods gift to me. I have one with me and God is holding my sweet boy. Take care of your babies bc they are precious
I just found your channel yesterday. I have tears running down your cheeks. You are a very strong, brave lady. Harper is a very special baby and I believe God will use her life in a special way. May God continue to bless you. Love and prayers. 28:53
Just seeing, we serve a mighty God. Seeing her in your videos now, is just amazing!
Had chills with your story. I could her your frustration...As a Christian..I was tearing..knowing God is able..He will fix it..Little mama mia( she looked so much like you.)..prayers and blessings.
I had never watched this before. I know what it's like to fight for your kids in a hospital and I do believe God gives Mama's instincts to know if a "diagnosis" is correct or not. This is a beautiful story of God's faithfulness in hard times.
I have a grandson who also suffers from seizures. Started have them right after birth.
He does have brain damage but gets along fine…he is very special….four years old now. Still on meds they try to wean him off but he would have seizures….
He sat up crawled walks runs laughs…..they said he would never do those things. Just started talking…..we love him so much…..❤❤❤❤
This story of your daughter Harper has touched my heart in so many ways. I can feel what you were going through as a mom myself to 5. We have had some scary situations arise with a few of our kids like febral seizures, with a sudden high fever, and its beyond scary when you're holding them and they're laying in your arms lifeless, and unresponsive until the ambulance gets there, and the operator is talking you through what to do until they arrive to take over their care and get you to the hospital! As a mom we jave to stick with our gut instincts God has given us to protect and help our children who have no way to tell us what's going on! I'm praying Harper is doing so much better as she keeps getting older, she has the cutest smiles on your videos, and such a carefree lil girl, shes blessed to ajve you as her momma and so are your other kids! May the Lord continue blessing your family. Thanks for sharing, it brought tears to my eyes of happiness that you could finally figure out what was wrong.
“...and it is never far from me...” amen, I have been through major medical mysteries with our youngest and I felt the anguish of your momma-heart listening to your testimony and also the relief and joy of making it through such a challenging season! What an encouragement to know we mommas are not alone in these matters 🙏
Thank you! I don’t think a mamas heart ever recovers going through something like that. Sorry to hear you have experienced something similar. ❤️❤️❤️
Such an amazing story about your beautiful daughter Harper. My children are grown but I felt the fear you must have gone through. I am also a nurse, and now how important it is to listen to mothers about their children. I can’t even imagine the frustration you felt with all of the doctors. It is very unusual to have a doctor apologizes, good for them. I am sure they felt bad they had missed the diagnosis of infantile seizures. You are such a strong and courageous mother💕💕💕
It was the hardest thing I ever went through. And honestly I still think of it daily.
I’ve have just one child & when he was 7 he was emergency hospitalised for 2 weeks with something very serious, so I know a teeny, tiny bit of what you went through. How you managed to stay sane, never mind looking after your children at home or anything else , is a tribute to your mothering skills. You stayed strong & true to your beliefs, & I guess you & Nathan can manage anything that life throws at you now. I’m so thankful that Harper’s problem got sorted - eventually.
In July of last year when my Mom was driving to Colorado to be close to my Brother and my Nieces.
Mom told me that I was diagnosed with Epilepsy when I was 2 years old and in Kindergarten I had Seizures so my Mom left the Base to get me home.
(My Mom and Dad were in the Army National Guard)
I had my Seizure Tumor surgically removed when I was 8 years old.
I thank God for bringing this into the light and a diagnosis was made and proper treatment was given. I thank God for little Harper and a mom who fought for her. ❤️
Harper's story reminds me a lot of my daughter. She was around 3 when she had her first seizure. It happened when she was eating. My hubby was a medic in the army and he immediately went into medic mode as I freaked out. We rushed her to the ER. She was running a fever at the time so they said it was most likely a febrile seizure. We went home and 10 days later she had another one. This time she didn't have a fever. We got an appointment a month later to a pediatric neurologist and she ran an EEG. It was normal but the neurologist said they usually are hard to determine unless they are having one. We thought it was linked to her getting flu shot so we stopped. We thought everything was good until she was 7. She had 3 in a 4 month period. We went back to the neurologist and had another EEG and it came back normal. Her neurologist decided to put her on seizure medicine. She didn't have another seizure for 11 months on seizure meds. We had another normal EEG. Her neurologist increased the dosage and her pediatrician switched her to a diffent ADHD meds (the one she was on had a very rare side effect of seizures) what was she was good for another 10 months. This time she was sick, had a painful loose tooth. There was also a couple missed doses of meds due to prescription issues and her neurologist being on vacation. This seizures was the worse one. We at this time learned that one of her triggers is being sick or in pain or over tired. She is on seizure meds and hasn't had a seizure for 18 months. She was diagnosed with a form of childhood epilepsy but the hope is she will grow out of it. In Aug. she will be seizure free for 2 years. If she doesn't have a seizure from now till then her neurologist will take her off the seizure meds and see what happens. She had an EEG after every seizure and nothing ever showed up. I was very thankful that we had an awesome pediatrician that immediately referred us a pediatric neurologist.
Being a medical mom I so get this. I know that fear and frustration of will you listen to me! With my little boy Jeremiah I never left him every admission to the hospital, some times for months at a time, and people tried to get me to leave and it wasn’t happening. When he died I think that was the hardest thing for me, walking out of the hospital without him. I love how you keep your interruptions in the video. Makes me feel like I’m not the only one who has that happen every time
I can’t even imagine... bless you. ❤️❤️❤️
We also went through the same thing but we had febrile seizures he could be absolutely fine and pop a fever just didn’t have a second and go into a seizure and also have a grand mal seizures I know your stress and the Lord delivered my son also we would take him to the altar and have him anointed and prayed for and the Lord healed him he’s 35 years old now with his own daughter and they’re both a blessing hang in there God’s got this
God bless your family and sweet Harper❤🎀
Wow, just saw this video. I’m crying over here. What a scary time that was for you and your family. So glad you are a strong mom and listened to your gut feeling. ❤️🙏🏻🌷
It really was... it was so hard! So thankful to be on this side of it now.
What an amazing story!!! Thank you for sharing! ❤
I recently took my husband to the hospital because he was acting very unlike himself. I went home to take care of our dogs briefly, while I was at home
the hospital called and said they were discharging him because they couldn't find anything wrong with him. I told them , " I've been married to this man for almost 40 years and there something wrong. No one is going to come and pick him up you need to find out what's wrong." I got a call within 8 hours later and it turned out he had a brain tumor. He had major surgery in July and is going through radiation treatments right now.. sometimes you just know.
You are so strong. I’m so glad everything worked out and God put such great people in your life to help you through it. Harper is so precious! God is so good!
Thanks so much! It was def the hardest thing I have ever gone through! It is heartwarming now to look back and see how God was there....
Can you give me a update !? My son was Healed by God from seizures after a scary episode where I was on a 911 call preparing to give him CPR .. how is Harper sweet lady ! We have not had any other children since then however we have felt called to and have been resisting because I’m so worried we will have a replete of this ! And you have given me such inspiration! Going on and h info more kids after this !!!
I’m so sorry you have experienced the same thing with your son! It’s so scary! And Praise God for your son’s healing! So Harper has not had another seizure at all! She turned 3 this past summer!
Finishing this up today...so cool to hear how God met your needs through all this!
Thanks for watching! Yes it is amazing to look back and see how God was there every step of the way!
My son hade seizures when he was born for the first two years and the same thing happened he would have them and Jess before I could get someone else he would just be sleeping we stood over the hospital as he was also a preemie and he finally had one while he was having a EEG he has finally grown out of them by the age of two but I can remember it like if it was yesterday he’s 27 years old and has autism as well mom‘s always know when somethings wrong with their babies God bless your little girl or may she be at that age when she outgrows them as well what a beautiful girl love her name and may God bless you and your family in the name oof Jesus
Goodness... I’m so sorry to hear of all that you went through.
Nowadays you have to be your own advocate for yourself and your family and friends 😍👍 good momma 🙏
My son Isaiah started having complex partial seizure at age 5 , it took us several trips to the doctor's office and he had to have more than three seizures before they could see a neurologist . His seizure were not regular he would go a couple weeks inbetween , I had to get it on camera to show proof because they said there was thousand types of seizure , (my son would get nausea and then loose sight and fall to the ground his eyes would go to the right side of his head, finally after the seizure was over he would sleep for hours) 6 months later we where about to get to see a neurologist and they placed him on keppra . He was on keppra for 2 years no seizures and now he's been off the medicine for another 2 years and still seizure free . We prayed the last time he had a seizure , we took communion together , and I knew from that moment God had healed him .
- Misty from Alabama
Ruperto Saldana Praise the Lord!!! Thank you for sharing that with me! Your situation sounds so similar to ours. It was so scary, especially the not knowing.
Thank you for sharing. I pray one day I find an accepting church family.
Finding the right church can be hard! But don’t give up!!! ❤️❤️❤️
Thank you for sharing. ❤️❤️❤️ Bless your heart 💕
Wow!! I’m so sorry you had to go through that. We have had some similar situations. Our oldest would turn blue and everyone acted like I was crazy and finally after months I pushed hard enough (I was a first time mom so they just thought he was cold) and was able to get him to the pediatrician when he was still blue and they referred him to cardiology where he had a small heart murmur because of a PFO. It healed by age 4, and he’s had no more problems with that but often still turns blue now when he’s cold so partially right for drs and for me. Then our daughter with special needs had complex partial seizures, saw neurological, started meds then he warned she might have infantile spasms and to look it up on you tube- that night she started having them! Someone sAid to video it I did and that led to her starting Sabril on top of her Kepra. Then almost three weeks in about to titrate to her proper dose and it kicks off crazy and I’m at church counting the seizures and by Wednesday she had 5 rounds lasting 0-30min of 200+ jackknife movements. But... we called dr Monday went in Tuesday he left on family emergency and no one else would see us. Tuesday night I cAlled the on call dr he said wait and see, Wednesday during the 5th round we went to the ER. In waiting room she started round 6, they rushed us back and it took 5 seizure meds in IV to stop it. She barely moved for days, then had lung issues because of it and that started our bad respiratory journey. They still couldn’t get seizures to stop until they tried the ketogenic diet (she was cool before the fad came about!) then they stopped! Years later we were able to wean her off Sabril which was good (because it was damaging her retinas and causing peripheral vision loss) then our state approved CBD oil and that has done the most good for her than anything else. I’d love to know how your journey has gone with Harper’s seizures and development since then if you don’t mind sharing. Our daughters name is Hannah.
Wow! That’s a lot to go through!!! When they were checking Harper out to see what could be causing these blue spells they found a PFO but said it wasn’t causing them.
God is great.
That is the most scariest thing of my 15-year-old son Kind of sad the same thing they called it infantile spasms seizures I just found your channel He’s OK now but he said he is at high-risk for Epilepsy
So glad your son is ok now! The neurologist told me they had to be seizure free for 5 years and then their risk of epilepsy greatly goes down!
Thank you for sharing your story 💕
Thank you!
So scary to walk through! 2 of my siblings had random seizures but nothing like this.
Oh wow! yes seizures are very scary!!!!
@@FieldsFullHouse my son also having same pblm now your baby is ok
Been there. My youngest had fever seizures from 14 months til a little over 2 years old. The last time we went to hospital back in 2018 they told me the same thing video tape it. Ummmm who can think to do that when their kid is having a seizure. .
Wow... sorry to hear you have had the same experience. It’s so scary!
Keppra is great! I Sm on it for seizures! I had an abscess the size of an egg on my brain. It was removed snd I had to be on intervenes antibiotics for quit a while. I was in hospital about a month and then a nursing home for more IV antibiotics and rehab. That was for a bit over 3 months. I had to learn to walk and hold things again. It effected my left side. I am almost back to normal now. That was in 2008-9. It was right before ! So my 2 young sons had to go be with their worthless dad and his family! They were not nice at all! My boys were 8 and 5. They did zip for them for Christmas and told them there was no Santa! I had stuff to give them and my mon did too! A couple of my friends got them so they could be with them at least for a day off snd on! One of the worked at the hospital I was in and broke ufht me pictures! Which was fantastic since they could not get into hospital! But I have to be on my meds for life since I have a scare on my brain from all this! Never felt d find out what the abscess was from. But it was a bad one!
I’m so sorry to hear you have gone through all that.
@@FieldsFullHouse Thank you! All’s good lately.
I was on 3 different kinds of medication for the seizures and now I'm on keppra and taking 2 twice a day
The keppra worked great for Harper. Glad it’s working for you!
Is she still having the seizures? I have had my seizures for 44 years now I was told I started having them at a year old... God Bless You and your family
No she has been seizure free for 3 years this October! Off meds for a year now.
Wow... bless you!
GOD IS GOOD ALL THE TIME. 🙌
Amen!