Devastatingly, Charlotte passed away at the beginning of July this year, 2024. She was almost fourteen - considerably older than the average age of death for those with untreated CLN6.
It's not that simple, this is a genetic disorder that 100% leads to an early death, I don't know how far the research is when it comes to treatments though, I do believe that there will be a cure one but I don't think their that far yet and chancing your diet or skip vaccines definitely wont do anything because this is something that's in the genes from the first cell.
How devastating for this family. I had never heard of Battens disease until this video.
Beautiful family, stunning girls x
God bless your family! You are all so beautiful.
Devastatingly, Charlotte passed away at the beginning of July this year, 2024. She was almost fourteen - considerably older than the average age of death for those with untreated CLN6.
Beautiful girls, so sad 💔
How are theynoe
Do everything natural, healthy fats, ketogenic diet, non gmo, chiropractic/naturopathic medicine.
And don't vaccinate again.
Drmalyha You are an uneducated dumbass
@@michiganmom857 Exactly, that's the type of advice that gets these people killed.
It's not that simple, this is a genetic disorder that 100% leads to an early death, I don't know how far the research is when it comes to treatments though, I do believe that there will be a cure one but I don't think their that far yet and chancing your diet or skip vaccines definitely wont do anything because this is something that's in the genes from the first cell.