EP07 - Carries Story The Final Part 🙌🏻
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- เผยแพร่เมื่อ 1 ต.ค. 2024
- On this episode Joel & Carrie pick up where they left off from episode 6. Taking you up to date on where we currently are within our situation. Its been a pleasure sharing the deeper side to us and hope you’ve managed to embrace it!
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As a nurse I am appalled at the experiences you’ve had & hope sometime you feel able to make a formal complaint, so others don’t have to go through this and you get apologies which you rightly deserve for how you’ve been treated. Wishing you both all the best
Big love to you Jane 🥰🥰🥰
We’ve put numerous complaints in to PALS. Nothing changes 😢
In that case I would write stating you wish to make a formal complaint and address it:- For the attention of the Chief Executive Officer
As a nurse watching this on my lunch break, I cannot believe the catalogue of errors and the treatment you have experienced. Several would be sackable offences if they happened in my hospital. Easy to blame covid and staffing but the lack of human to human compassion and human decency is astonishing. Glad you finally got some answers, even if its not a diagnosis yet!
if you don’t mind me asking. do you work in the US? i’m finding myself watching this series wondering if the lack of care and compassion or the appropriate follow up after such negligence is due to the fact medical care is different in every country. And i’m not very familiar with what the differences are. But i always assumed in Europe you received similar care to the United states except for the astronomical differences in cost and health insurance/federal benefits etc. i just am so shocked at how this poor woman was treated. 😢
I am very disgusted of how the hospital have treated you both. I hope one day somebody will look into your case and start giving you the answers that you both deserve. Carrie just take small steps each day as it comes. I am so proud of you of how far you both have come and despite everything you both gone through, both of you have got a smile and have a laugh while telling your story and that’s what’s making you both stronger each day and everyday in life. Even tho I don’t know you both 😊 keep being strong, you have got this. Also Carrie you should be so proud of your self of how far you have come and working so hard. You are the most strong woman that I’ve ever come across. Keep on smiling and shining that star ⭐️ of yours. 🥰💪🏻
Thanks for you lovely comment! Hope you’re well 🥰
@@redheadresidence your welcome hun. I’m doing good thank you. How are you both doing? 😊
Can i just say Carrie your speech is coming on so well, its amazing! Every time I watch an episode of this, your speech is better every time!xxx
This is really kind Holly she’s doing amazing. However we only film on her good days and don’t tend to record on days where she’s struggling. Unfortunately every days unknown xxx
@@redheadresidence I get that... wish you all, all the best 🥰
Omg!! Im so sorry for you guys thats terrible what you both been and going through. I think when you want to become a doctor or a nurse you should have to have an empathy and bed side manner test included in getting your degree. It can help someone to feel better When someone is good to you especially when your not well.I had a different experience I had covid and was in icu with induced coma for 16 days and I cant fault my nurses they were my family whilst I was in there as I missed christmas and was devasted they were my rock. But you two are truely remarkable and remember you guys are loved and have guardian angels by your side sending so much love from Australia from my family to yours .❤❤
Hi Carrie. I came across this video after seeing a short clip on Fb of you walking to your husband at your wedding. I immediately noticed how familiar your walk looked, so I read comments that led me to your blog. Your story is heartbreaking and all too familiar. When you described what your walking and vision felt like, I was right there with you. I have had some parallel nightmarish experiences in my diagnostic journey too and before my big health decline in my early 30s had a history of odd health things that I simply lived with and plowed through. I'm reaching out because I finally did get an answer that you may want to look into. My answer came through genetic testing which found I have a rare calcium channel mutation in my CACNA1A gene. Mutations in this gene can cause episodic ataxia (severe attacks of discoordination and abnormal gait), hemeplegic migraine (temporary paralysis down one side), seizures, slurred speech and an array of other neurologic symptoms. Certain mutations in this gene can cause a progressive form of ataxia called spinocerebellar ataxia. I'm not sure your access to genetic testing where you live but this could be life changing for you. Finally getting an answer led to the opportunity for treatment and medical understanding of this rare disease that at long last allows me to work from where I'm at with my team of doctors. I'm not saying I know for sure that this is what you have but you have SO MANY similarities to me and others in the CACNA1A community that I hope you can find a way to get tested for genetic mutations. These channelopathies can have so much to do with how the brain communicates with the body. I never comment on anything but thought and hoped that maybe my story could help you. I know that continuing to push can take a toll on you and you have to balance good self care against self advocacy, but I do think if you haven't had a genetic neurologic/epilepsy panel ran on you, you are missing a big piece of the rule our process. Best wishes to you and your family!
thank you so much for sharing your story. i can’t believe how mistreated you have been, i’m appalled! i really hope you get answers soon carrie❤️
I have been a qualified nurse for 22 years, I am disgusted. I am so sorry you had to experience that, that’s just awful. Everybody is entitled to be treated here in the UK and we have a duty of care to everyone who enters into our hospitals. I am sorry you didn’t meet healthcare professionals who carry the same ethical and moral code as most of us do. I encourage you to make a formal complaint. I am so glad you have a wonderful family who love & support you. I hope you find the answers you so deserve. xx
Hearing your hospital horror story has triggered so many memories for me. I’m so sorry. It’s honestly so traumatic when you have bad experiences like that, I feel for you. I’m 34 and can relate to you so much. Although our health issues aren’t the same, the past decade of my life has been a rollercoaster with my health. I think you are amazing, you cope incredibly and are so inspiring to me. I absolutely love you guys and seeing the love and support Joel has for you warms my heart. The relationship you have is so beautiful and your forever making me laugh. I think you are so brave for sharing your story. I’m literally binge watching all of your podcasts and love you both. Your TikTok’s make my day. Sending lots of love ❤️
I really cannot believe how you both were treated. It is disgusting how you've been treated by the NHS I'm actually emotional hearing this. 😭❤️
Yeah it’s not been great with Carrie, well far from it however we do have some good feedback on the NHS when it comes to how they saved our daughters!
@@redheadresidence Of course they are not all that bad, but nobody deserves to be treated they she was, it really upset me the way she was left outside the hospital in the rain ☔ I feel for her. My mum was in a wheelchair ♿ before she passed so I know the way people look at you as if they have never seen a wheelchair before haha 😂 but really I am encouraged by your story and I'm sure you's will have an impact on so many lives and loking forward to hearing more of your beautiful stories and funny videos on tiktok haha 😂 much love to you all 💯🥰🙏🏻❤️❤️❤️
Please, please get legal advice.
This is beyond unacceptable 😢
I never usually comment on videos but I came across your wedding fayre tiktok 2 days ago and it had me in stitches. I've watched all of your TH-cam episodes whenever I had a minute to myself away from the kids 🙈. Absolutely awful how you've been treated so far, I'm glad that you can laugh about it and are able to share your stories with us nosey gits 😂. You've had me laughing so much the last couple of days. I'm looking forward to your future episodes. I have my fingers crossed that hopefully someone will help you get the answers that you need. Much love x
Thanks so much for the lovely comment and for putting your time into our content! We genuinely appreciate it so much 😌
Oh my god, my whole heart goes out to you both! Thank you for sharing your story, I love following your TikTok and the laughs, but this has surely hit home. My sister had cystic fibrosis from birth and passed away 7 years ago and I also have chronic illnesses myself, so I know how appalling some doctors/staff can treat patient’s. It boils my blood! I hope and pray that you find answers😔 If we can help please let us know, your followers truly have love for you and your family xx
Thank you for sharing your personal story with us. So sorry you were treated like that and you still don’t have the answers. Keep going Carrie, you’ll get answers eventually ❤
It’s our pleasure! ❤️
Found your amazing channel during my night duty. Im a nurse and i cant stop watching your videos and tiktoks. Ye are such an inspiration. Ye are both amazing and should be so proud of how far ye have come💛 to say the least im disgusted with what ye are going through, i know in my heart and soul you will find the answers and closure ye have been waiting for. Stay positive, don’t ever change. Sending lots of love from Ireland💛💛💛💛 p.s. energy healing like reki healing and nuch more is amazing and worth a shot if ye have any spare time😙😙😙
I am so sorry for what you are going through. As someone who is a frequent flyer in the hospital myself, I thought I had seen it all. My heart breaks for you, but I am so thankful the two of you have each other to lean on. You are so fortunate. I have had to fight all my battles alone. I broke my neck and back in 11 places and I don't know which is more overwhelming; the chronic debilitating pain or the nightmare of insurance, doctor's appointments and all of that nonsense. Best wishes for you both. Thanks for sharing your story.
Did gary have any genetic testing? I swear every doctor labels women who they don’t know what’s wrong with them with fnd breaks my heart keep ur head up x
You guys are both amazing, so brave and positive. Love your tik toks ❤
The way you’ve been treated was horrendous
I’ve been following you on Tik tok for ages and love you guys. I’ve been diagnosed with FND since Feb this year, and I for sure know that isn’t the right answer, it’s just the way of them delaying things. Thanks for sharing your story. Keep going guys ❤
what about a go fund me for private health care?
I agree with the nurse, as I’ve said in another comment - I pushed for testing and found I have a extremely rare genetic condition, now have the right doctors and they are always new treatments. I pray and hope you get to the bottom of this, I’m only 30 and I feel my life has then taken away. Would you benefit from an electric wheelchair? X
We will be getting an electric chair soon amongst other things to benefit Carries quality of life! Thank you for the love!
Wow. I honestly cannot believe how awful your journey has been 💔 My Husband went through a few years of being really messed around by the NHS but thankfully, after going privately, he found a brilliant consultant who saw him, ran tests, diagnosed him and had him on life long medication within a few weeks. He has a rare form of blood cancer, although not curable it can be managed well.
I would really advise trying to find another private liver specialist yourself - the right one will take you seriously and get you sorted. There will be one somewhere. It’s really hard having to constantly advocate for yourselves, it shouldn’t have to be like but sadly in many cases it is. Facebook forums have been a godsend for information for us. Sending you both so much love xx
So happy you found someone who managed to help you in some way and hope you’re doing well! We’ll keep pushing don’t you worry! Big hugs 🫂
@@redheadresidence Can I ask when did her symptoms begin?
I’m currently awaiting a referral to Sheffield too for dystonia specialist. I’ve been waiting a year now but from personal experience keep pushing and calling doesn’t matter if you feel like you’ve been an inconvenience you deserve treatment and answers ❤
The strength of you two is truly inspirational! It's appalling how you've been treated Carrie from some in the medical field. It's been good to hear, as I was wondered what had happened to you, but my god its a tear jerker listening too. I hope you get answers soon and keep fighting beautiful girl ❤❤❤❤
Aww this is heartbreaking 💔 I’m so sorry Carrie and Joel that you have been through this horrendous ordeal. I hope you get to the bottom of what’s going on with Carrie. Well Done for sharing your story as you will help loads of people that have or that are currently going through some thing similar xx
I’ve started watching you on insta, and always wondered what had happened to Carrie, and why she didn’t talk in your instas. I can’t believe what you’ve gone through, and still not have answers!!!
Just came across your channel yesteday and binged Carries story. I’m so appalled and how horribly she was treated. It always blows my mind how some country’s medical care is amazing and others is awful! But sending BIG LOVE all the way from a tiny town in Alabama, USA. You guys make me laugh so much! Congratulations on the wedding! You both looked amazing! Carrie you made the most beautiful bride!
The level of your frustration must be through the roof. Please consider the possibility of taking your search for answers outside the UK. Go online and research specialists in the USA and send out emails about your situation. You may find doctors interested in helping you. Just a thought.
As a nurse Im disgusted by the treatment you were given. Thank god for your family. You need to be your own advocate in situations like this. Healing blessings to you ❤
Sorry to ask this early on as I know there’s many more they are looking into malabsorption and some underlying liver and pancreatic issues with myself and I’ve been having seizures do you have a diagnosis yet ? Please 🙏🏻
Look up Medical burnout. The fight with the nhs for my diagnosis was worse than my disease. I’m so appalled by your experience.
It's so shit when they say that init. My question was how many bad days do you tollereate in a week before you consider it a poor quality of life then. Because if can make my self a cup of tea and get it to my chair of choice once in a week I am considering that a win. You guys are just so lovely.
Really hope you get some damn answers!! What a joke they’ve all been. I know a lot of nurses and hcas that I can not fault what so ever but those that “cared” for you should be ashamed, bet they wanted all the praise though for working through covid 🤦♀️ baffles me when people go into these types of professions but treat people like shit on their shoe. Good luck in finding answers, you guys have such a great attitude despite everything that has been thrown at you ❤
They do have a diagnosis. It’s Wilson’s Disease which is an inherited genetic disorder. Sounds like at this point, they are not getting proper medical care for it though, I haven’t watched the newer videos yet.
I don’t wanna bash the NHS because they can be incredible but my god this is unbelievably f*ed up and I’m so sorry you still are yet to get answers! My 2 year old daughter (at the time) similarly was palmed off for about 1 year with no answers and myself and her dad were just about ready to reek havoc on the hospital but chose patience one final time to humour their “one more doctor taking a look” when we were referred to a specialist in another town, they had no information sent to them prior but thankfully that same day she was diagnosed with JIA. We finally were able to have some answers and I’m so grateful and I pray you get that soon! You both are articulating yourselves so incredibly well and are such an easy watch, I feel like I could listen to you chat and laugh with you all day, it’s truly infectious! Anything wishing you all the good vibes, good days and love☺️
Wow😮 U guys have REALLY been though it! I really hope u can get answers finally! Luv u guys xxxx
I am so unbelievely sorry Carrie for your experience in the hospital. You deserved so much better treatment!
I am absolutely gobsmacked at the poor (understatement) experiences you had throughout your journey. It made me so so angry so i can only imagine how you both felt at the time. I hope you eventually put in a complaint, if you want, so that it doesnt happen to more people. Stay strong guys ❤
This is absolutely heart breaking to watch😢You’ve been through so much and no one seems to be taking you seriously and trying to help😡I understand putting in a complaint is the last thing your wanting to have to deal with but they absolutely need to be dealt with!xx
Carrie has the most beautiful smile 💕 her whole face lights up as she laughs, it's so lovely to see xxx
She’s beautiful right 🥰🥰🥰
Please don’t give up judging on how you’ve been treated the chances of something being missed are high ! Definitely make a complaint x
What is the plan after this, are you both going to do video's? You both are an inspiration to me and a lot of people out here and I'd personally would love to see more of your journey, you both have teach me a lot in the last few week's between your singing on tictok 😂 and the reality of life I really respect you both also have kept you all in my prayers 🙏🏻❤️ if I don't see more video's I wish you both the best in life and hope your wedding 💒 is the best day of your life apart from when your little girls were born. ❤️🙏🏻❤️❤️❤️💙🙏🏻🙏🏻
Sending you lots of love, we have lots more of our journey to chat about, then even after our journey has been covered we won’t be stopping our TH-cam journey! 🫶
I’m currently watching this unable to sleep, and wanted to leave a comment as I just think you are both such beautiful people. I’ve had my own battles with my health and I completely understand the constant up-hill battle to get people to just listen. Every new doctor you tell your story to is horrified and STILL lets you down. I’m so glad you can find humour in your journey as it really is the only thing to keep you sane. Sending so much love & strength and hoping you get some justice xx
Joel your amazing for the support you give Carrie and Carrie you are so strong and such an amazing person to have been dealing with all this and still let everyone see that beautiful smile.
I have tried to find an email address for you as wanted to get in touch about some of the symptoms as they are not to dissimilar from mine.
Hope your both well
Hope that u get some answers soon. I'm so sorry that you still haven't got any answers, especially after spending money going private.
Thank you Caz 🙏
@@redheadresidence np xxxx
I think you and Carrie are the strongest people keep in good spirits like you are every time I watch you both. Thank you for sharing your story with everyone and staying positive. Big respect to you both. Thank you so much x
That’s one thing we’re proud of, we always seem to come out the other side! Thanks for your lovely comment! X
I hope you put a huge complaint in 😡
Hello from TX! Please please reply to the question... At mark 28:45 Carrie says "you have to explain why it's not..." Could you please explain how Wilson's Disease was ruled out?! Sending much love and prayers to all! ❤❤❤❤
Oh my god! What hospital was this??? I’m from
America and this sounds a lot like
Some
Of the hospital I’ve been to. This is unfortunately the level of care we have to
Look to. Very sad
Im know doctor and it sounds like only the good Lord knows what is wrong with you. But I do know you guys were meant to be together honestly I've been married for 30 years and don't get me wrong he's the love of my life and I believe I'm the love of his life (after 30 years we are something put it that way 🤣) but you two can make me laugh when I've been sitting here wanting to cry like my nose starts burning from fighting back the tears then one of you will say something and your able to laugh at each other about and over anything then I'd be laughing with you guys. That's amazing. Me and hubby have been through things and now looking back on things over the years we laugh about some of it but a trial that you guys are going through I hope we could laugh about it but In my mind I'm picturing my hubby trying to pack me (I'm 5'11 he's 5'8) just picturing that makes me laugh now.
But we are in our 50s he's in his late 50s so yeah that would be some shit for funniest home videos or something. But you two look and act amazing together.
I wish I knew of a doctor that I could get to help you but never ever young lady give up hope.
I pray the Lord turns all your tears into blessings and heals your body and you live a very long and healthy life and play with you some grandbabies
Cant believe how you've been treated..you would think something like this is flagged up as priority to try and get Carrie some answers. Fair enough if the specialist cant give you answers but they should of referred you to sheffield or somewhere else urgently. Your resilience is amazing though and i have nothing but respect for how your dealing with it all. Hope you get your answers very soon! X
That’s very true, it’s pretty bizarre how it’s been handled. Almost as if it’s too complexed for anybody to be interested in looking into! We will hopefully get there in the end!
As a nurse, I’m disgusted that you’ve been treated this way. STILL no ANSWERS!! It’s neglect & negligence. Im so very sorry for you. Not knowing is the worst part. Your both incredible ❤
I also am a nurse. I am totally appalled that this happened to you. Just because you are young and don't look "sick" or "unwell", no one should ever judge what someone is going through on the inside. As an RN of 20 years in the U.S., it infuriates me the way patients are just brushed aside. Thank God you had each other both fighting and saying "no, we have done all this before, keep testing!" And no excuses for your ward nurses to act that way. Girl, just be glad that they didn't meet this nurse! They would not like my nurse side! You guys are just the sweetest. The love between you two just warms my heart ❤️ ❤❤❤!!
Have you ever tried CBD oil guys?? I’m so intrigued, you’re both so positive and i really do hope u get to the bottom of this. Also.. the way that hospital treated you😤and the audacity of that nurse who said that to you!! My blood was boiling! 😤 Sending u all the love guys ✨✨
This is awful how they are passing Carrie from pillar to post, not knowing what her condition is, so frustrating I can only imagine 😢 just a question did Carrie have the Covid vaccine just before she became seriously ill? I would put in a complaint for negligence. Carrie you are such an inspiration x
Take a train to London and wheel yourself into a major teaching hospital (A&E for something!). You'll have more chance of getting an answer there than in a provincial hospital. Good luck!!
I would've used the doctor's
I really hope your TH-cam and tik tok reaches the right people and some how a miracle happens and someone can help you all 🙌🏼 you two really need a break. I feel for you all I really do. Been through hard times medically wise with my mum and you always have to fight it’s so frustrating 💔 xx
Sending big strength your way too 🥰
I know neurologists do the reflex test to rule out neurological and nerve issues as I got really poorly at the start of covid lockdown and was fobbed off for 3 weeks and they thought I had a stroke because I was slowly becoming paralysed and the relfex test diagnosed me and I had GBS which was scary but I was fobbed off for weeks and was even told my a paramedic when an ambulance was called that it’s all in my head, until a week later I couldn’t walk, swallow or close my eyes and even lost control of my bowels. The reflux test saved my life xx
Thank you for sharing your story however I am so horrible disgusted with the nurses, doctors and everyone else involved in your situation. It is absolutely unacceptable the way you have been treated and the way they have disregarded your life! And the fact it’s 2 years later and you still have 0 answers and no help is appalling. From the bottom of my I heart I hope and pray that you get the bottom of it and that you as a family get answers. ❤
You two are amazing! When or if u r ready to complain officially u really need to this is disgusting how they have treated u down to basic care. I love watching your channels xx
I am a nurse too with a chronic inflammatory disease. I feel terrible that you had to be treated like this. Although I have experienced the same. Health care is nothing like it use to be.
I’ve watched all three videos, and I cannot believe how you have been treated. Good on you for standing your ground. Some of this is giving me anger issues 😂😂😂😂
How the pair of you can still laugh after everything you both have gone through shows what an exceptional couple you both are
Sheffield hospital r amazing they been working with my son for years now with his condition no we’re else culd diagnosis hun but we went to Sheffield and after having all tests done to be diagnosed for what he as they diagnosed him within 2hours of me leaving hospital.
I am so sorry you both had such a horrendous experience ❤
I cannot believe how badly the system has failed you and I am so sorry for the trauma you have gone though. These episodes were absolutely fascinating to listen to as a resident nosey git 🤣 I am rooting for you and please keep going to find answers because your story could help someone who is potentially going through the same thing and could help make this easier for someone in the future. You’re both so strong 🌈x
Thanks for the support ☀️
I can’t even say I’m surprised by any of your experiences. I e had exactly the same 😭🧡🧡🧡
I have had similar stories from hospital stays. It's not right at all and you shouldn't be scared to have treatment.
I really hope that you’ve taken this further. The treatment you’ve received is appalling.
Somebody needs to help you guys ❤ im so sorry the healthcare has and continues to fail you guys 😢
Oh my word Joel and Carrie. What an absolutely fabulous series you have shared with us!!!. Your journey has been worse than a series of "Holidays from Hell" - more like "Hospitals from Hell". Has the Walton Centre at Liverpool been mentioned to you? They are a specialised centre. I'm really sorry to hear that you were both treated so badly by staff - lets hope they see this hey!!! You have got to be the most two patient people I have ever come across. I love watching your stories and am an avid follower on Tik Tok. Sending lots of love to you and your beautiful girls xxx ♥♥♥
Hello Angela, thanks for watching so far! Still many more episodes to follow! This centre has been mentioned however it looks like Carrie will be heading to London if Sheffield doesn’t work out! Thanks for the love and we hope you’re well!
@@redheadresidence ♥♥♥
I cannot believe what you have been through and you still don’t have the answers you deserve! Fingers crossed you hear something soon!! Love how you both deal with it x
Tell me about it, must be so many others going through similar things too! It’s deep but I really feel for the many people who will pass away during the time they’re been failed! 😢
I have watched you for a while on TikTok and always wondered what’s happened to Carrie but didn’t want to seem like a busy body. I’m so sorry that u have had to go through all this and still no more answers.. I pray you start to get the much needed right answers you both need. You both are an inspiration and I think I speak on behalf of everyone who follows you when I mean this from the bottom of my heart WE THANK YOU FOR SHARING YOUR INSPIRING STORY.. amazing couple xx
I can’t even begin to imagine what you have and are going through and really hope you get some answers asap. Such a beautiful family. Keep strong xx
This is shocking. My experience is the squeakiest wheel gets the oil first, you need to be constantly following up and chasing them if you have any hope of getting anywhere. It’s not how things should be but a sad reflection of where our health service is at. I really hope you get an answer soon X
Absolutely shocked and appalled by how you’ve been treated. I hope you get your answers soon. You are both amazing people ♥️
Fingers crossed Claire but as you can imagine we don’t hold much hope these days 😵💫
My heart goes out to you after everything you have been though your still laughing I feel for you big time ❤
I hope you sue all the people that have failed you its disgusting. Im sorry you have been treated so badly hopefully your story will help others too 💓 you are so brave and strong x
Love watching your videos both on TikTok and here! The relationship you both have with each other is something to admire🧡
Appreciate the support!! X
And was this all done when you were private 😮
Your both amazing and to think what uve both been through and your both still going strong what a lovely little family you all are 🥰
It’s been a hard journey and I’m sure they’ll be more to come but we got this!!
@Redhead Residence keep strong 💪 your all amazing and love all your videos and tiktok videos (:
I absolutely love you 2 and I hope you all get answers very soon. Looking forward to the next podcast!
I hope so too! It means a lot that you put your time into watching us!
@@redheadresidence I’m obsessed, love your tt lives too 🥰
This is so awful. As a nurse myself I’m horrified at your treatment. You need genetic testing surely
Ohhhhh Carrie i feel for you sweetheart, it sounds very much like my experience last year in hospital when I had stoma surgery.....I signed myself out on day 4 and looked after myself better at home! Absolutely disgusting how you were treated, I cried through this whole episode 😭
We feel your pain! Hope you’re ok lovely ☺️
You’re both inspiring. Sending love and light 🤍
So amazing 😍
🥰🥰🥰🥰🥰
🥺🥺
Just sat down ready to watch 🥰 hope you all had a lovely Sunday 🥰
Hope your weekend was amazing!!!
Oh I am absolutely gobsmacked on the way you and your family have been treated😢 absolutely appalling! I’m from sheffield I really hope you all get some answers from our hospital and get treated way better than you have done! You are so strong Carrie! Sending love to you all from sheffield! X
I can’t beleive how shit the care you had was the nhs really needs to go now , wow I wouldn’t mind paying something monthly for private care if I knew the care was going to be of a high standard. Sorry you guys have experienced this level of negligence. Love you both great couple ❤
Please come to London you will honestly get answers brave woman❤
I had an 'episode' when I was 30 weeks pregnant which left me without speech for weeks. Saw 3 neurologists One said TIA, one said migraine, one said Asphasia ? Cause and on my clinic letter it said review in clinic when baby was born. I had speech therapy but testing was limited until baby arrived.. baby arrived and I received a letter saying that I had been placed on a patient initiated follow up pathway and because I hadn't been in touch they had discharged me 🤣 there was a lot more in between but I won't bore you with that but it was a really awful time for me and I have never got answers! (My mum also had it when she was pregnant with my little sister 24 years ago and has gone on to have 3 more!!!). It makes me so sad that you are having to go through all of this. Since it happened to me I am hearing it so often and nothing is ever done about it! I have everything crossed that you get the answers you deserve 🤍 xxx
It’s pretty concerning how many cases you hear that are so similar, this many people shouldn’t be getting brushed aside just because the cases are complexed but that’s what we’re dealing with eh! Hope you’re doing well ❤️