Afib treatment using Tikosyn (Dofetilide) medication
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- เผยแพร่เมื่อ 15 ต.ค. 2021
- There are many treatments available for atrial fibrillation, but none that I found to last a lifetime. I could've tried Afib surgery, but chose the medicine route on the advice of my electrocardiologist after Cardioversion procedure failed to sustain a sinus heart rhythm. If you are looking for afib treatment or considering Tikosyn (Dofetilide is generic), this video will give you a perspective from another fellow patient.
One important reason for the 3-night/4-day loading schedule is such that had I not converted by 2nd night, I would have gone through a cardioversion procedure to put me back into sinus rhythm with Tikosyn attempting to maintain that conversion.
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Thank you for the information. I start my loading procedure in the morning. Very nervous, but optimistic and leaving everything in God’s hands! ❤
I was leery of Tikosyn and refused it for months. Finally, I was in the hospital for a throat infection, and the EP doctors convinced me to take it, since I was in the hospital anyway. The next morning, anxious (they try not to show it) doctors awakened me and said that the med was not right for me, and there was a dangerous delay of signals between chambers of my heart.
I was in the hospital for 3 more days getting a magnesium drip. I survived the Tikosyn and an overdose of magnesium.
I should have followed my instincts!
It is good that it worked for you, though.
Excellent information...thank you. I currently have Afib and my cardiologist is putting me on Tikosyn. My heartbeat is slow, about 50-55 beats a minute so I hope this works. Thank you again for this video and hope that you are doing well.
Great Video! I will be going into the hospital next month for the Tikosyn Loading for 3 days. I did a similar Sotalol Loading a few years ago. Thanks for the video!
Thank you, speaking to my doctor this afternoon to schedule my loading procedure. Appreciate hearing about your progress and the process.
Hope the drug works out for you!
Good luck!!! Thank you for the info!
Mom is currently going through this. Thanks for sharing your story
Been there, done that…. 48 yrs old, replaced mitral valve after being seen for a-fib. Over the years been cardioverted over 9 times. 2019 replaced tissue valve (bovine) with a mechanical valve. Went on TYCOSYN to control a-fib, after being on that for a short while, changed to FLECANIDE. 2020, got a pace maker, 3 months later got another cardiovert. I am now 67 yrs old and seem to be doing ok, just feel run down on some days. The pace maker keeps a history of heart activity. My last check up on the pacemaker showed occasional a-fib, but corrected itself on short order, no long term periods of time.
Path leading up to this in a nutshell: Wisdom teeth removal. Bacterial infection (unknown to me) traveled an settled in the heart, ate the mitral valve, 1 leaflet floating in the chamber, valve not working properly, doc said I should have been dead. Replaced the valve with a tissue valve, no blood thinners required so I could return to work in machine shop. Later (14 yrs) replaced with mechanical valve, blood thinners required for life, retired from machine shop.
Some things in life are out of your control. Please check with your cardiologist to see if A-Fib ablation is an option for you. Wish you the best.
@@udtrader I have had the “MAZE PROCEDURE” done during my first valve surgery, second ablation after one of my cardioversions, again been there done that. Started when I was 48, am now 67, learned a whole lot in the last 19 years, good friends with the staff at the cardiologist office as well as the hospital, not a good group to be on a first name basis with, LOL, But on the other hand a good group to have as a friends on a first name basis, you have to be there to know what I mean!LOL.
Great Video! You and I love our biking. I'm more of a road guy tho. I will be going into the hospital this Sunday for my Tikosyn -3 day stay. Hope I go back into NSR after the first pill too. Thanks for sharing your story.
First off, I hope everyone here is doing well. Please check with your physician and look at the Pfizer technical documents and studies for information. There is no "Loading" of dofetilde (Tikosyn), like there would be with Warfarin or Amiodarone. Tikosyn has a 10 hour half life. Your cardiac team will titrate your dosage after reviewing EKG's from 2-3 hours after dosing. If you look at the technical data on Pfizers site (not the consumer portion, but the health professional side), you can view appropriate information. Mostly trust your health care provider with the information they have given you. If you don't trust them then you should find someone else. Hoping a Normal Sinus Rhythm for all.
Thank you for posting this! I am a new nurse working on a cardiac floor and I'm trying to learn more about this medication since we do loading doses on our floor!
Thanks for the video. I also was put on Tikoyn 5 weeks ago, 1st 500mg then 250mg and then left the hospital on 125mg. I'm 68, had a new On-X mitral valve put in 6 months ago, the bovine mitral valve only lasted 4 years & then got calcified. I'm awaiting scheduling for an ablation next month. I've got to get this done before I have another stent in my left Circ. All 4 of my venous bypasses occluded after 3 years. Good luck - keep on biking.
Had I not been introduced to Tikosyn, I too might have gone through multiple ablations and complications. It's been a few weeks and Tikosyn kept me in Sinus rhythm without any side effects. Good life = time + money + health. Wish you the best outcome with ablation.
@@udtrader Thanks for taking the time to make this video. I've only just recently learned that I'm eligible for Tikosyn rather than ablation, and have had a hard time finding someone who has already begun the Tikosyn regime. I'm a healthy 67 year old man with no other complications than the reality of being 67 -- I don't run as fast, or swim as far, or lift as much, but I still do all three. Y0ur experiences in the hospital and your explanation of what. happened in your hospital stay are very helpful. Thanks a million.
@@rcirwin4587 I couldn't ride my mountain bike for more than 10 minutes when I first started. In 6 months, I am able to ride the same trail 30 minutes straight and average 2 hours per session. Don't let Afib beat you. Keep on exercising for the better.
@@udtrader Thanks for the reply. Sounds like you are continuing to thrive on this. Very encouraging. I'm slated to initiate Tikosyn later this week. Bob
@@rcirwin4587 I have a doctor's visit on Monday, so I'll make a follow up video afterwards.
Great video. I hope you are doing well. I suffer from atrial flutter and severe palpitations with atrial tachycardia. I Don't have Afib or any underlying heart condition. My pulse rate averages at 62 and blood pressure is on the lower side. I'm 53 and in good health, but these horrible palpitations are destroying my life. I started getting them at 34 from time to time, but now they are constant throughout the day. My doctor recommended Tikosyn. I have an appointment next month, but after reading the potential side affects it kind of scares me. I could try a beta blocker first. Your video help. Thank you for the insight.
Thx I am getting ready to start on tikosyn cause I have AFIB
Thanks for your story. I appreciate it and your positive outcome.
I started the Tikosyn (500 Mcg) loading in the hospital almost 4 years ago. It never converted my heart from a-fib to NSR. After the 3rd day my heart remained in a-fib and at that time my EP did a catheter ablation. The catheter ablation converted my heart into NSR.
I was told to continue taking Tikosyn 500 Mcg per day as it “would keep my heart in NSR”.
3 1/2 years of taking Tikosyn (I take no other medications and have no other health issues and am very active physically), my heart went back into a-fb (no apparent reason). My EP scheduled another catheter ablation and told me to continue taking Tikosyn 500 Mcg per day.
I think that I’m getting no benefit from Tikosyn and still have to deal with significant side effects (migraine headaches and vision disturbances).
Good luck and good health to you.
Good to hear your treatment went well...I am scheduled for this and am uneasy about it. I have had afib many years, but it is now getting acute so I have to do something about it. I am in the DC area and have had a very hard time getting adequate care for this. Also a pro trader for some decades. I don't know if DM's are possible on this platform, but I would be interested on your experience w/ your healthcare provider if you care to share.
How are you doing now? Any side effects?
How are you on it now?
If your GFR is in the 20-
Thank You for the video! My Dr. wants to put me in Rythemol, not sure if I'm spelling that right, but I'm investigating whether I should be put on Rythemol or tykeson Good luck!
I would ask your doctor if Tikyson might be a good fit. If you don't get a straight answer, I would get a second opinion from another cardiac electrophysiologist.
Thank you for making this video. I'm about to ger admitted in four days. Do you also take a blood thinner or since you're in sinus that's no longer needed? I take Xarelto and it's pretty expensive after co-pay.
Blood thinner is for a month before and after starting on Tikosyn. I don't take blood thinner or aspirin.
Talk to your doctor to see if they will prescribe Eliquis instead. Your insurance may no longer cover Eliquis, but you can get the Eliquis co-pay card for $10 fill, which is much cheaper than Xarelto even with insurance. www.eliquis.bmscustomerconnect.com/
I’m out of afib! I never had any visible symptoms except for lightheadedness once in a while but it feels great to have a normal heartbeat. Thanks for the tip on Eliquis. Always love to save money!
I’m out of afib! I never had any visible symptoms except for lightheadedness once in a while but it feels great to have a normal heartbeat. Thanks for the tip on Eliquis. Always love to save money!
I’m out of afib! I never had any visible symptoms except for lightheadedness once in a while but it feels great to have a normal heartbeat. Thanks for the tip on Eliquis. Always love to save money!
Thank you for this video. I hope this finds you continuing to do well on this drug. I, sadly, am not healthy. I am overweight and have other issues. I was converted in 2020 and put on cardizem, it didn't hold so I was put in the hospital and converted again and put on sotalol. I felt terrible on that drug, just terrible. so I went back on cardizem it is controlling my heart rate but not the rhythm.my doctor wants me to go on tikosyn. I am terrified. wondering if there are any side effects other than just having to be careful about the time span you take the drug. the rythmeol was mentioned but my doctor wasn't overly crazy about trying it. wonder what would be the benefit of tikosyn v. sotalol. I am scared. I am 56 and my father died young from heart issues and all of his sisters had a fib. now here go I. I just don't know what to do.......so scared
I'm still taking Tikosyn with 100% satisfaction and no side effects yet. For weight control, I walk a minimum 10k steps daily (walk to grocery) and stick to 16/8 diet schedule where I eat 8 hour window and DON'T eat for 16 hours. Easy to do - stop eating after 7PM and start eating after 11AM. Your body starts burning stored fat after 12 hours so 16 hours provide 4 hours of fat burning. Watch these two videos. Don't let fear consume you. Take control and start living. Only you can take action. Nobody else.
Daily 4 minute morning exercise (Korean National Exercise): th-cam.com/video/a72NCO0OFXA/w-d-xo.html&ab_channel=%ED%97%AC%EC%8A%A4%EC%A1%B0%EC%84%A0HealthChosun
16/8 Diet: th-cam.com/video/T-un0vS5e8w/w-d-xo.html&ab_channel=HealthInsider
@@udtrader never got notified of your answer. just now finding it after coming back to watch your video again. Went on tikoysn on Sept 29. Thank you for your reply. I am doing very well on Tikosyn and am loosing weight. Wishing you all good things in life. I deeply appreciate your meaningful reply.
Thank you. what watch or app are you using to check your heart? I have a galaxy watch 4 classic. But I'm looking for something to watch my heart.
I use Samsung Health. Make sure to set watch to monitor heartbeat continuously. Default setting is every 10 minutes.
@@udtrader thank you so much
@@udtrader thank you so very much
Good RX can reduce the cost of this drug also.
Thanks for making this video and sharing to our patients. This is what I do at least one of my patients in my everyday work and taking thus meds we watch QTc. intervals. we don’t want that long. If that’s too long, it’s gonna lead to flat line EKG.?so that is the reason if you double dose. it’s gonna prolong the QTc interval, and potential threat to life skipping is better than doubling if happen.