@@stott32 My wife recently got diagnosed with PH and was looking for some light of inspiration. Were so glad that your still doing well and God Bless You!
I was diagnosed at age 11. I’m 52 now and my heart has normal function. I’m on Veletri and tracleer. Sotatercept was released in March in USA. The first drug that treats the disease and not just symptoms. I hope to start it this year. The side affects of my current meds are dibilatating. My life expectancy was age 18.
I hope you are still ok Scott. I really do. I have pulmonary hypertension and finding out can be a shock. The first time I found out I was worried about not being around to see my kids grow up. I hope you are still going strong.
@@woofdoogy no I don’t but I have systemic lupus and Sjogren’s syndrome and I’ve had that for 21 years and just recently I got diagnosed with a pulmonary hypertension so I’ve been a little depressed over it I am retaining a lot of water very tired all the time your feedback would be Amazing
@@dianerojas6679 I just noticed this TH-cam video and I saw what you said Diane. My wife has been going through pulmonary hypertension for the last probably 10 years and she could really use someone to talk to. 🙂
Got pulmonary fibrosis and pulmonary hypertension had the ph for 8 years plenty of ups and downs but take it from me keep exercising I'm strong as a ox and I'll never take my foot off the gas exercise is the best medicine keep on punching guys
Diagnosed last year but I felt the symptoms about 10 years ago, I also have ASD. Just accept it. I feel more ease now. Life still go on, but now I just take it slow every single step. One I feel rush, then it getting worse
I been out of breath for the last 5 months my belly is swollen like if I’m 7 months pregnant 😞my legs my face are also retaining lots of fluid my husband took me to the emergency room on august of this year and that day I was diagnosed with tachycardia right enlargement of the heart chronic pulmonary artery hypertension and on October I was also diagnosed with Non alcoholic fatty liver disease I’m so scared 😟
8 years on, I’m still alive, fitter than I have been for a while and having the time of my life.
that is so good to hear!
@@jamesxiong6288 make that 9 years now ha ha
@@stott32 My wife recently got diagnosed with PH and was looking for some light of inspiration. Were so glad that your still doing well and God Bless You!
God bless, can you still have a pint of Guinness from time to time?
How are you now?
David, are you still going strong? I hope so. God bless you and yours.
I was diagnosed at age 11. I’m 52 now and my heart has normal function. I’m on Veletri and tracleer. Sotatercept was released in March in USA. The first drug that treats the disease and not just symptoms. I hope to start it this year. The side affects of my current meds are dibilatating. My life expectancy was age 18.
I hope you are still ok Scott. I really do. I have pulmonary hypertension and finding out can be a shock. The first time I found out I was worried about not being around to see my kids grow up. I hope you are still going strong.
I’m going threw the same thing right now and I’m really scared 🥲 crying a lot
Do you have spots on your face?
@@woofdoogy no I don’t but I have systemic lupus and Sjogren’s syndrome and I’ve had that for 21 years and just recently I got diagnosed with a pulmonary hypertension so I’ve been a little depressed over it I am retaining a lot of water very tired all the time your feedback would be Amazing
@@dianerojas6679 I just noticed this TH-cam video and I saw what you said Diane. My wife has been going through pulmonary hypertension for the last probably 10 years and she could really use someone to talk to. 🙂
@@robdoran4766 Sure no problem she can always get a hold of me
@@robdoran4766 I am really doing so much better my breathing has improved I’ve gone back to the gym
Got pulmonary fibrosis and pulmonary hypertension had the ph for 8 years plenty of ups and downs but take it from me keep exercising I'm strong as a ox and I'll never take my foot off the gas exercise is the best medicine keep on punching guys
Agree
I do 60 mins of cardio 4 times a week, full time job, band and family. Positive mindset is also very important!! Glad you’re doing well too
How you managing it? Doesnt it make you feel tired?
@@stott32 you are pulmonary htn patient too?
@@NitrogenOxygen-ey7wk yes I was diagnosed with with idiopathic pulmonary hypertension in 2013
@@stott32 how are you now?
Diagnosed last year but I felt the symptoms about 10 years ago, I also have ASD. Just accept it. I feel more ease now. Life still go on, but now I just take it slow every single step. One I feel rush, then it getting worse
Thanks for the video David. We were wondering how you are doing? My wife has pulmonary hypertension.
I’m really well. I do 60 mins of cardio about 4 times a week and live a totally normal life.
@@stott32 That's good news. 👍🏻 Thanks
@@stott32 this is quiet impossible
I need help tell me more about your condition
Hey
I been out of breath for the last 5 months my belly is swollen like if I’m 7 months pregnant 😞my legs my face are also retaining lots of fluid my husband took me to the emergency room on august of this year and that day I was diagnosed with tachycardia right enlargement of the heart chronic pulmonary artery hypertension and on October I was also diagnosed with Non alcoholic fatty liver disease I’m so scared 😟
Same here and I'm so worried 😢 just know you're not alone G-d is good
@@stargoldman i hope the best for you 🙏