It's nice of you to share your story, it gives us fellow sufferers inspiration and hope. I just found out a few months ago that I have PE and that it may be the cause of my 6 year struggle with health issues (tachycardia, shortness of breath and fatigue), so now I'm trying to get in contact with a good PE surgeon. I also have POTS (goes from 60 lying down to 130 standing) and I have to admit it makes me a little bit nervous that you still have it after your surgery, as I thought this was something that most likely is caused by PE. Maybe it will get better once the bar is removed? Keep strong, I wish the best for your recovery!
Danielle I also suffer from Rhabdomyolysis I have some very bad reactions to bea blockers muscle relaxers synthetic thyroid among others even an antibiotic or 2 in past. I'm curious of additional information. I also suffer from 2 other problems that most likely 1 is coming from the spine the other prior surgery. I was curious to hear additional information from your POTS
Do have EDS connective tissue disorder? My daughter has Pectus E as well and I’ve been researching that it might be related to EDS
It's nice of you to share your story, it gives us fellow sufferers inspiration and hope.
I just found out a few months ago that I have PE and that it may be the cause of my 6 year struggle with health issues (tachycardia, shortness of breath and fatigue), so now I'm trying to get in contact with a good PE surgeon.
I also have POTS (goes from 60 lying down to 130 standing) and I have to admit it makes me a little bit nervous that you still have it after your surgery, as I thought this was something that most likely is caused by PE. Maybe it will get better once the bar is removed?
Keep strong, I wish the best for your recovery!
Dr. J can do it all. Had my bars installed 1 yr ago. Have been living with POTS for 2 yrs.
What’s pots?
Danielle I also suffer from Rhabdomyolysis I have some very bad reactions to bea blockers muscle relaxers synthetic thyroid among others even an antibiotic or 2 in past. I'm curious of additional information. I also suffer from 2 other problems that most likely 1 is coming from the spine the other prior surgery. I was curious to hear additional information from your POTS
How has your POTS been since getting the Nuss bars removed?
May I please ask, how old were you when you got this surgery?
Hola