I was diagnosed when I was 18 and this video explains the entire disease and my symptoms. Thank you so much for the video it helps a young man stay strong.
There's an eBook called Bits and pieces you might've missed about Primary sclerosing cholangitis, by J King, it does a lot of light, talks about the psychological element of it, of flaring it, of the cause, not the one coming from the disease putting us down. The idea is it can be tackled. I'm sharing with as many I can.
I’m 22 I was recently diagnosed and these videos are just making me sob uncontrollably. I hope there is a cure or treatment soon. Please donate to this cause if you are able
Hy..I'm from Pakistan,few months back one of my nephew got this disease and appeared all the symptoms like dark yellow eyes , itchy skin with blood resins. Swear weakness. Unfortunately no relief found with alopathic medicines used more than a month.then some one told us about Hakeem ,herbal medicine.luckily after using herbal medicines he got back his health and his reports of LFT and others are normal.
Call Dr. Davies in Sacramento CA. She has my 7 year old daughter under control and blood numbers back to normal within 30 days with Vancomycin & Probiotics. She is now 10 years old and blood test every 4 months shows numbers still normal!
Autoimmune is Autoimmune .It depends on what it’s attacking is what they call it whether it’s called ,MS,Lupus,PSC,PBC,etc etc.Turn the autoimmune off ,you get rid of the autoimmune.Find you a doctor that is also a functional doctor to help with this.Don’t let the doctors western doctors tell you it’s no cure.
There's an eBook called Bits and pieces you might've missed about Primary sclerosing cholangitis, by J King, it does a lot of light, talks about the psychological element of it, of flaring it, of the cause, not the one coming from the disease putting us down. The idea is it can be tackled.
There is a new drug in development by LisCure called LB-P8. LB-P8 is a live biotherapeutic product, a microbiome-oriented new drug in study. Because the liver is so close to the gut, they believe that a possible treatment for PSC could be presenting microbiome to the gut. It just passed Phase I Safety trials and now is in Phase 2 trials using patients from Europe and America. The first half of the results from Phase 2 trials will be released in early 2025. If the results are favorable (God willing!), we might have our first ever FDA approved drug for PSC On the market. God willing! Fingers crossed! 🙏 HAVE HOPE! I believe we are getting closer and closer to finding an effective treatment for PSC, but it will take time and advocacy to make PSC a more well-known disease so more eyeballs/effort and money is put into finding an effective treatment or cure. We have to keep moving forward and live our lives no matter of our diagnoses. As much of a burden that this disease is on all of us, we must live our lives and rejoice in the memories we make with our family, friends, partners, and pets. God bless all of us! 🙏 HERE IS THE LINK TO THE STUDY: www.prnewswire.com/news-releases/liscure-biosciences-receives-us-fda-fast-track-designation-for-lb-p8-for-the-treatment-of-primary-sclerosing-cholangitis-psc-302102626.html
I wouldn't say i'm terrified mate, it just seems like an easy thing to cure, how hard is it to take a pill that makes more bile? but yeah just live life man, go have fun and make good choices, that's what i'll be doin ;P
It's not bile that's the issue. The disease affects the epithelial cells at the bile ducts which bring bile from the liver to the small intestine. It's a plumbing issue that can't really be fixed by pills. Sometimes they can stent the duct to keep it open but the definitive treatment is a liver transplant.
That's very depressive. How is that a help? There's an eBook called Bits and pieces you might've missed about Primary sclerosing cholangitis, by J King, it does a lot of light, talks about the psychological element of it, of flaring it, of the cause, not the one coming from the disease putting us down. The idea is it can be tackled.
I have severe Crohn'sand PSC. I try to stay away from lightning. My luck isn't very good either. You got struck early. Bless your heart. Hope God helps you through your trials. HE didn't cause this or let this happen. It's just life. Sometimes it stinks.
@@Unknown-zk7wj Same here, feel like i should be able to do something , I have no energy on top of my severe crohns, I know im not weak, but you cant just grab crohns by the throat and punch it sadly.
Limit your lectins and inflammatory foods in your diet. Avoid alcohol, too. Lectins are associated with worsening immune response in Crohns and Celiacs.
My heart goes out to you, Fred. I hope you or further generations can be cured of this disease.
I was diagnosed when I was 18 and this video explains the entire disease and my symptoms. Thank you so much for the video it helps a young man stay strong.
How r u now.
There's an eBook called Bits and pieces you might've missed about Primary sclerosing cholangitis, by J King, it does a lot of light, talks about the psychological element of it, of flaring it, of the cause, not the one coming from the disease putting us down. The idea is it can be tackled. I'm sharing with as many I can.
@@pacipano5014 I bought it now, it's pure scam. Shame on you!
@@jaysess3806 What do you mean a pure scam?
@@jaysess3806 What the book scamed you of? And why shame on me? It did helped me, especially the mental work. Don't you find yourself at all in it?
I’m 22 I was recently diagnosed and these videos are just making me sob uncontrollably. I hope there is a cure or treatment soon. Please donate to this cause if you are able
Hy..I'm from Pakistan,few months back one of my nephew got this disease and appeared all the symptoms like dark yellow eyes , itchy skin with blood resins. Swear weakness. Unfortunately no relief found with alopathic medicines used more than a month.then some one told us about Hakeem ,herbal medicine.luckily after using herbal medicines he got back his health and his reports of LFT and others are normal.
May Allah grant u good health and get red of this disease.
Saqib bhai hakeem ne kounsi dawaii de
@@aasss4942 what kind of herbal supplements is he taking? Stuff like milk thistle??
@@aasss4942 please share the herbal sir, you may safe life
My daughter (7 years old) was diagnosed with PSC and UC just 2 weeks ago. Came out of the blue.
Call Dr. Davies in Sacramento CA. She has my 7 year old daughter under control and blood numbers back to normal within 30 days with Vancomycin & Probiotics. She is now 10 years old and blood test every 4 months shows numbers still normal!
Autoimmune is Autoimmune .It depends on what it’s attacking is what they call it whether it’s called ,MS,Lupus,PSC,PBC,etc etc.Turn the autoimmune off ,you get rid of the autoimmune.Find you a doctor that is also a functional doctor to help with this.Don’t let the doctors western doctors tell you it’s no cure.
May I know If how much severe pain in the abdomen?
Is he alive? What happened to him ?
I hope you're well now thanks for sharing 🤍
There's an eBook called Bits and pieces you might've missed about Primary sclerosing cholangitis, by J King, it does a lot of light, talks about the psychological element of it, of flaring it, of the cause, not the one coming from the disease putting us down. The idea is it can be tackled.
how to get diagnosed with that?? I had those purytis and jaundice symptom
PSC blood test and those symptoms.
I’m 21 with psc. Does anyone else have arthritis symptoms? Dealing with that right now most likely from psc, I think 🤔
Perla Martinez font reproduce
What symptoms do you have?
I am 22 years old and was just diagnosed last week. I have been experiencing terrible joint pain for longer than that though.
Yes I have arthritis myself only mild in toes
Some with PSC have IBD. eg UC
God bless
Isn't Ursodiol a good treatment?
I'm scared
There is a new drug in development by LisCure called LB-P8. LB-P8 is a live biotherapeutic product, a microbiome-oriented new drug in study. Because the liver is so close to the gut, they believe that a possible treatment for PSC could be presenting microbiome to the gut. It just passed Phase I Safety trials and now is in Phase 2 trials using patients from Europe and America. The first half of the results from Phase 2 trials will be released in early 2025. If the results are favorable (God willing!), we might have our first ever FDA approved drug for PSC On the market. God willing! Fingers crossed! 🙏
HAVE HOPE! I believe we are getting closer and closer to finding an effective treatment for PSC, but it will take time and advocacy to make PSC a more well-known disease so more eyeballs/effort and money is put into finding an effective treatment or cure. We have to keep moving forward and live our lives no matter of our diagnoses. As much of a burden that this disease is on all of us, we must live our lives and rejoice in the memories we make with our family, friends, partners, and pets. God bless all of us! 🙏
HERE IS THE LINK TO THE STUDY:
www.prnewswire.com/news-releases/liscure-biosciences-receives-us-fda-fast-track-designation-for-lb-p8-for-the-treatment-of-primary-sclerosing-cholangitis-psc-302102626.html
Is there a cure yet or what?
its gg Dude I'm terrified about this but I don't think there's a cure for this.
I wouldn't say i'm terrified mate, it just seems like an easy thing to cure, how hard is it to take a pill that makes more bile? but yeah just live life man, go have fun and make good choices, that's what i'll be doin ;P
It's not bile that's the issue. The disease affects the epithelial cells at the bile ducts which bring bile from the liver to the small intestine. It's a plumbing issue that can't really be fixed by pills. Sometimes they can stent the duct to keep it open but the definitive treatment is a liver transplant.
yeah but even this guy just got the disease again, problems in life aren't to just give up and replace, it's to buckle down and cure.
Cyrus A. Also you don’t sound very positive mate, why you gotta be so negative?
Better never to have been. David benatar
Life is progressive. We all decline
That's very depressive. How is that a help? There's an eBook called Bits and pieces you might've missed about Primary sclerosing cholangitis, by J King, it does a lot of light, talks about the psychological element of it, of flaring it, of the cause, not the one coming from the disease putting us down. The idea is it can be tackled.
This is horrific. I hope you are biologically childfree? Life is so bad
What a horrible thing to say to someone you worthless barren cat lady…
I am 19
And today I was diagnosed with PSC
I can’t do anything
I have severe Crohn'sand PSC. I try to stay away from lightning. My luck isn't very good either. You got struck early. Bless your heart. Hope God helps you through your trials. HE didn't cause this or let this happen. It's just life. Sometimes it stinks.
Same... I’m 18 years old. I just got diagnosed with psc and I also have Crohn’s disease.
@@Unknown-zk7wj Same here, feel like i should be able to do something , I have no energy on top of my severe crohns, I know im not weak, but you cant just grab crohns by the throat and punch it sadly.
Limit your lectins and inflammatory foods in your diet. Avoid alcohol, too. Lectins are associated with worsening immune response in Crohns and Celiacs.
How r u now