Andrea, thank you so much for this video! Nearly every thing you said was a light bulb moment. All I can really say is that you nailed it. My number one fault is pushing and pushing when my body is screaming to just simply be still. And sometimes I think that it's my mind's way of denying that I truly have this thing called Fibro. But my body knows differently and it's time for me to stop fighting myself and instead work with myself. Again, thank you so much.
Hi Crystal! I'm glad you enjoyed the video, I hope it helped. Thank you for the suggestion, it was helpful for me to think about this subject. I'm also guilty of pushing and pushing despite my body's signs to just relax. I've tried to get better about that. I think my most recent flare was because I didn't listen. I got cocky that I've been doing a bit better since I was first diagnosed so I kept pushing myself that weekend. Ugh, it was miserable lol! Live and learn. I think what you said about stop fighting yourself and instead work with yourself is sooooooo important. I need to put that on a sticky note and put it on my bathroom mirror or something lol. Our bodies know what they're capable of and when we're pushing too much, learning to listen to them is the hard part. Thank you for watching and for the idea to do this video. If you have any other topics you'd like me to address in a future fibro chat let me know. :) xx
It's a tough subject to talk about but we need more awareness for this condition. I hate that so many of us suffer in silence because we fear people won't understand or take it seriously. Big hug. :)
Love these videos where you share about this. It's so relatable. I get the same base of head-top of hips pain and that's the big red flag that it's coming and it just intensifies throughout. I try to keep a log like you mentioned. A big thing I've had to learn to do is to say no and it's honestly made a world of difference. So often I was just piling way too much on and pushing myself to do it when my body was screaming at me not to. Great video 💜
Yeah, I'm used to located/isolated pain in my back, but when my whole upper body locks up I know I'm in trouble. I'm going to try to keep a log now as well, since I'm not vlogging all the time, just to keep track of the pain. My bullet journal can tell me what I've been doing in the previous days and weeks but I don't always record my symptoms. I made a little chart that I can slip into my bullet journal, so hopefully that will help. And learning to say no is so important, I've had to learn to cut back and learn when to push myself and when not to. Thanks for watching! xx
Sometimes I feel like I ran a marathon and I hurt so bad. My neck, shoulder and back can feel very stiff and I can barely walk too. It's hard for me to figure out when I'm going to have a flare. I'm still new to this. I've been diagnosed a few months ago. Thanks so much for making this video. It is very helpful. Please make more.
I totally relate to that feeling. That's usually how I know I'm having a flare, when the pain gets that bad but I didn't do anything to cause it. I was diagnosed nearly a year ago now but I'm still getting used to it. I will definitely be making more fibro videos soon. There will be one coming up on traveling with fibro and my experience visiting London while dealing with this. I'm just trying to get all the travel vlogs up first, but I promise it's coming. :)
I can relate to your case so much! It's like you have said the words that I am not able to think of! I appreciate you sharing your case.. Pain is REAL- but so is HOPE!
its really kind of you Andrea to share your experience with Fibromyalgia. because its a health issue that not many people know. looking forward to these videos. wish you good health.
Aww thank you so much Shyma! So many people either don't know about it or know very little. I'm hoping sharing my experience will help people. Thank you for watching! xx
New subscriber, I watched an older video a few days ago. Great video. I'm a senior and 10 yr. struggle with fibromyalgia, and osteoarthritis. You are very clear in your videos. I'm basically self taught when I was diagnosed. I do not have a channel or blog, though I have thought about it. I feel hearing from others truly helps with this condition. I've been going through more changes, trying to sort out if it's age or the Fibro. I enjoyed your video and will be visiting your Fibro videos. Keep up the good info, you never know how many people you help. We all need to stick together through this fight !
Welcome! So glad you found my channel, I'm always so happy with other fibro patients find me, it's nice to have a community of people with similar experiences. It's been nearly a year since I was diagnosed but I'm still figuring out what pains and irritations are fibro and which are just my body being weird. You're so right that hearing from others helps, we definitely need to stick together. I'll be doing another fibro chat soon to talk about my experience of traveling to London while dealing with fibro, just trying to get all the vlogs uploaded first. :)
To be honesty I didn't really know too much about Fibromyalgia until you made this video. I'm sorry that you have to go through this and I hope that it becomes more manageable! I agree, we really need to take a step back and be aware of what our bodies are trying to tell us!! People overwork and push themselves too hard and that could do so much damage!! Great video! xo
There are a bunch of other conditions related to/similar to fibromyalgia. And there's so much that doctors still don't know about them. I really think lifestyle and how much we push ourselves has a lot to do with it all. Thanks for watching! :) xx
I think it is soooooo good that you are sharing you experience to help others not feel alone ❤️ I'm so glad you're feeling better since October too! I think I remember those vlogs. You looked exhausted. But you are beautiful!!!
I hope I'm helping others, it definitely helps me to talk about it. I'm doing a bit better for sure, that flare was such an interesting experience because it really showed how much progress I've made since February. Thank you so much for watching Sarah! :) xx
Such a good informative video for anyone suffering! I'm not a sufferer myself but I find it interesting to hear people's stories ❤️ love your hair curly btw! Xx
I think I have this. Tired all the time. Muscle and body aches. I have nerve issues as well. Lots of tension on shoulders going up to my neck tingling. Arthritis. There are days I feel pretty good. It like it comes and goes.
I'm pretty much of the same philosophy as you. Meds give me so little relief and so many side effects that I'd rather give my liver a break and treat my fibro as naturally as possible. I would love to hear what supplements you have tried and what has and hasn't worked. Thanks for sharing. Gentle hugs.
Everyone talks about meds and doctors always want to throw them at you. But I feel like unless your case is completely debilitating the risk of the side effects doesn't fully outweigh the symptoms, so I'd rather go without the meds. I've been meaning to do a video on what supplements I use, I'll try to bump that up on the filming list. Thanks for watching my videos tonight and commenting! Hope you'll stick around my channel. :)
You are really lucky your Fibro is not as severe as mine. My flares last a whole month. Lot of muscle spasms and full body flushing....very tiring. But i love your videos💕
I love your winged eye liner, I couldn't stop looking at it the entire video, not to sound creepy or anything lol. I completely agree that everyone is so different, when it comes to judging a flare. It's just knowing your body. And yes!!! That time of the month is sooo bad!!! Having your period just magnifies everything, including the fibro. I remember your bad flare in October, how are you feeling?
Lol, I might feel like rubbish but at least I can make my eyeliner look good. And not to sound full of myself but I couldn't stop looking at it while editing lol. ;) Ugh, yes, having your period just makes everything worse, all my fibro symptoms get kicked up a notch. I'm doing a lot better since that flare, and having that flare really made me realize how much progress I've made since February when I was diagnosed. Just trying to keep listening to my body and hopefully head off the next flare. I don't think it would have gotten so bad if I hadn't spend all of that Sunday out running errands. I should have gone home after lunch. Live and learn.
lol, hey if I had that talent like you did, I would totally be doing the same thing lol. That is just pure talent. That is pretty much what you just have to do is that. You look good to me even though you claim you feel like rubbish, but I totally get that.
Thank you so much for the replies. I'm thinking about asking this new Dr. about trying no meds. I've been in a flare the past couple days, and it's just bothersome ; / as you well know how it goes. Do you have tinnitus? I do and it is horrible, 24/7. Thanks again, and we'll keep in touch.
Every time I looked into the meds the potential side effects didn't seem worth it considering my pain levels were manageable most days. But supplements have helped a lot. Thanks for watching!
I haven't yet. I've talked about my anxiety and depression in a separate video, but I haven't done one connecting them with the fibro. But I was just thinking about it the last few days after having a bad flare the other week that triggered massive anxiety. So I might try to film that for this week or next.
I need to do a video on this topic but I'll give you a list now since it could take awhile to do the video. :) I definitely recommend a good multi vitamin if nothing else. I also take Echinacea to keep my immune system strong (also helps my IBS), Turmeric with Curcumin to help with inflammation as well as brain, joint, and liver health, Magnesium which helps muscle and nerve health, Ubiquinol CoQ-10 which is good for energy production, a 3-6-9 complex which has a combination of fish, flaxseed, and borage oils which also helps with joints and inflammation, and then I take Melatonin to help me sleep along with GABA supplements that calm my mind at night to help me sleep. I tried 5-HTP for awhile, but found that for me the combo of Melatonin and GABA was all I needed. The cost of these definitely adds up, but it's worth it to me to try to stay off heavy drugs that cause side effects.
I guess you have to have several flares before you realize how to determine what they are for you. That’s how I have figured it out. I was just diagnosed a year ago so it has been different for me. I’ve noticed that this illness gets worse with time
My flares are getting like really frightening in your experience is it normal to actually want to jump out of the window, is it supposed to get this bad, I am really struggling to survive
I think a lot of us feel that way but that doesn't make it less concerning. Please talk to your doctor if you can, or find a local support group or someone to talk to. TH-cam is great for feeling less alone but it's not actual support (as much as I wish it was or could be). There are ways to improve how you're feeling, physically and mentally, you need to find the right resources. Take care.
@@AndreaJSeverson I am learning from experience and so far doctors and family have been very negligent. It's hard to learn the truth about this diseases and I have been made to believe what I am beginning to believe are lies, I do suspect that we have the technology to make dissappear completely these horrible diseases, why it's not happening? I really dont know, it's like being in the twilight zone, I studied science in college and I can tell something is off.
I work a physical repetitive job 6 hrs a day lifting heavy stuff, pushing, pulling and by 4 hrs in I'm exhausted. When I get home I've got to sit and relax for at least a few hours before I cook dinner.. But then get up and walk around cause my lower legs tighten up and feel heavy. I think it's poor blood circulation cause I used to stand 10-12 hrs a day. That's where the problems all started. The damage is done . I should've left the job years ago cause it messed me up. Being pushed by management to your breaking point was not fun.
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Andrea, thank you so much for this video! Nearly every thing you said was a light bulb moment. All I can really say is that you nailed it. My number one fault is pushing and pushing when my body is screaming to just simply be still. And sometimes I think that it's my mind's way of denying that I truly have this thing called Fibro. But my body knows differently and it's time for me to stop fighting myself and instead work with myself. Again, thank you so much.
Hi Crystal! I'm glad you enjoyed the video, I hope it helped. Thank you for the suggestion, it was helpful for me to think about this subject. I'm also guilty of pushing and pushing despite my body's signs to just relax. I've tried to get better about that. I think my most recent flare was because I didn't listen. I got cocky that I've been doing a bit better since I was first diagnosed so I kept pushing myself that weekend. Ugh, it was miserable lol! Live and learn. I think what you said about stop fighting yourself and instead work with yourself is sooooooo important. I need to put that on a sticky note and put it on my bathroom mirror or something lol. Our bodies know what they're capable of and when we're pushing too much, learning to listen to them is the hard part. Thank you for watching and for the idea to do this video. If you have any other topics you'd like me to address in a future fibro chat let me know. :) xx
Again thank you so much!
Thanks again for this. It really helps hearing about others that suffer like me. I just wish more people took it more seriously.
It's a tough subject to talk about but we need more awareness for this condition. I hate that so many of us suffer in silence because we fear people won't understand or take it seriously. Big hug. :)
Love these videos where you share about this. It's so relatable. I get the same base of head-top of hips pain and that's the big red flag that it's coming and it just intensifies throughout. I try to keep a log like you mentioned.
A big thing I've had to learn to do is to say no and it's honestly made a world of difference. So often I was just piling way too much on and pushing myself to do it when my body was screaming at me not to.
Great video 💜
Yeah, I'm used to located/isolated pain in my back, but when my whole upper body locks up I know I'm in trouble. I'm going to try to keep a log now as well, since I'm not vlogging all the time, just to keep track of the pain. My bullet journal can tell me what I've been doing in the previous days and weeks but I don't always record my symptoms. I made a little chart that I can slip into my bullet journal, so hopefully that will help. And learning to say no is so important, I've had to learn to cut back and learn when to push myself and when not to. Thanks for watching! xx
Sometimes I feel like I ran a marathon and I hurt so bad. My neck, shoulder and back can feel very stiff and I can barely walk too. It's hard for me to figure out when I'm going to have a flare. I'm still new to this. I've been diagnosed a few months ago. Thanks so much for making this video. It is very helpful. Please make more.
I totally relate to that feeling. That's usually how I know I'm having a flare, when the pain gets that bad but I didn't do anything to cause it. I was diagnosed nearly a year ago now but I'm still getting used to it. I will definitely be making more fibro videos soon. There will be one coming up on traveling with fibro and my experience visiting London while dealing with this. I'm just trying to get all the travel vlogs up first, but I promise it's coming. :)
I can relate to your case so much! It's like you have said the words that I am not able to think of! I appreciate you sharing your case.. Pain is REAL- but so is HOPE!
Thank you for watching and for your kind comment, I truly appreciate it. And yes, there is always hope. :)
its really kind of you Andrea to share your experience with Fibromyalgia. because its a health issue that not many people know. looking forward to these videos. wish you good health.
Aww thank you so much Shyma! So many people either don't know about it or know very little. I'm hoping sharing my experience will help people. Thank you for watching! xx
New subscriber, I watched an older video a few days ago. Great video. I'm a senior and 10 yr. struggle with fibromyalgia, and osteoarthritis. You are very clear in your videos. I'm basically self taught when I was diagnosed. I do not have a channel or blog, though I have thought about it. I feel hearing from others truly helps with this condition. I've been going through more changes, trying to sort out if it's age or the Fibro.
I enjoyed your video and will be visiting your Fibro videos. Keep up the good info, you never know how many people you help. We all need to stick together through this fight !
Welcome! So glad you found my channel, I'm always so happy with other fibro patients find me, it's nice to have a community of people with similar experiences. It's been nearly a year since I was diagnosed but I'm still figuring out what pains and irritations are fibro and which are just my body being weird. You're so right that hearing from others helps, we definitely need to stick together. I'll be doing another fibro chat soon to talk about my experience of traveling to London while dealing with fibro, just trying to get all the vlogs uploaded first. :)
To be honesty I didn't really know too much about Fibromyalgia until you made this video. I'm sorry that you have to go through this and I hope that it becomes more manageable! I agree, we really need to take a step back and be aware of what our bodies are trying to tell us!! People overwork and push themselves too hard and that could do so much damage!! Great video! xo
There are a bunch of other conditions related to/similar to fibromyalgia. And there's so much that doctors still don't know about them. I really think lifestyle and how much we push ourselves has a lot to do with it all. Thanks for watching! :) xx
I think it is soooooo good that you are sharing you experience to help others not feel alone ❤️ I'm so glad you're feeling better since October too! I think I remember those vlogs. You looked exhausted. But you are beautiful!!!
I hope I'm helping others, it definitely helps me to talk about it. I'm doing a bit better for sure, that flare was such an interesting experience because it really showed how much progress I've made since February. Thank you so much for watching Sarah! :) xx
very interesting. i heard about it before but i didnt really know much. thanks for sharing.
Thanks for watching! Sadly Fibromyalgia is something a lot of people don't know much about until they get diagnosed.
Such a good informative video for anyone suffering! I'm not a sufferer myself but I find it interesting to hear people's stories ❤️ love your hair curly btw! Xx
Thanks for watching Tamzin! Hope you're doing well. :) xx
Thanks for sharing this video it really brings out flares well for people suffering from fibro to totally understand.
Thank you for watching! It's always nice to hear from people who can relate to my experiences.
I think I have this. Tired all the time. Muscle and body aches. I have nerve issues as well. Lots of tension on shoulders going up to my neck tingling. Arthritis. There are days I feel pretty good. It like it comes and goes.
I'm so sorry you're struggling with this. Wishing you more good days than bad. Thank you for watching!
I'm pretty much of the same philosophy as you. Meds give me so little relief and so many side effects that I'd rather give my liver a break and treat my fibro as naturally as possible. I would love to hear what supplements you have tried and what has and hasn't worked. Thanks for sharing. Gentle hugs.
Everyone talks about meds and doctors always want to throw them at you. But I feel like unless your case is completely debilitating the risk of the side effects doesn't fully outweigh the symptoms, so I'd rather go without the meds. I've been meaning to do a video on what supplements I use, I'll try to bump that up on the filming list. Thanks for watching my videos tonight and commenting! Hope you'll stick around my channel. :)
You are really lucky your Fibro is not as severe as mine. My flares last a whole month. Lot of muscle spasms and full body flushing....very tiring. But i love your videos💕
I'm very lucky, and very grateful. It's gotten worse over the years but is still manageable. Thanks for watching!
Thi is such an awesome resource for people with fibromyalgia! Oh and ps is your hair this curly naturally?
Thanks for the support Marie. :) And no, my hair isn't that curly naturally, I slept with damp hair in a french braid. :) xx
I love your winged eye liner, I couldn't stop looking at it the entire video, not to sound creepy or anything lol. I completely agree that everyone is so different, when it comes to judging a flare. It's just knowing your body. And yes!!! That time of the month is sooo bad!!! Having your period just magnifies everything, including the fibro. I remember your bad flare in October, how are you feeling?
Lol, I might feel like rubbish but at least I can make my eyeliner look good. And not to sound full of myself but I couldn't stop looking at it while editing lol. ;) Ugh, yes, having your period just makes everything worse, all my fibro symptoms get kicked up a notch. I'm doing a lot better since that flare, and having that flare really made me realize how much progress I've made since February when I was diagnosed. Just trying to keep listening to my body and hopefully head off the next flare. I don't think it would have gotten so bad if I hadn't spend all of that Sunday out running errands. I should have gone home after lunch. Live and learn.
lol, hey if I had that talent like you did, I would totally be doing the same thing lol. That is just pure talent. That is pretty much what you just have to do is that. You look good to me even though you claim you feel like rubbish, but I totally get that.
Wondering who has felt in the back like a nerve stretch feels like a guitar string about to snap or rubberband?
Yep, I've felt that. It's not fun.
Thank you so much for the replies. I'm thinking about asking this new Dr. about trying no meds. I've been in a flare the past couple days, and it's just bothersome ; / as you well know how it goes. Do you have tinnitus? I do and it is horrible, 24/7. Thanks again, and we'll keep in touch.
You're very welcome. I have short periods of tinnitus, and that's horrible enough, I'm so sorry you deal with it on such a persistent basis.
Sounds just like me!I don,t like to take alot of meds either.Trying supplements.
Every time I looked into the meds the potential side effects didn't seem worth it considering my pain levels were manageable most days. But supplements have helped a lot. Thanks for watching!
Have you done a video about fibro and anxiety? Fibro and heart palpitations?
Just wondering.
I haven't yet. I've talked about my anxiety and depression in a separate video, but I haven't done one connecting them with the fibro. But I was just thinking about it the last few days after having a bad flare the other week that triggered massive anxiety. So I might try to film that for this week or next.
Would you list your vitamins or supplements that you feel have helped you the most? Thanks
I need to do a video on this topic but I'll give you a list now since it could take awhile to do the video. :) I definitely recommend a good multi vitamin if nothing else. I also take Echinacea to keep my immune system strong (also helps my IBS), Turmeric with Curcumin to help with inflammation as well as brain, joint, and liver health, Magnesium which helps muscle and nerve health, Ubiquinol CoQ-10 which is good for energy production, a 3-6-9 complex which has a combination of fish, flaxseed, and borage oils which also helps with joints and inflammation, and then I take Melatonin to help me sleep along with GABA supplements that calm my mind at night to help me sleep. I tried 5-HTP for awhile, but found that for me the combo of Melatonin and GABA was all I needed. The cost of these definitely adds up, but it's worth it to me to try to stay off heavy drugs that cause side effects.
I guess you have to have several flares before you realize how to determine what they are for you. That’s how I have figured it out. I was just diagnosed a year ago so it has been different for me. I’ve noticed that this illness gets worse with time
Yeah, I filmed this a few years ago and it's been several years since I was diagnosed, so now I can tell almost immediately when I'm getting a flare.
My flares are getting like really frightening in your experience is it normal to actually want to jump out of the window, is it supposed to get this bad, I am really struggling to survive
I think a lot of us feel that way but that doesn't make it less concerning. Please talk to your doctor if you can, or find a local support group or someone to talk to. TH-cam is great for feeling less alone but it's not actual support (as much as I wish it was or could be). There are ways to improve how you're feeling, physically and mentally, you need to find the right resources. Take care.
@@AndreaJSeverson I am learning from experience and so far doctors and family have been very negligent. It's hard to learn the truth about this diseases and I have been made to believe what I am beginning to believe are lies, I do suspect that we have the technology to make dissappear completely these horrible diseases, why it's not happening? I really dont know, it's like being in the twilight zone, I studied science in college and I can tell something is off.
Nice dear
Thank you!
Like
Thank you darling! :)
eating healthy always best ! NO TABLETS FOR ME As Well that just make matter worse 🤗
Paying attention to what I'm eating definitely helps. :)
Do u have a type of neuralgia fibro headaches?
No, I don't think so. I really just get bad sinus headaches from having messed up sinuses. :/
6:30 is how I feel everyday
It's rough. It's weird looking at this video from 4 years ago and seeing how little has changed for me. Soft hugs!
@@AndreaJSeverson ❤❤
I work a physical repetitive job 6 hrs a day lifting heavy stuff, pushing, pulling and by 4 hrs in I'm exhausted. When I get home I've got to sit and relax for at least a few hours before I cook dinner.. But then get up and walk around cause my lower legs tighten up and feel heavy. I think it's poor blood circulation cause I used to stand 10-12 hrs a day. That's where the problems all started. The damage is done . I should've left the job years ago cause it messed me up. Being pushed by management to your breaking point was not fun.
😊xxxxx
❤️ xx