@@HeartValveSurgerywell the valve caused complete heart block, a PPM was inserted that caused hemopericardium and anemia that needed blood transfusion ,with tamponade symptoms that needed emergency pericardiocentesis which was very painful and needed narcotic analgesics to drain the hematoma and thank God for Fuster heart Hospital in mt Sinai in NYC Past 84 people are really fragile.We are trying to prevent pneumonia, stop the bleeding in the pericardium, prevent incisions infections and God willing things will improve.
36:18 when do I need a “Team”? when do you start asking all these questions of your heart team? I currently only see one cardiologist. Took me 3 to finally find one that diagnosed me correctly after 15 years of trying to get diagnosed. I have bicuspid aortic valve. Close to 50 now. Feel I need to get a second review as I get closer to needing valve replacement as my disease progresses.
Hi Chung, Thanks for sharing your story with us about your bicuspid aortic valve. As your valve disease progresses to moderate, it might be a good idea to ask your cardiologist about the next steps in the treatment. At that time, you may have an opportunity to connect with a "heart team" as discussed in this video. Each hospital is a bit different. So, you will want to be your own best advocate to ask the important questions that are addressed in this video. What is the safest and most effective therapy for my specific valve defect? What are my options for aortic valve replacement or aortic valve repair? What type of approaches are available to me - surgical aortic valve replacement (SAVR) or transcatheter aortic valve replacement (TAVR)? And, yes... You raise a good point about second opinions. Second opinions can help validate or negate the treatment options and the timing of a procedure. Hope that helps!
I’m glad I found this video-I’ve got three out or four valves with regurgitation, my mom had aortic valve failure after having it replaced seven years ago and sadly wasn’t a surgical candidate this time and being a black female, my chest pain is always dismissed as just musculoskeletal pain
Hey Evan, Great to hear you enjoyed this educational webinar about heart valve disease management and treatment options. Our thoughts are with you as you consider the best treatment options for you. Yes, the under- and mis-diagnosis patients is rampant with this insidious disease. Did you see this video about the realities of heart valve disease for women - th-cam.com/video/dyzHQ6MnrqA/w-d-xo.html. Hope that helps!!! 💗💗💗
Reading on this after years of iv drug abuse. Mild Calcified heart disease. Just trying to prolong my life. I can still run 40 minutes of cardio. But scared to death. Thank you for the video
Hi Brenda, Thanks for your question about shortness of breath. Unfortunately, as a patient advisory group, we are not trained or capable of providing specific medical advice. That said, we would strongly encourage you to discuss this question with your medical team. And, if you have any concern regarding your shortness of breath, we would encourage to seek medical attention. We are sorry that we cannot be of more immediate help to you!
I had cancer at 70, had to do chemo as I was triple negative aggressive ductal carcinoma. I had to do two different rounds but cancer free for five years. I am now 75 and having a lot of issues, severe fatigue, weakness, some dizziness off and on, skipped heartbeats, feeling like I’m going to faint yet reclined and resting, minor headaches, some sweating time to time even though I am indoors with air, swelling. I had the heart catherization two years ago in January, said everything looks fine but then red this is mainly for coronary and doesn’t show valve disease. Dr. Brescia at MUSC was my oncologist and told me up front chemo can sometimes cause cancer and can cause heart damage. I don’t feel MUSC had followed up with my heart like they should and now feel confused as to what to do. I have made an appointment with my primary for November 14 but because my levels always are good except for a cO2 level they don’t seem concerned. My symptoms seem to escalate over the past three months so I hope she takes this seriously.
Hi Betty, Thanks for sharing your patient experience with us. Here is a video about radiation associated heart valve disease that you may want to watch - th-cam.com/video/kPVq5ty08dQ/w-d-xo.html. Thoughts are with you!
@@HeartValveSurgery you were so kind to respond but I have another question, saw my primary doctor yesterday and she did an ekg, have arrhythmia, she is putting me on a heart monitor and has ordered an echo. Also prescribing a beta blocker as my heartbeat is between 80 - 100 in resting mode. I read about the beta blocker and if you have circulatory issues this is a major concern. I have both Raynard and neuropathy, should I take a beta blocker. This is all so confusing.
@@BettyDuffey Hi Betty, You raise a really great question. Unfortunately, as a patient advisory group, we are not trained or capable of providing specific medical advice. That said, we would strongly encourage you to further discuss this question with your medical team. We are sorry that we cannot be of more immediate help to you. We hope you can understand!
Name : Gautam Shah Age : 37 M-Mode/B Mode Measurement LA = 3.8cm Aorta 3.5 cm Diastole Systole LVID : 5.4 cm 3.3cm IVS : 1.2cm LVPW : 1.1cm LV EF : 60% Mitral Valve Study Amil : Thickened PML : Thickened E-Vel : 0.8m/s E-Grad 3.0 mm/hg A-vel: 1.1m/s A-Grad 5.0 mm/Hg Mitral Regurgitation : Mild TRIcuspic Valve Study Morphology: Normal TR vel : 2.7m/s TR Grad 29.0 mm/Hg Triscuspid Regurgitation: Mild Aortic Valve Study Morphology: Thickened Peal velocity: 3.8m/s peak Grad: 57 Mean vel: 2.6 Grad : mm/Hg Aortic Annulus : 2.5cm LVOT Diameter: 2.6cm LVOT VTI: 21.7 AV VTI: 85.0 AORTIC valve area: 135474376470588 cm2 AR jet Vena Contract width: 0.8 cm Aortic Regurgition : Severe Pulmonary Valve Study Morphology: Normal Peak Velocity: 1.1m/s Peak Grad: 5.0mm/Hg Pulomonary Regurgitation: Nil Wall Motion Analysis Wall Motion : Normal Sigmental Analysis IAS: Inact IVS: Inact Pericardium: No pericardical effusion seen Intra-cavity Mass: Not seen Vegetation: Not seen Other features: Aortic annulus: 2.5cm, AR jet Vena contract 0.8cm Final Impression: Rheumatic Heart Diseases: Moderate AS(AVA:1.35cm2 by continuity equation, peak gradient: 57.0 mm/Hg and mean gradient : 34.0 mm/Hg), Severe AR Mild concentric LVH, MR, Mild TR with TRPG: 29.0mmhg), Grade I LV Diastolic Dysfunction, borderline LV. 1. When to do the surgery? 2. How rapid the valve will damage? 3. What is the best suggestions for future? 4. How to control the damage valve? 5. In which stage patient supposed to do the surgery? 6. At which percent patient supposed to do the surgery? 7. Best solution to protect the valve and good life\ Thank you so much doctor saab for your valuable and motivational information. You are a God for us.
Hi Gautam, That for sharing your echocardiogram. You raise a lot of great questions. We would encourage you to do two things to get the answers. First, you may want to visit our website at www.heart-valve-surgery.com/. You can use the search bar at the top of every page to learn more. Second, as each patient is unique, we would encourage you to discuss your questions with your medical team. Your medical team will be best positioned to provide you the best advice for the management of your heart valve disease. Hope this helps!
So impressed by the valuable information these brilliant cardiologists gave us! My wife will have TAVR on oct 1 and I know what will happen. Thanks!
Wonderful to learn that your wife is doing well after her TAVR!
@@HeartValveSurgerywell the valve caused complete heart block, a PPM was inserted that caused hemopericardium and anemia that needed blood transfusion ,with tamponade symptoms that needed emergency pericardiocentesis which was very painful and needed narcotic analgesics to drain the hematoma and thank God for Fuster heart Hospital in mt Sinai in NYC
Past 84 people are really fragile.We are trying to prevent pneumonia, stop the bleeding in the pericardium, prevent incisions infections and God willing things will improve.
36:18 when do I need a “Team”?
when do you start asking all these questions of your heart team? I currently only see one cardiologist. Took me 3 to finally find one that diagnosed me correctly after 15 years of trying to get diagnosed.
I have bicuspid aortic valve. Close to 50 now. Feel I need to get a second review as I get closer to needing valve replacement as my disease progresses.
Hi Chung, Thanks for sharing your story with us about your bicuspid aortic valve. As your valve disease progresses to moderate, it might be a good idea to ask your cardiologist about the next steps in the treatment. At that time, you may have an opportunity to connect with a "heart team" as discussed in this video. Each hospital is a bit different. So, you will want to be your own best advocate to ask the important questions that are addressed in this video. What is the safest and most effective therapy for my specific valve defect? What are my options for aortic valve replacement or aortic valve repair? What type of approaches are available to me - surgical aortic valve replacement (SAVR) or transcatheter aortic valve replacement (TAVR)? And, yes... You raise a good point about second opinions. Second opinions can help validate or negate the treatment options and the timing of a procedure. Hope that helps!
I’m glad I found this video-I’ve got three out or four valves with regurgitation, my mom had aortic valve failure after having it replaced seven years ago and sadly wasn’t a surgical candidate this time and being a black female, my chest pain is always dismissed as just musculoskeletal pain
Hey Evan, Great to hear you enjoyed this educational webinar about heart valve disease management and treatment options. Our thoughts are with you as you consider the best treatment options for you. Yes, the under- and mis-diagnosis patients is rampant with this insidious disease. Did you see this video about the realities of heart valve disease for women - th-cam.com/video/dyzHQ6MnrqA/w-d-xo.html. Hope that helps!!! 💗💗💗
A protective device SENTINEL to protect the brain from stroke because of debris produced during TAVR must always be considered
Yes, many TAVR teams in our community use the SENTINEL DEVICE.
Reading on this after years of iv drug abuse. Mild Calcified heart disease. Just trying to prolong my life. I can still run 40 minutes of cardio. But scared to death.
Thank you for the video
Hi Steve, Thanks for sharing your story with our patient community. And, we are happy to hear you are monitoring your mitral valve calcification.
Any help with shortness of breath until I get appt for tavi? Oxygen? Inhaler,?
Hi Brenda,
Thanks for your question about shortness of breath. Unfortunately, as a patient advisory group, we are not trained or capable of providing specific medical advice. That said, we would strongly encourage you to discuss this question with your medical team. And, if you have any concern regarding your shortness of breath, we would encourage to seek medical attention. We are sorry that we cannot be of more immediate help to you!
I had cancer at 70, had to do chemo as I was triple negative aggressive ductal carcinoma. I had to do two different rounds but cancer free for five years. I am now 75 and having a lot of issues, severe fatigue, weakness, some dizziness off and on, skipped heartbeats, feeling like I’m going to faint yet reclined and resting, minor headaches, some sweating time to time even though I am indoors with air, swelling. I had the heart catherization two years ago in January, said everything looks fine but then red this is mainly for coronary and doesn’t show valve disease. Dr. Brescia at MUSC was my oncologist and told me up front chemo can sometimes cause cancer and can cause heart damage. I don’t feel MUSC had followed up with my heart like they should and now feel confused as to what to do. I have made an appointment with my primary for November 14 but because my levels always are good except for a cO2 level they don’t seem concerned. My symptoms seem to escalate over the past three months so I hope she takes this seriously.
Hi Betty, Thanks for sharing your patient experience with us. Here is a video about radiation associated heart valve disease that you may want to watch - th-cam.com/video/kPVq5ty08dQ/w-d-xo.html. Thoughts are with you!
@@HeartValveSurgery you were so kind to respond but I have another question, saw my primary doctor yesterday and she did an ekg, have arrhythmia, she is putting me on a heart monitor and has ordered an echo. Also prescribing a beta blocker as my heartbeat is between 80 - 100 in resting mode. I read about the beta blocker and if you have circulatory issues this is a major concern. I have both Raynard and neuropathy, should I take a beta blocker. This is all so confusing.
@@BettyDuffey Hi Betty, You raise a really great question. Unfortunately, as a patient advisory group, we are not trained or capable of providing specific medical advice. That said, we would strongly encourage you to further discuss this question with your medical team. We are sorry that we cannot be of more immediate help to you. We hope you can understand!
Name : Gautam Shah
Age : 37
M-Mode/B Mode Measurement
LA = 3.8cm
Aorta 3.5 cm Diastole Systole
LVID : 5.4 cm 3.3cm
IVS : 1.2cm
LVPW : 1.1cm
LV EF : 60%
Mitral Valve Study
Amil : Thickened
PML : Thickened
E-Vel : 0.8m/s E-Grad 3.0 mm/hg
A-vel: 1.1m/s A-Grad 5.0 mm/Hg
Mitral Regurgitation : Mild
TRIcuspic Valve Study
Morphology: Normal
TR vel : 2.7m/s TR Grad 29.0 mm/Hg
Triscuspid Regurgitation: Mild
Aortic Valve Study
Morphology: Thickened
Peal velocity: 3.8m/s peak Grad: 57
Mean vel: 2.6 Grad : mm/Hg
Aortic Annulus : 2.5cm
LVOT Diameter: 2.6cm LVOT VTI: 21.7
AV VTI: 85.0
AORTIC valve area: 135474376470588 cm2
AR jet Vena Contract width: 0.8 cm
Aortic Regurgition : Severe
Pulmonary Valve Study
Morphology: Normal
Peak Velocity: 1.1m/s Peak Grad: 5.0mm/Hg
Pulomonary Regurgitation: Nil
Wall Motion Analysis
Wall Motion : Normal
Sigmental Analysis
IAS: Inact
IVS: Inact
Pericardium: No pericardical effusion seen
Intra-cavity Mass: Not seen
Vegetation: Not seen
Other features:
Aortic annulus: 2.5cm, AR jet Vena contract 0.8cm
Final Impression:
Rheumatic Heart Diseases:
Moderate AS(AVA:1.35cm2 by continuity equation,
peak gradient: 57.0 mm/Hg and
mean gradient : 34.0 mm/Hg),
Severe AR Mild concentric LVH, MR, Mild TR with TRPG: 29.0mmhg),
Grade I LV Diastolic Dysfunction, borderline LV.
1. When to do the surgery?
2. How rapid the valve will damage?
3. What is the best suggestions for future?
4. How to control the damage valve?
5. In which stage patient supposed to do the surgery?
6. At which percent patient supposed to do the surgery?
7. Best solution to protect the valve and good life\
Thank you so much doctor saab for your valuable and motivational information.
You are a God for us.
Hi Gautam, That for sharing your echocardiogram. You raise a lot of great questions. We would encourage you to do two things to get the answers. First, you may want to visit our website at www.heart-valve-surgery.com/. You can use the search bar at the top of every page to learn more. Second, as each patient is unique, we would encourage you to discuss your questions with your medical team. Your medical team will be best positioned to provide you the best advice for the management of your heart valve disease. Hope this helps!