Thank you for sharing these special moments, she certainly had an uphill battle. It's so beautiful to see the love of all the family members in caring for her.
My babygirl Jocelyn was born with trisomy 21. Its so overwhelming to have her in the nicu and not being able to bring her home but your vídeos give me some hope and remind me to take it one day at a time!❤🙏🏻
Reading this comment really spoke to my heart! I know the feeling of having to leave your baby at the hospital and it's heartbreaking...but soon it will be behind you and just a memory. Definitely one day at a time! I'm happy you found these videos to encourage you and know you are not alone! Even though we haven't met I consider you a friend already ❤️ Sending all of my love and prayers to you and baby, Jocelyn! She is such a precious gift from above! Would love to get updates when she is out of the hospital and how she is doing 🥰
Thank you for sharing this im slowly making my way thru your back catalog lmao.. Im sitting here having the worst panic attack and I watched this and it totally helped slow everything down and I was able to get thru it. I know I sound silly right now. This video is amazing. She is sooo freaking cute especially the part with her daddy and where she was crying a little bit, until he elevated her up again. that was always the worst for me, the cramps. My son Mikey reacted so badly to formula when I introduced it. It was awful. bless her heart I know she's older now, time flies doesn't it. It makes me sad how fast sometimes. Anyway I'm all over the place I'll shut up now. Hope this finds you all healthy and safe and well. I am almost getting baby fever from this lol. My son is 2 on Monday. Where does the time go!! Much love from the east coast ,💙
Hi there thank you so much for taking the time to reach out! A little late but Happy birthday to your son!! 💙 I'm so happy you enjoyed this video and it helped you feel better! Your comment made me smile so thank you so much for that! 🥰
Oh my goodness she's so PRECIOUS!!! I've been binge watching some of your older vlogs LOL I love your channel😊 I hope everything is ok you haven't posted any new videos in a little while so I hope all is well..
Hi Amber!! You're so sweet thanks for checking in! I'm doing ok we have all been so sick and once we would start feeling better we'd get hit with something else! It's been so crazy. I just haven't had the energy to film and edit and taking care of sick kiddos requires all of my attention...but hopefully it gets better the next week's and I can post a few very soon! I have also been a bit discouraged because I have received some really disturbing comments... sometimes I'm in shock what people will type out and it is just hard to read them. Especially if it is about your child. Saying eww to certain videos, that Eva looks like an Alien, or that her tongue is so big we should cut it off... very horrible things and it's been hard for me to deal with. It's turned me off from making videos, but I know this is what I'm supposed to do to help others so I want to keep going...I just want a break from posting because I found myself getting nervous to post because of these people. You have the best heart amber thank you for caring so much! ❤️
@@OurExtraGift I am so so sorry what has been said about your baby I can't believe there is actually people out there in this world that evil and mean but the sad truth is there is a lot of evil in this world. That's just wrong and it breaks my heart and leaves me speechless that someone would say that to you I know it broke your heart and hurt your feelings but don't let them take that much power over you because your baby girl is beautiful and so precious and you have a wonderful family they are trolls hiding behind a screen trying to break people and from what I've seen you are way stronger 💪 shame on them. Love your channel keep doing what your doing.
@@Amber12332 thanks so much for thinking of us and checking in. Honestly I didn't realise how much I needed a mental break for a bit. Some negative comments have been really affecting me and I just needed to distance myself for some time. But I'm hoping to be back posting again soon❤️ thanks for always being the most supportive and caring person ever!!! Xoxo
@@Amber12332 this made my day! You are incredible and always lift me up with your encouraging comments. what would I do without you?? :) Thanks for always having my back!
🥰 Awwww!!! Feeling this SOOOO hard! I’m laying here watching with my 11 month old daughter Noelle, who also has T21. She’s talking to Eva!💖💖💖 I wondered if you guys got a diagnosis for Eva’s difficult breathing, and if it improved or eventually fully recovered? Did she need treatment for it? Noelle was on a ventilator for several weeks following surgery for duodenal atresia. Though her breathing was normal at birth, she still has stridor now. She was diagnosed with tracheal stenosis, and we suspect it’s the acquired form due to many traumatic emergency intubations (they failed to administer a steroid and she experienced severe laryngeal swelling necessitating the repeated intubations). We’ve been told she will likely grow out of it as she continues to grow, by approximately the age of 2. I would love to hear what your own personal observations of Eva’s breathing are though, because no one watches our children as carefully as we do!🤍 Wonderful, sweet video, btw. And Eva is so cute... Noelle thinks so too!👩❤️👩
Hi there! Aww this message made me so happy! Hello Noelle! :) I love that you are watching us too! So as for Eva's breathing, they told us before surgery that she would have heavy breathing because of the strain on her heart and how hard it had to work before surgery and her exhaustion from that...she was never officially diagnosed with anything related to her breathing. After surgery it was so much better and she wasn't breathing as heavy any more...which they told us would happen and we were so thankful for! But I've heard this too that as they grow it will become less and less, so I am sure of that for Noelle as well! Thank you so much for your love and for watching! Would love to stay in touch with you! :)
This Extra Gift Aww! Your message made me so happy! Thank you for replying!💖 And thank you for your channel... I enjoy it so much, and beautiful little Eva has many fans in this house... we also have a 5 year old daughter, Elsie, and a 2 year old daughter, Martha, and actually yesterday was Noelle’s first birthday! The girls all love to watch Eva. I would be so delighted to stay in touch. I’m such an introvert and must have began writing you comments 100 times, but then always deleted before sending because I felt too shy. I’d watched your video of the call with Eva’s cardiologist when you posted it, and wanted to write. I was rejoicing with you! I know the enormous weight that lifts with good news, and the particular agony associated with waiting and worrying. Just recently Noelle had her leukemia screen done, and after nights upon nights of just laying awake and praying for her until morning, we got the call saying she was all good and everything was normal. I cried for an hour and then made cake! Haha That’s so wonderful to hear that Eva’s breathing improved after her surgery and as she grew, and thank you for taking the time to tell me about it!! I worry so much about Noelle, because her breathing is so loud and stridorous, and yet, she’s growing and learning and thriving, she eats and sleeps well, and she is the happiest and most energetic person I know, and has never been sick since she was discharged from the hospital at 2 months old. I try to remind myself that the total picture of her health is overall very positive! I do wish I was noticing a reduction in stridor though; she’s one. They said she “should” be fine by two. I know another year is a world of time for a baby, and we just continue to pray for her healing every day. God has already been so good to us, and done so many miracles in Noelle’s short life. She was actually diagnosed with subglottic stenosis initially, and she and I were flown across the country by air ambulance so she could access a children’s hospital with airway specialists. She was slated to receive a tracheotomy, and I was told she would need to be in hospital for at least 6 months, she would probably never learn to speak because her reconstruction couldn’t happen until she was 9 or so, and she’d need continual CPAP. When the surgeon went to perform the tracheotomy, I was called down to surgery almost immediately. Of course, I feared the worst. It was the worst day of my life. But when I got to the surgical bay, he told me that when he got in there, her airway was “unremarkable”, and she didn’t need any intervention, and she would most likely just grow out of the stridor. He had seen the video made of her endoscopy by her ENT previously, and everyone had agreed she had subglottic stenosis and a nearly complete closure. She was breathing through a pin hole. So I know that God is good, and able. I have no doubt that was a miracle! It’s sure nice to hear reassuring stories though!🥰 Watching you prepare to have Eva go for her heart surgery was absolutely heart wrenching. You must have been so scared. I bet it is still hard to watch for you. She is so strong, and so are you. Aren’t our daughters so amazing how they not only go through all these struggles with so much bravery and grace, but also with a smile? I have so much more to learn from Noelle than I will ever have to teach her. How are you and yours doing amid this pandemic? I’m sorry for the long reply, but I was so touched that you wrote me back! I know we’ve never met, but our family loves your family already, and I included you and Eva in my prayers before we ever spoke. I just wish you, Eva, and your whole family so very well, and I would be really thrilled to stay in touch!🤍
We are loving getting to see your baby Eva and how she has grown and is so loved! We just had a sweet baby three weeks ago and named her Eva as well! she also was diagnosed with down syndrome, we are currently in the hospital As Eva is fighting RSV, so watching your videos has been so encouraging and a glimpse into what life will be like, thank you for sharing your sweet family life ❤ 9:25
Hiii! Congratulations on your precious baby girl Eva! I love that we are connected on Instagram and she is absolutely beautiful!! So glad to see that you are home together now and we were so happy to hear that our videos have been an encouragement to you. We would love to stay in touch! Thank you so much for your sweet comment :)
minute 7 sec 48 her brother is so sweat with her.. in this situation i can sea down syndron later it is not so mutch to sea and eva is a beautiful little girl. I wish her all the best
I know THIS is some of Ur older vids BUT I'm not having a great day 💜 as I scrolled a lil bit Ur familiar faces popped up lol and I'm so GLAD I stopped 💜💯 Ur boy's are SUCH sweet loving Lil guy's, I bet U get those adorable moments ALOT when U catch em on video an their NOT AWARE lol OMGOODNESS I NEEDED THAT 💜 Where did U an hubby meet? He is German?? It's so flippin cute to hear the boy's talk an kinda hear the accent!! Lol U an Ur hubby make a awesome beautiful team girl friend 💜 My bday is tomorrow and when U have Chrons disease unfortunately I DNT get to choose when it decides to rear it's ugliness and stress can really make it BAD for me. Thanks so much for sharing y'all's beautiful lives and y'alls lil complete Angel's on Earth!! Much love frm Florida 💜🌴🌴💜 Lol on my way to see If there are any other videos I may have missed lol Hope ALL is well Ur way!!
Ds kids are perfect. They why do they test for ds? Then parents are devastated to get the news. People say they are brilliant and can go to college. So why worry about it?
Well I guess they need yo know to follow up on hea.lth issues after babies been born to put official plans in place for education and what should happen as parents get older and theve a strong maybe 20 year old who needs care
![ILLSLICK - KILLSHOT REMIX [FULL VERSION]](http://i.ytimg.com/vi/RIK8RrqIAzE/mqdefault.jpg)
Holding a baby is the greatest feeling ever ❤️
God could not have given this beautiful child a better set of parents then the two of you, the love you two show this baby is magic medicine for her.
Thank you for sharing these special moments, she certainly had an uphill battle. It's so beautiful to see the love of all the family members in caring for her.
My babygirl Jocelyn was born with trisomy 21. Its so overwhelming to have her in the nicu and not being able to bring her home but your vídeos give me some hope and remind me to take it one day at a time!❤🙏🏻
Reading this comment really spoke to my heart! I know the feeling of having to leave your baby at the hospital and it's heartbreaking...but soon it will be behind you and just a memory. Definitely one day at a time! I'm happy you found these videos to encourage you and know you are not alone! Even though we haven't met I consider you a friend already ❤️ Sending all of my love and prayers to you and baby, Jocelyn! She is such a precious gift from above! Would love to get updates when she is out of the hospital and how she is doing 🥰
Thank you for sharing this im slowly making my way thru your back catalog lmao.. Im sitting here having the worst panic attack and I watched this and it totally helped slow everything down and I was able to get thru it. I know I sound silly right now. This video is amazing. She is sooo freaking cute especially the part with her daddy and where she was crying a little bit, until he elevated her up again. that was always the worst for me, the cramps. My son Mikey reacted so badly to formula when I introduced it. It was awful. bless her heart I know she's older now, time flies doesn't it. It makes me sad how fast sometimes. Anyway I'm all over the place I'll shut up now. Hope this finds you all healthy and safe and well. I am almost getting baby fever from this lol. My son is 2 on Monday. Where does the time go!! Much love from the east coast ,💙
Hi there thank you so much for taking the time to reach out! A little late but Happy birthday to your son!! 💙 I'm so happy you enjoyed this video and it helped you feel better! Your comment made me smile so thank you so much for that! 🥰
cok tatli bir kiziniz var ve oda cok sansli cok iyi bir ailesi var
BEAUTIFUL FAMILY, AND EVA IS SO SPECIAL TO ME.
Alles, alles Gute für die kleine Maus, einfach nur süüüüß
So adorable💜💜💜 just look at those eyes!!!
big eyes minute 5 55 sec such a sweat little girl beautiful girl-
What a loving family!
So sweet of you thank you! 🥰
I'm so happy to see Eva smiles. me and my wife are also a DS parent.
That's amazing!! So happy to hear! 🥰❤️ Thank you for commenting we smiled reading your message
Oh my goodness she's so PRECIOUS!!! I've been binge watching some of your older vlogs LOL I love your channel😊 I hope everything is ok you haven't posted any new videos in a little while so I hope all is well..
Hi Amber!! You're so sweet thanks for checking in! I'm doing ok we have all been so sick and once we would start feeling better we'd get hit with something else! It's been so crazy. I just haven't had the energy to film and edit and taking care of sick kiddos requires all of my attention...but hopefully it gets better the next week's and I can post a few very soon! I have also been a bit discouraged because I have received some really disturbing comments... sometimes I'm in shock what people will type out and it is just hard to read them. Especially if it is about your child. Saying eww to certain videos, that Eva looks like an Alien, or that her tongue is so big we should cut it off... very horrible things and it's been hard for me to deal with. It's turned me off from making videos, but I know this is what I'm supposed to do to help others so I want to keep going...I just want a break from posting because I found myself getting nervous to post because of these people. You have the best heart amber thank you for caring so much! ❤️
@@OurExtraGift I am so so sorry what has been said about your baby I can't believe there is actually people out there in this world that evil and mean but the sad truth is there is a lot of evil in this world. That's just wrong and it breaks my heart and leaves me speechless that someone would say that to you I know it broke your heart and hurt your feelings but don't let them take that much power over you because your baby girl is beautiful and so precious and you have a wonderful family they are trolls hiding behind a screen trying to break people and from what I've seen you are way stronger 💪 shame on them. Love your channel keep doing what your doing.
@@OurExtraGift BTW I hope everyone if feeling better I haven't seen you in a while😊
@@Amber12332 thanks so much for thinking of us and checking in. Honestly I didn't realise how much I needed a mental break for a bit. Some negative comments have been really affecting me and I just needed to distance myself for some time. But I'm hoping to be back posting again soon❤️ thanks for always being the most supportive and caring person ever!!! Xoxo
@@Amber12332 this made my day! You are incredible and always lift me up with your encouraging comments. what would I do without you?? :) Thanks for always having my back!
I love that baby! She's so cute!
Aww thanks so much! ❤️
🥰 Awwww!!! Feeling this SOOOO hard! I’m laying here watching with my 11 month old daughter Noelle, who also has T21. She’s talking to Eva!💖💖💖 I wondered if you guys got a diagnosis for Eva’s difficult breathing, and if it improved or eventually fully recovered? Did she need treatment for it? Noelle was on a ventilator for several weeks following surgery for duodenal atresia. Though her breathing was normal at birth, she still has stridor now. She was diagnosed with tracheal stenosis, and we suspect it’s the acquired form due to many traumatic emergency intubations (they failed to administer a steroid and she experienced severe laryngeal swelling necessitating the repeated intubations). We’ve been told she will likely grow out of it as she continues to grow, by approximately the age of 2. I would love to hear what your own personal observations of Eva’s breathing are though, because no one watches our children as carefully as we do!🤍 Wonderful, sweet video, btw. And Eva is so cute... Noelle thinks so too!👩❤️👩
Hi there! Aww this message made me so happy! Hello Noelle! :) I love that you are watching us too! So as for Eva's breathing, they told us before surgery that she would have heavy breathing because of the strain on her heart and how hard it had to work before surgery and her exhaustion from that...she was never officially diagnosed with anything related to her breathing. After surgery it was so much better and she wasn't breathing as heavy any more...which they told us would happen and we were so thankful for! But I've heard this too that as they grow it will become less and less, so I am sure of that for Noelle as well! Thank you so much for your love and for watching! Would love to stay in touch with you! :)
This Extra Gift Aww! Your message made me so happy! Thank you for replying!💖 And thank you for your channel... I enjoy it so much, and beautiful little Eva has many fans in this house... we also have a 5 year old daughter, Elsie, and a 2 year old daughter, Martha, and actually yesterday was Noelle’s first birthday! The girls all love to watch Eva. I would be so delighted to stay in touch. I’m such an introvert and must have began writing you comments 100 times, but then always deleted before sending because I felt too shy. I’d watched your video of the call with Eva’s cardiologist when you posted it, and wanted to write. I was rejoicing with you! I know the enormous weight that lifts with good news, and the particular agony associated with waiting and worrying. Just recently Noelle had her leukemia screen done, and after nights upon nights of just laying awake and praying for her until morning, we got the call saying she was all good and everything was normal. I cried for an hour and then made cake! Haha
That’s so wonderful to hear that Eva’s breathing improved after her surgery and as she grew, and thank you for taking the time to tell me about it!! I worry so much about Noelle, because her breathing is so loud and stridorous, and yet, she’s growing and learning and thriving, she eats and sleeps well, and she is the happiest and most energetic person I know, and has never been sick since she was discharged from the hospital at 2 months old. I try to remind myself that the total picture of her health is overall very positive! I do wish I was noticing a reduction in stridor though; she’s one. They said she “should” be fine by two. I know another year is a world of time for a baby, and we just continue to pray for her healing every day. God has already been so good to us, and done so many miracles in Noelle’s short life. She was actually diagnosed with subglottic stenosis initially, and she and I were flown across the country by air ambulance so she could access a children’s hospital with airway specialists. She was slated to receive a tracheotomy, and I was told she would need to be in hospital for at least 6 months, she would probably never learn to speak because her reconstruction couldn’t happen until she was 9 or so, and she’d need continual CPAP. When the surgeon went to perform the tracheotomy, I was called down to surgery almost immediately. Of course, I feared the worst. It was the worst day of my life. But when I got to the surgical bay, he told me that when he got in there, her airway was “unremarkable”, and she didn’t need any intervention, and she would most likely just grow out of the stridor. He had seen the video made of her endoscopy by her ENT previously, and everyone had agreed she had subglottic stenosis and a nearly complete closure. She was breathing through a pin hole. So I know that God is good, and able. I have no doubt that was a miracle! It’s sure nice to hear reassuring stories though!🥰
Watching you prepare to have Eva go for her heart surgery was absolutely heart wrenching. You must have been so scared. I bet it is still hard to watch for you. She is so strong, and so are you. Aren’t our daughters so amazing how they not only go through all these struggles with so much bravery and grace, but also with a smile? I have so much more to learn from Noelle than I will ever have to teach her.
How are you and yours doing amid this pandemic?
I’m sorry for the long reply, but I was so touched that you wrote me back! I know we’ve never met, but our family loves your family already, and I included you and Eva in my prayers before we ever spoke. I just wish you, Eva, and your whole family so very well, and I would be really thrilled to stay in touch!🤍
Thank you for sharing ❤️❤️❤️
Those beautiful, big eyes. She is precious.
Thanks so much! 🥰
Absolutely precious ❤
You guys are killing us all here😍😍😍😍😍😍😍
Bayi yang sangat cantik, sangat lucu, kalian ayah dan ibu yang sabar dan hebat
Thank you! I love Google translate so that I can read your comments! You are very sweet thanks so much! 🥰
Her mongolian edge is perfect. Stay strong baby decedant of great warriors
That is one precious ❤️ baby
Thank you so much!!
We are loving getting to see your baby Eva and how she has grown and is so loved! We just had a sweet baby three weeks ago and named her Eva as well! she also was diagnosed with down syndrome, we are currently in the hospital As Eva is fighting RSV, so watching your videos has been so encouraging and a glimpse into what life will be like, thank you for sharing your sweet family life ❤
9:25
Hiii! Congratulations on your precious baby girl Eva! I love that we are connected on Instagram and she is absolutely beautiful!! So glad to see that you are home together now and we were so happy to hear that our videos have been an encouragement to you. We would love to stay in touch! Thank you so much for your sweet comment :)
C'è l'avete fatta con la principessa Eva, ora lei è una splendida bambina grazie al vostro amore e dedizione. God bles Eva and her family❤
minute 7 sec 48 her brother is so sweat with her.. in this situation i can sea down syndron later it is not so mutch to sea and eva is a beautiful little girl. I wish her all the best
Thank you so much! ❤️
Hermosas Dios las bendiga muchisimo
I know THIS is some of Ur older vids BUT I'm not having a great day 💜 as I scrolled a lil bit Ur familiar faces popped up lol and I'm so GLAD I stopped 💜💯 Ur boy's are SUCH sweet loving Lil guy's, I bet U get those adorable moments ALOT when U catch em on video an their NOT AWARE lol OMGOODNESS I NEEDED THAT 💜 Where did U an hubby meet? He is German?? It's so flippin cute to hear the boy's talk an kinda hear the accent!! Lol U an Ur hubby make a awesome beautiful team girl friend 💜 My bday is tomorrow and when U have Chrons disease unfortunately I DNT get to choose when it decides to rear it's ugliness and stress can really make it BAD for me. Thanks so much for sharing y'all's beautiful lives and y'alls lil complete Angel's on Earth!! Much love frm Florida 💜🌴🌴💜 Lol on my way to see If there are any other videos I may have missed lol Hope ALL is well Ur way!!
She’s soooooo beautiful 🤩 ❤
E bellissima una bimba meravigliosa che bella famiglia!
Sei un bel bimbo 😍😍
❤ absolutely gorgeous 😍
Ma'am plz share Eva's birth date and time
Ds kids are perfect. They why do they test for ds? Then parents are devastated to get the news. People say they are brilliant and can go to college. So why worry about it?
Well I guess they need yo know to follow up on hea.lth issues after babies been born to put official plans in place for education and what should happen as parents get older and theve a strong maybe 20 year old who needs care