I swear I missed 75% of what the doctors said when, and after, my diagnosis. I can literally remember seeing their mouths moving, but not one word went in. They were wonderful and empathetic doctors, but I should have had counselling during and after. I'm almost 12 months in. I had enucleation. I'm scared I'm going to die young. I hate how I look. I cope ok some days, others I have bouts of crying. I have a low grade of PTSD. It hasn't been fun.
Hello Debra. I do hope you are well. My husband is due to have his left eye removed next week. Its a very scary journey. My prayers are with you and god bless you have a wonderful pain and symptom free long life.😊
I'm very sorry Debra, I do know how you feel. I lost my left eye to this 10 years ago, I have a nevus in my right eye and have to go to eye specialists often.
Hey dr.damaato... my boy which, you did an enocilation, is doing. Just fine...he is doing amazing!!!!! Thankyou you are World Class
I swear I missed 75% of what the doctors said when, and after, my diagnosis. I can literally remember seeing their mouths moving, but not one word went in. They were wonderful and empathetic doctors, but I should have had counselling during and after. I'm almost 12 months in. I had enucleation. I'm scared I'm going to die young. I hate how I look. I cope ok some days, others I have bouts of crying. I have a low grade of PTSD. It hasn't been fun.
Hello Debra. I do hope you are well. My husband is due to have his left eye removed next week. Its a very scary journey. My prayers are with you and god bless you have a wonderful pain and symptom free long life.😊
I'm very sorry Debra, I do know how you feel. I lost my left eye to this 10 years ago, I have a nevus in my right eye and have to go to eye specialists often.
Thanks Mary - I'm doing a bit better.. and just had the all clear from my latest scans. I love hearing from long term survivers :)