As affected LHON patient and past experience taking Idebenone 1500 mg/day I had great results in regaining vision and after stopping taking it for almost a decade now all vision gains have stayed and I have not lost any more vision if that's ever concern lol All inflow is on my channel my first 20 videos document all of it :-)
@@uchihaitachi3384 Yes I have 11778 mutation you should go over to my TH-cam channel and check out all my videos all the way back from 2011 and the things I'm doing now :-) @ The genetic house I'm about to start doing live call-in shows and interviews to put our story on the record somewhere cuz that doesn't exist haha
@@uchihaitachi3384 I lost my vision in 2004 and I'm not sure what you're talking about me taking lol currently I'm not taking any vitamins or pills All I do is ozone for the multiple sclerosis cuz I have LHON plus now I guess haha
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As affected LHON patient and past experience taking Idebenone 1500 mg/day I had great results in regaining vision and after stopping taking it for almost a decade now all vision gains have stayed and I have not lost any more vision if that's ever concern lol All inflow is on my channel my first 20 videos document all of it :-)
Hi
That's amazing to hear. I'm also affected. Can i ask how long have you been taking it and which mutation type do you have?
@@uchihaitachi3384 Yes I have 11778 mutation you should go over to my TH-cam channel and check out all my videos all the way back from 2011 and the things I'm doing now :-) @ The genetic house
I'm about to start doing live call-in shows and interviews to put our story on the record somewhere cuz that doesn't exist haha
Hey I got diagnosed and can't find IDbeneone anywhere online
Do you know where to get it from
@@uchihaitachi3384 I lost my vision in 2004 and I'm not sure what you're talking about me taking lol currently I'm not taking any vitamins or pills All I do is ozone for the multiple sclerosis cuz I have LHON plus now I guess haha
@@uchihaitachi3384 oh and I have 11778
Ubiquinone from what?
I think the duration you should take Idebenone is until you get your driver's license back! Lol