The joint pain is definitely so bad!!! Icy hot patches can be a fav if my skin is tolerating them or creams if not. I definitely love heat, so my favourite ways to work with joint pain is heat therapy. I have a massive electric blanket I keep on my bed, I love baths when my POTs isn’t too bad, I’ve got all kinds of smaller heat pads and things like that!! I know a lot of people do better with ice, so try both and see if they help with anything!! If it’s a really bad joint pain day, I wrap it up with either braces or tape and rest it. In the long term, gentle stretching and strength building can help a lot, but only with doctor approval. I see a PT regularly and it helps a lot, I suggest looking for one who knows hypermobility or chronic pain if they don’t have hypermobility. I don’t know if any of that’s helpful, but like I said, heat is definitely my favourite thing. I’m just a little lizard lol. It just takes some trial and error to figure out what works best!
I am diagnosed with eds, do u have any advice with joint pain specifically? I find it the worst half the time
The joint pain is definitely so bad!!! Icy hot patches can be a fav if my skin is tolerating them or creams if not. I definitely love heat, so my favourite ways to work with joint pain is heat therapy. I have a massive electric blanket I keep on my bed, I love baths when my POTs isn’t too bad, I’ve got all kinds of smaller heat pads and things like that!! I know a lot of people do better with ice, so try both and see if they help with anything!! If it’s a really bad joint pain day, I wrap it up with either braces or tape and rest it. In the long term, gentle stretching and strength building can help a lot, but only with doctor approval. I see a PT regularly and it helps a lot, I suggest looking for one who knows hypermobility or chronic pain if they don’t have hypermobility.
I don’t know if any of that’s helpful, but like I said, heat is definitely my favourite thing. I’m just a little lizard lol. It just takes some trial and error to figure out what works best!