Interview with my cousin: Ankylosing Spondylitis

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  • เผยแพร่เมื่อ 27 พ.ย. 2024

ความคิดเห็น • 8

  • @Jaggededge112
    @Jaggededge112 2 ปีที่แล้ว

    My pain has been so bad lately. They put me on nasal ketamine and it seems to help might change to the capsule form next month though. It doesn’t matter what I do rest or movement it doesn’t help.

    • @MandasMusings
      @MandasMusings  2 ปีที่แล้ว +1

      Oh dear! I’m so sorry that you have to go through this. I know it’s not a huge comfort but know that you’re not alone.

    • @Jaggededge112
      @Jaggededge112 2 ปีที่แล้ว +1

      Oh got my new back and new seat cushion for the wheelchair. What a difference. The seat back really cradles my back and provides some stability which I’ve been needing. I got a ROHO seat and it’s pretty cool. Way different to what I’m used to but won’t take long to get accustomed to it.

    • @Jaggededge112
      @Jaggededge112 2 ปีที่แล้ว

      @@MandasMusings thank you. I know it is unseemly for a lady to scream in pain but sometimes I just want to, but being a lady and a marine keeps me from doing it. No I just sit in my room and cry where no one has to witness it.

    • @MandasMusings
      @MandasMusings  2 ปีที่แล้ว +1

      I’m so glad that you have found something that helps, even a little bit. Sometimes it’s those small things that can make all the difference.

  • @Jaggededge112
    @Jaggededge112 2 ปีที่แล้ว +1

    Well I see the resemblance lmao 🤣 y’all could be twins.

    • @MandasMusings
      @MandasMusings  2 ปีที่แล้ว +1

      You’re definitely not wrong and not the first to make that comment! 😆 We’ve heard that one our entire lives. 😊

    • @Jaggededge112
      @Jaggededge112 2 ปีที่แล้ว

      @@MandasMusings well you’re both lovely ladies! It sucks to have so much pain in our lives.